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AIBU?

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If I make a complaint about my GP refusing to prescribe medication

283 replies

Sconesandgravy · 09/04/2024 18:32

My neurologist asked the GP to prescribe a medication to help with a medical condition. The medication is one can cause birth defects. I spoke to the pharmacist this morning who called to say she was putting the request through to the GP. The pharmacist messaged that afternoon to say the GP has refused to prescribe unless I go on hormonal contraception or the copper coil. He has claimed that guidelines say he can't prescribe if I refuse the above types of contraception.

I want to complain about this for several reasons:

  • My husband is completely infertile. He had multiple samples of testicular tissue biopsied and it was confirmed he has a condition that means his sperm count will always be 0. The only way I'm getting pregnant is with a sperm donor. I obviously can't do this by accident. The pharmacist made the GP aware of this because she called me this morning and said contraception is recommended, so I said I'm not on contraception and disclosed about my husband.
  • I checked the guidelines myself. NICE guidelines state the need for effective contraception must be expressed. The BNF says effective contraception must be advised. On gov.uk there is a 2022 safety review of the medication that states health care practitioners "should fully inform the patients of the risks and advise them of the need to use highly effective contraception". Nowhere specifies what contraception should be used, and none of the above bodies specify that medication should not be prescribed if long term contraception is refused. The only thing I can find is that alternative medications can be offered if the medication is long term and the patient doesn't want to use any form of contraception.
  • Condoms and abstinence are also effective forms of contraception. If I were a man these would be recommended as they're the only available form of effective male contraception. It seems discriminatory to suddenly decide they're not considered effective contraception just because I have a vagina.
  • I'm an adult with full capacity. I have the right to make an informed decision about what I put into my body.

In all honesty it just feels a bit like the GP has refused my prescription and intentionally given me misinformation about the guidelines to try and coerce me into going onto a contraceptive that he deems the most effective, rather than allowing me to make an informed decision based on my own personal circumstances. I know this is dramatic and I won't put that in my complaint but I just needed to get that thought out of my system

AIBU if I complain?

OP posts:
Rosestulips · 09/04/2024 20:45

Sconesandgravy · 09/04/2024 20:03

He's willing to prescribe both at the same time without seeing me. The message I received said if I want the pill then contact the clinical pharmacist who will put through both prescriptions, or make an appointment to see the nurse and once the coil is in place my script will be issued. I just don't want to waste resources if I'm honest.

I’d do this too. I’d hate wasting resources but you need those meds

good luck

BronwenTheBrave · 09/04/2024 20:41

Put a complaint in and see if you can get him sacked.

Sconesandgravy · 09/04/2024 20:40

SaffronSpice · 09/04/2024 20:11

Nonsense. We don’t just get to demand what drugs we want to take.

I mean in fairness... Several GP appointments over the course of a year, a neurologist appointment, a nerve conduction test, a MRI, a lumbar puncture, another neurologist appointment, two EEGs, 6 standard blood tests and 8 specialist auto immune blood tests have decided I need the medication. I haven't just googled and made the decision for myself.

OP posts:
PoppyCherryDog · 09/04/2024 20:35

I think you’ve got another step which is speak directly to the gp first before complaining.

Sconesandgravy · 09/04/2024 20:33

Grannyhasthemoozles · 09/04/2024 19:42

@prescribingmum 👏🏻👏🏻👏🏻

they’d soon complain about the GP if a pregnancy was to happen which had to be terminated or baby born with severe disabilities.

this ‘stamp my feet and complain’ culture is one of the things I find most difficult in our jobs and it’s so draining!

This is untrue. If I was in a position where I could fall pregnant accidentally, I would take the contraception.

But seeing as it's been surgically confirmed my husband has a syndrome which means he doesn't have the germ cells that make sperm, and my wedding vows actually mean something to me, accidental pregnancy is physically impossible unless I'm the new Virgin Mary and just don't know it yet.

I'm only against taking contraception because I can't fall pregnant without medical intervention. I wouldn't be stupid enough to refuse contraception if there was reason to take it.

OP posts:
DetOliviaBenson · 09/04/2024 20:29

SaffronSpice · 09/04/2024 20:11

Nonsense. We don’t just get to demand what drugs we want to take.

It's not like she just looked it up on google and demanded her GP prescribe it! Her neurologist recommended she take it!

DetOliviaBenson · 09/04/2024 20:27

Anotherdayanotherdollar · 09/04/2024 19:52

I didn't say she needed the pill! The OP said

"Condoms and abstinence are also effective forms of contraception. If I were a man these would be recommended as they're the only available form of effective male contraception. It seems discriminatory to suddenly decide they're not considered effective contraception just because I have a vagina".

My point was that if a woman is taking a particular drug for let's say 10 years, that's 10 years in which her eggs are being exposed to the drug. Sperm only lives for a few days. If a man is taking the same drug for 10 years, his sperm will only have a few days exposure to the drug. So sometimes things just aren't the same for men and women!

You're assuming that every woman will get pregnant, and want to keep the baby. What about lesbians? What about infertile women? Women who have been sterilised? Women who adamantly don't want children? It's this kind of patriarchal infantilising of women that's sets us back decades!

