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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think if we can't get help, who can?

244 replies

drspouse · 22/04/2024 20:38

DS (12) has ADHD and can be aggressive. We are seeing positive changes but he can still flip on the drop of a hat and last week threw something at me that made my head bleed, DH took him out to cool off, I had called the police and they had arrived meantime and this triggers social services to call which is why we do it.
Had a really patronising, I felt, call from social services today. They keep saying we've "refused services", throwing names around (names of people we may have met but we've met about 20 new people and some have actually rung DH or seen him not me, and names of services that we may or may not have been told about).

We have recently been awarded respite which is supposed to be a certain number of hours but none of the agencies can find us any workers and the SW acted surprised (despite there being a national care recruitment crisis). I contacted a mentoring agency - they charge £75/HR and we get minimum wage to pay the worker...

Both DH and I thought we were told we'd be getting a disability social worker. Apparently we should know he has the wrong sort of disability so no social worker.

We are fully aware that we don't always handle him well and the incident last week has also left me with bruises but it was the result of me telling him off for ignoring my instructions and he then pushed me against the metal radiator so I fell over and then he threw cutlery at me. I completely lost my cool as I was covered in blood and I wish I didn't because it just makes DS more wound up and more aggressive.

We've asked for help around staying calm and our mental health (because we are on edge wondering which day he will throw a kitchen knife or push someone down the stairs, and because we don't know how not to react when we are bleeding or bruised). We also want someone to help us with how we handle him and what to do when he's dysregulated. We were explicitly asked "what do you think you need" only to be told "we don't provide that" and then apparently we'd "refused services".

We've been told about 20 times to "call your GP". We've both been through their CBT course twice, me three times, and we're both on medication.

We are at risk of being seriously hurt. We are afraid for our lives and safety. But nobody can do anything about it. What are we supposed to do - wait till one of us is dead? Until he's in prison? Until he's old enough for us to say he has to move out and then he'll just be on the streets and on drugs but we might still be alive?

OP posts:
Thread gallery
8
Attention · 17/06/2024 18:25

What I meant is, would housing really put a registered blind 16 year old in a 'standard' hostel with no additional care?

Attention · 17/06/2024 18:23

Hostels surely aren't suitable for a registered blind young person with other disabilities though @PineappleTime ?

What the young woman needs is a residential setting, eg assisted living, with 2:1 care as she's violent (I know of several young people in this sort of set-up). That is of course very hard to achieve, but I would have thought that the DD's disabilities would put her towards the top of the list.

PineappleTime · 17/06/2024 18:15

ThisOldThang · 17/06/2024 17:32

That sounds terrible.

You need to prioritise your younger daughter.

Can you write to the council and tell them that the 16 year old can no longer live with you and will be homeless at the end of the week?

The local authority have already accepted that she needs to be housed but you can't magic up a suitable placement by saying 'well she's homeless now, your problem'
Social care will never intentionally place in a hostel because it's very risky. But now that she's 16 and presumably at the end of year 11 housing could place her in a hostel. @WhompingWillows i don't know if you're aware of that. The options for a homeless 16 year old out of year 11 are somewhat better than for an aggressive 15 year old in her GCSE year as she couldn't be placed in a hostel and no foster placement will take her. Residential care might have been an option if you could have got them to agree but it's probably too late.
if you are ok with her being placed in a hostel (and no judgement if you are! That wasn't a loaded statement) you can refuse to have her back the next time she's arrested for assaulting you or her sister. Emergency housing is available, though it's short term and shit. But once you've got her placed somewhere, anywhere, she's more likely to get into a slightly more decent provision.

Attention · 17/06/2024 17:54

@Chucklit I just wanted to acknowledge your post - I'm sorry you're going through what you are, it's a lonely-feeling place to be in Flowers

ThisOldThang · 17/06/2024 17:32

That sounds terrible.

You need to prioritise your younger daughter.

Can you write to the council and tell them that the 16 year old can no longer live with you and will be homeless at the end of the week?

