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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To not see why the paediatrician is concerned?

93 replies

Purplevioletsherbert · 31/03/2024 11:48

DS is 7 and has autism and adhd. He has always been very tall and very heavy. Hes quite ‘dense’ so I don’t think he ever looked very fat but was never slim either.

last year he started adhd medication and weighed 40kg at 135cm tall. He had an appointment this week and was 40kg at 142cm tall.

Loss of appetite is obviously normal with his medication, and he often skips breakfast, has a small lunch and then eats a regular meal for dinner. Not huge on veg but will eat a large portion of carrots or cucumber every day and takes vitamins. Lunch at school is a cheese toastie, dinner will be something like chicken and a baked potato. He still has a sweet tooth but we try to limit sweets.

Paediatrician is concerned about his lack of appetite and says I need to make sure he eats breakfast before he takes his medication in the morning so he’s hungry for it. But he has a really good morning routine and he would struggle with this, having not eaten breakfast for over a year. School always offer him a fruit snack or toast when he gets in too and he sometimes has some. He already leaves for school at 7.15am so I don’t want to wake him even earlier to force breakfast down him when there are no downsides to him not having any!

Also, with such a heavy child, the advice is always to help them maintain their weight whilst they grow rather than trying to get them to lose weight. He’s maintaining his weight! And he’s actually looking really healthy for it. Is him skipping breakfast really such a big deal?

OP posts:
Yellowroseblooms · 31/03/2024 13:30

I don't understand some posters here. The OP's child is overweight. The advice is to maintain weight while they grow taller and that seems to be exactly what is happening here. There are obvious weight issues in his birth family and I don't think the OP needs to encourage him to eat breakfast if he doesn't want it.

One of my children was underweight on ADHD medication. We did give him a 3 course breakfast before his tablet because we were making an effort to get his weight up. That's not the OP's concern. His is still really skinny though but that's the default in my family.

Hankunamatata · 31/03/2024 13:10

You sound like a great mum who has perspective on adhd meds. It's a journey. You will adapt as he needs change. At the moment it's a plus that he is maintaining his weight if he is on the heavier side currently as he will become more healthy

Hankunamatata · 31/03/2024 13:08

And op things will change as he gets older so you adjust your patterns with meds. Mine lost weight but became incredibly active as preteens so we made sure they ate in the morning then took their meds which also gave the benefit of lasting longer through the day to get homework done.
I found ensure or fortesip were good as they come in millions different flavours and consistency such a juice or milkshake etc but you are at this point in adhd med journey.

It is important drink during the days as meds won't work properly otherwise

Purplevioletsherbert · 31/03/2024 13:07

Wedontopenyet · 31/03/2024 12:57

You'd think that but my ds was born 99.8 centile and if you track that, it that is overweight by the time you get weighed at school in reception.

Op, it sounds like your ds is thriving and I'm sure it will be something you monitor as time goes by.

Thank you.

He just doesn’t seem to need the ‘fuel’ as some others are suggesting. He’s just having a cheese and ham wrap for lunch with lots of cucumber and an apple on the side, and a glass of milk. He has spent the morning jumping around whilst playing with his cousin and has worked up quite a sweat but is by no means tired!

OP posts:
W0tnow · 31/03/2024 13:06

My son takes the meds. We try to make sure he eats in the morning. He was skinny to begin with, and he’s also a teenager. Making sure he eats breakfast means he eats breakfast and dinner but not (really) lunch. That way he’s eating two decent meals a day.

I guess if it becomes more of a concern a banana smoothie or similar is a quick breakfast.

Purplevioletsherbert · 31/03/2024 13:05

CecilyP · 31/03/2024 12:51

But he has a really good morning routine and he would struggle with this, having not eaten breakfast for over a year. School always offer him a fruit snack or toast when he gets in too and he sometimes has some. He already leaves for school at 7.15am so I don’t want to wake him even earlier to force breakfast down him when there are no downsides to him not having any!

If school provides food when he arrives, isn’t that some sort of breakfast club. He has an extremely early start for a 7 year old so it’s not surprising he doesn’t want breakfast. Was the paediatrician aware of that? If the medication doesn’t have to be taken with food, I can’t see the problem.

It’s not a breakfast club, he gets to school for about 9am (depending on taxi) and as they’re aware that he doesn’t eat breakfast they make sure they offer him something when he gets in as part of his settling in for the day. It’s an independent special school so they’re very adaptive. The paediatrician is aware of the time he leaves as that’s why he’s prescribed the XL medication so it doesn’t wear off by lunch time!

