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Any one up? Really worried about DD

155 replies

Boatshoes · 20/02/2024 03:36

Hi all. I’m really worried about my DD. She is 8 and, over the last year, has had many episodes of dizziness. She is under a paediatrician and was reviewed on 5th January and we were told to keep an eye on her. She then had a few more episodes so we were told to book in at the GP for a blood pressure check and ECG with a nurse (booked for this week).

Half an hour ago, DD woke up crying, saying the back of her head and her forehead were really hurting. I got her water and the pain subsided after about a minute.

I am absolutely terrified - my dad has a brain tumour and he had the same symptoms as DD. She has also had another back of the head headache a couple weeks ago but nothing that woke her from her sleep before.

She is well otherwise (so can’t blame it on a virus).

I am in such a panic that I have just this moment emailed her paediatrician and asked if I need to push for a scan because of all of her symptoms, and if she thinks it
could be a brain tumour.

im sorry to waffle but I am genuinely terrified.

What shall I do? A&E diagnosed my dad as he had a big seizure, and I am so scared that Dd has something really similar.

OP posts:
Oaktree55 · 20/02/2024 10:48

Ps we all get these headaches/migraine symptoms too

Oaktree55 · 20/02/2024 10:46

I also have this. Strengthening leg muscles, squeezing bum cheeks before standing, salty snacks all these things help. Please don’t worry. Both of mine have Ehlers Danlos diagnosis by rheumatologist and geneticist so I know it’s caused by this. It’s pretty common.

Castlereagh · 20/02/2024 10:45

Brain tumours in children are the second most common type of childhood cancer after leukaemia, but they are still very rare. As a pp has said, a familial link is vanishingly rare and usually connected with specific genetic syndromes. They are usually different to adult brain tumours and the prognosis can be much better. Lots of them are non-malignant and slow growing.

Dizziness isn't a common symptom. Feeling sick and headaches are the most common, then it's things like vision changes or balance and coordination issues. I had a child with a malignant brain tumour who barely complained of headache and the main initial symptom was not feeling hungry.

I hope you and your DD are ok, and you are getting the assessments / investigations you think she needs. I hope whatever is causing the headache is quickly identified because I know the unknowns are the worst bit if you've been through something traumatic like your dad's cancer.

Oaktree55 · 20/02/2024 10:43

This is pretty common both mine had this to point if seeing black and almost passing out. GP’s etc v uninterested put down to POTS /hypermobility.

OrlaOrka · 20/02/2024 10:42

If they won’t do a scan for you straight away, might be worth in the meantime going to the opticians for a full assessment, they can also see things to do with the brain sometimes. Best of luck OP you must be so worried, your daughter will be well looked after with you as her mum

StealthSpinach · 20/02/2024 10:42

I have Chiari, and this sounds very familiar. It can only be diagnosed from MRI (doesn’t show on CT).

Sending positive thoughts to you and your daughter - I hope you get answers.

Saladpops · 20/02/2024 10:29

My DD had similar symptoms but headache was in the temples not back of the neck. She had an MRI and am now nervously waiting for results.

Hope you get seen soon.

SwordToFlamethrower · 20/02/2024 10:29

Insist on a brain scan! Say you're not leaving till you get one.

Stay strong mama

AInightingale · 20/02/2024 10:26

Always trust your mother's instinct OP. Make an absolute nuisance of yourself if you have to. I hope you get the scan today and that it puts your mind at rest at least. 💐🤞

NeedthatFridayfeeling · 20/02/2024 10:25

Hope she gets the scan OP and good results 💐

Bluetrews25 · 20/02/2024 10:25

Incidentally, I know someone with Chiari and the only effects are occasional dizziness, as far as I know.

PumpkinsAndCoconuts · 20/02/2024 10:23

This is so scary. Handhold Flowers

scoobysnaxx · 20/02/2024 10:06

decionsdecisions62 · 20/02/2024 09:39

Yes the lack of tact on here is astounding!

Right?!

Put yourself in this women's shoes for gods sake!

DONT MAKE HER PANIC EVEN MORE!!!

Some wicked tactless people here.

6pence · 20/02/2024 09:59

Lots of innocent reasons. Dd was diagnosed with migraines after similar.

Rosiiee · 20/02/2024 09:43

Hope you managed to get some sleep OP!

anunlikelyseahorse · 20/02/2024 09:41

Your user name isn't very apt Mamaalwaysknowsbest.

decionsdecisions62 · 20/02/2024 09:39

Yes the lack of tact on here is astounding!

BlueFlint · 20/02/2024 09:37

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I'm not sure that is hugely helpful for OP to hear right now? She's already terrified.

Do hope you are seen soon OP. Will be thinking of you.

ns87 · 20/02/2024 09:31

Sending you all the love xx

Parentofeanda · 20/02/2024 09:28

my cousin has a brain Cyst, he's 17 and apparently must have had it for years as its so huge, i would get her checked. He had same symptoms but was only diagnosed when he had a seizure, they tried saying it was epilepsy at first.

Zaranj · 20/02/2024 09:23

Best wishes OP. Sending 💐to you and your daughter. Keep advocating and I hope you get results and a solution. Only advice is have a list of her medical history in bullet points. Also write down your questions and the action you want taken.

Capricornandproud · 20/02/2024 09:23

Sending lots of love and luck to you both op 💕

Thesoundoflettinggo · 20/02/2024 09:20

Oh OP I'm so sorry you've been dealing with this for such a long time. I have nothing to offer apart from my thoughts and hope you get answers soon 💐

MamaAlwaysknowsbest · 20/02/2024 09:14

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