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What to do re SEN child?

32 replies

ToastTheCat · 19/04/2024 13:19

Hi all,

I have a three year old little boy who has a genetic disorder that causes developmental delay and mild intellectual disability. He cannot walk but crawls and "walks" on his knees, he also can't talk bar a few words and is on the ASD pathway.

He's in a normal nursery setting but we are awaiting his EHCP which is going to take about a year to complete.

My issue is he's moved up into the pre school room and is not having a good time. He really doesn't like being around the children, he becomes territorial and distressed when they come near and starts hurting himself physically and has caused quite a bad injury to his face. He's distressed doing the things he used to do like going outside or drawing and playing and he's just not having a good time.

I'm reducing his days from 5 days to 3 days and then we're going to try and slowly build him back to 5 but if that doesn't work then leave him at 3 but If he continues being in so much distress then I don't know what to do because of his EHCP and I can't pull him out completely.

Has anyone had any similar experiences and can advise anything?

I'm just so upset and stressed about it all, and it's hard because he's such a lovely little boy and the staff love him but it must be so hard for him :(

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Headfirstintothewild · 24/04/2024 13:36

I went down the route of legal aid to get the best outcome.

Even if OP meets the financial criteria for legal aid she wouldn’t be eligible at this stage. That would come into play if OP needed to appeal a decision.

dontbelievewhatyousee · 24/04/2024 13:15

It’s a difficult age. Do you have any alternative local authority nurseries locally that have better trained staff for SEN needs? Certainly the nursery at least should have a SENCO which will help you with the EHCP process.

The EHCP is a whole topic in itself sadly. But there are lots of website you can use to understand the process and personally I went down the route of legal aid to get the best outcome.

DeleteIfNotAloud · 24/04/2024 10:09

ToastTheCat · 23/04/2024 17:37

Had to fill out an incident report today as he's hurt another child. It's so deflating and upsetting.

Good news is I sent the EHCP off yesterday so at least that process has started. Thank you everyone who helped with that.

It really can be soul destroying, I feel for you! I remember this stage so well. My child is 13 now (and thriving in the right specialist setting) but when he was younger things were just horrific. At one point I was being called into school daily to deal with incidents and violence. It was a seemingly never ending cycle and I honestly think it left both of us with PTSD.

You're doing all the right things. Don't give up on the EHCP, don't take no for an answer, because getting him into the right setting will be transformative. Good luck 🍀

ToastTheCat · 23/04/2024 17:37

Had to fill out an incident report today as he's hurt another child. It's so deflating and upsetting.

Good news is I sent the EHCP off yesterday so at least that process has started. Thank you everyone who helped with that.

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ToastTheCat · 19/04/2024 14:54

Therealmetherealme · 19/04/2024 14:39

My son went to a specialist nursery and it was they who arranged the EHCP, he didn't need one to get there. I think this differs by area though, so I'm sure you can goggle it.

I don't think it's possible in my area, I've googled but can't find anything.

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Therealmetherealme · 19/04/2024 14:39

My son went to a specialist nursery and it was they who arranged the EHCP, he didn't need one to get there. I think this differs by area though, so I'm sure you can goggle it.

ToastTheCat · 19/04/2024 14:33

x2boys · 19/04/2024 14:30

Is mainstream schooling going to be appropriate for him?
My son is 14 now and has complex disabilities and has always gone too a special school ,i was really upset at first when it was first suggested but in reality mainstream could never have met his needs I know its not that simple and it's very much a post code lottery for provision of special schools ,but if it's suggested. try and be open minded about it .

It's already been suggested he'll need a special school with his needs which I completely agree with - he's very delayed and like mentioned doesn't cope very well.

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Headfirstintothewild · 19/04/2024 14:32

Speak to the nursery about the EHCNA request, but don’t delay submitting it if they say it isn’t needed yet or they will do it is a month/term. The LA should contact them once you have submitted the request.

DeleteIfNotAloud · 19/04/2024 14:31

ToastTheCat · 19/04/2024 14:29

@DeleteIfNotAloud should I ask for the nursery's support with applying for the EHCP or should I just do it myself and the LA will contact them?

You're right it's hard but it's worth it, I wish I knew this sooner so I could have got it all sorted for him but now I know I'm gonna get my laptop set up and follow the letter from IPSEA.

I'd just do it yourself tbh. You can probably get it done by Monday! Whereas the nursery have already shown signs of delaying tactics so I wouldn't trust them to do it in any kind of hurry.

x2boys · 19/04/2024 14:30

Is mainstream schooling going to be appropriate for him?
My son is 14 now and has complex disabilities and has always gone too a special school ,i was really upset at first when it was first suggested but in reality mainstream could never have met his needs I know its not that simple and it's very much a post code lottery for provision of special schools ,but if it's suggested. try and be open minded about it .

ToastTheCat · 19/04/2024 14:29

@DeleteIfNotAloud should I ask for the nursery's support with applying for the EHCP or should I just do it myself and the LA will contact them?

You're right it's hard but it's worth it, I wish I knew this sooner so I could have got it all sorted for him but now I know I'm gonna get my laptop set up and follow the letter from IPSEA.

