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Feeling like nursery are really pushing to label my son

116 replies

Dumbledormer · 28/09/2023 10:36

This is a difficult post. First of all I hugely like and respect my DS’s nursery workers but I’m getting a lot of mixed messages and I feel like I’m going crazy.

DS is two (literally just turned last week) and was born 5 weeks premature. He’s been going to nursery two mornings a week since he was 1. Nursery flagged a concern with me that he wasn’t responding to his name at around 18 months and that he walked on his tiptoes a lot and that these can be early traits of autism. Contacted HV who came out to assess him and was not hugely concerned. Advised to “watch and wait”.

Did my own research, panicked a lot then calmed down and looked at things to do to help. Managed to get a private speech therapist a couple of months ago who found him to be speech delayed on meeting him but didn’t think he was autistic (although mentioned later that she now wasn’t sure as nursery had a different view when she spoke to them). Anyway shortly after this, we broke up for the summer and he’s come on in leaps and bounds. Always responds to his name, follows instructions, has a handful of words that he uses functionally. Points to request and points to share excitement at something he’s seen. Really enjoys being around other kids, although doesn’t play with them unless they chase him or he chases them but will try to copy what they do. Eye contact is great and loves people copying him. Still walks on his tiptoes but this has got less and less. Doesn’t appear to be phased by changes in routine at home, eats well although can be fussy with new foods which I think is fairly typical and he sleeps well.

Nursery’s concerns before we broke up for the summer was that he wasn’t happy when they changed the layout of the room one time and moved the toys back to their original place i.e. struggles with change. He’s never done this at home and we are in the middle of renovating so stuff is moved round a lot. Obsessed with water play and struggles to engage with others when water is about (it’s fair - he still loves it) and that he’s very sensory seeking, he won’t sit down for story time and wants to be off playing with toys and no spatial awareness.

He’s been back at nursery a couple of weeks now and is doing two full days. The most recent comments are that he’s just picking at his lunches (which are free at nursery) when all the other kids are eating their full meals and I’ve been emailed a list of SEN toddler groups to take him to as they think it’ll be good for me to get more support with him as he’s clearly struggling.

Spoke to HV yet again, who is still unconcerned but has agreed at my insistence to now refer him to SALT and talk and play.

He’s not perfect, he’s a toddler and the things I find difficult are the frequent tantrums when he doesn’t get his own way and when being made to wait. He really likes to be very theatrical and throw himself to the floor and scream but these last seconds and always end as soon as he gets what he wants or is distracted by something else. His new thing is crying if strangers speak to him and most recently covered his eyes when an elderly gentlemen tried to talk to him. Again, all quite normal I think and he usually warms up to strangers eventually if they give him some space initially.

Basically, I’m trying to be as open and as realistic as I can about my son’s strengths and weaknesses, I’ve thrown myself into researching kids on the autistic spectrum and I just really don’t see it in my DS.

BUT nursery do! Am I just completely in denial? How can I question their collective expertise but it just sometimes feels like they are talking about a different child. They haven’t always got it right either, I remember them flagging concerns that he had PICA when he was a lot younger and shoving everything he touched in his mouth. This also made me worry like mad but he just grew out of this behaviour like most kids do.

Sorry for the absolute essay but just wondering if anyone else has experienced this with a nursery before?

OP posts:
2chocolateoranges · 28/09/2023 20:34

Nursery aren’t pushing to label your child they are pushing to get some help and support to assist in giving your child the best possible start in life.

at our nursery, the keyworker will speak to the lead key workers before speaking to a deputy then the manager who all have input in speaking to parents before asking for outside help to support some children.

it’s not done on a whim and it’s carefully handled too. Take all the help given.

id listen to the nursery over the HV any day.

Boomboom22 · 28/09/2023 20:28

Maybe move nurseries and don't tell the new one where he was before so they don't transfer notes, you'll soon see if they notice anything or if he flies in a new setting. That way if they do raise concerns you know it's not due to prior labelling.

Retrievemysanity · 28/09/2023 20:18

Well, first of all don’t panic. Autism is a tricky one sometimes and I think you can tie yourself in knots looking for traits. Nursery may or may not be right but it’s been raised so it’s worth bearing in mind. Toddler ages are tricky because they all develop at different rates and they all have their quirks.

Fwiw, 15 years ago my godson’s nursery said they thought he was autistic as he liked to line up cars at nursery. He’s not. Most recently my friend’s nursery have said they think her nearly 3 year old son may be autistic, similar things to your son actually but there are other home factors that can explain things like his speech delay and also he was a covid baby so not much socialising etc. Her HV also says she doesn’t think so but I guess time will tell. My point is, sometimes nurseries are right, sometimes they’re wrong but keep an open mind.

