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Refused test after multiple miscarriages because of other children

89 replies

Desgusten · 20/12/2023 20:57

Also posted in the MC/pregnancy loss
board FYI

I have had 2 successful pregnancies, but multiple miscarriages as well.

I have now had my 6th MC, and have now met the three in a row threshold. My others were interspersed with having my 2 living children.

the GP has said I still cannot have any tests because:

1 - I have had successful pregnancies in the past
2 - I had some blood tests such as thyroid etc (for something unrelated) eight months ago and they were ok

my DH has had multiple surgeries in the last year and I’m worried that could have affected things (one was a testicular op) and my last pregnancy I had a really traumatic birth. My concern was either of these things may have had an effect but that was disregarded. I have had MCs between 7 and 14 weeks.

WWYD? I know I’m lucky to have the children I do, and I am grateful. But it is still painful to lose a pregnancy.

Worth going private? Or just asking to see another GP?

OP posts:
Desgusten · 11/01/2024 19:28

Pumpkinspice13 · 11/01/2024 17:25

That’s brilliant news! What tests have they offered. I need to book in with the clinic but I had an appointment with Tommys and was told all my results were normal after miscarriages and she is stumped as I’ve had living children before my 2 midterm losses.

For now, blood tests and then a face to face after the results. And then go from there.

and if I were to get pregnant again I would automatically get extra scans at 7 & 9 weeks.

wishing you luck @Pumpkinspice13

OP posts:
Pumpkinspice13 · 11/01/2024 17:25

That’s brilliant news! What tests have they offered. I need to book in with the clinic but I had an appointment with Tommys and was told all my results were normal after miscarriages and she is stumped as I’ve had living children before my 2 midterm losses.

JanewaysBun · 11/01/2024 17:22

I would push back. My MC were caused by a clotting issue that could cause severe consequences for my health. You need to know for your own health

Desgusten · 11/01/2024 17:01

Just a little update. I contacted the recurrent miscarriage clinic at the hospital myself. They confirmed we are eligible for investigations and I have already had my first appointment. Fingers crossed. Thanks all

OP posts:
Teder · 21/12/2023 19:04

The comments about being grateful for the children you have when referring to loses is insensitive and cruel.
I am on the fence about the NHS funding investigations into miscarriages when a person has managed to have healthy pregnancies and has children. However, if the criteria say OP is eligible, then she’s eligible.

Canthave2manycats · 21/12/2023 17:32

Desgusten · 21/12/2023 17:23

We are going to see a (different) GP again and request them to refer me/extradite the care to our local fertility centre which is world leading and who have already agreed that I meet the criteria to be seen. They are going to send me a breakdown of how/what they investigate.

I'm glad you're able to do something.

I know I found it very hard when I had my second of two miscarriages and the consultant suggested progesterone/asprin, because I just wished he'd tried that before.

I know having my 3rd DC healed the hurt of my mcs and I feel they were the baby that I was always meant to have. I hope it will be the same for you.

If you want a baby, you want a baby and don't let any of the nasty, judgemental responses get to you x

Desgusten · 21/12/2023 17:23

We are going to see a (different) GP again and request them to refer me/extradite the care to our local fertility centre which is world leading and who have already agreed that I meet the criteria to be seen. They are going to send me a breakdown of how/what they investigate.

OP posts:
Dependabledentures · 21/12/2023 17:20

I think it would be helpful to speak to the Tommy or miscarriage association helpline who May be able to help with givong ammunition to deal with gp who as others have said are clearly mixing up infertility and miscarriage treatment options.
I have a neighbour with several children who had support for miscarriages later in life and went on to have more successful pregnancies.
I'm sorry for your losses and I hope you find access to good care.

Canthave2manycats · 21/12/2023 17:17

Ella31 · 20/12/2023 21:55

Can I just go against the odds here to the people who are saying be grateful you have children already. It's insensitive and none of their business. I'm sorry for your losses, I've been there with miscarriages and sadly recently my nearly full term twin boys are now angels in heaven - one stillborn and his brother died 4 days later. My point is losses are unbelievably hard and you have every right to want that third baby.

One other poster was right about there is a difference between ivf and fertility testing. You need to go to another doctor and ask for testing in regards to recurrent miscarriage. Ignore the know it all here who think you should be grateful. I hope you get answers soon.

I'm sorry for your terrible loss.

I totally agree with you. Why do people think it's remotely 'helpful' to tell the OP to be grateful for what she has? I also had miscarriages after two successful pregnancies. I was seeing my obs privately for antenatal care and next pregnancy he put me on progesterone and 75mg asprin, and I had my DC3.

@Desgusten I would opt for private testing in your shoes. NHS will probably take forever anyway.

Ella31 · 21/12/2023 17:15

Desgusten · 21/12/2023 17:11

The reason I started the thread is because I thought the GP who said I couldn’t be referred was incorrect. That has been confirmed. We have decided how to go from here.

Thanks so much for all of the supportive, helpful replies. Have a wonderful Christmas 💖

I'm delighted for you and hopefully this is the start of the next journey for you. Also that shitty comment has been deleted so don't worry, the majority of sane people care and hope the best for you.

hangingonfordearlife1 · 21/12/2023 17:15

have you had the length of your cervix checked? may be incompetent

Desgusten · 21/12/2023 17:11

The reason I started the thread is because I thought the GP who said I couldn’t be referred was incorrect. That has been confirmed. We have decided how to go from here.

