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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Life is crucifying me

31 replies

Lucylou07 · 21/04/2024 09:54

I work six days a week. Husband does too. Four bed semi (three beds but a converted loft) in the south. We have one child with SEN, fairly high needs (think violence, trashing rooms, anxiety, having to dress him, refusal for hair cuts) and will soon be going to a special school, and another child, who bless him, we try not to neglect but he is fairly independent as far as six year olds go.

We don't go out. We do free activities with the kids. We don't buy costly snacks (one child is gluten free so it would cost the earth!). We don't really buy clothes and if we do it's second hand. No flashy cars.

But we just don't have an awful lot of money. This house is probably too expensive for our income but we've only just moved here and our SEN child is so much more settled.

Working six days a week and looking after him is breaking my mental health though. I'm permanently tired and have gained a lot of weight.

I don't even know what my aibu is....
Aibu to be finding this hard?

OP posts:
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Scarletttulips · 28/05/2024 08:12

I’m glad you are doing better, a special school should help and take away some pressure.

Have you looked into respite? Even on night a week would help you as a family.

Lucylou07 · 28/05/2024 08:07

So now I've actually taken a breath and regulated, we are doing ok with our two jobs - we can afford to live. One of husbands job is a new business and stands to be very lucrative once established. I believe things will be ok.
My second job is also a break from the children and is only about ten hours a week.

Child should hopefully go to special school some time after October. His needs are quite significant and it's desperately sad that he has fallen through the net. I'm so pleased we moved him to his current school as they have gotten the ball moving.

OP posts:
5128gap · 27/05/2024 09:24

If you need to live in that house, can you reduce the mortgage payments by paying over the longest possible term? Have you done a comparison calculator to see what your situation would look like if one of you dropped hours to become DCs carer? Turn2us has a good calculator to try out different scenarios. Are you or DH entitled to PIP?

MyOleMan · 27/05/2024 09:17

I hope things work out for you. I was studying too and I think it broke me

Elieza · 27/05/2024 07:09

How 'soon' will your child be able to go to his special needs school?

That will make such a big difference to your life. You will be able to sit quietly for five minutes alone without worrying or being in edge, and that in itself will be amazing.

You could resume your studies as if you leave it too long you'll never go back. So I'd suggest doing that as soon as you can.

Depending on what it is it can mean relearning stuff as new info is discovered and courses updated accordingly - happened to a friend as biology info got updated so she had to practically start from scratch again in her medical studies as she had a four year break and couldn't therefore pick up where she left off.

It will hopefully be good for him and tire him out too so when he comes home he may not be so energetic when you are both tired after working all day. That's how it is for a seven year old I know.

The authorities really really need to do something about care and the sen situation as there just don't seem to be enough facilities to make sure all sen children have the save care provision as other children. Patents are burning out.

SoftPuppyBlanket · 27/05/2024 06:45

The big house will soon become a millstone around your neck, we bought our big house 15 years ago and are moving asap because the running costs (rather than the mortgage) are crippling us. Have you done a winter in the house yet? Gas and electric to keep us all warm and dry for the last couple of years has cost an eye-watering amount!
The bathroom really needs replacing but we were quoted £2500 just for basic cheap ish tiles, decorators quote thousands because of the size of the rooms etc. We need a bigger more expensive boiler to heat all of the radiators, guess what? They cost much more than a regular boiler!
Of course you could do these yourself but how likely is it considering your children's issues and you are working 6 days pw?
If you have only just moved and you are struggling to afford the house now (on 2 x 6 day pw incomes and dla) what will happen when you eventually both burn out and can't work so much? I did a second Job for years to try and keep us going, I regret every second, we should have thrown the towel in sooner but my husband lived our house so I kept going🙄
I don't think you can afford the luxury of a bedroom each, much better to start looking for somewhere else now that would work than have your hand forced when you can no longer work enough hours to cover mounting costs.

Monstermunch2 · 27/05/2024 06:31

Bigger house .not bigger school

Monstermunch2 · 27/05/2024 06:30

A had to give my job up ,with the school not coping with my ds..he was asked to leave two special schools and ended up having tutoring at home ,and I had to be available the whole time the tutor was there .
Thank god we hadn't moved to a much needed bigger school ,as we were suddenly managing on one income
As is often the case Al my friends are in similar boats ,and it's very frustrating to see the majority are also managing on one salary due to SEN DC not in full time school

Lucylou07 · 27/05/2024 04:17

Just popping back on to the thread. I hate it when the op disappears.

