To think there are not enough resources for all disabled children?

There’s not an awful lot available for any of them to be honest.

'However, those who do have every right to be there. At what point would be draw the line. Mary wants to spend time with others with limb difference like her, but not if they're in a wheelchair. Henry wants to meet other autistic people but not if they also have adhd because its annoying. You get the drift.'^

This absolutely, there are lots of subgroups in every group of people^

My DS is a young adult. Things used to be so much better before this government got in.
I wouldn't withdraw from the SEN community. My son has a great life now and a big part of that is due to the volunteers who run clubs and discos for people with SEN. They are angels. Lots of them are parents or relatives of SEN. You just have to find them 💐

Waves at @glittercunt 🙂love the username, it would suit me too… not saying why but I do love glitter! I’m autistic and a wheelchair user so I thought I’d say… twinsies 🤣

Of course you’re not being unreasonable!Sadly it’s the same for disabled adults.

💐 for you (from a disabled adult with two disabled kids)

It's unfair to feel as you do. It's also unfair to wish for disabled spaces to exclude those disabled children who are also neurodivergent.

I'm a disabled adult, in a wheelchair, and I'm neurodivergent too. I've been through college and uni multiple times over, am intelligent, so well read, and wish I regularly met up with other disabled people like me. But when I reach out to groups, I'm an anomaly, it seems like others with my level of intellect and conversation aren't joining these groups.

However, those who do have every right to be there. At what point would be draw the line. Mary wants to spend time with others with limb difference like her, but not if they're in a wheelchair. Henry wants to meet other autistic people but not if they also have adhd because its annoying. You get the drift.

As already mentioned, many groups are begun by the parents themselves. A friend of mine has a child with downs syndrome and attends things she's helped set up.

I do wish we didn't need to rely on ourselves that way, it's a lot of energy and time to set up and continue running something, and if we are the one needing the most advice and support then we don't know what we are even doing.

There should be more support from councils, there should be funding for more proper TAs. But it is what it iis.This is why it's so important to make your vote count.

I'm assuming CP is Cerebral Palsy ?

Hitting out at parents and families dealing with other life-altering and under-resourced problems they will struggle for life with won't help you get more resources.

Structurally society needs to change to support all disabled people.

Right now you're complaining that the fire brigade put out the other fire first, and when your house is on fire that's understandable, but there's one fire engine and two fires, so they have to start somewhere.

FWIW the support for ASD/ADHD is shit in most areas, sounds like yours is the major exception?

The rate of diagnosis of physical disabilities is largely unchanged because they were bloody obvious in most babies from day one. The rate of diagnosis of developmental disorders and learning disabilities is increasing because children like me were written off as useless timewasters, day dreamers, "no social skills" or similar (or much worse) for most of human history and it's only very recently that we're recognising it's a Proper Thing and no longer labelling them as having "behavioural problems" rather than unmet needs (and most mainstream provision and healthcare still does label and judge, just like you are, TBH).

If you've got a more unusual disability on your hands (no idea what CP is sorry) then of course there will be fewer parents in your area with the same or similar issues.

Lesson one of having a specific problem is, if you want a group then start one, no one else will do it for you! Most of the groups you see were set up by parents of children with those specific needs.

Ime many of the support groups are started by the parents themselves
My son has severe autism and learning disabilities and yea there are various groups and support groups for children with autism etc in m LEA but they have all originally by fellow parents .

OP - where are you based?

My daughter has CP (wheelchair user) and we're in a variety of groups in and around Manchester.

You've asked so many different questions.

Your title is 100% spot on, but there a a lot of things in your opening post that can be answered fairly easily.

My LO has limited mobility due to CP and I have sought support via groups in RL as well as online, yet I find that there are no groups specifically for CP in RL, and very few online. I don't know any other parents whose children have CP or similar disabilities.
Have you been in touch with SCOPE ? Cerebra ?

other parents in these groups have the challenge of their DC having no awareness of danger and running into roads etc, yet there is hope, I presume, that their DC will learn ways to manage these impulses?

Why do you think that? I remember doing my Masters in Autism Education over 25 years ago, and there was controversy because it had been decreed it wasn't humane to keep young people safe from running by locking doors, so those people were then been given drugs in residential accommodation as the only way of then stopping them running, yes.

Otherwise we may have adults in a few years who will be running into roads?

Yes. That is what happens.

With the increasing levels of diagnosis, why doesnt this include more diagnoses of children with disabilities that aren't ASC or ADHD?

I don't know if I am misunderstanding what you are asking, but obviously Paediatricians can only give a child a diagnosis of the condition they have. They can't "diagnose more children with disabilities that aren't ASC or ADHD", if children aren't presenting with different needs, I mean, that seems so obvious, I can't help wondering if I am mis-reading something.

I completely understand all disabled children need support but why aren't we increasing provision to cater for all disabled children?

This is what everyone who has a child with a disability, and many people who don't would like to know.
Perhaps everyone could ask their sitting MPs, and then their prospective candidates in the General election later this year, and then vote accordingly ?

I must withdraw from the SEND community I should seek support from and that is supposed to cater for and understand disabled DC, yet appears to cater mainly for ASC and ADHD.

I am really sorry that you are in this position. As are so many parents of dc with special needs.
However
95% of the database of pre-school children with additional needs over the last 10 years (at least), the prime area of concern is Social, Communication and Interaction. ie, the children that will (when they eventually reach to top of the waiting list) get diagnoses of Autism.
So, on a purely "fair" proportion, it would seem reasonable that the tiny scraps of support available to families of children with special needs get distributed so 95% of any support goes to the community with 95% of the children.

Not that it should be a competition for these scraps of support in the first place (see previous note about general election).

Sorry you are having a tough day