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To wonder about the OP whose daughter had ASD and she was going zero tolerance any associated behaviour for the happiness of her other child, herself and husband.

355 replies

Shestolemyboyfriend · 21/04/2024 07:30

I remember a poster who had a daughter with Autism and was having meltdowns due to beig overstimulated al lot of the time. I think there were issues around misophonia around eating , control over the TV etc and who could be in the room at any time. The OP decided that the needs of the few were outweighing the needs of the many and had decided she wasn't going to engage with any of the behaviour any more as it was making the rest of the family miserable. She had everyone divided but it sounded so hard for the whole family with a seemingly no win situation. I wonder how she fared and how it all panned out. I have a friend in a similar situation and she is doing the same with her son, after some kick back the dynamic is totally different. I just wondered how it worked for her.

OP posts:
ISaySteadyOn · 21/04/2024 17:11

Surely it's a two way street, that everybody makes adjustments for each other. It doesn't have to be either/or. The person who doesn't like noise can wear headphones and the person who needs noise can maybe lower the volume just a bit.

We're all in such a state of win/lose that compromise falls completely by the wayside.

footballfan1963 · 21/04/2024 17:09

I can really relate to this. My youngest dd is 17 and ASD and we have allowed things to escalate to the point of her having way too much control. I am in the process of trying to change things.

RadoxMoon · 21/04/2024 17:06

It'll of course be harder for those with asd, but if anything I think they need more help, guidanve and coaching to help them fit in, not less than everyone else.

But why should they HAVE to “fit in”? Why can’t people make adjustments for them?

MsCactus · 21/04/2024 17:03

IDoNotConsentToAstonResearch · 21/04/2024 08:14

Yes but this tells you absolutely nothing because the children may not have had identical capabilities in the first place.

No but everyone knows that practise helps - for absolutely every skill. Even emotional and social skills.

It'll of course be harder for those with asd, but if anything I think they need more help, guidanve and coaching to help them fit in, not less than everyone else.

fieldsofbutterflies · 21/04/2024 17:00

FloofyBird · 21/04/2024 16:50

@fieldsofbutterflies ok. I think it's patronising AF to refer to helping an autistic child cope as training. We'll have to agree to disagree.

I guess I just don't understand what's patronising about it, because the reality is that I did need to be trained/taught how to handle certain scenarios.

I get that the word "training" maybe has undesirable connotations, but the reality is that my parents did train me on how to do certain things, because they knew that learning those things was essential to my long-term success. For example, they taught me how to cope with the sensory overwhelm that comes with brushing my teeth and washing my hair. They did that by training me to accept certain things over a period of time, within the limits of my autism.

And you know what? I'm incredibly grateful for all their hard work, because my life as an adult is much, much easier as a result.

soupfiend · 21/04/2024 16:59

PenguinLord · 21/04/2024 16:52

I referred to the person whom I quoted about 'training' an autistic child, what a shitty and inhumane way to talk about an autistic person. The behaviours mentione in OP were "control over the TV etc".

Ive already set out why training as a word is not an issue. Ive had lots of training in my life too

'control of the tv' is not ok to the detriment of others, particularly if others want to use it and then that use is denied with screaming or hitting or damaging items in the home.

soupfiend · 21/04/2024 16:55

FloofyBird · 21/04/2024 16:33

@fieldsofbutterflies yet you never see people talking about or referring to 'training' their children when they're NT, do you.

Teaching, directing, modelling, parenting, instructing, training, all words to explain what we as adults do to manage children's development and behaviour for them to help them come out into the adult world with the ability to cope and manage their lives ahead of them.

Methods and strategies will vary across cultures and across needs and of course for different age groups.

PenguinLord · 21/04/2024 16:54

fieldsofbutterflies · 21/04/2024 16:24

I don't think anyone is talking about "denying autistic people the one thing they enjoyed" but they do need to learn that they can't always do what helps them, regardless of the circumstances.

The word training might seem off, but I don't see it as any different to teaching neuro-typical children about table manners, or how to behave in restaurants etc.

Yes, you have to approach them differently and maybe use different techniques, but the general idea is the same. Children (autistic or otherwise) need to be taught how to behave in certain scenarios, and in autistic children, that includes dealing with sensory overwhelm or overload.

I say all that as an autistic adult who was taught how to handle scenarios that overwhelmed me as a child. It means that, as an adult, I can handle lots of scenarios that would have terrified me as a child or even a teenager, and it's made my life a lot easier. I'm also now confident enough to say when I'm overwhelmed and need space, whereas as a child I wouldn't be able to say that and would meltdown or shutdown as a result. I rarely need to do that these days.

