Page 10 | Another A&E thread

MyOtherCarIsAPorsche · 2023-10-12T20:53:46+00:00

AIBU to take granddaughter to hospital this evening or will it wait? She's been having headaches regularly this year. She describes pounding and pain in eye. GP said eye test - optician immediately said that she could see a large prescription. DG had glasses then three months later had another checkup and a stronger pair prescribed. She's due back in December. So I'm assuming that they're increasing the strength of the glasses in increments. Her headaches have persisted. This current one she's had since last Friday. I picked her up from school on Monday and could tell that each footstep was making her wince with pain. She couldn't sleep Monday night because of pain and feeling sick. We've been alternating paracetamol and ibuprofen for pain relief. Saw GP on Tuesday who said it was nothing sinister but was referring her to paediatrician. This evening she was complaining of eye and nose pain and appeared to be light sensitive. She's woken in pain a couple of hours after she went to bed and her eyelid is drooping. Is this worth a trip to A&E? We're very worried.

VitoCorleoneOfMNMafia · 15/10/2023 00:48

MyOtherCarIsAPorsche · 15/10/2023 00:17

@VitoCorleoneOfMNMafia

If I had been with them today at the optician I would have got the sunglasses. Normally I would have been with them.

She wore sunglasses from the children's range at Boots before she had glasses. She's always asked to wear them since she had a peppa pig pair as a present.

I'll be picking the new glasses up in the week with her because mum will be at work. I will get sunglasses then.

I suggest Fitovers or other over-the-glasses types because

they allow DGD to try out different lens colours cheaply
they don't need to be replaced every time DGD's refractive prescription changes
they are robust enough to withstand being shoved in a pocket, whereas prescription sunglasses need to be carried in a case
they are cheap enough to have a spare pair on standby in case of loss
DGD isn't functionally blind whilst switching between sunglasses and clear glasses

I write as someone autistic, with migraines, and a corrective prescription including cylinder and prism (so no contact lenses for me) that means that my glasses go on when I wake up and are removed again at bedtime. I got sick of carrying multiple glasses cases everywhere. Fitovers also mean that I push them up into my head when I drive into the Mersey tunnel and pull them down when I emerge, without any period of being without the sight correction that I need to drive legally because without glasses I cannot read a licence plate at 30 feet.

Original poster

MyOtherCarIsAPorsche · 15/10/2023 00:47

@VitoCorleoneOfMNMafia

I've thought about divorce - then I think that it's not his fault that he was on bypass during his op longer than planned.

Seriously, I fight against my feelings with regards to his personality change all the time. I married in sickness and in health. He was not like this before his op. He was so laid back he was horizontal. Now he is 'up like a rocket at the slightest thing'.

He knows how horrid he is - and it's not just with me. He's had to apologise to just about everyone he knows because he knows how awful he can be. He doesn't know why he acts like he does and he says he tries to stop while he's in mid strop - but he can't.

He had his heart set on this sheep thing ages ago and insisted I go because I've not been in our extortionately expensive holiday home for such a long time. He threatens to sell it because I've not made use of it for the last two years because of one thing and another - it's just that we seem to bounce from one crisis to the next recently.

I couldn't not come. Daughter insisted I come. I really didn't want to but felt I had to. It wasn't that crap today - the sun shone, the resident hare, and the resident pheasant came to see us. We've laughed and held hands and judged some yellow sheep (among other breeds). Not officially judged, just trying to justify the rosettes awarded. I'm just so frustrated that I'm here and not at home at this particular moment in time.

Do you know that I don't drink alcohol since my first grandchild was born in case of emergencies like this? My husband says that this is a stupid thing to do - but I do it.

My husband is assured that DGD has migraine because all of my family have it and he isn't surprised that DGD has it. He's satisfied with the diagnosis. I'm not so sure - neither is mum.

OP posts:

TheSoddingCat · 15/10/2023 00:45

"My daughter has no one to look after her other children."

Take them in too then!! The poor little girl who's in pain needs to be the priority. The lack of action between you and your daughter is honestly really upsetting, fucking step up and help this poor child

Original poster

MyOtherCarIsAPorsche · 15/10/2023 00:26

@BarbDwyerHair

No - when we rang 111 Thursday evening they immediately sent an ambulance from the description of the symptoms.

My daughter has no one to look after her other children.

My husband had to come and look after them also, while I went to pick them up early Friday morning. So it involved more than one additional person.

OP posts:

VitoCorleoneOfMNMafia · 15/10/2023 00:26

DGD's condition sounds like status migrainosus.

A&E can give "Oramorph" morphine for severe migraine pain, they did when I was crying uncontrollably and begging my mum to kill me just to end the pain and throwing up. They can also offer triptans and other second-line treatments.

You mentioned precocious puberty: DGD can be given lupron short-term to delay that until she's taller.

Divorce the husband, you don't need his negativity and he is BVU dragging you off to fucking sheep shows when DD and DGD need you.