WhompingWillows · 17/06/2024 17:25

ThisOldThang · 17/06/2024 14:55

Okay, so what's the end game - failed adoption?

Possibly/probably. As there is no real, meaningful support from Children’s Social Care. My adopted daughter of 16 made a false allegation of assault against me and I can’t guarantee that she won’t do the same again. In the meantime, my adopted daughter of eight and I are physically and verbally abused on a regular basis. Following my arrest, my teen went to live with my elderly mum for six weeks (after she was manipulated by social workers) and then, as a result of managing the extreme behaviours, was diagnosed with stress-induced psychosis. My mum has the crisis team visiting every other day and she is starting to go missing. We have had to put together a missing persons profile for her.

My LA agreed a S20 (voluntary accommodation) back in March but they have conceded that they will be unlikely to find a suitable foster placement that would be able to meet her needs. So she is still living with me and still assaulting me. I have tried my absolute best for 15.5 years but I think I deserve to have some quality of life and happiness now. More importantly, my younger daughter deserves to have a childhood without violence and without being told told to ‘fuck off, you little cunt’ on a daily basis.

ThisOldThang · 17/06/2024 14:55

Okay, so what's the end game - failed adoption?

WhompingWillows · 17/06/2024 14:48

ThisOldThang · 17/06/2024 13:39

The problem with the 'I de-escalate in my job' responses is that the guidance is aimed at teachers, etc.

If a child is violent in school, they can de-escalate by giving in. The safety of the staff is the primary goal, followed by the safety of the other children. It doesn't matter if this results in worse and worse behaviour, because the end game will be permanent exclusion of the child to restore a safe environment.

What is the end game for a family? Adoption?

@ThisOldThang

I’m already an adopter (twice over) as is the OP.

Attention · 17/06/2024 14:08

@WhompingWillows its the siblings who are often forgotten in all of this.

@JenniferBooth yes it can be, which is why I suggested to the OP she do what she can to remove her DD from being next to her DS at triggering times (including feeding them separately as suggested by a PP). So as to protect the DD who the OP has a duty of care to, because the DS has been pulling his sister’s hair when triggered.

WhompingWillows then suggested the OP call the police every time her DS is violent. The OP has already called them at least once, and it seems the hospital did too; both times she was hurt. But she can’t reasonably call the police every time the DS pulls his sister’s hair, so she needs other strategies.

ThisOldThang · 17/06/2024 13:39

The problem with the 'I de-escalate in my job' responses is that the guidance is aimed at teachers, etc.

If a child is violent in school, they can de-escalate by giving in. The safety of the staff is the primary goal, followed by the safety of the other children. It doesn't matter if this results in worse and worse behaviour, because the end game will be permanent exclusion of the child to restore a safe environment.

What is the end game for a family? Adoption?

drspouse · 17/06/2024 08:25

Thanks, I have heard of Care for the Family but wasn't really aware of what they did.

OP posts:
Commonsense22 · 17/06/2024 06:18

drspouse · 16/06/2024 18:18

@Attention I did think I'd given you a full reply - apologies if not - I don't think I know everything but I know a lot about what does and doesn't work for my DS and I also know about what might give us temporary, partial relief but doesn't work for more than half a day e.g. the time when we were due to go to church, he was aggressive for a fairly unrelated reason, but DH was also ill so we didn't go, and the next day DS said (about a more generally appealing outing, in fact) "I'll just be naughty and then I won't have to go".
It would be lovely if the things we know work, worked all the time and perfectly - but just like with his medication - they don't, they just help, they don't fix things. It is just that we are not that patient, but from experience schools are even less patient and expect a change to make him a happy and calm child overnight. I could tell this is what his first school thought medication for ADHD would do and we had no illusions it would.

@WhompingWillows thank you so much - totally agree about Newbold Hope - I am minded of the girl who was permanently wrapped in a blanket with menstrual blood dripping down her legs but was STILL aggressive towards her family and they couldn't understand why because they'd reduced all demands.
I have not fully investigated those organisations, I will check them out.

