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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Terrified i'm dying!!!!

697 replies

Lostmymind11 · 16/02/2024 16:37

Sorry if this is on the wrong thread but i'm not sure where to put it

Nearly 2yrs ago i had surgery to remove a sarcoma (no treatment afterwards as not needed). My 6 month scan was clear and i had another scan 4wks ago to check if it had come back. The hospital have rang today and told me they had booked me in next Friday to see a member of the surgery team. I am abaolutely terrified and beside myself with worry. I am a single parent to a very young child who has no contact with dad due to domestic abuse. I barely have any family/friend support. If the cancer is back i really don't know what i will do. I feel physically ill

OP posts:
Marcipex · 15/03/2024 11:20

@Toddlerteaplease thats a good point.

Toddlerteaplease · 15/03/2024 11:14

They may need that time to discuss with other specialists, to properly plan what they will need to do. Particularly if it's going to be very complex/ difficult surgery.

anyolddinosaur · 15/03/2024 11:03

Waiting is horrible - Fully understand the complaint. Trying to be positive they probably wouldnt wait 3 weeks if the news was going to be really bad. Hopefully they have something they can do.

CrunchyCarrot · 15/03/2024 09:21

The waiting is dreadful, I agree. Hang in there OP, things are still moving forward for you. Hugs from me. xx

OldMrsHempstock · 15/03/2024 07:29

I'm so sorry you're going through this. I have young children and incurable breast cancer so I know well the absolute terror you're feeling. For me finding others in the same position has been invaluable.
If you're on Facebook, look up Shine Cancer Support, they have a Shine Lifers private group.

3 weeks does seem too long, the wait will be torturous. I hope you can be seen more quickly.

TheStoriesWeTell · 15/03/2024 07:17

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This has been deleted by MNHQ for breaking our Talk Guidelines. Previously banned poster.

What a truly awful thing to say. You obviously don't have a shred of humanity or kindness to say something like this to someone going through such a terrifying time.

PaintInColour · 15/03/2024 07:12

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This has been deleted by MNHQ for breaking our Talk Guidelines. Previously banned poster.

I have reported your despicable comment. Disgusting.

Needapadlockonmyfridge · 15/03/2024 06:32

I really hope you can get seen sooner than 3 weeks. Xx

Tilllly · 15/03/2024 03:15

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines. Previously banned poster.

What a horrible, insensitive remark
I've reported this

Louisevuitton · 15/03/2024 01:19

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines. Previously banned poster.

Silvers11 · 15/03/2024 01:11

Thinking of you OP. A 3 week wait for more info is very cruel, really, when you are so, so worried.

IHateLegDay · 15/03/2024 00:37

Sending a handhold. I'm so sorry you're going through this and I hope all will be well again soon xxx

Acapulco12 · 15/03/2024 00:11

Three weeks does seem like a long time to wait. Well done for seeing if they can meet with you sooner. I’ll keep my fingers crossed that they can see you sooner. Thinking of you 🌺🌺

CountryMumof4 · 14/03/2024 23:23

I've just seen your thread, but I appreciate you've been posting for a while. Just sending, as others have done, a big hug. Two of my closest friends are going through cancer treatment and I know they've had major ups and downs. Fingers crossed you'll see your surgeons sooner and that you'll have a plan in place. Thinking of you x

scaredofff · 14/03/2024 22:45

No advice just keep strong xxx what a stressful and worrying time, I'm so sorry x

Banrion · 14/03/2024 22:41

Oh I hope your complaint makes a difference and that they see you sooner. Thanks for letting us know. We're all thinking of you

Strugglebus · 14/03/2024 22:32

Three weeks to wait again seems cruel and not good enough. I hope they can sort something out, sure you don’t need the added stress of having to complain 😐

Nanaof1 · 14/03/2024 22:31

I have no advice for you, except to keep pushing for quick treatment.

What I do wish to do, is to let you know that I am thinking of you and letting you know you have people in your corner. {{HUGS}}

MsRosley · 14/03/2024 22:18

I don't blame you for pushing back on this. Three weeks seems like too long a delay.

Lostmymind11 · 14/03/2024 22:01

Hi everyone just a quick update. So the hospital rang me this evening to book me in with the surgeon who the Dr i saw who told me the cancer was back would do the surgery as he is the specialist. The appointment isn't for another 3wks as apparently both Dr's want to see me in clinic together. I am putting a complaint in tomorrow as i am not happy i'm having to wait another 3wks for more information

OP posts:
Gummybear23 · 14/03/2024 21:04

Thinking and 🙏 for you.
Sending you the biggest hug.xxxx@Lostmymind11 .

STST · 14/03/2024 21:00

@Lostmymind11

I’ve been thinking of you all week; hope you’re as ok as you can be. Wishing you well x

LuciaPillson · 09/03/2024 01:02

@Lostmymind11 So very sorry this is happening to you and yes it's very confusing when you feel and look well. Hang in there and take advantage of the support on this thread, and the cancer threads should you want to join them, there are lots of people to empathise. And of course any support you can get in real life. Hugs to you.

@5YearsLeft Lmao at 'I have cancer - stop being a dick'! I'm sure I shoot that message out from my eyes daily even if not said aloud (or a less polite version). Except of course at the cancer hospital, where, as one of my docs pointed out, it won't work! 🤣

5YearsLeft · 08/03/2024 21:14

Lostmymind11 · 08/03/2024 20:05

Thank you everyone for your kind words. The hardest part is that i really wasn't expecting the cancer to be back because i feel really well in myself and a few people have commented how well i look these days compared to how poorly i was the first time round.

I’m sure this is so hard and confusing, for both you, OP, and @Tilllly .

I think so many people think of cancer as an outfit (in addition to the disease). It’s a bald head, and bags under the eyes so dark they look like black holes, pale skin that starts to seem fragile, stretched across bones the sicker you get.

But… it’s just not true. “Normal” looking people die of cancer. There are women who keep their hair all through chemotherapy. There are women who put on makeup every day because it’s a comfort, or because it’s armor. There are people who make cancer just look like the morning after a good night out. There just is no one way that cancer looks.

Im sure it’s hard @Tilllly . Sometimes it’s nice because you don’t want to tell the whole world about your private health, but sometimes you also wish people would just be a bit kinder, knowing your time isn’t measured in years anymore. Perhaps consider a sweater that says, “I have cancer - be more gentle with me,” for the days when that’s what you want, and then you can leave it home when you don’t. I’d salute you. (Maybe a second sweater that says, “I have cancer - stop being a dick,” for those kind of days, too).

And @Lostmymind11 , I know you don’t have the full picture yet, but I really, really hope that because it was discovered when you still feel well in yourself, that you’ll have more time and more options. Because the truth is, if there’s something in your liver, and they only discover it because you start looking jaundiced or rapidly losing weight (before the stress)… it’s not so good.

I will be thinking of you both and @Tilllly , please DM me if you ever need someone to commiserate.

Tilllly · 08/03/2024 20:50

Lostmymind11 · 08/03/2024 20:05

Thank you everyone for your kind words. The hardest part is that i really wasn't expecting the cancer to be back because i feel really well in myself and a few people have commented how well i look these days compared to how poorly i was the first time round.

It's oddly frustrating, isn't it?
Apart from when the pain overtakes the painkillers, I feel perfectly alright. I look absolutely normal.
The fact that the cancer is giving me just months seems completely absurd.
People keep saying, you look well, as tho a miracle cure has happened, and they haven't heard

I don't want to look like a walking corpse, but still, there should be, surely some outward visible sign of what's rampaging through on the inside