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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wish I didn’t have my 3yo son?

337 replies

Thehonestbadger · 02/09/2023 17:29

I’m aware it’s horrible but if someone gave me a button to press and he simply wouldn’t exist anymore I am confident I would, without so much as a second thought.

I love him; I do but I simply cannot pretend my life isn’t incredibly hard and shit because of him. He has ASD, is non verbal, has very little understanding of what’s going on around him or concept of danger. He suffers with PICA too so is constantly eating EVERYTHING and yes I mean everything.

He’s massive for his age; the size of a 6 year old and fights me tooth and nail over things like bum changes. I can’t go anywhere or do anything unless it’s exactly what he wants and there’s very very little engagement between us despite endless trying on my part. No one wants to look after him, my mum will occasionally as she knows how much I’m struggling but it’s hard for her I know that. Ive stuck him in nursery where he had a specialist 1:1 worker 5 days a week but it’s just a few hours and honestly the sound of him screeching and the insane anxiety over his constant unpredictable behaviour just ruin my life.

Worst of all, he has a 2yo sister, whose life is being so detrimentally impacted. I often just think to myself how amazing it would be to just have her; the freedom of things we could do; places we could go. All the ties and limits and restrictions lifted. I often feel like I might as well not have had my daughter because I never get to enjoy her and she’s always shafted off to family whilst I Labour on with DS in this weird kind of isolated purgatory, because family are willing to look after her.

we have all the appropriate support functions in place; all the experts and social services…etc. We’ve been on this path a long time now as it was clear from around 10 months that DS was not developing properly.
(I was already well into DD pregnancy by then).

Other than my mum family/friends don’t even want to spend more than 30 minutes in our company and I really feel that ‘oh god wtf is your life now? This is hideous’ feeling whenever they do.

I want to be one of those social media disability mums who are like intensely positive but I just don’t feel that way. The physical and emotional care he needs is just so depressing.

OP posts:
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User4732 · 03/09/2023 00:10

notlucreziaborgia · 02/09/2023 21:48

I don’t think anyone unwilling or unable to raise a child should have to do so, and if that means placing a child in foster care or putting them up for adoption then I’m not going to sit back and judge if they choose to do so.

it’s entirely up to the individual in question.

I suspect that many such parents would consider adoption if it was a real option. I'm pretty sure I would.

cestlavielife · 03/09/2023 00:01

Thisgroupneverceasestoamazeme

A gamble yes but you wont get access to overnight care for young child without speaking up and saying i cannot cope and I am having thoughts of wishing my child is not here . Sems to me Op clearly woukd benefit from overnight 24 hour or weekend respite and needs to say so and be ready for child to go stay elsewhere. ... or can ask for o /nite care in her home and take breaks elsewhere herself . Yes i know it s hard etc but if family at breaking point/parent at breaking point/child at risk then this needs to be said. Spelled out. Better than a parent snapping.... People suggesting adoption or fostering are not being naive, it s a valid option if the whole family want that .

cestlavielife · 02/09/2023 23:46

My ds ' dad expressed " i wish we didnt have him" "i wish he had never been born" these words should be taken seriously.

Ds dad snapped and the outcome could have been a lot more serious than it was.....ds was non verbal poo smearing asd etc, etc.... My ds' dad had to leave after he snapped, I was prepared to look after ds and we did have respite .... Op needs to say those words to ss and gp and agree to look at part time or emergency foster care.... Have the discussion with wider family. ...but what does the child 's dad say?

Thisgroupneverceasestoamazeme · 02/09/2023 23:39

@cestlavielife that would be a bit of a gamble to take. It could definitely be a way to get help. It would most likely involve a CP investigation but I guess if someone is desperate that could be a way to get some support. Often these kinds of things can be met with a counter threat of prosecution for abandonment/threats to harm. It would all depend on how the person it’s shared with responds to it. Like I said upthread in 20 odd years of working with countless vulnerable families I’ve only known of two occasions where it’s resulted in a child being placed in foster care for much older children where families had other vulnerabilities at play.

Notooserious · 02/09/2023 23:25

Nothing to offer OP, other than an enormous hug and to say that no, it isn’t horrible, and no, you aren’t being unreasonable to feel as you do. It is relentless and never ending and a non-stop battle and utterly unbearable. It’s not a question of not coping as you will keep doing what you’re doing - putting one foot in front of the other and getting through each minute - but that does not mean that it’s right. Social care in this country is a disaster that should make us all ashamed, and it is letting you down: you are not letting either of your children down. You are doing everything you possibly can to be three if not four people at once. Vent and rant here if you need to - and ignore the idiots on the thread with “oh just ask for/shout louder/there will always be something out there”. They don’t have a clue. I left social work when I stopped being able to protect my service users from our senior managers, and almost broke down from the fear and the shame of what I was leaving families to manage - you don’t have that luxury. You are an amazing mum, even if you don’t feel like it.

cestlavielife · 02/09/2023 23:25

Thisgroupneverceasestoamazeme · 02/09/2023 23:06

@cestlavielife what’s your personal experience of this?