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DeleteIfNotAloud · 19/04/2024 14:27

ToastTheCat · 19/04/2024 14:24

Gosh thank you for the advice everyone, it's all a bit overwhelming and I have a lot to crack on with.

The nursery has applied for extra funding but I got a letter saying it's been declined but they are appealing it as DS does get DLA and needs help.

It is overwhelming and sorry to tell you it gets worse! You have to become something of an expert in SEN law to get your child what they need, but it's worth it, trust me.

Don't rely on schools or LAs to be honest with you or put your child's needs first. You are the best and most motivated advocate your child will have.

ToastTheCat · 19/04/2024 14:24

Gosh thank you for the advice everyone, it's all a bit overwhelming and I have a lot to crack on with.

The nursery has applied for extra funding but I got a letter saying it's been declined but they are appealing it as DS does get DLA and needs help.

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Headfirstintothewild · 19/04/2024 14:23

Definitely request an EHCNA now yourself @DeleteIfNotAloud posted. On their website IPSEA has a model letter you can use.

In the meantime, has the nursery applied for early years inclusion funding and, presuming DS is in receipt of DLA, disability access funding?

Also investigate if your LA has specialist early years assessment nursery places for those going through or needing to go through the EHCNA process.

DeleteIfNotAloud · 19/04/2024 14:23

ToastTheCat · 19/04/2024 14:20

They've told me I need an EHCP for a specialist school/Nursery.

We have a lot of support in the sense of a neuro paediatrician, specialist health visitor, a special educational teacher, clinical psychologist and Senco at nursery but it's all intermittent visits and waiting a long time for assessments (which is understandable).

If you have all those professionals involved already then you have more than enough evidence to apply for an EHCP and I urge you to do so ASAP. Nursery are not acting in your child's best interests by delaying the process unnecessarily.

Littlefish · 19/04/2024 14:22

I crossed messages with @DeleteIfNotAloud . She/he explained it well.

ToastTheCat · 19/04/2024 14:20

Therealmetherealme · 19/04/2024 14:17

Do you have support? Early Years help? Do you have a specialist nursery nearby? My son attended a split of preschool and a specialist nursery. The staff there were great at identifying his needs and pushed the EHCP forward.

They've told me I need an EHCP for a specialist school/Nursery.

We have a lot of support in the sense of a neuro paediatrician, specialist health visitor, a special educational teacher, clinical psychologist and Senco at nursery but it's all intermittent visits and waiting a long time for assessments (which is understandable).

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Littlefish · 19/04/2024 14:20

Re EHCP - there are statutory guidelines for assessing and granting an EHCP and it’s certainly not a year.

The ASD assessment being in October shouldn’t make any difference as an EHCP is based on need not diagnosis.

I’m sorry to say that your nursery doesn’t sound terribly well informed.

DeleteIfNotAloud · 19/04/2024 14:18

ToastTheCat · 19/04/2024 14:16

The nursery has requested the educational psychologist to visit and decide if he needs one. The specialist teacher and nursery have said he does but told me it'll take a year before it's in place so I'll have to apply for mainstream schools in the meantime. His ASD assessment is scheduled for around October 2024 too so I don't know if that plays any part.

Ok, that's not how it works.

You apply for an EHCP, and as part of the needs assessment the EP comes out and writes a report.

The legal test for getting an EHC needs assessment is very simple - you must show that the child may have SEN and the child may need provision to meet said SEN that is beyond what is ordinarily available.

The nursery are fobbing you off, sorry to say. They need to write up their own reports and apply for the EHCP immediately. No need to wait for an EP report before applying.

Littlefish · 19/04/2024 14:18

It sounds like he needs more 1:1 support during the day to enable him to play either alone or alongside others, without becoming dysregulated.

Local authorities differ, but your nursery should be able to apply for additional funding, particularly as they are in the process of applying for an EHCP.

Another thing to consider, if your work pattern can support it, is rather than cutting down from 5 whole days to 3 whole days, could he do 5 half days instead? So he’s attending every day, but for a shorter time. Tiredness, hunger, thirst and general overwhelm may be making things worse.

Therealmetherealme · 19/04/2024 14:17

Do you have support? Early Years help? Do you have a specialist nursery nearby? My son attended a split of preschool and a specialist nursery. The staff there were great at identifying his needs and pushed the EHCP forward.

ToastTheCat · 19/04/2024 14:16

DeleteIfNotAloud · 19/04/2024 14:13

An EHCP does not take a year to complete. There's a strict 20 week timeline from application to completion. Where exactly are you in the process?

The nursery has requested the educational psychologist to visit and decide if he needs one. The specialist teacher and nursery have said he does but told me it'll take a year before it's in place so I'll have to apply for mainstream schools in the meantime. His ASD assessment is scheduled for around October 2024 too so I don't know if that plays any part.

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ToastTheCat · 19/04/2024 14:14

Littlefish · 19/04/2024 14:12

Does he have 1:1 support at the moment?

A bit yeah. His specialist teacher recommended he has some 1:1 time so I think the senco there spends about half an hour with him a day.

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DeleteIfNotAloud · 19/04/2024 14:13

An EHCP does not take a year to complete. There's a strict 20 week timeline from application to completion. Where exactly are you in the process?