Thanks so much for all of the supportive, helpful replies. Have a wonderful Christmas 💖

OP posts:
Desgusten · 21/12/2023 17:06

I was honestly ready for the “be grateful for what you have” replies - it’s just the same stick I’ve been beating myself with.

Of course there is a part of me feeling guilty for wanting another when we have two wonderful children already. But I’ve thrashed that out in therapy for ages and made up my mind (along with DH) so those replies are of no use or effect.

Do you really think that if I could just move on like that I would be starting this thread?

OP posts:
ShoesoftheWorld · 21/12/2023 17:00

I too had two children interspersed with a total of 3 mc, then a further 3 in a row. I got tests immediately after the first of those (no. 4 altogether). Clotting issues were found but I still mc again on heparin. Nothing unusual in our karyotypes, though mc 5 was due to a rareish chromosomal issue. I did eventually have a third child (on heparin), but I'll never really know why I miscarried so often.

I'm notin the UK. A statutory insurance system paid for my tests, so clearly considered them valid.

Wanting another child in this situation has nothing whatsoever to do with existing children not being 'enough'.

WithACatLikeTread · 21/12/2023 16:48

Some of these posts! I have two children. I have also had two miscarriages one of which was traumatic. Why wouldn't I go for another? Why shouldn't OP if she wants to?

Ella31 · 21/12/2023 16:48

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

This is unbelievably rude and none of your business. It's not constructive to the op. This isn't the place to judge someone. She asked for advise.

Op. I said it earlier. I lost my twin babies after birth 6 weeks ago and I had 2 miscarriages before that. Wanting another baby is normal and healthy, ignore the sh#t you are getting here telling you to enjoy what you have. Nothing can fill that empty feeling when loss occurs but there is a beauty in having a child and I hope that comes again soon for you xxx

CalistoNoSolo · 21/12/2023 16:43

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Desgusten · 21/12/2023 16:39

Thanks for the supportive replies.

I do feel hopeful that we might get some answers and at least some people give a shit.

OP posts:
Desgusten · 21/12/2023 16:36

So I called the big fertility centre near us.

They were actually super helpful and said that although they offer these tests privately if you have had one or more MCs, if you have had 3+ a lot of the local HPs can extradite your care to them if you ask. They said they would be happy to see us privately in two weeks time but we could push the GP to refer us there and they will see us for free, the waitlist is about 6 weeks for that. Fingers crossed.

OP posts:
preggo39 · 21/12/2023 10:34

IVF can actually help with recurrent miscarriage, if they can identify the issue. If you're miscarrying because of chromosomal abnormalities, you can have your embryos tested for abnormalities before any are transferred.

But I totally agree with PP, the number of children you already have should have no impact on your access to treatment for recurrent miscarriage. It's appalling that so many women are just left to it. I would definitely push back if I were you. This is a serious and incredibly painful thing to go through, and absolutely not a waste of NHS time/resources.

Good luck x

ll7 · 21/12/2023 10:23

If you've had 3 consecutive miscarriages then you're eligible for recurrent miscarriage screening via the NHS.

If not, you could go private - a recurrent miscarriage profile blood test costs c£1,400. If you have private medical insurance via your employer thus might be covered (mine was covered via Bupa).

The baby loss charity Tommy's may also be able to help you, or advise on best next steps. Take a look at their website.

I agree that it's unfortunately quite likely a chromosomal issue (for which there's unlikely to be a cure) but it makes sense to do some tests to rule out autoimmune conditions given you've had so many losses.

Desgusten · 21/12/2023 10:20

For those asking I am 33

I wouldn’t want or expect IVF on the NHS - I’m not sure we would even want to try it if we were told that was our only option. And I’m not sure that’s even relevant because actually getting pregnant doesn’t seem to be the problem.

But if it is a straightforward answer eg “take this when you are pregnant and it should help/solve the problem” then that would be great. It might be something they can diagnose and treat. Wouldn’t you want to know?

OP posts:
Scirocco · 21/12/2023 10:07

@Desgusten I'm sorry for your losses.

You may be able to get advice and recommendations on how to proceed, on the Infertility board here. If your GP thinks you aren't eligible for investigations in your local area (which is not the case across the country, as there are plenty of places where having a living child is not an exclusion criteria for investigations into recurrent miscarriages), you may need to go privately. Tommy's may also be a useful resource to explore.

I'm sure lots of people will express their own views on family size and reproductive decisions, but your hopes and preferences are just that... Yours. If having another child is what you (and your husband) want, then it's not really anyone's business but yours.

wudubelieveit · 21/12/2023 09:56

i think its perfectly understandable for anyone to question why you'd put yourself and your husband through the trauma of multiple miscarriages and investigations when you have 2 healthy children to focus on. I think most people relying to this thread will have had miscarriages themselves. If the miscarriages are due to chromosomal abnormalities then what if a 3rd child is born with severe disabilities? what if the pregnancy makes it to the 20 wk scan and that shows significant abnormalities ( (happened to my friend with her third child, devastating). it's not uncaring to suggest perhaps focus on the children you have, as multiple pregnancy losses have an impact not just on the mother but those in her family too.

Valeriekat · 21/12/2023 09:48

My friends first 2 pregnancies were followed by 2 very sad miscarriages.
She was found to have tiny blood clots that blocked the placental vessels.As she became older the clotting tendency worsened which was why her earlier pregnancies were fine.
Sorry your GP is being so difficult but you do need a second opinion.
My friends 5th pregnancy resulted in a beautiful baby girl but she had to give herself daily heparin injections during the pregnancy.

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