You train a dog, not an autistic person. And I think you may be an example of one of the people who think "I am autistic and could do xyz, so everyone should be able to do it". It's a shame that the communituy itself has so very little udnerstanding of other people'sexperience, within the same community.

namechsnf · 21/04/2024 16:52

Really interesting thread OP.
My sibling is autistic (I would say on the severe end of the spectrum). They will never leave home or be independent etc.
However, my whole life has been pretty much dictated too by them and accommodating their needs. They have always come first- because in everyone's eyes they have had too. I now still put them first, willingly and have never really questioned it.

However, as the years have passed they control more and more. Not just me, but everyone around them. If I don't do as they want, I meet their wrath and the wrath of my parents. It's lonely and now I feel much like an outsider.

Now as an adult, my parents expect everyone to accommodate them as they have their whole life. I do truly believe they have just tried their best, but I don't honestly remember a time my sibling was told 'no' or that something wasn't socially acceptable etc.

PenguinLord · 21/04/2024 16:52

soupfiend · 21/04/2024 16:13

What 'one thing that they enjoyed' are you talking about someone being denied?

Because this thread is talking about people being controlling of others, or harmful to others, or aggressive/rude/violent/breaking things/emotionally abusing and manipulating the household

No one is talking about being able to move about, or stim or do hobbies or have time out.

The abuse that is created to others in the household from controlling and manipulative behaviours is never or rarely acknowledged here. Unless its from a husband though. Then there is a recognition that no matter where the behaviour is coming from (MH, ADHD, ASD) it is still abusive.

That also stands for teenagers.

I referred to the person whom I quoted about 'training' an autistic child, what a shitty and inhumane way to talk about an autistic person. The behaviours mentione in OP were "control over the TV etc".

LordSnot · 21/04/2024 16:52

SecretSoul · 21/04/2024 16:10

I think part of the problem, seen regularly on MN, is that we have people who aren’t ND themselves deciding what’s best for people who are ND.

Just because your child is ND, or you teach/work with ND people does not mean you get to speak over what ND people are telling you.

So often ND voices are spoken over by NT people who have some experience of living/working with ND people. That is NOT the same thing. Until you experience things for yourself, you have no idea what it’s like. None. And it shows in the comments made here.

Neither myself or any of the other ND voices here are suggesting that ND children should always get their own way. The full needs of the family need to be balanced and considered, and there are often conflicting needs which makes it hard for everyone.

I remember the last post and I’m so pleased that the OP is finding a way that works for her family. It’s bloody tough for parents, but don’t forget it’s tough for the kids too. They’re not “being difficult” for a laugh.

The problem is that NT people often view success as training an ND child to mask well and pass. Suppress their own needs. Thats what’s been repeated in many posts on this thread, often with misplaced pride. In the majority of cases this approach causes psychological damage which typically manifests as a burn out in the end. You might not see it yet. It might take years to reach this point but it’s so frequently the case for autistic adults who weren’t helped to develop healthy coping mechanisms. And by that I’m talking about mechanisms which are designed to support the needs of the autistic person rather than being designed to make the people around them happier.

Just for emphasis, I am at no point saying violence is acceptable. I am referring to all of the other behaviours being described. An autistic person never has cart blanche to hurt anyone else.

Of course us autistic folk still have to function in a world which is desperately lacking in compassion. Someone in a wheelchair? No problem, legit disability and everyone is happy to make reasonable adjustments. Autistic people though? Nah. They have to fit in with the rest of the world and fuck how much harm it does. Asking for adjustments is seen as unreasonable because you can just train autistic people to look more socially acceptable. So much better, right?!

Gah.

Everyone is happy to make reasonable adjustments for someone in a wheelchair? Lol.

Using your own words, " Until you experience things for yourself, you have no idea what it’s like."

FloofyBird · 21/04/2024 16:50

@fieldsofbutterflies ok. I think it's patronising AF to refer to helping an autistic child cope as training. We'll have to agree to disagree.

Fundays12 · 21/04/2024 16:50

fieldsofbutterflies · 21/04/2024 14:54

my points stand- willfully ignoring a child’s needs is traumatic. The stats say it all, other people have said it I don’t need to repeat them.

Most people aren't talking about ignoring a child's needs, though. They're talking about managing the needs of one person against the (different) needs of everyone else in the home.

I'm autistic myself and I'm eternally grateful that my parents had boundaries and taught me that certain behaviours weren't okay at certain times. I'm also glad they helped me overcome my sensory issues around maintaining personal hygiene - especially with brushing teeth and taking showers.

Helping autistic people cope with the real world isn't about ignoring their needs, it's about helping them balance their needs with other people's, and about teaching them appropriate ways of dealing with (eg) sensory overload or overwhelm without controlling other people's environments in order to do so.