OP posts:
LightDrizzle · 31/03/2024 13:04

What about one of those little probiotic yoghurt type bottles if a protein shake doesn’t work. There are very few calories but at least he won’t be running on empty and they can help gut health too.

Purplevioletsherbert · 31/03/2024 13:04

Citrusandginger · 31/03/2024 12:49

It sounds like you have a lot going on here OP. What I would say is that one of the benefits of protein at breakfast is that it can increase the time ADHD meds are active, so is worth doing. I would suggest protein from real food sources rather than shakes if you can as the other ingredients may be undermining your positive efforts.

This makes a lot of sense too, but he takes the medication at 7am and it generally lasts until about 5pm. It’s 6pm we notice it’s definitely worn off, just in time for bedtime 😂

OP posts:
Purplevioletsherbert · 31/03/2024 13:03

FawnFrenchieMum · 31/03/2024 12:48

@Purplevioletsherbert this is a tricky one as your going to get lots of replies that have no clue about ADHD medication or ASD children.

My DS was 14 when he started on the medication and by 16 had grown a lot taller but lost weight. It was a concern for us as he got very skinny. He wouldn’t eat breakfast, barely touched lunch and then finally ate a good meal for dinner but it wasn’t enough for him. We gave him protein shakes for breakfast and lunch and added supper (medication had worn off by then so would eat) which at least helped him at least maintain his weight.

I think your issue will be if your DS continues to grow taller but still isn’t gaining any weight eventually it’s going to become an issue and he’s probably not getting enough calories longer term. Is it the medication team that are questioning it or another consultant?

This makes sense and I agree that if he was still 40kg in two or three years time I’d be very concerned. It’s his medication team questioning it.

OP posts:
Wedontopenyet · 31/03/2024 12:57

PostItInABook · 31/03/2024 12:32

Children should not be dropping percentiles. They should track roughly around the same percentiles throughout their childhood.

You'd think that but my ds was born 99.8 centile and if you track that, it that is overweight by the time you get weighed at school in reception.

Op, it sounds like your ds is thriving and I'm sure it will be something you monitor as time goes by.

CecilyP · 31/03/2024 12:51

But he has a really good morning routine and he would struggle with this, having not eaten breakfast for over a year. School always offer him a fruit snack or toast when he gets in too and he sometimes has some. He already leaves for school at 7.15am so I don’t want to wake him even earlier to force breakfast down him when there are no downsides to him not having any!

If school provides food when he arrives, isn’t that some sort of breakfast club. He has an extremely early start for a 7 year old so it’s not surprising he doesn’t want breakfast. Was the paediatrician aware of that? If the medication doesn’t have to be taken with food, I can’t see the problem.

Citrusandginger · 31/03/2024 12:49

It sounds like you have a lot going on here OP. What I would say is that one of the benefits of protein at breakfast is that it can increase the time ADHD meds are active, so is worth doing. I would suggest protein from real food sources rather than shakes if you can as the other ingredients may be undermining your positive efforts.

FawnFrenchieMum · 31/03/2024 12:48

@Purplevioletsherbert this is a tricky one as your going to get lots of replies that have no clue about ADHD medication or ASD children.

My DS was 14 when he started on the medication and by 16 had grown a lot taller but lost weight. It was a concern for us as he got very skinny. He wouldn’t eat breakfast, barely touched lunch and then finally ate a good meal for dinner but it wasn’t enough for him. We gave him protein shakes for breakfast and lunch and added supper (medication had worn off by then so would eat) which at least helped him at least maintain his weight.

I think your issue will be if your DS continues to grow taller but still isn’t gaining any weight eventually it’s going to become an issue and he’s probably not getting enough calories longer term. Is it the medication team that are questioning it or another consultant?

TheForgetfulCat · 31/03/2024 12:47

Mine - coincidentally also adopted - has never fancied breakfast. Just the least morning person you could ever imagine and I don’t think their appetite gets going before about noon. They are petite but a healthy weight and always have been.

It feels weird but it works for them.

CecilyP · 31/03/2024 12:41

PostItInABook · 31/03/2024 12:32

Children should not be dropping percentiles. They should track roughly around the same percentiles throughout their childhood.

Surely this is nonsense. It would mean that a very overweight child could never be a healthy weight!

