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Blood oxygen levels of 90 - is the NHS being crap here?

167 replies

Predictablenamechange1 · 12/04/2024 16:16

I just spent 7 hours in A&E. I can't get a GP appointment which is the only reason I went to the hospital. I'm sleeping pretty much all day every day, feel really unwell and have been admitted previously due to dangerously low blood oxygen levels.

This time I tested at 90. According to the NHS site that means I need to call 999. Yet I was discharged. What do I do from here?? I can't work at the moment as I'm sleeping practically all day and night. I want to get better but how do I do that? The last time they took me in they gave me an oxygen mask and a drip which really helped.

I'm missing my sister's hen do at the weekend because of this. I'm just so frustrated.

OP posts:
LadyRoughDiamond · 12/04/2024 22:04

Have just relayed this to GP husband who is astounded that you were sent home. There is nothing that a GP could do to help in this situation as it is so severe - you need to be in hospital. He would categorise this as a failed discharge and complain to the hospital if you were to appear in his surgery. That said, he’s had everything from a heart attack to a broken shoulder batted back to him from our local A&E recently, so God knows what’s happening out there.

Lougle · 12/04/2024 22:02

LIZS · 12/04/2024 21:56

You can sit there and engage with health staff, smile etc, it doesnt mean that no one is going to see you as ill if your bp, heart rate, breathing, other tests are not right.

Not sure I entirely agree. It is a matter of how ill and whether deteriorating, which putting a brave face on may disguise. The results may be the clinically same but as they do not know your behavioural norm in comparison.

It can't hide objective observations. There is an inherent bias towards 'white health' - medical guides talk about going pale, which isn't necessarily a given. Nobody thought that Sats probes might be inaccurate for people with different skin tones, etc. However, somebody sick will be objectively sick.

I nursed plenty of people in HDU who were chatty and friendly, reading newspapers, chatting to friends on the phone. They were still very sick, objectively.

LIZS · 12/04/2024 21:56

You can sit there and engage with health staff, smile etc, it doesnt mean that no one is going to see you as ill if your bp, heart rate, breathing, other tests are not right.

Not sure I entirely agree. It is a matter of how ill and whether deteriorating, which putting a brave face on may disguise. The results may be the clinically same but as they do not know your behavioural norm in comparison.

soupfiend · 12/04/2024 21:46

Its not down playing, as another poster sets out there are a number of involuntary reactions and presentations that will be part of assessment.

OP could have sat there as I said with 'dressing gown of doom' presentation, but her results wouldnt have been different, unless people are suggesting she started faking the breathing, or started faking gasping etc etc

You can sit there and engage with health staff, smile etc, it doesnt mean that no one is going to see you as ill if your bp, heart rate, breathing, other tests are not right.

Jennaveeve · 12/04/2024 21:41

I think it’s really unfair to blame the NHS and then say you were “masking”. They made a clinical judgement that you were ok, how were they to know you were “masking”? You were happy enough to take yourself to A&E so I’m confused as to why once there you’d downplay your symptoms?

Predictablenamechange1 · 12/04/2024 20:56

Itsdeepitsblue · 12/04/2024 20:36

Bless you OP, it’s very scary when you have something that you know to be dangerous and 999 worthy and yet you’re discharged from hospital?

Do you suffer with healthy anxiety? Not saying that from a judgmental place, just it is easier to disbelieve medical professionals in that case. + having a life limiting illness like cirrhosis may be making you more health anxious.

Are you feeling very unwell in yourself? It sounds as if you are. Maybe call 111 and explain if it would help you feel reassured?

Wishing you all the best & WELL DONE for your sobriety, huge accomplishment.

No health anxiety really (I mean I'm worried about the cirrhosis and how crappy I feel at the momentbut I'm not sat there on dr Google). I have no desire to be sat in A&E for 7 hours unless it's needed.

I've called 111 hence the paramedic callout.

Thank you x

OP posts:
Bumblebeeinatree · 12/04/2024 20:56

Maybe try some breathing exercises to increase your blood oxygen level, get a home monitor. If there is no underlying problem breathing better may help.

Lougle · 12/04/2024 20:51

I think this isn't about masking. It's about the overall picture. The nurses and doctors will have been observing your respiratory rate, your rhythm of breathing, depth of breathing, whether your chest expanded evenly, your colour, whether you could speak in full sentences, whether you could breathe in a relaxed posture or needed to splint your chest, or sit forward, etc.

They would have checked your blood pressure, your heart rate, your temperature.

All of those things combined has reassured them that despite a low SPO2 reading, you were otherwise well.

If you don't feel well, and are worried, you should return.

Predictablenamechange1 · 12/04/2024 20:49

Soontobe60 · 12/04/2024 19:54

But you weren’t ’faking being ok’. You had taken yourself to A+E. Where I assume they did some tests, the results of which can’t be faked.

They did the basic tests. Then told me I had a blood oxygen levels that warranted a 999 call, literally according to the NHS website. The same blood oxygen levels that previously put me in hospital on oxygen and a drip for a week. This was only in January.

Same hospital, same symptoms.

Forgive me if I am losing faith in the NHS. I know people are doing their best but ffs.

OP posts:
thinkofnewname · 12/04/2024 20:41

Gosh MrsA well done for advocating and yes surprised he wasn't taken more seriously with that presentation. It's all crazy in hospitals at the moment isn't it. I had an all night sit in a and E recently and I think unless people have seen it it is hard to believe.

MrsAvocet · 12/04/2024 20:37

thinkofnewname · 12/04/2024 20:02

@MrsAvocet Gosh I'm so pleased you didn't give up.

What made you sure it wasn't a chest infection? I was misdiagnosed as having a PE last year and told it was a chest infection and now each time my asthma "goes to my chest" or I have a sore leg I am so anxious it could be a PE and is missed. I have several risk factors but they always.seem to assume I'm fine due to age 🙄.

Well I wasn't sure of the diagnosis but I knew he was really ill as he was breathing very fast and shallow, looked blue, had a heart rate that was sky high and was sweaty but didn't have a temperature. And he said that he felt like he was dying which I thought was something of a red flag as he's not normally over dramatic. He'd had covid some weeks before but recovered well and then very suddenly got worse again and I knew that fitted with a possible blood clot.

Itsdeepitsblue · 12/04/2024 20:36

Bless you OP, it’s very scary when you have something that you know to be dangerous and 999 worthy and yet you’re discharged from hospital?

Do you suffer with healthy anxiety? Not saying that from a judgmental place, just it is easier to disbelieve medical professionals in that case. + having a life limiting illness like cirrhosis may be making you more health anxious.

Are you feeling very unwell in yourself? It sounds as if you are. Maybe call 111 and explain if it would help you feel reassured?

Wishing you all the best & WELL DONE for your sobriety, huge accomplishment.

LivingDeadGirlUK · 12/04/2024 20:30

I don't know what area you are in OP but it does seem tough at the moment. I have a bad sinus infection that was causing severe pain in my face, couldn't see a Dr 2 days in a row, then given appointment with nurse who couldn't do anything. Then sent to the pharmacy who can now apparently prescribe, except no appointments available this week. Told I can go to another pharmacy but when you don't drive and are in pain that isn't very easy!

I wish I had insisted it was urgent when the receptionist did the whole 'we are only seeing urgent ailments', mental note to be more forceful in the future.

calmnights · 12/04/2024 20:18

GraceyBeaker · 12/04/2024 20:16

She could just be changing details slightly to avoid being identified

I’m aware she may be changing the details slightly. I was just explaining to the poster I quoted why the pp thought OP has liver cancer.

GraceyBeaker · 12/04/2024 20:16

calmnights · 12/04/2024 20:09

OP posted she had liver cancer then edited the post to say she had liver disease. Then in a later post said cirrhosis.

Edited

She could just be changing details slightly to avoid being identified

Boxerdor · 12/04/2024 20:15

Can you take someone with you who can help you advocate OP? If you go again?

calmnights · 12/04/2024 20:09

LucyWarlowRidesAgain · 12/04/2024 18:34

Liver cirrhosis is not cancer.

OP posted she had liver cancer then edited the post to say she had liver disease. Then in a later post said cirrhosis.

PropertyManager · 12/04/2024 20:04

first job many years ago after graduating as an engineer was as a design engineer for a manufacturer of medical instruments, my area of expertise was sphygmomanometers - blood pressure meters (in fact I have my name on a couple of patents on aspects of them).