AnyOldThings · 09/04/2024 20:17

@Sconesandgravy My daughter was offered Topiramate recently for headaches by GP. She was warned that Topiramate makes the pill less effective. No discussion or warning about birth defects or the need for any other birth control. Just told her pill wouldn’t work as effectively.

bluecomputerscreen · 09/04/2024 20:12

it's a really difficult topic.

the issue is the continuity of care. nhs protocol for consultanscto hand over care back to gp without giving enough detail. or prescribing medicines that a gp can't prescribe.

SaffronSpice · 09/04/2024 20:11

Leafbuds · 09/04/2024 19:04

This seems extremely unfair, and putting the rights of a potential foetus and/or the rights of the doctor not to feel guilty, above the rights of the woman to choose what medicines she takes and what risks she is prepared to accept (and what pregnancy options she is willing to consider if necessary). There are some women who can't or don't want to use hormonal or implanted contraception, and that shouldn't prevent them from getting appropriate care for their conditions.

Nonsense. We don’t just get to demand what drugs we want to take.

ThePure · 09/04/2024 20:09

Can't you just ask for an emergency appointment then? It doesn't have to be with your own GP. Any GP could authorise it and they probably would if there was a documented conversation about the risks

Sconesandgravy · 09/04/2024 20:07

Whatevershallidowithmylife · 09/04/2024 19:15

So take the appointment in 3 weeks then?

I mean I'm booked in, but I'd rather not live with debilitating Hemiplegic migraines for another 3 weeks.

OP posts:
ThePure · 09/04/2024 20:06

And as I also showed you the links for very soon topiramate will have similar restrictions because the issues now being uncovered in studies are much the same

Sconesandgravy · 09/04/2024 20:03

ThePure · 09/04/2024 20:02

PS for those thinking this is a feminist issue valproate has just been restricted from prescription for men as well as women because of its teratogenic potential

Many women whose babies were harmed actually campaigned for more restrictions on valproate and saw it as a feminist issue that the differential impact on them was not acknowledged by male prescribers.

Damned if you do
Etc etc

This is all well and good but as stated I'm not prescribed sodium valporate

OP posts:
ThePure · 09/04/2024 20:03

You don't need to lie
You shouldn't lie
Just ask to sign a disclaimer

Sconesandgravy · 09/04/2024 20:03

Everydayimhuffling · 09/04/2024 19:48

Though, yes, you could accept an accompanying prescription for the pill and then just not take it. However, that's only worthwhile if the GP is willing to prescribe both together without seeing you for an appointment.

He's willing to prescribe both at the same time without seeing me. The message I received said if I want the pill then contact the clinical pharmacist who will put through both prescriptions, or make an appointment to see the nurse and once the coil is in place my script will be issued. I just don't want to waste resources if I'm honest.

OP posts:
Blushingm · 09/04/2024 20:03

He's doing the right thing in not prescribing because her hasn't personally had the contraception and risk conversation with you

He has a duty to prescribe responsibly and that's what he's trying to do

He's said no to the pharmacy request - he hasn't said no never

ThePure · 09/04/2024 20:02

PS for those thinking this is a feminist issue valproate has just been restricted from prescription for men as well as women because of its teratogenic potential

Many women whose babies were harmed actually campaigned for more restrictions on valproate and saw it as a feminist issue that the differential impact on them was not acknowledged by male prescribers.

Damned if you do
Etc etc

Sconesandgravy · 09/04/2024 19:59

MolkosTeenageAngst · 09/04/2024 19:56

Can You agree to go on the pill and then just not take it? Presumably they don’t actually test to make sure you’re taking it so long as you pick up the prescription? Obviously a complete waste of nhs resources and you shouldn’t have to do it but that’s on the GP not on you.

I'm considering this if it means getting the medication that will stop hemiplegic migraines giving my horrific symptoms.
I don't want to waste NHS resources but I also don't want to live with debilitating migraines.

OP posts:
Neverpostagain · 09/04/2024 19:58

This is crazy. No prescriber is obliged to prescribe anything. Ever. You cannot demand a prescription and complain if you don't get it. Well I suppose you could try but you'll not get very far. A neurologist cannot tell another presciber what to prescribe. The only thing the GP is obliged to do, is act in your best interests. The only valid thing you can do op is request a meeting and explain why you believe prescribing is in your best interests, or change GP.

katebushh · 09/04/2024 19:58

Definitely complain.

Umbongowasyuk · 09/04/2024 19:57

So let them prescribe the pill and don't take it?

MolkosTeenageAngst · 09/04/2024 19:56

Can You agree to go on the pill and then just not take it? Presumably they don’t actually test to make sure you’re taking it so long as you pick up the prescription? Obviously a complete waste of nhs resources and you shouldn’t have to do it but that’s on the GP not on you.

ThePure · 09/04/2024 19:54

If the neurologist is that bad then no wonder the GP doesn't want to prescribe on his say so. He probably knows what he's like and that he will not have fulfilled the requirements.

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