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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to feel so overwhelmed with ASD teenage daughter?

165 replies

StressedSuzie · 17/04/2024 17:37

She has just turned 13 and is struggling massively with anxiety.
She refuses to accept any help such as therapy or medication and insists that if everyone just did as she needed then all would be absolutely fine.
Seeing her walk out of school each day, completely drained and almost mute due to being so overwhelmed is so upsetting to see.
What do you do when your children have sky high anxiety but won’t accept any form of help? 😢

OP posts:
Heartoverhead1 · 17/04/2024 20:18

ZenNudist · 17/04/2024 18:15

Please teach her to adapt to the world and not expect the world to adapt to her. If she has a way of doing things that allow her to live her life that will be much better for her.

This is great advice. Just teach your child not to be autistic op!

🙄

Heartoverhead1 · 17/04/2024 20:17

Notimeforaname · 17/04/2024 17:39

She doesn't get to refuse. Shes a child, you're the parent.

Really interested to hear your ideas on how you force a 13 year old with ASD to do something she doesn't want to do?

Stayupallnight · 17/04/2024 20:12

Notimeforaname · 17/04/2024 17:42

You set up the help and take her there. If she physically fights back, you take things away from her til she learns .

Insisting everything will be ok if you all do exactly what she wants, is manipulative and controlling. Dont let this continue.

When a child needs important medication, it's not the norm to just give up and listen to the child when they say they dont want it..You have to force them, for their own good.

don’t do any of this unless you want your child to develop CPTSD.

RespiceFinemKarma · 17/04/2024 19:55

WickerShit · 17/04/2024 19:41

You can't force therapy on someone. Even if you manage to carry them there under your arm and lock them in a room with a therapist if they refuse to speak it's pointless, Therapy isn't something that's done to you it's something you take part in.

Some of the responses on here are bonkers.

You can book a session and take them to see a therapist. You can't force them to engage but not facilitating help is more damaging in the role of a parent. My dd suffered abuse at school and was adamant she didn't want to see anyone. I still took her. 2 sessions in and she started off loading. It helped her and she recognises that now. If I hadn't given her the option I doubt she would still want to be in school now.

CasadeCoca · 17/04/2024 19:47

WickerShit · 17/04/2024 19:41

You can't force therapy on someone. Even if you manage to carry them there under your arm and lock them in a room with a therapist if they refuse to speak it's pointless, Therapy isn't something that's done to you it's something you take part in.

Some of the responses on here are bonkers.

Bonkers, unethical, profoundly counterproductive, damaging to relationships, unsupported by evidence. That's just for starters. I guess AIBU is the place for MN's shock-jocks rather than informed advice.

WickerShit · 17/04/2024 19:41

You can't force therapy on someone. Even if you manage to carry them there under your arm and lock them in a room with a therapist if they refuse to speak it's pointless, Therapy isn't something that's done to you it's something you take part in.

Some of the responses on here are bonkers.

RespiceFinemKarma · 17/04/2024 19:35

She is still the child though OP. I think you need to talk to her about medication and meet up with others who are taking it or using therapy and explain that you have to do something as her parent because you feel she is making decisions because she is a child.

When she is older and can choose for herself is when she can call you every name under the sun, but what she won't be able to say is that you didn't care enough to try.

StressedSuzie · 17/04/2024 19:33

Just to add, she is also adamant that she is not going to any type of “ specialist school “ as she is fine where she is and school just need to understand that she cannot do drama / PE / Trips of any kind / have no teachers who raise a voice and all will be well!

OP posts:
StressedSuzie · 17/04/2024 19:32

To be honest it’s not just at school she is like this - it’s everywhere which is why I haven’t pulled her out of school to homeschool ( even though she says she would never forgive me if I did this anyway )
Even me talking to her can result in her finding everything about me irritating, the way I say things or use my arms for expression.
I don’t like to describe her as highly critical as I’m not sure what part is ASD, what part is anxiety and what part is her personality!

She coped better at primary school but still only had two friends the whole way through and refused to talk to anyone else - when these friends wanted to form a larger group she then refused to go to school at all so missed a lot of year 6.

