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Terrified of HIV, please help

167 replies

Terrified12 · 24/11/2023 10:59

I had unprotected sex with someone I was dating in January 2-3 times, however he didn't ejaculate inside me. I have since lost some weight and noticed that I am getting more frequent episodes of genital herpes and it just struck me that it could be due to HIV. I have a test booked for this afternoon, but I feel sick, I'm shaking, constantly feel like I'm going to be sick, can't concentrate on work. I'm 45 and a single mum. Somebody please help.

OP posts:
Thedm · 24/11/2023 13:24

You already have an STI but you still haven’t learned to use protection?

I very much hope that you don’t no have HIV, but no matter what the outcome, please please use this as the wake up you need to use protection.

Usernjggncfkkc · 24/11/2023 13:22

I'm a sexual health professional and I'm very glad to see the kind, sensible people have jumped into this thread, especially mindutopia, because there was quite a lot of pure nonsense being written.

Just want to agree that HIV is very, very, very unlikely in the situation you've described and even if the highly improbable event you've managed to contract it the treatment is brilliant and you'll be just fine.

WhatGoesUpMustComeDown · 24/11/2023 13:17

HIV is very different these days. I have a friend who's had it since she was a baby and you would have no idea - she has a brilliant happy successful life, she takes one tablet a day and it keeps her viral load undetectable and therefore untransmissable, she's in a relationship and is generally happy. Whatever happens you will be okay - you probably don't have it but if you do try not to panic and listen to the doctors as they know a lot more now. Wishing you luck.x

ToughTitty · 24/11/2023 13:13

and genital herpes can be caused by HSV1 or 2. HSV1 is the more common herpes virus that a lot of people have. But if you're having a lot of recurring episodes genitally, it is more likely to be HSV2 which is the nastier one.

when I went to the doctor when mine was recurring a lot, the first thing they did was test for HIV so it's a sensible precaution. But as mentioned, HIV has had a lot more money poured into research and the treatment for it is excellent now.

good luck with your test

ToughTitty · 24/11/2023 13:10

I have HSV2 (on my skin) and this year has been a nightmare for recurring episodes of it. Anything can cause that - changing hormones, stress, Covid. It's far more likely to be one of those. And even if it's HIV, it's totally treatable now, in fact more treatable than the HSV2 is

Greenshake · 24/11/2023 13:10

Great response @mindutopia 🙂

Catza · 24/11/2023 13:10

You already take antivirals for your Herpes, I presume. So in the unlikely event you do have HIV, it will be another set of daily medication which similarly will keep your viral load down so that it doesn't progress. Weight loss can be a sign of many illnesses, some of them far more concerning than HIV. I don't want to add to your health anxiety but HIV tests wouldn't be my first port of call.

PlayItSafe · 24/11/2023 13:09

i have health anxiety so sympathise. You’re going to be fine. I would literally bet my house on it.

It helps me to go there and think the worst case through. The worst case is you have to take meds every day for the rest of your life. I have to do that every day for my health anxiety! but that’s not going to happen.

good for you for getting tested. Learn from this and move on.

Stressedafff · 24/11/2023 13:08

Ah OP I have health anxiety too and once I get something in my head then I get symptoms. Hopefully that’s the case for you

If you do have HIV it really isn’t the death sentence it used to be, modern medicine has advanced way beyond what was seen in the 80’s and 90’s. I work in drug recovery, there are clients with HIV who have managed to lead very normal and fulfilling lives. Sending love and hoping for the best

Vinrouge4 · 24/11/2023 13:06

Terrified12 · 24/11/2023 13:03

Thank you 🙏 I do tend to catastrophise and it's has been worse recently so I think perimenopause is contributing. But I'm also paying privately for a test with results in 30mins, so it feels extra nerve wracking. I keep thinking about how I'm going to cope with DC after school etc. Realised I'm not in a state to drive, so taking a taxi.

I’m not a doctor but it’s my understanding that it’s more of a risk if the virus gets into the blood stream which is why drug users or people with cuts are more susceptible. It would be very unlikely in your case.

explainthistomeplease · 24/11/2023 13:05

And in addition, @Bigroundpear , the herpes is likely to be exactly the same virus which causes coldsores. How many people who get coldsores alert people of the fact before kissing on the face? Wild stigmatising is what stops many from disclosing their status. Couple of very judgey and ill informed comments on this thread.

I know loads of people who get coldsores on their lips. Horrible things. My husband is one of them. Maybe he caught it years ago having oral sex. Maybe he caught it from an auntie giving him a kiss when he was a child. Who knows? I've never caught it from him though - and I could have done - either orally or genitally. Because the most common strain of herpes covers both bases so to speak.

babyproblems · 24/11/2023 13:04

If he wasn’t HIV positive it’s very very very unlikely you have contracted it.
I think you’re just spiralling! Deep breath. X

Terrified12 · 24/11/2023 13:03

Thank you 🙏 I do tend to catastrophise and it's has been worse recently so I think perimenopause is contributing. But I'm also paying privately for a test with results in 30mins, so it feels extra nerve wracking. I keep thinking about how I'm going to cope with DC after school etc. Realised I'm not in a state to drive, so taking a taxi.

