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If I make a complaint about my GP refusing to prescribe medication

283 replies

Sconesandgravy · 09/04/2024 18:32

My neurologist asked the GP to prescribe a medication to help with a medical condition. The medication is one can cause birth defects. I spoke to the pharmacist this morning who called to say she was putting the request through to the GP. The pharmacist messaged that afternoon to say the GP has refused to prescribe unless I go on hormonal contraception or the copper coil. He has claimed that guidelines say he can't prescribe if I refuse the above types of contraception.

I want to complain about this for several reasons:

  • My husband is completely infertile. He had multiple samples of testicular tissue biopsied and it was confirmed he has a condition that means his sperm count will always be 0. The only way I'm getting pregnant is with a sperm donor. I obviously can't do this by accident. The pharmacist made the GP aware of this because she called me this morning and said contraception is recommended, so I said I'm not on contraception and disclosed about my husband.
  • I checked the guidelines myself. NICE guidelines state the need for effective contraception must be expressed. The BNF says effective contraception must be advised. On gov.uk there is a 2022 safety review of the medication that states health care practitioners "should fully inform the patients of the risks and advise them of the need to use highly effective contraception". Nowhere specifies what contraception should be used, and none of the above bodies specify that medication should not be prescribed if long term contraception is refused. The only thing I can find is that alternative medications can be offered if the medication is long term and the patient doesn't want to use any form of contraception.
  • Condoms and abstinence are also effective forms of contraception. If I were a man these would be recommended as they're the only available form of effective male contraception. It seems discriminatory to suddenly decide they're not considered effective contraception just because I have a vagina.
  • I'm an adult with full capacity. I have the right to make an informed decision about what I put into my body.

In all honesty it just feels a bit like the GP has refused my prescription and intentionally given me misinformation about the guidelines to try and coerce me into going onto a contraceptive that he deems the most effective, rather than allowing me to make an informed decision based on my own personal circumstances. I know this is dramatic and I won't put that in my complaint but I just needed to get that thought out of my system

AIBU if I complain?

OP posts:
Sconesandgravy · 12/04/2024 04:13

rileyy · 12/04/2024 03:44

Is it accutane? When I went on it I was told I needed to be on contraception. I happen to have the mirena coil for endometriosis so that was all good, but I happen to also be a lesbian..I asked about this but it was still a legal medical requirement for me as a woman of child bearing age

No, it's Topiramate. It's not a legal requirement to be on contraception and all guidelines state doctors should speak to the patient about their medical history and circumstances, inform them of the risks of pregnancy and advise effective contraception.

If there was a law I would accept it and either take the contraceptive or request an alternative medication if there was one.

OP posts:
Sconesandgravy · 12/04/2024 04:08

ZuliKyanLarsFoz · 12/04/2024 03:18

I work as a Fetal Medicine Midwife and we get quite a few referrals each year for women who have conceived on teratogenic medications. The recommendation for the majority of these medications is to prescribe to women of child bearing age with effective contraception. I do appreciate that you have extenuating circumstances regarding this but I do feel that the GP is showing due diligence in refusing to prescribe. They themselves have not had the conversation with you, its third hand information. They are responsible for their own prescribing and they can't use the defence that another doctor told them to do it if something went wrong. The system is also at fault here at a you should be able to make an appointment to see them for a consultation easily so you can discuss your individual circumstances. I hope you manage to consult with them and get the prescription you need.

I do understand this, and I'm not complaining about the refusal to prescribe in general. I'm complaining about the refusal to communicate and the approach that's been taken. I'm complaining about his refusal to risk assess based on me as a patient. Because his only reasoning is I have a womb so could.get pregnant. I was even informed I could get pregnant by another man 🙄

It's not the system preventing an appointment, it's the GP. Half my complaint is about the GPs refusal to discuss all options with me. I had him removed as my named GP and said I don't consent to him treating me anymore. Rather than have another GP deal with this, he got the pharmacy to tell me that he's working collaboratively with another GP because I won't engage with contraception.

I also disagree that his refusal is due diligence because if it was about due diligence then this would extend to all risk factors including the risk of prescribing a contraceptive pill without informing me of what pill or medically assessing me if it's one with risks around higher BMIs such as the combined pill. Although this is no longer an issue because he's decided there's too much of a risk I won't take the pill and put an imaginary foetus at risk.