AmericasfavoritefightingFrenchman · 28/09/2023 20:05

OP please don’t feel as if you need to keep apologising. Sometimes I think people forget how this can all feel at the beginning. It’s not easy.

FluffyDiplodocus · 28/09/2023 19:21

I would be inclined to give nursery (who presumably have a lot of experience and know your child well) more credence than the HV who just sees a snapshot.

FWIW my DS is autistic and while I had the odd concern (it’s hard early on because there is so much crossover between ASD traits and just being a small child!) it was preschool that flagged it within six months and they were 100% right. I’m glad they did, and I’m glad I listened.

confusedanonn · 28/09/2023 19:17

I work in a nursery - I think sometimes it's is easier to see the signs in a nursery setting, seeing how children react in group environments, around other children, with change and routines etc. There has not been one child we have been concerned about that hasn't been diagnosed.

It's such a big thing to get your head around but you need to accept it's not about labelling your child, it's recognising there are some things they are finding harder and a diagnosis let's you access things to help your child and help them day to day in the setting.

Dumbledormer · 28/09/2023 19:04

surreygirl1987 · 28/09/2023 18:48

Nursery are pushing their opinion that my son is autistic when other professionals are not in agreement and is that not giving an undiagnosed child a label?

Nursery are 'pushing' their opinion? Again, like 'labelling', this sounds very negative. It sounds like your son has a nursery that is concerned, and expressing those concerns (as they should). It's much easier for them to ignore.

Also, if your child was suspected by a doctor as having diabetes, but a different doctor disagreed, would you blame the first doctor for 'pushing their opinion onto you and trying to 'label' your child? No - they'd be raising it from a place of concern and duty. Just as the nursery is.

I'm a teacher and it's amazing how my parents refuse to listen when we raise concerns that their child may be ASD or ADHD or dyslexic... poor kids could have really done with support much earlier.

Look at it this way - which could be more harmful... listening the the nursery and investigating the possibility of neurodiversity? Or ignoring them? Which might you regret more?

I completely agree and again I’m sorry if my use of certain words like “labelling” and “pushing” are causing offence. It’s difficult to describe my feelings about his nursery without using negative language as I suppose I feel generally quite negative about them at the minute for various reasons, some which were mentioned earlier. I certainly don’t have a problem with them raising concerns but it just seems at odds with what I’m hearing from others. I’m finding it difficult because it’s leading to him being treated differently already.

I’m sorry to hear your son is struggling and that you weren’t listened to. I hope he’s now getting the support he needs.

OP posts:
washrinse · 28/09/2023 19:00

Based on your update I’d be looking elsewhere too OP. I mentioned upthread that nursery had incorrect suspicions about one of my DC and ASD. But their approach was very kind and understanding and I felt they always accommodated him well and gave me as much positive feedback as they possibly could as well as raising the things they were concerned about. Having concerns about a child does not need to mean giving you constant negative feedback about him.

TooOldForThisNonsense · 28/09/2023 18:51

My now 14 year old son is autistic. I was in denial about it for years. I’m not saying your son is but equally if he is he is and being in denial won’t change it. He’ll be the same person no matter what. Try and think of it not as a label but if there is a diagnosis of something that will help your son access support if he needs it in years to come

surreygirl1987 · 28/09/2023 18:48

Nursery are pushing their opinion that my son is autistic when other professionals are not in agreement and is that not giving an undiagnosed child a label?

Nursery are 'pushing' their opinion? Again, like 'labelling', this sounds very negative. It sounds like your son has a nursery that is concerned, and expressing those concerns (as they should). It's much easier for them to ignore.

Also, if your child was suspected by a doctor as having diabetes, but a different doctor disagreed, would you blame the first doctor for 'pushing their opinion onto you and trying to 'label' your child? No - they'd be raising it from a place of concern and duty. Just as the nursery is.

I'm a teacher and it's amazing how my parents refuse to listen when we raise concerns that their child may be ASD or ADHD or dyslexic... poor kids could have really done with support much earlier.

Look at it this way - which could be more harmful... listening the the nursery and investigating the possibility of neurodiversity? Or ignoring them? Which might you regret more?

surreygirl1987 · 28/09/2023 18:42

Well I wish my nursery had been this diligent about my son. I pushed them for ages as was convinced my son was ASD, and they denied it every time, adamant he's neurological. He's now in Receptipn, really struggling, and the HV says she has no doubt he's neurodiverse. I would be grateful that your nursery are doing something- it's easier for them not to.

Oh and kids can present very differently at home compared to school/nursery. My son is an angel at home but struggles with the school/nursery setting. It's only there that his neurodiversity is really obvious.

PleaseBePacific · 28/09/2023 18:33

YouJustDoYou · 28/09/2023 13:09

My ds's nursery did this. He wasn't SEN in the end, just a very, very high needs kids with speech delay due to maternity not cutting his tongue tie.

This also happened to one of my DC.

Another one only said 2 words by his 2nd birthday. Both are NT

I agree, keep your mind open to both outcomes

NameChange30 · 28/09/2023 18:24

Other professionals? HV doesn't count.
Any professional worth their salt - including SLT and others - should be saying that they can't diagnose and can't tell you either way, because an assessment must be done by a multidisciplinary team, and it is very early to be diagnosing, too.

Dumbledormer · 28/09/2023 18:19

rockingbird · 28/09/2023 17:54

Nursery are raising a concern, they are most likely noticing it and seen it many times. Btw please don't use the word 'label' I have two children with autism and it's highly offensive to consider them 'labelled' children. It's a disability, many have it, every single person with autism is different and without further investigation you'll never know. What the worst that can happen? They don't get labelled! I tell you what really boils my piss, kids in yr 2/3 clearly autistic and struggling and parents not wanting to accept they need a diagnosis and support.

Already apologised upthread but I wasn’t sure how else to say it. Nursery are pushing their opinion that my son is autistic when other professionals are not in agreement and is that not giving an undiagnosed child a label?

OP posts:
rockingbird · 28/09/2023 17:54

Nursery are raising a concern, they are most likely noticing it and seen it many times. Btw please don't use the word 'label' I have two children with autism and it's highly offensive to consider them 'labelled' children. It's a disability, many have it, every single person with autism is different and without further investigation you'll never know. What the worst that can happen? They don't get labelled! I tell you what really boils my piss, kids in yr 2/3 clearly autistic and struggling and parents not wanting to accept they need a diagnosis and support.

NameChange30 · 28/09/2023 17:44

OK, OP, so now you've said more about what nursery is doing, I still think they might be right to suspect neurodivergence, but if you feel that their approach to DS is not as positive and supportive as you would like, YWNBU to consider moving nurseries. You should still go ahead with any assessments or referrals that are suggested, though.

superninny101 · 28/09/2023 16:37

Jellycats4life completely agree with everything you have written. Prompt diagnosis is so incredibly important.

Fistralstorm · 28/09/2023 16:23

We had similar. They were so pushy to label him.

It was ridiculous. Meetings, 1:1s, EHCP, "intervention" and observations. The council were involved and went to nursery to "observe". It was endless.

DS started school. No more issues.

He even saw a consultant who ruled out everything and said "this is happening all the time. They get younger and younger. I spend most of my day with 9 healthy and happy children. And then 1 child comes in who clearly needs a diagnosis"

Don't stress OP.

Our school Reception Teacher said that she finds nursery workers busy bodies who like to prove they're the experts in this stuff to try and prove they're worth better pay.

I thought it was rather harsh at the time. I don't share that view.

Snowinjulyy · 28/09/2023 16:13

I've been through this when nursery brought up concerns about my child at the age of 3.
He's now 7, under the school senco and awaiting assessment/diagnosis (waiting list is 2 bloody years.)
I specifically remember them saying that he didn't want to sit down at story time and instead wanted to go outside and play the whole time and thinking well, he's 3 and that's normal? And it can be normal for some children. But as he's gotten older he's struggled with school and I'm now grateful that school want to help him. Years ago kids probably would have just been told off for not being able to sit still whereas he gets offered fidget toys and wobble cushions to sit on!

I really still do not feel like there's anything majorly wrong with my son when we're at home together and he seems happy. I'm aware his attention span isn't great but it's not an issue at home. However at school it's a completely different environment and like nursery, it tends to be those environments where children struggle the most and it's the reason people sometimes choose to homeschool neuro-diverse children. I see it like the education system and who my child is aren't compatible, but between me and his teachers it's our job to make the school experience better adapted for him in little ways so he can succeed. And diagnosis can help assist with that.

It is a lot to get your head around at at the start but I've found that I'm actually grateful for potential "labels" because otherwise my child wouldn't be understood properly in school.

AmaryllisNightAndDay · 28/09/2023 15:53

Does the health visitor see your DS when he is around other children? My DS (ASC diagnosis) was very different with an adult - especially one to one, especially a familiar adult like me, especially an adult who was very focussed on him and good with children like a health visitor - from how he was in a group with other children, especially a busy group. Does your DS have sibs?

she said he would be worse at home than at nursery as autistic kids often mask. It’s helpful to read this isn’t always the case.

Yes, some autistic kids can and do mask. That's recent understanding, but many can't and don't, that's the oldfashioned knowledge that was used to spot kids with ASCs. The HV has thrown the baby out with the bathwater.

The thing is, the things that bother your DS are the same kinds of things that bother kids who have ASCs. Better to pick it up now than later. Some kids are naturally calmer and don't hit out but still have ASCs, for other kids aggression (or other big problems) start later, when the demands and expectations go up and they are feeling more frustrated and anxious.

One my nephews was very prem. He doesn't have an ASC diagnosis as such but he does have a range of issues that include some ASC characteristics. It's not so much about the diagnosis or label it's about identifying the support he will need to learn and grow and socialise. Flowers

ChristopherTalken · 28/09/2023 15:40

Also to add DD occasionally goes through periods of trying to wollop other children. Never have I been made to feel guilty or have they implied DD is a problem child - they acknowledge its a form of communication, worked out what the trigger was (other children crying), always could then swoop in to stop it in advance and work with her on explaining emotions etc.

It might be worth looking at other nurseries if thats an option? If not, ask for a meeting with the nursery manager and SENCO and ask for a written report on what they are doing to support DS.

ChristopherTalken · 28/09/2023 15:38

Dumbledormer · 28/09/2023 15:07

Yeah, I wasn’t happy about that but they said they have to strap him in otherwise he climbs out. Not sure why they can’t persevere with him eating at the table with everyone else. He manages perfectly fine at home and at his playgroup (but I suspect this is because they are given snacks at playgroup so it’s more incentive for him to stay sitting).

They keep him separate to the other kids at pick up as waiting is not his strong point and will throw a tantrum if prevented from going out the front door. No aggression but as I said upthread his tantrums are on the theatrical side and nursery don’t want him to upset the other kids which I understand but they made this decision after the first day back in September and I feel a little like they are not really giving him much chance to adjust.

I wouldnt be happy with this at all. At worst, my nursery needs to be reminded to keep me in the loop with things like IEPs but they do everything they can to include DD3 e.g. sensory rooms when she's overwhelmed, working with her on communication, using ear defenders etc. Your nurseries approach sounds really dismissive.

DorisDill · 28/09/2023 15:31

Dumbledormer · 28/09/2023 14:39

Thanks everyone for your messages so far. I’ve read them all. I am trying to make sure I fully engage with the nursery’s concerns and have followed all their suggestions. I’m aware I may be more sensitive when they bring stuff up as I only ever seen to get negative feedback about my wonderful boy and I try very hard not to feel defensive and accept what they are saying but it’s tough. It’s things like they have to strap him in a low high chair when eating so he doesn’t wander off or he has to wait in a separate area to his peers at pick up and although they are claiming this is for my sons benefit, I can’t help but wonder if it’s just easier for the nursery staff and is it really benefiting my DS to segregate him in this way? They used my private SALT report to get 1:1 funding for him and yet it feels like he’s automatically not included in things the other kids are doing because it’s known he’ll struggle.

I would remove him immediately. Something sounds wrong.

Find another nursery - he might be neurodivergent, he might not be, but your gut is telling you something here.

DorisDill · 28/09/2023 15:29

Hmm, nursery might be wrong. And I say that despite having DC who are neurodivergent, and knowing quite a bit about autism.

Something just doesn’t sound right. None of the nursery staff are qualified to diagnose and they should be very careful not to cross the line and fancy themselves as medical professionals when they are not.

You can get staff in education, or in health and social care, who just really overdo it sometimes and overstep the mark (I have a disabled sister who has spent a long time in residential care, and my DM has had to deal with a few managers like this over the years)

Is this coming from one particular manager?

Is moving your DS to a different nursery or child minder an option for you?

howtowriteahaiku · 28/09/2023 15:11

Hmm… reading your update, OP, it does sound like overkill.
are you sure this nursery is the right place for him? It’s the fact that you only ever hear negative feedback that I’m concerned about.
it’s ok (and perhaps even quite helpful) for them to query autism if they’re seeing some signs. At the same time it’s surely very difficult at this age to be able to tell. I’d imagine by the time he is 3 things will be clearer, but at 2, their language is developing at such different rates and that’s ok. I don’t like the sound of them segregating him. If he’s got some issues they sound very subtle and not major problems. If you have any doubts you could look into alternative childcare arrangements and see what else is out there?
when my dd went to a forest school nursery, I only ever got negative feedback about her there. Got positive feedback from her playgroup who found her delightful. She can still remember forest school and says she hated it. (Unsurprisingly she liked playgroup). They were so fixated on toilet training and the only feedback I ever heard was about that. Literally nothing else. I’m not saying your son is unhappy at his nursery, not at all. But just that he still has another couple years til school and maybe if this place is making you uncomfortable you should think about changing. Even if he does have ASD do they need to make such a song and dance out of it? Even kids without neurodivergence wander about when they’re not meant to. He’s only two! At that age the ND isn’t necessarily as big an issue because less is expected of them as at school. It makes me wonder if this nursery is running too tight a ship and not the right fit for your son? I realise nurseries do have to be super organised to run smoothly but maybe they’re too fixated on kids ticking boxes. Surely it should be a place where he can just “be himself” before the more formal learning of school. I could be wrong, but just a thought.

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