Just like pulse oximeters they are plagued with accuracy by the way they make an imperfect external "connection" to the patient.

With a sphygmomanometer, even with the right cuff, perfectly fitted you can be +/- 2 to 5 mmHg each end depending on the patients physiology and operator skill.

Pulse oximeters likewise can be influenced by skin tone / density and so are not 100% accurate.

90% is not emergency territory, it might warrant further investigation if the physician suspects a sinister cause, into the 80's of concern, 70's immediately very worrying etc...

thinkofnewname · 12/04/2024 20:02

@MrsAvocet Gosh I'm so pleased you didn't give up.

What made you sure it wasn't a chest infection? I was misdiagnosed as having a PE last year and told it was a chest infection and now each time my asthma "goes to my chest" or I have a sore leg I am so anxious it could be a PE and is missed. I have several risk factors but they always.seem to assume I'm fine due to age 🙄.

soupfiend · 12/04/2024 20:00

I see what you meant by masking in later posts OP

But you can present your symptoms in a manner which is ok, its then for them to see what the symptoms are by testing and taking note of what they are

Theres no need for a dressing gown of doom presentation to say you're ill, that would be performative.

The guidelines say to seek advice, you did seek advice and they have reviewed you and sent you home, it now needs follow up by the GP with referrals presumably to the right departments, presumably about this possible lung issue.

But A+E as others have said is for accident and emergency, so they're not going to keep you there, or admit you to another ward if theres no medical need for it.

costahotchocolatesaremyweakness · 12/04/2024 20:00

not a doctor but I am a mum to a NICU baby who had breathing issues, and it was quite common for her to be in the 90s. When she had a chest infection recently it was back in the 90s and we were sent home with antibiotics. When the o2 sat level was in the 80s they were concerned. I hope you are feeling better/getting the help you need.

Soontobe60 · 12/04/2024 19:54

Predictablenamechange1 · 12/04/2024 16:30

I wasn't told to mask!

It's autism. Pretty normal for autistic women and girls to pretend to be fine when they're not.

I just need to try and stop faking being OK if I want treatment I suppose.

But you weren’t ’faking being ok’. You had taken yourself to A+E. Where I assume they did some tests, the results of which can’t be faked.

effoffwind · 12/04/2024 19:48

Sorry OP this sounds awful

Could you purchase a small Sats probe for occasional checking over the weekend ?

Get some rest , eat a little and sleep as you need to

When you feel up to it - please take the time to write down your exact symptoms and sats results , in full - exactly how you feel and what you've been going through

Take that to GP Monday and let them read it

Seems like you need a full assessment, not just snap shot recordings which are quite inaccurate at best

And as you obviously know your own body well - if things are not good , you feel worse , have any chest pain , shortness of breath , pain /redness /swelling in calf or anything else troubling please call 111 or go back to AE

Good luck OP💐

HappyNewTaxYear · 12/04/2024 19:37

Hey OP

I think you should keep on seeking help. The whole way you’ve written your posts is apologetic and I understand why but you need and deserve proper medical attention.

Predictablenamechange1 · 12/04/2024 19:37

SleepyRich · 12/04/2024 18:34

If you're still unwell and don't feel need further review after A&E discharged you I'd persist with trying to get a GP appointment.

Ultimately if you attend A&E with a presentation that they feel should have been sorted by your GP they may (especially when busy) not fully examine you/essentially exclude immediately life threatening cause of your symptoms and then discharge you for GP to undertake the next tests.

If your saturations are normally >96%/no respiratory problems normally then if they've discharged you with saturations persistently averaging around 90% then I would find that unusual as you're indicated for supplementary oxygen at that level. However if you're a heavy smoker for example further testing may have satisfied them that the low sats are now normal for you due to the lung damaged caused and that you can be left with sats of 90% being normal for you. But this should have been well explained if this was the case (i.e. tell you you've been diagnosed with COPD/emphysema).

I don't smoke and never have.

I didn't want to get into this as I'm inevitably going to be called a troll or called out

I had paramedics called around the other day and after their checks they thought I may have a collapsed lung. They tried to get me to go to hospital there and then but for some stupid reason I refused. I was just too tired.

I told the hospital this but they didn't do any follow ups other than the blood oxygen levels.

I'm just scared of dying. Well not dying per se, dying painfully.

OP posts:
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