More generally - yes, we and school find a lot of things labelled "autism friendly" to be helpful but others not so much - again, we use things we've tried and found helpful - but even just "using new things that might be helpful" are VERY unlikely to be taken on board by DS first time and we do often have to say "we are doing this, like it or lump it" and then three days later it's a part of his routine.

For example, I wanted to make some new routine pictures to help him with EF and things like putting on his deodorant BEFORE clothes. I wanted to take photos of him doing his regular things (because research shows this is easier than using stock photos or, worst of all, widgets that I don't understand either!) and the first day it was like I'd asked him to fly to the moon, the second day (because it was getting long and boring) he grumped but agreed to it and the third day (when we'd found one of the things we needed to photograph) he asked how many photos today.

When I get them printed out it will be the same thing - he'll throw them across the floor the first time we show them to him, then he'll look at them but pretend he hasn't, then he'll tell us WE haven't looked at them.

@drspouse have you accessed help from charities like thse?

https://hopeforfamilies.org.uk/parenting
This one has a specific session for helping families manage ADHD related anger issues by the looks of it.

And I have heard excellent things about this charity who also offer support to families like yours:

https://www.careforthefamily.org.uk/

Parenting — Hope For Families

https://hopeforfamilies.org.uk/parenting

Commonsense22 · 17/06/2024 06:12

drspouse · 22/04/2024 22:22

I'm not Catholic but honestly this isn't a bad idea. I've been using Anglican prayers at night but they aren't quite right as they are a bit "be with us now and at the hour of our death" which is a bit close to home sometimes.

OP, If you are open to it, find a suitable church nearby.
Many of them have programs / classes for children with SEN. There will be more support available than through anywhere else. And people to cry with, pray with.

You might be surprised at the impact.

Edit: just seen you go to church. Could you maybe find one with such programs?

Chucklit · 17/06/2024 01:46

I have a similar situation.
12 year old DD has been attacking since the age of 7. She's left countless bruises, scratches from her nails, even a black eye when she punched me in the face so hard that my glasses shot across the room.
The GP and I highly suspect that she's autistic but the only way to get a referral in my area is via school and she's now regularly refusing to attend so they can't do the observations needed.
I’m a lone parent. So have no support at all here. It's a gut wrenching feeling to carry every day. Walking on eggshells.
I hope you get the help you need OP Flowers

WhompingWillows · 17/06/2024 00:51

@drspouse

Just to add, if you have not already, please, if you are in England, ask your adoption agency to refer you to the National Centre for Adoption and Fostering at the South London Maudsley Hospital. This national CAMHS centre offers EVIDENCE-BASED assessments of our children (so not your PASW guessing everything = attachment because adoption and CSC guessing everything = poor parenting because safeguarding and child protection). The cost of the initial assessment will be funded by the ASF. You will then know what you are dealing with and you can negotiate appropriate therapies accordingly. So not your adoption agency offering you ten sessions of play/drama/art/useless therapies because that’s all they can offer because they have signed preferred supplier contracts with big providers.

Also, in opposition to some posters here, I would call the police every time your AS is violent. You have a duty to safeguard your AD who is witnessing these attacks on you. I have personally found the police to be the most sympathetic and empathetic of the professional services - even when they were arresting me on a false allegation of assault. The police do not want to criminalise our children but they do want to offer early prevention work that stops them entering the criminal justice system. From a self-preservation point of view, it is helpful to have a log of police visits to your home for as and when the first allegation is made against you.

Attention · 16/06/2024 23:51

@drspouse I’ll ask again, have you tried anti-anxiety medication for your DS’s anxiety?

PEGS, which you’ve just told WhompingWillows you’ll check out, was suggested to you back in April by someone else on this thread. You said then you’d spoken to the nice man at PEGS who’d given you lots of pointers about finding a restraint course - did nothing come of that?

I’m a bit bewildered tbh that you seem more focused on talking about how much he helps around the house and now what you’re doing about his hygiene routine than on what you’re doing to sort out the escalating violence against you and your DS getting arrested for it.

