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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be pissed at my doctors and complain

61 replies

Ladylalaboo1 · 20/01/2024 04:07

Could be being unreasonable because I'm in pain but I don't think I am! I am prone to bladder infections, specifically upper bladder, not urinary tract infections. Have about 4-5 a year, have asked to be referred a few times over the years but nothing has ever materialised. My issue is the same policy applies each time I ring and request antibiotics to help me with the infection. I have to drop a sample off which they test then they will give antibiotics. About 9 times out of 10 my dip stick result comes back as no infection, will send to lab, if I need any more help then to wait until next week and ring again for appointment, other wise ring out of hours over weekend. I knew this morning when I rang it would say no infection, so when I dropped my sample off during my dinner break I wrote on the slip my concerns that whilst I know the process, my sample would probably state it didn't have infection but that I know my own body, know these symptoms like the back of my hand, and have on occasion had kidney infections because I've not had antibiotics in time to help clear the infection, so could they please still prescribe me some so it doesn't get worse over the weekend meaning I have to waste my time and the nhs' by ringing 111 going to out of hours and getting antibiotics eventually when I could just get them straight away. 30 mins later text comes through no infection wait the weekend ring back in the week. I work in a school so was teaching and couldn't ring until after if finished which was too late so I'm now up in agony , as symptoms get worse and have just rang 111 and I'm waiting for an out of hours appointment ( 6hour + wait) for them to hopefully prescribe me the antibiotics. I just feel really let down and unheard. There's been articles recently about how unreliable the dip stick test is for urine infections ( less then 50% accurate) and woman are just routinely being ignored and not listened too. I'm angry that my notes from previous infections have been ignored and they have just don't the bare minimum leaving me in pain and for the infection to continue when I could have had antibiotics by now. I'm just fed up with it really and wish we as women were heard more and listened too. The doctor who tested my sample was male, which , isn't always the case, but I definitely think doesn't help when it comes to empathy and understanding the utter discomfort a bladder infection can bring. I'm just so angry and wish it wasn't so difficult to be heard!! So I think I want to just email the gp and complain, if anything , just so they can make a note and in future I or other women don't have to jump through hoops for basic medical care?!? The dip stick test was invented over 50 years ago has never been replaced or even changed slightly and is so outdated. Just wish I could advocate for myself easier 😭 sorry I know it's a tantrum I'm just in pain and it sucks to be a woman sometimes !

OP posts:
badwolf82 · 20/01/2024 05:44

While you’re waiting for your referral, have you tried D Mannose? It sounds a bit silly but it’s basically a natural sugar that is supposed to prevent bladder infections by making the environment in the bladder inhospitable to bacteria.

I used to get a lot of bladder infections and was sick of taking antibiotics so started taking D Mannose when I felt something coming on and it really worked. Cleared up the infection before it really started.

You can take it in high doses to treat an infection or in low daily doses to help prevent an infection. I’m not one for alternative medicine generally but this does have some scientific evidence behind it.

Pssspsss · 20/01/2024 05:19

similarminimer · 20/01/2024 04:57

What he said was contradictory wasnt it?
If inflammation of bladder then antibiotics wont help (hence previous doctors advice to wait itil infection confirmed)

That confused me too! So is there an infection or not?

Im currently waiting for my urology referral (different reasons). After hearing nothing for 7 mths from my initial referral I decided to get re-referred to another hospitalhopin things would be sped up but that’s a 7 mth waiting list.

I empathise OP.

similarminimer · 20/01/2024 04:57

What he said was contradictory wasnt it?
If inflammation of bladder then antibiotics wont help (hence previous doctors advice to wait itil infection confirmed)

Ladylalaboo1 · 20/01/2024 04:42

Grrrrrrrrrrrrrrr · 20/01/2024 04:40

That sounds positive!

Yes! I was pleasantly surprised id worked myself up and was ready to fight and he was just so lovely and listened! Thank god x

OP posts:
Grrrrrrrrrrrrrrr · 20/01/2024 04:40

That sounds positive!

Ladylalaboo1 · 20/01/2024 04:38

Grrrrrrrrrrrrrrr · 20/01/2024 04:35

growing the sample on a Petri dish gives more reliable results but you can request this, although it takes time.

you potentially need a long term low dose of antibiotics to properly treat rather then half treat the problem.

write to the practice manager about the two previously lost referrals and ask them to confirm that an urgent referral is in place.

Yes will be doing this Monday, hopefully this time it won't be overlooked and I can get it all sorted. Just so uncomfortable and hard to adult when in pain! Life eh

OP posts:
Ladylalaboo1 · 20/01/2024 04:36

Out of hours gp just rang and he was more helpful in 5 minutes then any of my doctors have been in over 7 years! He's prescribed me antibiotics has told me the process now shouldn't be to test and only prescribe antibiotics based off sample but that's just an indicator but symptoms of bladder infection should supersede this and that should be what they give you antibiotics based off. Also said because I have recurring infections it can be due to inflammation of the bladder which has same symptoms as urine infection but isn't one hence not flagging up on dip stick. He said he's going to flag this to my gp and send a note through that my referral be urgent and to get that sorted! He was so lovely I'm so thankful. My antibiotics are ready to collect when my pharmacy opens. So will ring my gp on Monday to give my feedback about this and to also query the referral and hope
His note has had some effect!

OP posts:
Grrrrrrrrrrrrrrr · 20/01/2024 04:35

growing the sample on a Petri dish gives more reliable results but you can request this, although it takes time.

you potentially need a long term low dose of antibiotics to properly treat rather then half treat the problem.

write to the practice manager about the two previously lost referrals and ask them to confirm that an urgent referral is in place.

Ladylalaboo1 · 20/01/2024 04:20

PickledPurplePickle · 20/01/2024 04:13

I think you need a referral rather than antibiotics 4-5 times a year

This sounds awful

Have you asked where your referral is in the process?

My latest referral was done in August and was told I'm on a waiting list. Wasn't given much more information. I had a referral before then, however, I got pregnant had baby , life etc and I never heard anything and when I brought this up at August they had no record of this referral? I also had another one in 2019 but that got lost during covid. Feel like banging my head against a wall sometimes to be heard. I think it's harder as well because it's almost like a flare up and not a constant issue I'm not hounding them weekly as when I'm not in pain life just gets in the way so it goes quiet. I've had interstitial cystitis mentioned a few times and have been told various things from vitamins to take and dietary changes. Again nothing substantial enough to help make it any easier. You are right though I think I need to push for the referral again and keep on at them even when not in the midst of infection. I think I'm abit disheartened too and part of me thinks even when I get referred it won't do anything. Feels so hard

OP posts:
PickledPurplePickle · 20/01/2024 04:13

I think you need a referral rather than antibiotics 4-5 times a year

This sounds awful

Have you asked where your referral is in the process?

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