I think it's utterly barbaric to treat me like this. It's clear that he doesn't see me as a patient. He sees me as a uterus. If he saw me as anything more he would be willing to communicate, and treat me like an actual human being with reasons behind my refusal.

OP posts:
rileyy · 12/04/2024 03:44

Sconesandgravy · 09/04/2024 18:32

My neurologist asked the GP to prescribe a medication to help with a medical condition. The medication is one can cause birth defects. I spoke to the pharmacist this morning who called to say she was putting the request through to the GP. The pharmacist messaged that afternoon to say the GP has refused to prescribe unless I go on hormonal contraception or the copper coil. He has claimed that guidelines say he can't prescribe if I refuse the above types of contraception.

I want to complain about this for several reasons:

  • My husband is completely infertile. He had multiple samples of testicular tissue biopsied and it was confirmed he has a condition that means his sperm count will always be 0. The only way I'm getting pregnant is with a sperm donor. I obviously can't do this by accident. The pharmacist made the GP aware of this because she called me this morning and said contraception is recommended, so I said I'm not on contraception and disclosed about my husband.
  • I checked the guidelines myself. NICE guidelines state the need for effective contraception must be expressed. The BNF says effective contraception must be advised. On gov.uk there is a 2022 safety review of the medication that states health care practitioners "should fully inform the patients of the risks and advise them of the need to use highly effective contraception". Nowhere specifies what contraception should be used, and none of the above bodies specify that medication should not be prescribed if long term contraception is refused. The only thing I can find is that alternative medications can be offered if the medication is long term and the patient doesn't want to use any form of contraception.
  • Condoms and abstinence are also effective forms of contraception. If I were a man these would be recommended as they're the only available form of effective male contraception. It seems discriminatory to suddenly decide they're not considered effective contraception just because I have a vagina.
  • I'm an adult with full capacity. I have the right to make an informed decision about what I put into my body.

In all honesty it just feels a bit like the GP has refused my prescription and intentionally given me misinformation about the guidelines to try and coerce me into going onto a contraceptive that he deems the most effective, rather than allowing me to make an informed decision based on my own personal circumstances. I know this is dramatic and I won't put that in my complaint but I just needed to get that thought out of my system

AIBU if I complain?

Is it accutane? When I went on it I was told I needed to be on contraception. I happen to have the mirena coil for endometriosis so that was all good, but I happen to also be a lesbian..I asked about this but it was still a legal medical requirement for me as a woman of child bearing age

Sconesandgravy · 12/04/2024 03:35

greenfluffyrug · 12/04/2024 03:01

I would tell them I've reconsidered and will go on the pill. Pick up the prescription and put them in the bin.

Too much stress and aggravation. The GP sounds like a cunt with the way they have handled this, they should be willing to have a professional discussion with you before refusing anything.

He got the pharmacist to tell me he's no longer allowing the pill because it's clear I won't take it meaning the risk of a pregnancy and potential harm to a foetus is too high 🙄

I actually spoke to the practice manager yesterday. She's asked the complaints manager to call me urgently when she's back in the office either today or Monday. She advised me to log a complaint because the GP has broken the practices shared decision making policy. The policy basically states that GPs are meant to work with patients. GPs are meant to support patients by providing accurate information, and making sure patients are aware of and understand all available choices and the risks and benefits of them. They're supposed to give the patient support and guidance while they think about what is most important for them. The GP is then supposed to work with the patient to come to a decision about care that they are both happy with.

They also have another policy that states the healthcare providers should always consider the patients perspective.

Unfortunately none of these policies have been followed.

OP posts:
ZuliKyanLarsFoz · 12/04/2024 03:18

I work as a Fetal Medicine Midwife and we get quite a few referrals each year for women who have conceived on teratogenic medications. The recommendation for the majority of these medications is to prescribe to women of child bearing age with effective contraception. I do appreciate that you have extenuating circumstances regarding this but I do feel that the GP is showing due diligence in refusing to prescribe. They themselves have not had the conversation with you, its third hand information. They are responsible for their own prescribing and they can't use the defence that another doctor told them to do it if something went wrong. The system is also at fault here at a you should be able to make an appointment to see them for a consultation easily so you can discuss your individual circumstances. I hope you manage to consult with them and get the prescription you need.

Sconesandgravy · 12/04/2024 03:15

XenoBitch · 11/04/2024 23:42

Complain away!

Your GP is basically saying you can't be trusted to take the pill, or be faithful to your husband. It just just smacks of "poor little women can't be trusted".

I really hope you get this resolved, but with every update, I just lose faith in the medical system when it come to women and their own bodily autonomy.

Thank you for seeing this from my perspective. It does very much feel like that at the moment.

At this point it seems like the GP cares more about hypothetical outcomes for a non existent foetus, than he does about very real outcomes for me, when I am the one that actually exists.

I know several people are going to flame me for this, but I am not convinced that it's even about mitigating risk or following guidelines anymore. Let's be honest, if it were about that, then the GP would follow the NICE guidelines for topiramate, inform me of the risks of birth defects and advise me to use an effective contraception. Following that he would then make a decision based on my medical history and personal circumstances as per the guidelines. He would then offer to let me sign a waiver stating I understand the risks and take full responsibility. And after all of that, if he still felt uncomfortable prescribing, then if it was really about mitigating risk, he would contact neurology about another medication option or at least let me seek an opinion from another GP. But he's refusing to do any of that, instead he's choosing to block any option other than a copper coil.

At this moment in time I feel like I've been blocked from doing anything other than getting the copper coil because I've questioned the GP and now I'm seen as a non compliant woman who is refusing to do "what's best" for the GP and a non existent foetus. He's now blocked off all access to other GPs at the surgery, and he won't communicate with me because he isn't open to any other options. He's got me in a position where I either to live with debilitating migraines or get a coil I don't want or need. I'm sorry but it's basically medical coercion at this stage.

OP posts:
greenfluffyrug · 12/04/2024 03:01

I would tell them I've reconsidered and will go on the pill. Pick up the prescription and put them in the bin.

Too much stress and aggravation. The GP sounds like a cunt with the way they have handled this, they should be willing to have a professional discussion with you before refusing anything.

Rubylooloo · 12/04/2024 02:33

Actually I’m going to NC just to escape you

Rubylooloo · 12/04/2024 02:32

@DetOliviaBenson

Oh god it’s you again. Are you stalking me or what?

Yes ok then, your theory must be correct. The GP is mentally unwell. Rather than being overstretched and worried about prescribing a potentially very harmful drug, outside of his comfort zone or area of expertise, which could then lead to him being struck off.

DetOliviaBenson · 12/04/2024 01:13

Rubylooloo · 12/04/2024 00:49

Who would be a GP now? It’s no wonder so many of them are at crisis point.

You think a GP INSISTING a woman has a device inserted inside her before he'll prescribe a drug recommended by a neurologist is perfectly reasonable do you? You think a GP insisting a woman be forced to have a device inserted inside her because she can't be TRUSTED to take the pill is reasonable? You think a GP saying that infertility doesn't exist is reasonable?

The GP sounds like an absolute fucking nutjob! Where did he (I'm assuming he's a he because would a woman insist on forcing another woman to have something inserted inside her against her will?) get his medical degree, Asda?

Rubylooloo · 12/04/2024 00:49

Who would be a GP now? It’s no wonder so many of them are at crisis point.

Sconesandgravy · 12/04/2024 00:41

LawrieForShepherdsBoy · 12/04/2024 00:07

What’s worse, waiting three weeks or the doctor seeing your husbands medical records? I know neither option is perfect but you are painting a picture that you have no options, when you do.

You do really need an appointment at your surgery, though ideally it wouldn’t be the GP who is your current named doctor at surgery. It does sound like you need to change to a different named doctor as going forward it will be them doing prescribing.

Edited

I updated yesterday - I tried to book an appointment with him to discuss and the GP has refused to see me. I did call up and change my named doctor either Tuesday or yesterday because I felt it was a good middle ground that means I'm not making a complaint but I also don't have to see him. I said I don't consent to him treating me anymore and requested this is tasked to someone else. When the pharmacy called she said the GP has made the decision to work collaboratively with another GP because of my refusal to engage.
My husband has refused to consent because he's not happy with the approach taken, and he feels it's completely inappropriate to request his medical history and take that into account, when my medical history hasn't been taken into account and I'm the patient. I was even told my medical history hasn't been taken into account because it doesn't eliminate the risk of pregnancy. While this is true, the GP shouldn't even consider prescribing contraception without making sure it's suitable.

OP posts:
Userxxxxx · 12/04/2024 00:19

Why wouldn’t you just buy this private. Of course make a complain but as well known it takes time these days with so many bars and probably sad events to be listened too. Only the other day I had to hear how bogged down they the consultant were with big waiting lists … after having 4 weeks off.

I purchased Mefanimic acid to stop period blood flow 7 days on the trot - I had the option for chemist to inform GP, I duly did do.

When medication arrived it seems to help with headaches and some people with arthritis and much other conditions when you read the patient leaflet.

Reached a point I don’t want to see a stressed GP who couldn’t give a shite, nor do I.

LawrieForShepherdsBoy · 12/04/2024 00:07

Sconesandgravy · 09/04/2024 20:07

I mean I'm booked in, but I'd rather not live with debilitating Hemiplegic migraines for another 3 weeks.

What’s worse, waiting three weeks or the doctor seeing your husbands medical records? I know neither option is perfect but you are painting a picture that you have no options, when you do.

You do really need an appointment at your surgery, though ideally it wouldn’t be the GP who is your current named doctor at surgery. It does sound like you need to change to a different named doctor as going forward it will be them doing prescribing.

MigGirl · 12/04/2024 00:05

@Sconesandgravy In sure your aware of this but your options for hormonal contraception are limited anyway due to your migraines. In fact that was the reason why my GP was happy for me to take it without a hormonal contraception (Yes and IUD could have been tried but due to problems using them previously that wasn't an option for me either). I had come off hormones for a reason as they just weren't working for me.

And before anyone asks I'd tried every form of hormonal contraception avaible to me. They all made me much worse and had unacceptable side effects.

I appreciate I was very luckily in having an understanding GP.

Sconesandgravy · 11/04/2024 23:58

Frogqueen2 · 11/04/2024 19:44

The issue is that hcps are well aware people lie as recommended multiple times in this thread

As a hcp I've seen multiple people who have got pregnant while on less dangerous meds who claimed before it was impossible (including lesbians, people who've had multiple unsuccessful ivf attempts, people on the pill and using barrier style protection). These boards are full of people who get pregnant due to missing a pill, or being the small percentage where a condom isn't successful. The pill for example has an estimated 7 in 100 failure rate per year.

Thus the highest risk meds will only be prescribed in women of non childbaring age or women on permanent/long term contraception. With the higher classes there can be no risks

understandably people who are desperate for a medication to alleviate something horrible will lie if they think they can get asay with it. I can't check if you take the pill, I can if you have an iud

Edited

As a HCP would you not take a patients previous history and personal situation into account? Would you not take into account the fact that a patient hasn't had a pregnancy since 2013? That they only came off long contraception in 2022 after their husband's diagnosis? Would you not take it into account that they am happy to have a conversation and discuss the risks and go through their history? Would you choose to work collaboratively with a GP to try and get a patient to agree to contraception when they've requested to speak to another GP?

Would you go against NICE guidelines that state a patient must be informed of risks and advised to go on effective contraception, without actually having a conversation with the patient about why it's seen as too high risk to follow the guidelines? Would you hide behind a pharmacist and deliver all of these messages via her?

Would you agree to prescribing long term contraception with no appointment to inform a patient of the risks or without assessing their health to see if the pill is suitable. Because before my GP withdrew the "option" of the pill because I'm "refusing to engage", he was going to put me on a pill I cannot take due to one of my medical conditions. He didn't withdraw the option of a pill because of my health, he withdrew it because I won't comply.

After the last couple of days, it's no longer complaining because he's refusing to prescribe. It's complaining because of the lack of communication and the refusal to see me as anything more than a uterus. He obviously cares more about risks to a hypothetical foetus than he does about risks to an actual living patient. Because if he did care about me as a patient, he wouldn't have even considered putting me on the pill without checking my records and assessing me to make sure it was safe.

OP posts:
MigGirl · 11/04/2024 23:57

Sconesandgravy · 09/04/2024 20:07

I mean I'm booked in, but I'd rather not live with debilitating Hemiplegic migraines for another 3 weeks.

I was on toprimate for migraine for over 10 years. I was never forced to take contraception, in fact I wasn't on any initially (we just used condoms until DH got his vasectomy) but I have come across others who have been told they need to use 2 forms of contraception while using this drug.

I would complain, about the contraception issue.

Although the neurologist was right that the GP prescribe it as it's not a second tear drug and GP'S can prescribe it off their own back. In fact it was my GP that prescribed it for me.