You have a younger child in the house who he’s hurting and who you have a duty to protect. If, to use one of your examples, he pulls her hair when he finds out that the shop is shut, then move her away from him before telling him the shop is shut, or anything else he may not like.

As a PP suggested, feed the children separately as he’s aggressive/physical with his sister at the dining table.

These are pragmatic, common sense strategies that you don’t need organisations or evidence based research to tell you. But you need to prioritise keeping your DD safe, as well as of course yourself.

drspouse · 16/06/2024 18:18

@Attention I did think I'd given you a full reply - apologies if not - I don't think I know everything but I know a lot about what does and doesn't work for my DS and I also know about what might give us temporary, partial relief but doesn't work for more than half a day e.g. the time when we were due to go to church, he was aggressive for a fairly unrelated reason, but DH was also ill so we didn't go, and the next day DS said (about a more generally appealing outing, in fact) "I'll just be naughty and then I won't have to go".
It would be lovely if the things we know work, worked all the time and perfectly - but just like with his medication - they don't, they just help, they don't fix things. It is just that we are not that patient, but from experience schools are even less patient and expect a change to make him a happy and calm child overnight. I could tell this is what his first school thought medication for ADHD would do and we had no illusions it would.

@WhompingWillows thank you so much - totally agree about Newbold Hope - I am minded of the girl who was permanently wrapped in a blanket with menstrual blood dripping down her legs but was STILL aggressive towards her family and they couldn't understand why because they'd reduced all demands.
I have not fully investigated those organisations, I will check them out.

More generally - yes, we and school find a lot of things labelled "autism friendly" to be helpful but others not so much - again, we use things we've tried and found helpful - but even just "using new things that might be helpful" are VERY unlikely to be taken on board by DS first time and we do often have to say "we are doing this, like it or lump it" and then three days later it's a part of his routine.

For example, I wanted to make some new routine pictures to help him with EF and things like putting on his deodorant BEFORE clothes. I wanted to take photos of him doing his regular things (because research shows this is easier than using stock photos or, worst of all, widgets that I don't understand either!) and the first day it was like I'd asked him to fly to the moon, the second day (because it was getting long and boring) he grumped but agreed to it and the third day (when we'd found one of the things we needed to photograph) he asked how many photos today.

When I get them printed out it will be the same thing - he'll throw them across the floor the first time we show them to him, then he'll look at them but pretend he hasn't, then he'll tell us WE haven't looked at them.

OP posts:
WhompingWillows · 16/06/2024 17:55

@drspouse

Just to add, I agree with you re: the NewboldHope (cult). I was on the group/site briefly. I got kicked off because a poor woman posted asking what she should do because her child had fractured her eye socket and nearly blinded her. My response of call the police absolutely did not go down well. Regardless of their multiple issues, our children have to function in society, be it on the fringes. As adults, they will be given no leeway for fracturing the eye socket and nearly blinding another human being. I also hate the cult of NVR. Are adult victims of domestic abuse asked not to dysregulate their abusers? No, they are not and we would all be appalled at the victim blaming. The truth is that some children, probably majorly due to their poor starts in life or their disabilities or differences, ARE violent. As a fellow victim, it would really help if society stopped gaslighting me. It does happen, it’s not my fault and it’s a consequence of what’s gone before.

WhompingWillows · 16/06/2024 16:19

@drspouse

Fellow adoptive parent here (👋🌊 - emojis chosen to represent not waving but drowning!) Forgive me if you simply want a rant, to which you are perfectly entitled, and I am most definitely not going to teach my grandmother to suck eggs. My AD1 is 16 now and she has the following diagnoses: registered blind / autism / ADHD / neonatal abstinence syndrome / probably FASD (but hard to get diagnosis) and binge eating disorder. You will most likely know that the extent of your AS’s conditions/disgnoses will not just be ADHD. You will know also that there is significant overlap between trauma, neurodivergence and attachment disorders. Are our children correctly diagnosed? No, probably not but we take the diagnoses the physicians who are not necessarily versed in children who live with trauma are willing to give. We take anything that will help our children.