Jellycatspyjamas · 31/03/2024 12:41

Children should not be dropping percentiles. They should track roughly around the same percentiles throughout their childhood.

Surely that depends though, my DD is also adopted age was 3rd centile for height and weight, aged 6 she wore age 3 clothes, because she was malnourished. She’s now around 50th centile for both and is much healthier.

The OPs child is adopted with health issues in his birth family related to weight. Advice is for children to grow into their weight, meaning their centile will drop but her son will be healthier age 12 at 40kg than he is aged 7 at the same weight.

Purplevioletsherbert · 31/03/2024 12:40

@Hankunamatata thank you, that’s good advice. It just seems so single-focused of the doctor to be concerned that a very overweight child isn’t gaining weight! Especially since I don’t have any major concerns about his nutrition. He eats quite a varied diet for a child with his difficulties!

OP posts:
Hankunamatata · 31/03/2024 12:39

Adhd doctors don't usually want to see any weight loss when taking adhd medication - usually adhd kids are on the thinner side.
We struggle massively getting our dc to maintain weight on medication.
I'd ask for a phone conversation with the pead privately without dc; so you can have a frank conversation about weight and your concern about dc being overweight.

Purplevioletsherbert · 31/03/2024 12:36

PostItInABook · 31/03/2024 12:32

Children should not be dropping percentiles. They should track roughly around the same percentiles throughout their childhood.

You say that, but the NHS also suggests that his centile puts him at ‘very overweight’ and advises that he should be supported to maintain that weight as he grows, therefore dropping centiles…

OP posts:
PostItInABook · 31/03/2024 12:32

Children should not be dropping percentiles. They should track roughly around the same percentiles throughout their childhood.

Dustyblue · 31/03/2024 12:30

OP this is hard. I can see what you mean.

A bit different, but my DS7 has a genetic condition that causes accelerated growth, plus behavioural/learning/low IQ problems. And Oppositional Defiance Disorder.

His diet is crap despite all effort. His is carb-heavy, vegetables & decent protein be dammed etc. Won't touch the food his family eat. I swear, the International Symbol of ND Kids should be a fucking chicken nugget.

No real advice I'm afraid, just solidarity. We're having our biannual Paed visit next week- last check he'd shot from 78th to 94th percentile for weight, similar for height. Am dreading it but hoping for some advice amongst the rest of his medical stuff.

Hang in there X

Mistralli · 31/03/2024 12:27

Going to post this despite no expertise as there is clearly some confusion in what the statistics around children's weight charts mean, and it may allay anxiety.

It has very little to do with BMI or healthy weight.

Simply, being 98th percentile is that 98 out of 100 children of that age will typically be that height or weight or less. 2 percent of children that age will be taller or heavier. It just shows you how your child compares to the range of different weights and heights other children of the same age are. He's bigger than many children of the same age, but that doesn't mean he is unhealthy. And he is smaller than 2 out of 100 of them.

So that is why the same height and weight is a different percentile for a different age: at the older age 88 percent (88 from 100) children will be his size or less.

You doctor will be concerned because it is normal for children to roughly track their percentile as they age - but some do drift up and down. If he was 90th percentile at birth, and has largely stayed there, then he is roughly the size you'd expect him to be now.

I thought the smoothy idea to take the medicine was a good one. If you make it yourself, you can control the sugar. Giving it with milk might also be a good start to introduce some morning calories.

Sirzy · 31/03/2024 12:16

It sounds like you may need to push for a dietican referral to try to help get the right balance for him with his set of needs.

if the peadiatrican remains concerned about the lack of weight gain then they may look at stopping or changing the medication which you don’t want!

Purplevioletsherbert · 31/03/2024 12:14

@unbelievablescenes thank you, this is my thoughts also. He is much more “in tune” with his body since starting the medication, for example he knows when he is tired and when he needs the toilet (toileting was a huge issue before). I think it’s great that he’s listening to when he is hungry.

OP posts:
Purplevioletsherbert · 31/03/2024 12:13

@GingerIsBest thank you for understanding. I want him to be healthy, and the battles to get him to eat don’t seem worth it (he is really thriving at school and is no longer having meltdowns at all really, so don’t want to set him up to fail by starting each day with a meltdown by forcing the issue) but even a small protein shake might work.

Worth mentioning that I’m also overweight and battling it, constantly. I don’t want that for him.

OP posts: