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AIBU?

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Another A&E thread

534 replies

MyOtherCarIsAPorsche · 12/10/2023 21:53

AIBU to take granddaughter to hospital this evening or will it wait?

She's been having headaches regularly this year. She describes pounding and pain in eye. GP said eye test - optician immediately said that she could see a large prescription. DG had glasses then three months later had another checkup and a stronger pair prescribed. She's due back in December. So I'm assuming that they're increasing the strength of the glasses in increments.

Her headaches have persisted. This current one she's had since last Friday. I picked her up from school on Monday and could tell that each footstep was making her wince with pain. She couldn't sleep Monday night because of pain and feeling sick. We've been alternating paracetamol and ibuprofen for pain relief. Saw GP on Tuesday who said it was nothing sinister but was referring her to paediatrician. This evening she was complaining of eye and nose pain and appeared to be light sensitive. She's woken in pain a couple of hours after she went to bed and her eyelid is drooping.

Is this worth a trip to A&E?

We're very worried.

OP posts:
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13
Lougle · 02/11/2023 19:07

@Mirabai
MyOtherCarIsAPorsche · 12/10/2023 21:53

~She's been having headaches regularly this year.
~GP said eye test - optician immediately said that she could see a large prescription.
~DG had glasses then three months later had another checkup and a stronger pair prescribed.
~She's due back in December.
~Her headaches have persisted. This current one she's had since last Friday.
~I picked her up from school on Monday and could tell that each footstep was making her wince with pain.
~She couldn't sleep Monday night because of pain and feeling sick.
~Saw GP on Tuesday who said it was nothing sinister but was referring her to paediatrician.
~This evening she was complaining of eye and nose pain and appeared to be light sensitive. She's woken in pain a couple of hours after she went to bed and her eyelid is drooping.

MyOtherCarIsAPorsche · 12/10/2023 22:32
~Mum rang optician yesterday and they compared scans from June and September, which they said were healthy.
But eyelid has drooped this evening.

MyOtherCarIsAPorsche · 12/10/2023 22:50
~111 are sending ambulance

and it goes on, and on, and on. How much of a timeline do you need??

Mirabai · 02/11/2023 18:26

Lougle · 02/11/2023 18:05

You can click "see all" on the OP's post and you'll find the timeline.

I don’t mean the timeline of the thread, I know how to “see all”, and I’ve read it from the start anyway. I mean a quick summary of the timeline of events, who GD saw when.

Lougle · 02/11/2023 18:05

Mirabai · 02/11/2023 18:00

She has been to the surgery (and ambulanced to hospital) several times.

Could you just talk us through the timeline of this.

  • She’s been to the GP surgery several times with this.
  • And was once ambulanced to hospital where she saw a consultant paediatrician?

Is that correct?

You can click "see all" on the OP's post and you'll find the timeline.

Mirabai · 02/11/2023 18:00

She has been to the surgery (and ambulanced to hospital) several times.

Could you just talk us through the timeline of this.

  • She’s been to the GP surgery several times with this.
  • And was once ambulanced to hospital where she saw a consultant paediatrician?

Is that correct?

thaegumathteth · 02/11/2023 17:35

I'm sorry OP but none of that explains why you haven't taken her with nice guidelines and really pushed for a scan.

I couldn't care less if I was reprimanded and whatever is happening with anything else, is, just now, irrelevant.

MyOtherCarIsAPorsche · 02/11/2023 17:33

She has been to the surgery (and ambulanced to hospital) several times.

The last time, I had to take her because mum daren't have any more time off work.

I was 'reprimanded' for taking her and the GP did a huge eye roll after saying that she would refer her to a consultant - because I told her that she had already been referred a week before. The tests done - pushing and pulling the doctors hands, temp, blood pressure, ear check, mouth check, eye check, listening to chest must have reassured them that she's ok.

She's happily drawing pictures now.

She's now eating normally.

No painkillers today so far.

I've no idea how she can appear perfectly normal and then wake up in pain. But we're assured that she's 'safe' waiting for a consultation.

I'll ask mum to ring doctors tomorrow if she's sick again.

WRT other things going on - her youngest son had an eeg Mon to Wed two weeks ago. She had a phone call this week to say that she had to ring and make an urgent appointment for the epilepsy clinic - which is this Monday. So we're expecting a positive result. His routine appointment wasn't until end of January.

The last time we went to that clinic we mentioned that her youngest had a speech and language assessment upcoming in November and that he had leapfrogged his older brother who has been waiting for assessment a year longer and hadn't had a appointment yet. She seemed concerned that both boys have speech delay. We mentioned that there are conditions within the family that are possibly affecting all three children. She said possibly.

It's taking years to muddle through this process.

OP posts:
Mirabai · 02/11/2023 16:41

I totally agree.

The consultant who saw her made an assessment based on her symptoms at the time. If you return with the symptoms unresolved the whole case will be reassess.

There is no definitive diagnosis as they haven’t done the necessary tests yet.

need2findwork · 02/11/2023 16:11

I know you have been reassured by GP and hospital doctors that nothing serious is going on. But she has multiple red flag symptoms. her symptoms are not easing off at all either and you have not has any diagnostic tests. Doctors are not perfect. They make errors too.

you really need to go back to hospital. If you can, attend a different/bigger hospital and refuse to leave without a CT scan. I know you have all a lot going on but that child cannot self advocate. Her mum needs to do that for her. It is nothing but cruel to leave her like that.

Marcipex · 02/11/2023 16:03

Take her to hospital and demand that they scan her.

Don’t leave until it’s done.
That poor child.

thaegumathteth · 02/11/2023 16:00

Why aren't you at the hospital now with a print out of nice guidelines demanding a scan ?

Itsmychristmasdress · 02/11/2023 15:54

I have to agree. I cannot believe this child is still suffering.

Poppsidoppsi · 02/11/2023 14:24

I don’t understand how they can confidently rule out a brain tumour without a scan. That little girl is suffering. I would take her to a different hospital for an entirely different opinion. My son had a few headaches and one vacant episode (silent seizure) and he was given an EEG immediately. Your hospital and GP sound shockingly lax. As my FIL used to say, “the squeaky wheel gets the most oil”. I would fight tooth and nail for a scan, not just let her suffer for weeks on end. I can’t believe this tread is real.

Ivegone · 02/11/2023 14:15

You poor things, and the poor child.

Is there any way you could scrape together/beg/borrow/ money to take her to a specialist for a scan and someone who understands these constellation type conditions?

We are a neurodivergent/fibro/m.e/hyper mobile/stomach issues/POTS etc family and it can be so difficult trying to get people to see the whole picture instead of writing individual symptoms off.

lljkk · 02/11/2023 14:10

I don't understand how she can happily knit with severe eye pain. Why doesn't the knitting make the eye pain worse.

Jasmine222 · 02/11/2023 14:04

Any pressure on the brain is worse in the night, morning and evening. I really cannot believe you havent been back to the hospital insisting on a scan. It's unreal.

bluebellsanddaisies23 · 02/11/2023 13:50

And is the hospital still refusing to scan her? That poor, poor child.

MyOtherCarIsAPorsche · 02/11/2023 13:43

She's with me today - she's been sick twice this morning. Still has pain. It's half term so not been in school this week.

We thought the break would clear up her headache/eye pain. But no - she's saying it's the same. Saying that, we thought the last pair of glasses would have made a big difference as the optician said that one eye was compensating for the other.

It's worse first thing, at night, during the night.

She's refusing calpol now as she's said it will make her sick again.

She's sat knitting at the moment.

OP posts:
bluebellsanddaisies23 · 02/11/2023 13:28

How is your DGD now @MyOtherCarIsAPorsche - I really hope she is feeling better and the headaches have stopped

Rorymyers · 29/10/2023 00:09

Hoping for some positive update OP!

Mirabai · 25/10/2023 22:57

None of them have done the tests to support the diagnosis though. It’s basically just a guess. They may be right, I hope they are, but after 3 weeks you’re absolutely justified in asking for further investigation/second opinion.

MyOtherCarIsAPorsche · 25/10/2023 22:37

Two different GPs and a consultant have all said the same.

OP posts:
Mirabai · 25/10/2023 19:50

So next time, assuming this pain does not let up, don’t ask, tell her that you want her to be scanned asap.

Poppsidoppsi · 25/10/2023 18:59

Have you asked for a second GP opinion? I’m actually shocked that your poor granddaughter is still in so much pain after so long and nothing seems to have been done

MyOtherCarIsAPorsche · 25/10/2023 18:58

No - I specifically asked if she needed one.

GP made me feel silly.

OP posts:
Poppsidoppsi · 25/10/2023 15:49

Has she still not had a scan, OP?

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