I've taken some time for my increased antidepressants to kick in and am starting to feel more myself.

I've postponed my studies (and probably won't go back to them) and have started looking at special schools.

We have had a bit of a crisis with my boy attempting to harm himself in quite a severe way but without a trigger warning I won't give more details (tbf it's also v outing with the rest of this thread)

OP posts:
Mammajay · 27/04/2024 19:08

Perhaps postpone the studying

Okisenough · 21/04/2024 15:48

@Lucylou07 Sending you a hand-hold and of course, you are not unreasonable. Anyone would feel the weight of what you are going through. Having a SEN child is incredibly hard work and emotionally overwhelming. You are all doing the best you can.

I personally would pause the studying until you feel you have more energy and your child has started at their special school. You may find that things like anxiety and violence improve once he is at a school that understands his needs.
I would then check you are getting all the benefits you are entitled to and are accessing all the support available for your eldest including perhaps some respite. Check out if there are any local support groups or charities for families with SEN children, you might be able to access some emotional support and cheap group outings. I also agree it might be worth calling your mortgage providers to extend the term and lower your payments.

3WildOnes · 21/04/2024 15:25

How much do you bring in each month and how much is your mortgage?

AE9766 · 21/04/2024 15:21

I really need the own space that my bedroom brings.

That's as maybe, but kindly, you can't afford it.

Whateveer · 21/04/2024 15:12

Kindly but bluntly you are living beyond your means. The house is too expensive, we couldn't survive in a house that's too expensive.

GoBonobo · 21/04/2024 10:37

Can you extend your mortgage term so it’s a bit more affordable in the immediate term? I had friends who did this (public sector so no pay rises for years but huge COL rises, and friend developed a medical issue which required her to cut hours). Might just give you the breathing space to finish your course and get DC settled in their new school, then you can review?

CheeryPye · 21/04/2024 10:35

You have no money for anything because the house is too big and expensive for you. There's only one answer to that problem but you don't want to do that so the alternative is work even more hours and break yourself even more. I think I know which one I'd choose. I very much doubt your SEN child is only more settled because you over stretched yourselves financially with a house you can't really afford. .

Shinyandnew1 · 21/04/2024 10:31

How much is your income/mortgage? Is that sustainable?

GrazingSheep · 21/04/2024 10:30

What are your childcare arrangements?

ineedtostopbeingdramaticfirst · 21/04/2024 10:28

Could you look at both or one of you reducing your hours and claiming carers and /or uc plus reducing child care costs.

ElleLeopine · 21/04/2024 10:21

Can you relocate to a cheaper area?

Also, what is the end goal of your studies? Will it enable you to get a better paid job? If not, perhaps you could park it for now, if it's giving you extra stress?

Beezknees · 21/04/2024 10:08

Lucylou07 · 21/04/2024 10:04

Moving isn't particularly an option. We all (happily) have separate bedrooms, I'm diagnosed autistic also and chances are husband is too. I really need the own space that my bedroom brings.

We alternate. Husband works Saturday mornings and evenings (afternoons off), i work Sunday afternoon and evening. We both work mon-fri. I also work Monday evening.

For some crazy reason I also decided it was a good idea to study so I still have 18 months left of that.

I'm an idiot and I'm breaking

Gently though, the extra space clearly isn't worth it because you've described yourself as "breaking" and that is not a sustainable way to live.

Lucylou07 · 21/04/2024 10:07

Yes we get DLA for our eldest

OP posts:
MeMyCatsAndMyBooks · 21/04/2024 10:07

I would downsize and then cut hours down, you're going to end up burnt out.

StridTheKiller · 21/04/2024 10:05

Do you claim PIP for your DS?

Lucylou07 · 21/04/2024 10:04

Moving isn't particularly an option. We all (happily) have separate bedrooms, I'm diagnosed autistic also and chances are husband is too. I really need the own space that my bedroom brings.

We alternate. Husband works Saturday mornings and evenings (afternoons off), i work Sunday afternoon and evening. We both work mon-fri. I also work Monday evening.

For some crazy reason I also decided it was a good idea to study so I still have 18 months left of that.

I'm an idiot and I'm breaking

OP posts:
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