Shes academically very bright and I think she gets a boost out of this - she is happy when she passes tests with high scores etc but all happiness is very very short lived 😢

OP posts:
waterrat · 17/04/2024 19:13

maybe once she is no longer so stressed by school she will choose willingly to engage about any remaining anxiety?

I dont think therapy is the solution to everything - my own child is. having NHS counselling for anxiety and I think it's fairly low on the list of what is actually going to resolve her issues. You wait years for it and then you get a handful of sessions - even if she engaged full on weekly - she would still find school overload impossible?

waterrat · 17/04/2024 19:11

ridiculous comments on here about 'forcing 'her to go to therapy. You can't force anybody to engage in a therapy session!

The child being discussed here is autistic - that means school is an incredibly difficult and overwhelming experience.

Op - what was she like in primary? has it got more difficult recently or has this always been hard?

She may need a completely different type of day to day environment - it literally just may be impossible for her to cope in school. Im sure you know all this and are going through options - I'm just saying as you are asking about anxiety.

The anxiety is caused by the environment - it's also normal for her not to want to go to the SEN unit - she is masking/ sttressed/ socially anxious and trying to cope and not let anybody see how much she is struggling.

StressedSuzie · 17/04/2024 18:46

Thanks for the replies and ill try and answer the best I can!
No, her requests aren’t always “ reasonable “ but it’s very difficult not to allow them because she will continue to go over and over the same subject until it’s changed.
For instance, she goes to bed at 9 and likes complete silence in the house.
No talking / nobody using the bathroom as next door to her room / nobody walking around the house etc - this is difficult as I have a 16 year old DS ( also ASD ) who might be in the middle of something ( usually gaming and he doesn’t talk on the headset after 9 ) but even him moving around in his gaming chair she will say is unbearable.
She has loop earplugs but refuses to wear them as she is adamant it is not her with the problem - in fact, the box is still unopened.
She doesn’t eat with any of us due to the noises people make when eating and she is very angry that her dad and brother won’t give up meat ( I did when she became vegetarian 2 years ago to support her and I thought it would mean we could have the occasional meal out together - I was wrong as restaurants are completely off limits )
She won’t access the SEN hub at school as this indicates she has an “ issue “ and she also went mute when school tried to get her into some of their social skill interventions.
She has no hobbies at all as gave them them all up one by one for various reasons but all came back to anxiety.
Her special interest is ear piercing and she has multiple of these now which I didn’t think I would agree to if someone asked a year ago but to see her happy, there isn’t much I would say no to now!

OP posts:
BodyKeepingScore · 17/04/2024 18:30

Notimeforaname · 17/04/2024 17:39

She doesn't get to refuse. Shes a child, you're the parent.

If she's Gillick competent she absolutely does get to refuse/have a say in her medical treatment (in this case counselling or medication). You can't force a child that age to engage in therapy, and no therapist worth their salt would take them on if the young person didn't want to be there.

mt9m · 17/04/2024 18:27

Her response of wanting control is a completely natural desire with anxiety.

What would she like you to do, or what does she want to be different?

Autism anxiety is different to typical anxiety you treat, the things that cause the anxiety are a result of how her autistic brain works. This is why they have 'autism friendly' events etc because what's required are adaptions, not trying to change with CBT etc.

It might be more helpful to look at what triggers her anxiety. Developing calming techniques at home. It may help her to discuss therapy as a way of helping her manage and offload her stress as opposed to a deficit that needs to be fixed. Other methods like workbooks at home, talking to other autistic teens at support groups, or chatting online might help. Autism organisations run things like online mindfulness and online art groups. These things focus on feeling good through an activity instead of focusing on anxiety. Talking to you will be a huge help too. She needs to feel understood and supported.

bashstreetkids · 17/04/2024 18:27

Some of the advice here is baffling. I’m the mum of a 14 year old girl with ASD/ADHD and anxiety. If I forced my daughter to take medication etc against her will, I doubt she would ever trust me again (she has refused to take medication for the past 2 years and we have understood and respected her decision, it is not the same thing as taking antibiotics).