Original poster

MyOtherCarIsAPorsche · 15/10/2023 00:22

I had an MRI spine and hips and it took 45 min - I was not far from panic when it finished.

I'm thinking that DGD will not cope with this - her brother had one recently and was sedated. I'm not sure these scan places do that?

OP posts:

BarbDwyerHair · 15/10/2023 00:21

Has your daughter spoken to 111 with the new symptoms. Has hard as it is, your granddaughter needs to be the focus at the moment?

Original poster

MyOtherCarIsAPorsche · 15/10/2023 00:17

@VitoCorleoneOfMNMafia

If I had been with them today at the optician I would have got the sunglasses. Normally I would have been with them.

She wore sunglasses from the children's range at Boots before she had glasses. She's always asked to wear them since she had a peppa pig pair as a present.

I'll be picking the new glasses up in the week with her because mum will be at work. I will get sunglasses then.

OP posts:

VitoCorleoneOfMNMafia · 15/10/2023 00:11

MyOtherCarIsAPorsche · 14/10/2023 22:54

Yes - she's been reacting to light. When my daughter said this to the optician they tried to sell her prescription sunglasses today.

My blanket will take some time.

Show quote history

DGD can use Fitovers over her prescription glasses. https://www.i-sunglasses.com/prescription/fit-over-glasses/non-polarised-fit-overs I wear yellow and copper ones unpolarised indoors to stop the blue from modern LED lights from triggering my migraines and use the copper in polarised for driving and grey in polarised for outdoors not-driving. They do different sizes, measure her glasses and get the smallest ones that will take her frames.

If you can only afford one set, get copper unpolarised: maximum blue light removal, decent overall light intensity reduction, won't interfere with screen use.

Non-Polarised Tint & Mirror Fit Over Sunglasses | UK

Buy Tinted & Mirrored Fit Over Sunglasses Online from £15.97 with Free UK P&P. High Quality Non-Polarised Over-Glasses with Shatterproof Lenses.

https://www.i-sunglasses.com/prescription/fit-over-glasses/non-polarised-fit-overs

Original poster

MyOtherCarIsAPorsche · 15/10/2023 00:10

AbbeyGailsParty · 15/10/2023 00:03

@MyOtherCarIsAPorsche i found this example of private scan in Leeds
https://topmri.com/mri-scan/sg-mri-leeds/. If it’s possible financially , honestly I’d go for that. If nothing shows up it’s peace of mind for you all , I can’t imagine the stress you’re under.

That's doable.

We were at Spire near Roundhay earlier with DGD's brother not long ago.

OP posts:

Jumperhermit · 15/10/2023 00:08

that makes sense a little re your age and her age, I didn’t start having cycles until 14 which is when my migraine then started.

the deterioration in eyesight so quickly is what doesn’t seem to fit with migraine, so definitely push as hard as you can.

so sorry the wait list is 3 months, it must be awful to see her in that much pain.

Original poster

MyOtherCarIsAPorsche · 15/10/2023 00:06

Yes - we will try to get a scan somewhere as soon as it can be arranged.

She has been carrying around a 'sick bowl' all week, saying she felt sick. When she vomited today my heart sank. It doesn't seem to be going away like we were led to believe it would.

I can't believe there's nothing that can relieve a child's headache - we've been seeking help all this week (couldn't get seen at GP Monday).

OP posts:

Somuchgoo · 15/10/2023 00:06

AbbeyGailsParty · 15/10/2023 00:03

@MyOtherCarIsAPorsche i found this example of private scan in Leeds
https://topmri.com/mri-scan/sg-mri-leeds/. If it’s possible financially , honestly I’d go for that. If nothing shows up it’s peace of mind for you all , I can’t imagine the stress you’re under.

She doesn't need a private scan, she needs the doctors in hospital to follow their clear guidance and do an immediate scan. If she goes back tomorrow with these new symptoms and pushes them hard on it (showing the nice guidelines etc) then the likelihood is they'll scan her there and then. Much quicker than going private, and if there is anything wrong they can deal with it very quickly if necessary.

AbbeyGailsParty · 15/10/2023 00:03

@MyOtherCarIsAPorsche i found this example of private scan in Leeds
https://topmri.com/mri-scan/sg-mri-leeds/. If it’s possible financially , honestly I’d go for that. If nothing shows up it’s peace of mind for you all , I can’t imagine the stress you’re under.

MRI Scan - Leeds, Yorkshire, LS28 6AR

1.5 Tesla MRI Scanner by GE or similar

https://topmri.com/mri-scan/sg-mri-leeds/

Cookiesam · 15/10/2023 00:00

Twice doctors have tried to fob me off. I refused to take her home both times. The first time when she was 4 weeks old, the second when she was 22 years old. Both turned out to be life threatening events. Your instinct is the correct one. Take her to A&E and insist that she is properly examined. Hope she is ok.

Original poster

MyOtherCarIsAPorsche · 14/10/2023 23:57

Jumperhermit · 14/10/2023 23:39

Chronic migraine sufferer here - sadly migraine can and does last for 9+ days - my worst run was several months of a migraine waxing and waning. I absolutely get what you mean when you mentioned about your Dad and the trains - this was always at the back of my mind during those few months. Thankfully it has improved somewhat thanks to Botox and Sumatriptan injections.
Anyway, I digress.
You mentioned your GD said about nose pain - this is something I get too with migraine.
that said I’d definitely be pushing for all the tests available even if all jt does is confirm migraine - 7 is very young for them to start, mine didn’t start until the onset of puberty. The changes in her glasses prescription would also raise alarm bells for me.I can’t offer much else in the way of advice but something she could try for the headache is ice lollies - I’ve sometimes managed to catch a migraine out by sucking an ice lolly until it induced brain freeze. It sounds bonkers but it has worked on occasion!

My migraines started at similar age to my granddaughter now. I went through puberty at 9. My granddaughter is the same build as I was - tall for her age, very slim. I believe early puberty stunted my growth.

I have naratriptan.

My longest migraines can drag on for up to 3/4/5 days but pain lessens over that time.

I once had 4 migraines in two days which were preceded by aura. That was awful. And I've been 'paralysed' down the left side by one particular migraine.

I know there are many types of migraine.

She's been having these long periods of headache most of this year - this is the worst one. Cannot get on top of hers with painkillers - which is concerning. She'll be ok for an hour and we think she's coming round and then she's quiet again and wincing upon movement. The astonishing speed of the deterioration in eyesight also causes concern.

I take one naratriptan and two paracetamol and 90% of the time I'm ok within the hour - bad headache but manageable. I really don't like the amount of calpol and ibuprofen given to DGD lately.

OP posts:

AbbeyGailsParty · 14/10/2023 23:56

Is there any way your dgd can have a private scan? I had an MRI last year, cost £350.
Only other thing I can think of is a food allergy. I had migraines for years but one headache was so bad I thought I was having a brain haemorrhage . Took morphine in hospital to reduce the pain. Long story short it turned out to be a reaction to pineapple. It’s a long shot I know.

Cookiesam · 14/10/2023 23:56

With a droopy eye, I would get checked ASAP

Bookloverjay · 14/10/2023 23:56

MyOtherCarIsAPorsche · 14/10/2023 20:12

No
But mum had it

Show quote history

A friend of mine has it. She was diagnosed as an adult after her children was diagnosed and she realised she has the symptoms.
she had suffered for years with headaches, light sensitivity, fatigue

Cookiesam · 14/10/2023 23:51

Take your child and refuse to take her home until she has been properly examined.

Marcipex · 14/10/2023 23:50

She can’t wait three months in this state. Apart from anything else, is she going to be on calpol and ibuprofen indefinitely?

She needs to be seen and scanned asap.
If it is ’only’ migraine at least you will be reassured.

Original poster

MyOtherCarIsAPorsche · 14/10/2023 23:43

Hairyfairy01 · 14/10/2023 23:38

Has anyone explained why her pupils were 2 different sizes? To me this is the most concerning thing. Are they still different in size? Do they react to light in the same way?

The pupils are different sizes. But I'm assuming they react to light as all involved have shone light into her eyes.

The optician has done all the usual checks - chin on ledge on those machines.

The optician said that her paediatrician would probably refer her for scans - we don't know when that appointment will be, but my daughter chose the hospital with the shortest waiting list - Bridlington. Three months.

OP posts:

Marcipex · 14/10/2023 23:42

I really feel for you. So much going on. It’s horrendous.
I think at the very least, you could call 111 or your gp cover, and describe the new symptoms, and how distressed she is.
I don’t know anything about childhood migraine meds but the calpol etc isn’t doing any good, is it, so they might find something more effective for her.

Mummyto2rugrats · 14/10/2023 23:42

I had what I thought was a migraine one day spent all day in bed feeling nauseous and headachy. Following day eyes were so itchy I thought it was hay-fever by lunch my face was dropping and swelling. GP at 1st thought possible mini stroke it was bells palsy luckily.
It maybe nothing and more than likely is nothing but eye dropping and sever headache I would definitely get to A&E to be sure as even bells palsy untreated or treated too late can cause permanent facial paralysis

Jumperhermit · 14/10/2023 23:39

Chronic migraine sufferer here - sadly migraine can and does last for 9+ days - my worst run was several months of a migraine waxing and waning. I absolutely get what you mean when you mentioned about your Dad and the trains - this was always at the back of my mind during those few months. Thankfully it has improved somewhat thanks to Botox and Sumatriptan injections.
Anyway, I digress.
You mentioned your GD said about nose pain - this is something I get too with migraine.
that said I’d definitely be pushing for all the tests available even if all jt does is confirm migraine - 7 is very young for them to start, mine didn’t start until the onset of puberty. The changes in her glasses prescription would also raise alarm bells for me.I can’t offer much else in the way of advice but something she could try for the headache is ice lollies - I’ve sometimes managed to catch a migraine out by sucking an ice lolly until it induced brain freeze. It sounds bonkers but it has worked on occasion!