Thanks for posting this. My son is 12 and autistic. He also has ADHD. This is the approach we have taken. We have tried to teach him coping strategies, boundaries and how to manage sensory overload. He manages day to day life very well generally, has a lovely little group of friends, does very well in school and most important is happy. Unfortunately I have met children whose parents haven't taken this approach and the children seem to struggle much more in the long term.

shockeditellyou · 21/04/2024 16:49

WaitingForMojo · 21/04/2024 16:29

That doesn’t sound like a success to me.

Why not?

fieldsofbutterflies · 21/04/2024 16:42

FloofyBird · 21/04/2024 16:38

The person who posted it was quite clear it was not badly worded.

Well, I personally didn't find it offensive.

My parents did "train" or teach me how to handle real life situations while simultaneously making allowances for my autism and I'm incredibly grateful for that. My life would be infinitely poorer without that confidence and self-belief.

Lovemusic82 · 21/04/2024 16:42

This sounds very much like my dd but I don’t think it was my thread. My dd controls almost everything including what we watch in tv and what time I go to bed. She’s just turned 18 and although I love her dearly I am trying to get adult services to find her somewhere to live (residential setting) but sadly getting nowhere. Over the years she’s slowly taken control of many things, occasionally I can persuade her to let me watch something in the tv but mostly I have to watch what she wants to watch. I have probably not helped the situation by allowing her to do these things, I mainly do it for a easier life, it’s just me and her and it’s not easy especially when she has a meltdown and hurts herself. Over all dd is amazing, she’s not very verbal but she’s never violent, most of her meltdowns are emotional and she will try and harm herself rather than other people, she’s amazingly talented (art, music, maths) but she does like rigid routine which is why she likes to be in control of things such as the tv remote 😬.

Brefugee · 21/04/2024 16:39

stargirl1701 · 21/04/2024 13:07

Hello, that was me!

I did wonder if I should post an update.

The biggest change has been that DD1 takes herself to her own bedroom to have a meltdown so she is no longer punching or kicking DD2, me or DH. She is finally using the strategies she has been taught over the years by us, teachers, outreach workers and counsellors.

I ended up having a rule that both DC go to their bedrooms when we return home from being out of the house. That has reduced my hyper-vigilance which has left me with more energy. DD2 (NT) is quite cross about this though.

DD1 seems much happier with far fewer meltdowns than before.

Sounds good overall. But still a bit shitty for DD2. How is the sibling relationship?

FloofyBird · 21/04/2024 16:38

The person who posted it was quite clear it was not badly worded.

fieldsofbutterflies · 21/04/2024 16:36

FloofyBird · 21/04/2024 16:33

@fieldsofbutterflies yet you never see people talking about or referring to 'training' their children when they're NT, do you.

I think you're getting caught up in something that's largely irrelevant to the point people are trying to make. The word "training" wasn't meant offensively, the post was just badly worded.

"Teaching" is maybe less controversial but the overall meaning is the same.

FloofyBird · 21/04/2024 16:33

@fieldsofbutterflies yet you never see people talking about or referring to 'training' their children when they're NT, do you.

fieldsofbutterflies · 21/04/2024 16:33

SecretSoul · 21/04/2024 16:10

I think part of the problem, seen regularly on MN, is that we have people who aren’t ND themselves deciding what’s best for people who are ND.

Just because your child is ND, or you teach/work with ND people does not mean you get to speak over what ND people are telling you.

So often ND voices are spoken over by NT people who have some experience of living/working with ND people. That is NOT the same thing. Until you experience things for yourself, you have no idea what it’s like. None. And it shows in the comments made here.

Neither myself or any of the other ND voices here are suggesting that ND children should always get their own way. The full needs of the family need to be balanced and considered, and there are often conflicting needs which makes it hard for everyone.

I remember the last post and I’m so pleased that the OP is finding a way that works for her family. It’s bloody tough for parents, but don’t forget it’s tough for the kids too. They’re not “being difficult” for a laugh.

The problem is that NT people often view success as training an ND child to mask well and pass. Suppress their own needs. Thats what’s been repeated in many posts on this thread, often with misplaced pride. In the majority of cases this approach causes psychological damage which typically manifests as a burn out in the end. You might not see it yet. It might take years to reach this point but it’s so frequently the case for autistic adults who weren’t helped to develop healthy coping mechanisms. And by that I’m talking about mechanisms which are designed to support the needs of the autistic person rather than being designed to make the people around them happier.

Just for emphasis, I am at no point saying violence is acceptable. I am referring to all of the other behaviours being described. An autistic person never has cart blanche to hurt anyone else.

Of course us autistic folk still have to function in a world which is desperately lacking in compassion. Someone in a wheelchair? No problem, legit disability and everyone is happy to make reasonable adjustments. Autistic people though? Nah. They have to fit in with the rest of the world and fuck how much harm it does. Asking for adjustments is seen as unreasonable because you can just train autistic people to look more socially acceptable. So much better, right?!

Gah.

Perfectly put.

yellowlupins · 21/04/2024 16:33

SecretSoul · 21/04/2024 16:10

I think part of the problem, seen regularly on MN, is that we have people who aren’t ND themselves deciding what’s best for people who are ND.

Just because your child is ND, or you teach/work with ND people does not mean you get to speak over what ND people are telling you.

So often ND voices are spoken over by NT people who have some experience of living/working with ND people. That is NOT the same thing. Until you experience things for yourself, you have no idea what it’s like. None. And it shows in the comments made here.

Neither myself or any of the other ND voices here are suggesting that ND children should always get their own way. The full needs of the family need to be balanced and considered, and there are often conflicting needs which makes it hard for everyone.

I remember the last post and I’m so pleased that the OP is finding a way that works for her family. It’s bloody tough for parents, but don’t forget it’s tough for the kids too. They’re not “being difficult” for a laugh.

The problem is that NT people often view success as training an ND child to mask well and pass. Suppress their own needs. Thats what’s been repeated in many posts on this thread, often with misplaced pride. In the majority of cases this approach causes psychological damage which typically manifests as a burn out in the end. You might not see it yet. It might take years to reach this point but it’s so frequently the case for autistic adults who weren’t helped to develop healthy coping mechanisms. And by that I’m talking about mechanisms which are designed to support the needs of the autistic person rather than being designed to make the people around them happier.

Just for emphasis, I am at no point saying violence is acceptable. I am referring to all of the other behaviours being described. An autistic person never has cart blanche to hurt anyone else.

Of course us autistic folk still have to function in a world which is desperately lacking in compassion. Someone in a wheelchair? No problem, legit disability and everyone is happy to make reasonable adjustments. Autistic people though? Nah. They have to fit in with the rest of the world and fuck how much harm it does. Asking for adjustments is seen as unreasonable because you can just train autistic people to look more socially acceptable. So much better, right?!

Gah.

I thought that this thread was based on the question of controlling behaviour within families and whether it was wrong to curb a child with ASD's desire to control their surroundings, including others in the family.

FloofyBird · 21/04/2024 16:32

SecretSoul · 21/04/2024 16:10

I think part of the problem, seen regularly on MN, is that we have people who aren’t ND themselves deciding what’s best for people who are ND.

Just because your child is ND, or you teach/work with ND people does not mean you get to speak over what ND people are telling you.

So often ND voices are spoken over by NT people who have some experience of living/working with ND people. That is NOT the same thing. Until you experience things for yourself, you have no idea what it’s like. None. And it shows in the comments made here.

Neither myself or any of the other ND voices here are suggesting that ND children should always get their own way. The full needs of the family need to be balanced and considered, and there are often conflicting needs which makes it hard for everyone.

I remember the last post and I’m so pleased that the OP is finding a way that works for her family. It’s bloody tough for parents, but don’t forget it’s tough for the kids too. They’re not “being difficult” for a laugh.

The problem is that NT people often view success as training an ND child to mask well and pass. Suppress their own needs. Thats what’s been repeated in many posts on this thread, often with misplaced pride. In the majority of cases this approach causes psychological damage which typically manifests as a burn out in the end. You might not see it yet. It might take years to reach this point but it’s so frequently the case for autistic adults who weren’t helped to develop healthy coping mechanisms. And by that I’m talking about mechanisms which are designed to support the needs of the autistic person rather than being designed to make the people around them happier.

Just for emphasis, I am at no point saying violence is acceptable. I am referring to all of the other behaviours being described. An autistic person never has cart blanche to hurt anyone else.

Of course us autistic folk still have to function in a world which is desperately lacking in compassion. Someone in a wheelchair? No problem, legit disability and everyone is happy to make reasonable adjustments. Autistic people though? Nah. They have to fit in with the rest of the world and fuck how much harm it does. Asking for adjustments is seen as unreasonable because you can just train autistic people to look more socially acceptable. So much better, right?!

Gah.

👏

WaitingForMojo · 21/04/2024 16:29

EnglishBluebell · 21/04/2024 15:01

Worked perfectly for my DC. She no longer vocal stims

That doesn’t sound like a success to me.

WaitingForMojo · 21/04/2024 16:27

justasking111 · 21/04/2024 16:18

Yes I do thank you and the difference between the two.

Edited

I’m glad, because that really isn’t evident from your post.

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