OP, my daughter also finds school exhausting and other teenage girls impossible to de-code at times. The best thing we did was to try to get her school to understand what she needs (classroom adjustments, a quiet space when she’s overwhelmed, allowing her to be late some days etc). I find myself advocating for her a lot and anticipating issues where I can. We don’t push her to get homework done, like your daughter, mine is runnIng on empty when she gets home and needs a safe space to decompress.

We’ve found a good therapist and tried to understand and respect her emotions (including her feelings about therapists she hasn’t felt comfortable with).

At times it has been so hard and I find we have six months where it seems impossible and then it gets easier for a bit.

CasadeCoca · 17/04/2024 18:25

ZenNudist · 17/04/2024 18:15

Please teach her to adapt to the world and not expect the world to adapt to her. If she has a way of doing things that allow her to live her life that will be much better for her.

The exact point of disability is that in key respects you live differently to non-disabled people.

We now acknowledge, in law at least, that society has to remove barriers and change things through adaptations to allow people to be included as they are.

KittytheHare · 17/04/2024 18:23

Notimeforaname · 17/04/2024 17:44

KittytheHare

You clearly have no idea what my job is then.

Truly hope it’s not dealing with neurodivergent young people.

Octavia64 · 17/04/2024 18:19

My AuDHD child was not able to engage with therapy at a similar age.

We went and I went in with her and we talked together but she was not really able to talk beyond yes and no.

It was more successful when she was older (admittedly, after she had dropped out of school).

You may be able to persuade her to see a private psych who will prescribe but you'll need to convince her first.

kelsaycobbles · 17/04/2024 18:18

BoxFoxSocks · 17/04/2024 18:07

If she thinks everything would be better if everyone did what she wants, what does this actually look like? What does she want people to do?

And is that reasonable ?

GoodVibesHere · 17/04/2024 18:17

Also has the therapy she's received to date been tailored for her as a child with ASD?

ZenNudist · 17/04/2024 18:15

Please teach her to adapt to the world and not expect the world to adapt to her. If she has a way of doing things that allow her to live her life that will be much better for her.

GoodVibesHere · 17/04/2024 18:14

So she says that if everyone just did as she needed she would be fine. Have you been able to talk to her about what it is she thinks she needs? I do think it is good that she is verbalising this, so I would praise her for telling you that there are things she needs, and encourage her to talk to you more about what it is she needs. What does she have in place currently, e.g. is there a quiet space in school that she can go to if needed? Does she attend any peer group sessions in school? Does she have friends? Are there lessons she could drop?

Is she still on the CAMHs waiting list currently?

Does she do anything relaxing or fun on weekends, and have things to look forward to?

Sorry for all the questions. I have been where you are in terms of having a struggling DD, but thankfully mine did engage with therapy (although it hasn't made much difference) and was open to taking medication.

Ignore anyone who says 'you are the parent, make her do as you say'.... this is nonsense as you cannot force her to engage or to take medication.

BoxFoxSocks · 17/04/2024 18:07

If she thinks everything would be better if everyone did what she wants, what does this actually look like? What does she want people to do?

YellNellBell · 17/04/2024 18:06

Can you find a psychiatrist who can see your DD remotely and prescribe?

I have 2 ASD DCs. Both have anxiety and are on fluoxetine as prescribed by a private consultant psychiatrist. DD (now 16) has been having therapy since she was 13. DS who is now 12 can’t access therapy - he just finds it too hard. The psychiatrist only needed to see him for less than 2 minutes as she appreciated how difficult it was for him to engage with her. He can now, 2 years on from beginning the meds.

Both of mine ended up having to leave mainstream settings and are now at specialist schools. DD has autistic burnout as a result and is going to spend next academic year doing a non academic course to really take the pressure off.

StressedSuzie · 17/04/2024 18:03

We are appealing the EHCP as they refused to assess.

She doesn’t want to leave her current school due to being familiar with it now but we are asking for things to be removed from her timetable as currently she’s attending 2/3 days a week because of certain subjects ( Drama / PE / are especially problematic )

OP posts: