Any one up? Really worried about DD

Bristol Royal Hospital for Children, if you are in Somerset.

I suppose you start by phoning the switchboard at the hospital, surely someone would know if they can offer a scan privately.

I don't have any advice but just wanted to send you love and 💐I hope things get sorted out and you get peace of mind xx

dizzy spells can be anxiety in little kids too. Even if they don’t seem anxious - if they’re only happening at school for example, or have suddenly come on but seem quite random. Anyway hopefully just one of those things kids get to freak parents out :)

@Boatshoes I had a private MRI last year, I had to go to Milton Keynes and was £400 but was so worth it for the reassurance, I’m not sure if they do children. Also I saw you mentioned your daughter is hypermobile. I have hypermobile ehlers danlos and also suffer with Dysautonomia/pots and can experience symptoms similar to you describe with your daughter.

I started wearing glasses at age 12 for longsightedness and the only symptoms I had were headaches and nausea/dizziness. Young children’s eyes are very good at straining to see so they don’t actually experience poor vision until it’s really bad. Reading glasses might help.

But, since you said she’s been getting headaches for years, be on the lookout for other migraine symptoms. Light sensitivity. Sensory changes like sense of smell or taste changes. Visual disturbances. There are lots of treatment options these days.

I haven't read the thread but check out Ehlers-Danlos if you have hyper mobility in the family.

I'm glad your dd is feeling a bit better and that you are home and feeling reassured.

One thing I wanted to add is have you had her vision checked? My dd complained of headaches and a little bit of dizziness around that age. She also had one really quite terrifying experience at night of what I think was a migraine where her head hurt but she was also hallucinating and seeing all sorts of weird things, flashes of light and shapes and was really upset by it all. It turns out that it was her vision. She is very long sighted. She had the usual vision check at school which said her vision was perfect, but two years later, it was definitely not. Getting glasses helped and she didn't have any more headaches after that.

For Fuck's Sake.

What is 'FFS', please? I did google and all it came up with was something that I doubt you meant in the context of this thread.

I'm glad you and your daughter are at home and somewhat reassured. I googled and found that headaches and dizziness are not uncommon in people with coeliac disease, Boatshoes. I hope all is well from now on.

Hi Op
Glad all looks good

When i was reading your initial post just now and glad all is good. I was going to say is it migraine and I believe it is but you did the right thing going to A&E

Best wishes

Thanks for your update, that does sound very thorough. Do you think you can feel more confident and relaxed for a bit? If you will continue to worry, the headsmart decision support tool has very specific advice to doctors around paediatric brain tumour symptoms, see www.mybrainfirst.org. you might find it reassuring as an isolated headache with no other brain tumour symptoms in the way you describe would result in reassurance as you have received from that doctor.

If you can relax a bit, brilliant. Remember your experience with your dad has led you to look for danger more than you normally would and that's ok for a bit, but if you carry on on hyper alert for ages its worth speaking with someone e.g. brain tumour support.

@Boatshoes I am so happy for you and your daughter, that it is such good news.

I wondered if you could get an MRI scan done privately, but solely for your peace of mind? I know how something that one's conscious brain knows is fine, can still niggle away somewhere at the back of one's mind!

Unfortunately, I do believe that MRI scans are ridiculously expensive, so if you wanted to go down that route, and obviously depending on your financial situation, you may have to save up for it over quite a long period of time. However, as you do have the comfort of the Paediatrician's diagnosis, maybe you wouldn't be too bothered about having to wait for the scan? Also, you know if things were to become more worrying, your DD would have a scan done almost immediately on the NHS.

In my experiences over the years (I am an average aged grandmother, so pretty old!) I have found Paediatric doctors to be particularly careful, and very knowledgeable, about nearly everything to do with children - which must mean they have a vast amount of knowledge, as the only thing that they are often specialists in, is a child as a whole (holistically), whereas most other Consultants concentrate on a particular part of a person's body (although they obviously have to know how their specialism interacts with other body parts and systems).

Hopefully you are not as "nervous" a Mum as me OP, and that you can therefore, now feel happy enough to trust your DD's Doctor to do the best for your DD. You will - again obviously - need to keep them updated with any new, or more frequent, symptoms - but I already know that you will do that OP!

I think that your lovely Daughter is very lucky to have you as her DM, and yes, you are very lucky to have her as well! 💐💐
for both of you xx

So glad your daughter has had a thorough check up and is back home. I'd recommend keeping a diary of all symptoms, just so if you need to go back, you can provide a history. Have a look at the brain tumour charity website so you're aware what the signs are in children. Brain tumours are rare, but there's enough of us here who are parenting children with them to know how worrying it is. Looking back, I wish I'd paid for a private MRI scan.

What is it with NHS doctors and their reluctance to scan? It is not like this in other countries.
@Boatshoes any chance you can arrange a private scan? I paid £350 last year for a private MRI. If it gives you peace of mind it’s worth it.

I'm so glad you got to see a specialist, @Boatshoes and that they gave you some reassurance despite not having a scan. I'm pretty sure that hospitals send a record of your visit to your GP, so at least your GP will be aware of it and able to take the latest development into account when assessing what to do next x

My eldest started out with stomach pains which were actually stomach migraine. When he was about 8 or so he started getting true migraine headaches. He luckily grew out of them as a teenager. My mother and grandmother both had migraines. I know my son and my mother's trigger was chocolate.

So pleased for you @Boatshoes . Maybe for your own peace of mind, pay for a private scan. Then you’ll be able to move on and not think about it anymore.

Not all are familial but some are. FFS.
There is a slightly increased risk. FFS.
It should be checked out. FFS.

Something to tuck away for later is an arachoid cyst... it basically is a cyst that "hangs" in between the brain or spinal cord and the arachnoid membrane. They have symptoms that come and go, but as the cyst gets bigger they come on more often. When the cyst blocks the exit for spinal fluid to the spine, pressure builds in the head and you get headaches - but as soon as the exit is unblocked (change position, or it just slips away) symptoms disappear. As the cyst grows it happens more often, but there are still periods of no symptoms.

Can be serious if the cyst grows to the point that it completely blocks the spine from getting spinal fluid. But in between there are no symptoms.

Males are more likely to have these, and many people have them but they don't grow/don't cause problems. So not a "likely" thing, but something to consider if the episodes seem to get more frequent, but doctors aren't seeing anything in between episodes.

What a relief, so pleased for you, You'll sleep well tonight. 😊