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People posting pics of their children in hospital online

108 replies

Rolson77 · 25/04/2024 19:25

Why is this a thing? A friend (old school friend, we dont really speak other than in passing) of mine just 3 weeks ago had a normal amount of followers/friends online. Now her daughter is in hospital with a serious illness and she's opened up her social media, now has over 30k followers, because of the pics she's posting of her daughter online. One of them is her daughter crying with a dr/nurse putting a needle in her back. Another of her hand with a bloody cannula in it describing how she keeps pulling it out. Etc. Her daughter is 7 and cannot give informed consent for this. I don't know why it's pissed me off so much. Is this normal? Using your kids' illness to get likes and followers?

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Sheknowsaboutme · 27/04/2024 19:06

I know a mum who does this. I dont get her posts anymore as ive muted her.

3 kids and the all have some kind of ailments.

no wonder she can’t keep a job down. Id not employ a woman like this who’s thriving off her kids having all sorts

Kendodd · 27/04/2024 11:23

Sadly, and trying to be as sensitive as possible. I think it's different for children who have died or were not expected to live. Simply because, sadly, they are not around to object as adults and so anything that gives the parents comfort is worth it.

Kendodd · 27/04/2024 11:19

TheaBrandt · 27/04/2024 08:20

I think in the future people will look back and be horrified at the widespread sharing of children’s pictures. They can’t consent and it’s of zero benefit to them. It’s all for the parents ego.

We all have teens now and thinking about it SM use in my wider friendship group has fallen off a cliff. Most people barely post anything just the odd snap of a nice view or funny incident in their own life. Nothing of teens. Dd recently passed her driving test - family WhatsApp only.

I agree.
I think very few adults will be grateful they were plastered all over the Internet as children. Especially when in vulnerable states.

SleepingStandingUp · 27/04/2024 10:07

Children in hospital are not always distressed. Some of them aren't even ill
Exactly. When I was holding him down so they could try again to get a cannula in, I was 100% focused on him. When he was sobbing in my arms, I was 100% focused on him. When he was woozy from post op I held him and I was 100% focused on him. But that wasn't everything of 18 months in and out.

He turned one connected to tubes but smiley and happy, enjoying all the attention, not in pain.

He did his first steps in a walker in hospital.

He ate his first foods post op in hospital.

He giggled like crazy at plastic eggs in hospital.

He hung out with his cousins and friends in hospital.

We recorded and shared every moment we could in case we didn't get any more moments.

TheaBrandt · 27/04/2024 08:20

I think in the future people will look back and be horrified at the widespread sharing of children’s pictures. They can’t consent and it’s of zero benefit to them. It’s all for the parents ego.

We all have teens now and thinking about it SM use in my wider friendship group has fallen off a cliff. Most people barely post anything just the odd snap of a nice view or funny incident in their own life. Nothing of teens. Dd recently passed her driving test - family WhatsApp only.

Orangeandgold · 27/04/2024 06:18

I agree. Unless I was spreading awareness or something I wouldn’t personally.

I know lots of people use social media like a diary and they would see this act as posting something that has happened.

I personally don’t like posting my children on social s - I do on occasion, but think we should protect them.

Tahinii · 27/04/2024 04:13

Rolson77 · 26/04/2024 16:47

I don't find it acceptable that anyone posts any photos of their children on the Internet.

But you specifically posted not to say that it’s unacceptable to post children online at all but to comment on children undergoing medical treatment!

I choose not to post my children online but I have zero issue with people posting photos if they have a secure profile and want to share. Whipping out the camera when James is screaming in A&E having stitches is incomparable to taking a photo when your child practically lives in a hospital. It’s not for me to judge someone in the latter situation- I cannot imagine how hard it must be.

Rolson77 · 26/04/2024 23:11

Remmy123 · 26/04/2024 17:07

Loads of parents post their kids cancer journey on instagram and their child at their weakess I think it's disgraceful.

I can't even imagine what it would be like getting your first social media account, probably as a child, and scrolling back through your mum's account and seeing photos of yourself going through treatment.

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Riverlee · 26/04/2024 18:33

Also, was in fracture clinic recently, and in the plaster room, they he as a sign up asking people not to take photographs or videos.

Riverlee · 26/04/2024 18:31

My dc was in hospital twenty years ago so before social media etc. My dm ( dc’s grandmother) took photos of my son then (without my permission). I remember thinking then, he’s not on holiday!

Home1mprov3ments · 26/04/2024 18:25

Because it was the only thing I could do with him without having to ask permission first. I had to ask the nurses if I wanted to feed him, cuddle him or change his nappy. Taking photos of him without having to ask first made me feel more like his mum in the early days when I felt like he belonged to the hospital.

God yes this is so true.

elliejjtiny · 26/04/2024 18:22

I took daily photos of my son in nicu with a little update on facebook. I don't have random people I barely know on there, all of my facebook friends are my actual friends/relatives. Because it was the only thing I could do with him without having to ask permission first. I had to ask the nurses if I wanted to feed him, cuddle him or change his nappy. Taking photos of him without having to ask first made me feel more like his mum in the early days when I felt like he belonged to the hospital.

Sometimes I think a lot of people don't realise what it's like in hospital with a child who is always in and out. And it's not just the child who is a patient either. Some siblings spend lots of time in hospital, one of my fondest memories is of my nearly 3 year old pushing a walker thing up and down the corridors looking very pleased with himself and saying "look mummy, I is walking". I wish I'd got a video of that actually.

Children in hospital are not always distressed. Some of them aren't even ill.

Shopper727 · 26/04/2024 17:58

I’ve many pics of my son in hospital when he has been in, many times with his asthma some on 02 some on nebs but only when he’s happy and playing and none were posted on social media. When he got his cannula he was so out of it he’d have not known if I was videotaping him however my thoughts were with my baby boy almost going to picu to be ventilated and I was speaking to him and holding his hand letting him know I was there. Which is where I should be, not clutching my phone waiting for an opportunity to video him at his most vulnerable.

As a paeds nurse, was in the ward for 18 years we had a no phones in the treatment rooms policy we had a big tv connected to internet for kids to watch something but no taping anything or pics etc the majority didn’t. But pics of newborns in nicu - i have one of my son the nurses took before he was wired up to ng/02 etc nothing was posted of him though.

TeapotTitties · 26/04/2024 17:53

SleepingStandingUp · 26/04/2024 17:32

Whereas my photos taken of DS in ICU were in case we never got to any more again. Different things matter to different people. We were on there a week both times, plenty of time for cute photos without him being in distress or interfering with his treatment. My favourite was on the day of JD strikes and he's holding his hand like he's sticking his middle finger up. Posted that one in support of our amazing doctors

My favourite was on the day of JD strikes and he's holding his hand like he's sticking his middle finger up. Posted that one in support of our amazing doctors

Christ, instead of using an innocent baby to make a point who gets no say, why didn't you stick your own middle finger up and put your face on the internet?

YabbaDabbaDooooo · 26/04/2024 17:50

If someone was lucky enough to take their healthy baby straight home after birth, nobody would think twice about them posting a photo. In fact, it would be seen as weird if you didn't share a photo of a new baby, ideally in hospital straight after birth.

This is not true at all.

Plenty of people don't agree with posting other people's images on the internet.

It's not seen as 'weird' at all not to, and I think it's depressing you think it might.

DarkDarkNight · 26/04/2024 17:35

Because they are massive attention seekers. It’s really terrible invasion of privacy when a child is at their most vulnerable.

SleepingStandingUp · 26/04/2024 17:32

Cygnetmad · 26/04/2024 11:45

attention seeking. nothing else. My DC were in hospital a fair few times. One was in ICU twice. I don't even have any photos from them being inpatient. Taking pics was the last thing on my mind.

Whereas my photos taken of DS in ICU were in case we never got to any more again. Different things matter to different people. We were on there a week both times, plenty of time for cute photos without him being in distress or interfering with his treatment. My favourite was on the day of JD strikes and he's holding his hand like he's sticking his middle finger up. Posted that one in support of our amazing doctors

SleepingStandingUp · 26/04/2024 17:11

Chunkycookie · 25/04/2024 19:32

I find it sickening to be honest.

One of my children was in NICU. The staff had to remind me to take photos, or I wouldn’t have had any of his first few weeks of life. I was so frightened and focused on him that I just didn’t think of it.

I couldn’t imagine Then uploading those photos to the internet.

Different people cope on different ways. For me putting photos on FB when he was a few days old was a way of a. Collectively telling people what had happened so they didn't worry b. Securing his place in the universe. I wanted people to see him whilst he was alive. I wanted to have him in as many people's memories as possible in case he died. I wanted him in as many people's prayers in case they worked. When he was in for 4 months at 1 is was a way of staying connected to the outside world, keeping people updated without having to maintain 50 conversations etc.

Easy to assume people are just not as good parent as you / love their child less etc but different people cope differently and need different things

Home1mprov3ments · 26/04/2024 17:08

Chunkycookie · 25/04/2024 19:32

I find it sickening to be honest.

One of my children was in NICU. The staff had to remind me to take photos, or I wouldn’t have had any of his first few weeks of life. I was so frightened and focused on him that I just didn’t think of it.

I couldn’t imagine Then uploading those photos to the internet.

If someone was lucky enough to take their healthy baby straight home after birth, nobody would think twice about them posting a photo. In fact, it would be seen as weird if you didn't share a photo of a new baby, ideally in hospital straight after birth.

Why should parents of a baby in nicu not get to take and share photos of their baby? Their experience is just as valid as anyone else's with a new baby.

So you didn't want to do that, that's all well and good, but kindly lay off on the judging of parents who do want to share photos of their new baby with friends and family.

I wouldn't share a photo of a distressed 7 year old having a procedure done, but some dc spend a lot of time in hospital - should those parents never post anything about their children until they're well enough to be socially acceptable and with no visible signs of illness again?

Remmy123 · 26/04/2024 17:07

Loads of parents post their kids cancer journey on instagram and their child at their weakess I think it's disgraceful.

Rolson77 · 26/04/2024 16:47

everythingthelighttouches · 26/04/2024 12:15

Do you find it acceptable that parents put a photo of their newborn baby on social media?? Do you worry about their consent?

I hardly use social media these days and there are a mere handful of photos of my child on Facebook.(he’s older now).

but my newborn photo on Facebook (closed to friends only). Unfortunately for him and me, he was on a ventilator and had numerous lines going into him.

I wish that wasn’t my newborn photo but life is not fair. We didn’t know he would live or die so it may easily have been the only photo I could ever share of him.

Is it more distasteful that I share my newborn photo than everyone else?

I don't find it acceptable that anyone posts any photos of their children on the Internet.

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everythingthelighttouches · 26/04/2024 12:15

ThursdayTomorrow · 25/04/2024 21:50

I’ve no problem with parents photographing their child in hospital (as long as they aren’t in distress and needing comfort). I don’t think parents should share photos of it on social media. The child cannot give informed consent and the photos can be misused.

Do you find it acceptable that parents put a photo of their newborn baby on social media?? Do you worry about their consent?

I hardly use social media these days and there are a mere handful of photos of my child on Facebook.(he’s older now).

but my newborn photo on Facebook (closed to friends only). Unfortunately for him and me, he was on a ventilator and had numerous lines going into him.

I wish that wasn’t my newborn photo but life is not fair. We didn’t know he would live or die so it may easily have been the only photo I could ever share of him.

Is it more distasteful that I share my newborn photo than everyone else?

Toddlerteaplease · 26/04/2024 12:03

Ivalueloyaltyaboveallelse · 25/04/2024 20:10

I used to work in theatres and we regularly had to ask parents not to make videos or take photos of their children and the staff in the anaesthetic room. I know many nurses in the recovery area and the HCAs in reception that have been verbally abused for also reminding parents the same. Honestly we don’t say it to be mean it’s a matter of safety, privacy and respect.

Fortunately I've not had that yet.

albapunk · 26/04/2024 12:02

I know a couple who regularly repost pictures of their newborn who sadly passed a few weeks after birth. The photo is actually quite distressing to look at, taken quite a while after the death in the hospital, the baby definitely does not just look asleep or unwell.

I absolutely understand why the parents took
photos, losing a child must be utterly heartbreaking and somewhere they will never get over.

I'm not sure why they regularly share the photos on Facebook, with a lot of non friends/family on public accounts too.

Many of my friends and family have shared update photos of their children in hosptial but only on accounts that are limited to close friends and family and I guess it's easier than lots of messages.

Coatsoff42 · 26/04/2024 12:01

Look at the problem Grindr had after sharing users private information with loads of advertisers, access to HIV status etc, you have to be really careful what information you choose to share on behalf of your children.
Facebook has tonnes of advertisers accessing your posts, be super sure it is in your child’s best interests long term to share this stuff.

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