LawrieForShepherdsBoy · 11/04/2024 23:54

Apologies if I’ve missed this, but have you made an appointment to see your doctor? You say that he refuses to see you, did the surgery block an appointment?

Go into the surgery and ask to change who your named doctor is. Have a face to face appointment with that doctor. If that doesn’t work, change surgery.

Im really sorry that you’re going through this, but as an outsider looking in, it does read like you are expending much more energy on being angry than taking practical steps to get your medicine.

At the moment you’re just dealing with the pharmacist. I’ve never gone to a pharmacist until I know doctor has sent over my prescription? Surely doctor comes first, even if it’s only an email to the surgery to request prescription?

XenoBitch · 11/04/2024 23:42

Complain away!

Your GP is basically saying you can't be trusted to take the pill, or be faithful to your husband. It just just smacks of "poor little women can't be trusted".

I really hope you get this resolved, but with every update, I just lose faith in the medical system when it come to women and their own bodily autonomy.

Sconesandgravy · 11/04/2024 23:39

Soontobe60 · 11/04/2024 19:28

Your GP is correct in that you could get pregnant by another man!

I mean, I take my wedding vows seriously, so really wouldn't. It's also incredibly insulting and inappropriate for the GP to refuse to have a conversation with a real patient, who has a real medical condition, and needs a real solution, because he's too focussed on a hypothetical affair, that could produce a hypothetical foetus, who could then be diagnosed with a hypothetical birth defect, resulting in a hypothetical termination, or hypothetical disability.

OP posts:
Frogqueen2 · 11/04/2024 19:44

The issue is that hcps are well aware people lie as recommended multiple times in this thread

As a hcp I've seen multiple people who have got pregnant while on less dangerous meds who claimed before it was impossible (including lesbians, people who've had multiple unsuccessful ivf attempts, people on the pill and using barrier style protection). These boards are full of people who get pregnant due to missing a pill, or being the small percentage where a condom isn't successful. The pill for example has an estimated 7 in 100 failure rate per year.

Thus the highest risk meds will only be prescribed in women of non childbaring age or women on permanent/long term contraception. With the higher classes there can be no risks

understandably people who are desperate for a medication to alleviate something horrible will lie if they think they can get asay with it. I can't check if you take the pill, I can if you have an iud

Soontobe60 · 11/04/2024 19:28

Sconesandgravy · 11/04/2024 15:03

I'm guessing you haven't read the whole thread. The GP has claimed there is no such thing as infertility, only sub fertility. I was then told that even if my husband is "sub fertile" I could still get pregnant by another man.

So yes, both have been said

Edited

Your GP is correct in that you could get pregnant by another man!

Sconesandgravy · 11/04/2024 15:03

StormingNorman · 11/04/2024 14:18

The GP hasn’t said the husband’s infertility doesn’t exist. He has said this isn’t a barrier to the OP getting pregnant.

I'm guessing you haven't read the whole thread. The GP has claimed there is no such thing as infertility, only sub fertility. I was then told that even if my husband is "sub fertile" I could still get pregnant by another man.

So yes, both have been said

OP posts:
Sconesandgravy · 11/04/2024 14:59

StormingNorman · 11/04/2024 14:16

The GP offered you an appointment. It wasn’t as soon as you wanted but three weeks isn’t an unusually long wait. I don’t think a complaint will be taken seriously.

Yes, I was told I could book an appointment in 3 weeks. I agreed to book the appointment. But yesterday, the pharmacist (who the GP has made deal with this as he's too busy) told me the GP has since said he's not going to see me and won't pass this onto another GP.

Instead he's going to work collaboratively with a different GP because I'm "refusing to engage". I cannot get an appointment regarding this at all. My requests are just refused because I won't accept the contraception and therefore the risk of pregnancy is too high. He won't consider other options so no waivers, no alternative meds, no contacting neuro and telling him to prescribe as he doesn't feel comfortable doing it.

I'm complaining because every avenue to do anything other than go on the contraception he has approved has been blocked off.

OP posts:
StormingNorman · 11/04/2024 14:18

toomuchfaff · 11/04/2024 11:33

This alone.... id be complaining to the n'th degree about this GP.
How dare he.
Go complain - take it further and get from under his assertion and control. Hes actually banning you from getting another GP.... Another GP

The GP hasn’t said the husband’s infertility doesn’t exist. He has said this isn’t a barrier to the OP getting pregnant.