My AD1 is extremely violent, aggressive and verbally abusive. She makes false allegations against me (I have been arrested, detained in custody for 21 hours and interviewed under caution). I have been taken through Child Protection proceedings. I have AD2(8) who is a victim of her non-birth-related sister’s violence and abuse. Honestly, I think you need to stop expecting help from CSC: they do not get adoption and the needs of children who have suffered the most primal wound of all ie being removed from the person who carried them for nine months. There is very little training for SWs on adoption, trauma, the in utero effects of exposure to drugs, alcohol, domestic abuse, chaotic lifestyles and the heritability factors of neurodivergence and mental health disorders. CSC is heavily weighted towards safeguarding and parent blaming and shaming. Child-on-parent violence and abuse is a subject that people really don’t want to talk about, especially SWs.

Please, I urge you to make contact with PEGS and CAPA First Response which are both organisations doing brilliant but very different work in the field of child-on-parent violence and abuse. You will be seen and you will be heard. And none of this is your fault. It is all because of what went before.

Attention · 16/06/2024 15:40

@Spendonsend “A lot” of overlap between ASD and ADHD (AuDHD by its definition is a combo) is something some people with ADHD and ASD would disagree with! Personally I’d go with “some” rather than “a lot”. ASD and ADHD are distinct conditions, although in at approx 50% of cases people will have both, which again presents differently.

Some of the best advice we received, from a family therapist, was to see AuDHD almost as a separate condition. It’s a difficult one primarily because there’s some opposing contests between ADHD and ASD: spontaneity v routine, impulsivity v rigidity. Etc.

But it absolutely matters for school which is one of the OP’s central issues.

Aldo, part of why I made the point to the OP about it not just being ADHD (whether the ‘as well as’ is ASD, trauma, anxiety, FASD or all of the above) is to correct her on a couple of the categoric but incorrect statements she made about ADHD. As much for the benefit of anyone else reading. But the OP ignored that, went on to lecture me about ADHD despite me having it and her not, and when I pointed that out, came back on but ignored my point and hasn’t apologised.

To be brutally blunt - like I said earlier, having been in a situation where I had to call the police because my autistic & ADHD child had a MH crisis and was violent - if the OP really did know what she’s talking about and what works best, she wouldn’t be in a situation where her son has deliberately physically attacked the OP, resulting in her to go to hospital twice in several weeks.

JenniferBooth · 16/06/2024 15:36

Im going to ask...................how is his sister dealing with it? How old is she

Spendonsend · 16/06/2024 15:04

Attention · 16/06/2024 14:20

It may help an extra diagnosis opens up different schools or services or medication I suppose.

It absolutely does @Spendonsend The OP herself has said in her posts that certain schools they may consider won’t take her DS because he doesn’t have ASD.

And yes, there definitely is different techniques to dealing with ADHD v AuDHD v ASD, even though of course there’s some overlap. Just in my own home I have one with AuDHD and one with ADHD and how we parent them is a bit different, because there needs are different.

I appreciate children with different needs need different parenting. Two children with asd aren't going to respond to all the exact same strategies either. Social stories and timetables are not for my son for instance.

I suppose what I meant was asd, adhd and audhd are spectrum disorders with a lot of overlap and therefore the techniques to help are a spectrum too which you tailor to the child you have and it's always useful to have a little wander across techniques used in other nerodevelopmental disorder to see if any fit.

Attention · 16/06/2024 14:28

*their 😳

Attention · 16/06/2024 14:20

It may help an extra diagnosis opens up different schools or services or medication I suppose.

It absolutely does @Spendonsend The OP herself has said in her posts that certain schools they may consider won’t take her DS because he doesn’t have ASD.

And yes, there definitely is different techniques to dealing with ADHD v AuDHD v ASD, even though of course there’s some overlap. Just in my own home I have one with AuDHD and one with ADHD and how we parent them is a bit different, because there needs are different.