OP posts:
Bigroundpear · 24/11/2023 12:59

lots of nonsense on this thread.

  1. genital herpes can be passed even when a condom is used - it affects skin around the genitals and this isn’t covered by a condom.
  2. having said that, 80% of us have been exposed to genital herpes and majority of us don’t get symptoms. I feel for you OP with herpes, there is a stigma around it, but it’s so totally normal, lots of people have it.
  3. the suppression therapy OP was taking at the time makes it far less likely she could have passed the herpes virus on
  4. HIV tests can be immediate if you go to a GUM clinic
  5. it is highly unlikely as a heterosexual woman to have caught HIV through PIV sex
  6. if you have caught HIV and managed it well you would not be able to pass it on

to OP or anyone on this thread interest in HIV, I highly suggest you read the Partner study. This dispelled all my own worries about HIV. I personally have had sex with someone HIV positive. I felt totally safe using protection and knowing that person was undetectable therefore unable to give me the virus. I would rather date someone HIV positive than someone who was unkind towards others for having the misfortune of catching a STI. We sometimes forget we are mammals who can catch viruses from each other and that catching a virus has no bearing on our value as humans.

the only way to end stigma is through education

good luck with the test and hope you start getting things in perspective OP

feckingGobshite · 24/11/2023 12:58

I stupidly had unprotected sec several time with someone I worked with. I found out a year later he had been HIV positive for years. I was angry but also owned up to it being as much my fault for not insisting on a condom.
I got tested and was negative
I can't tell you how relived I was. It was a miracle
I urge you to stay calm and wait for the rest

Poudretteite · 24/11/2023 12:52

Hi OP, it doesn't sound at all like HIV. Still I would get a test and a blood panel. Good luck x

Itsmehi222 · 24/11/2023 12:51

Do you suffer from anxiety because this train of thought is going to extreme overdrive.

of course there’s always the chance that you can contract HIV from unprotected sex but to be honest statistically, it’s unlikely.

absolute worst case scenario you tested positive - you get treated. People with HIV have a full life expectancy these days.

I thinks it’s very unlikely you have HIV.

TellySavalashairbrush · 24/11/2023 12:36

All the very best to you op. In the very unlikely event you are HIV+ it really is a manageable condition now. I work with a man in his late 70s who is HIV+ and just takes his medication and gets on with his life. He is in far better health than I am in my 50s!!

Aquamarine1029 · 24/11/2023 12:35

You're 45, peri-menopause is definitely in play to some degree, and may be the reason for your increased anxiety.

Sowhatsnext123 · 24/11/2023 12:34

Wow I thought HIV results were instant these days. Hope you're okay OP. I ruined most of my 20s worrying about HIV because of a dodgy ex so I understand the anxiety x

DifficultBloodyWoman · 24/11/2023 12:33

There is a saying about horses and zebras in medical diagnoses:

'when you hear hoofbeats, think horses not zebras’

It means that it is more likely to be something common than something uncommon.

HIV is a zebra now. Fewer and fewer people are diagnosed with it and those who are can still live long and happy lives.

There are many other things (horses) that are more likely to be the cause of your symptoms.

You may wish to talk to someone about why you have jumped to the worst case scenario so quickly, and why you are catastrophising to the point of shaking.

OneTC · 24/11/2023 12:33

princefamilypaper · 24/11/2023 12:16

HIV results take months to come back so you're best off getting checked asap. Good luck c

This is complete tosh

beAsensible1 · 24/11/2023 12:32

did you previously have genital herpes?

Either way not much to be done until you get tested, if you are in london there is place in dean st that does rapid testing with result in 2 hours.

ejaculation isn't the only way stds/stis can be transmitted, the can also come via pre-ejaculate, vaginal fluids. any condomless sex has the risk, regardless of ejaculation.

Toomuchcawfee · 24/11/2023 12:32

princefamilypaper · 24/11/2023 12:16

HIV results take months to come back so you're best off getting checked asap. Good luck c

Rubbish. My lab can turn around the PCR and the antibody test same day, and most GUM clinics will use a lab with a 48 hour turnaround. She’ll have results by the middle of next week at the latest I’d have thought.

youcandanceifyouwanna · 24/11/2023 12:31

Terrified12 · 24/11/2023 12:06

Your comments are helping me get through to this appointment today. I wasn't sure how I was going to get to it as I've been in the bathroom all morning with anxiety.
Yes there are many more explanations, my thyroid levels are on the overactive side, my Diabetes results are almost in the prediabetes range, I single handed my just moved house, work has been incredibly busy, I've cut out the junk from my diet (at loss), but I am convinced that it is HIV and my heart is continuously sinking and I'm having a constant low grade panic attack. (I do plan do seek help for this because it is hell on earth)

If you've cut junk out of your diet then that would explain the weight loss.

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