I have severe l d son
I know foster carers who take in such kids
I know and understand it s not easy to get help
But if op tells ss and her gp she wishes him not to be here that should trigger help
If op is prepared for others to care forher child

It is better than she snaps
My ds dad expressed he wished ds was not here, and one day he did snap and threw him across room....

(Years later therapy etc long story he does cope with him)

MumApril1990 · 02/09/2023 23:21

You need respite or residential care. You deserve a life.

EarthSight · 02/09/2023 23:15

x2boys · 02/09/2023 21:38

The child is three its not domestic violence.

NO! You don't say???? How about when he's 20??

caringcarer · 02/09/2023 23:14

WillowCraft · 02/09/2023 17:53

There must be something. There must be parents who just can't cope with a disabled child. Perhaps the child would go into foster care?

You must realise their is a huge shortage of Foster Carers for DC who have no one to care for them. I'm a Foster Carer and I know the agency I work for is always looking for new carers so much so that if a Foster Carer introduces a potential new Foster Carer and they do all their training and start Foster Caring the Foster Carer who made the introduction gets £2k. That's how short of Foster Carers they are. When a FC I know told her SW she had thought of retiring early the SW persuaded her to continue and suggested she just took a holiday in between placements. Foster Carers often have 2 or 3 placements at once. It really sounds as if this DC would take all of probably two people's time every day just to care for him.

Thisgroupneverceasestoamazeme · 02/09/2023 23:06

@cestlavielife what’s your personal experience of this?

Tumbleweed101 · 02/09/2023 22:58

You have my sympathy. I've looked after some quite difficult children on the autistic spectrum and I've often wondered how tough it must be to be their parent dealing with their behaviours pretty much constantly away from nursery. It can be quite challenging to have them for just a few hours and with support from colleagues.

Push your health care providers and nursery to put as much in place now (EHCP, OT, SALT, CDC etc) ready for starting school so that you have all the funding and support you can get as your child gets older. Once the assessments are completed you may find you can assess more help. I have a friend with a child who is unable to manage simple things such as getting dressed independently as an autistic teen and she said sometimes it seems harder to get support for more severe situations as so many are in the system for more mild situations since everyone is under the umbrella of ASD rather than the distinction of Asperger (ie mostly able to manage an independent life) vs severe (will always need care for basic functions).

TomatoSandwiches · 02/09/2023 22:54

I was raped by a foster brother in one home and then sexually assaulted by a foster father whilst on holiday in front of the whole family.
I was a young teenager with a mouth, not afraid to make noise.

What do you think happens to the non verbal, mentally disabled, physically impaired CHILDREN you are suggesting we give up?

We don't want to give our children up, we've already fallen in love with them by the time their disabilities and difficulties appear.

We just need help and to not have to fight until we are nearing a nervous breakdown to get it.

If society is judged on how it treats the most vulnerable in society then judging by the attitudes I routinely see directed towards disabled children alone brings me to believe we all share an equal amount of shame.

Don't forget this, every single one of you is one infection or accident away from being completely reliant on the wider society around you.

Never forget that.

Lavender14 · 02/09/2023 22:48

x2boys · 02/09/2023 20:36

Im.sure you do but there are not loads of families waiting around just to adopt severely disabled children
Most will.end up.in foster care at best

In some instances Foster care is actually a much better option for the child than adoption. Family contact is more regularly facilitated and can be arranged with the Foster carers, parents retain full responsibility for decisions made about their child's care and it means the situation can be reviewed regularly. It also means that the decision isn't final. If the child's original families circumstances change they might be in a place to have their child live with them again. There's also much more support in place for foster parents than adoptive parents which can mean they're more likely to sustain a long term placement. (Messed up since they should be supporting the family better in the first place. ) Also in that vein a child would need to have a pathway drawn up meaning that on turning 18 they would be helped access long term supported accommodation to live securely in which is usually a huge worry and struggle for carers as they get older and their children grow into adults.

I understand this is something you feel strongly on but you're presenting blanket statements and that's not fair since every situation is individual.

Thisgroupneverceasestoamazeme · 02/09/2023 22:42

@Yalta what evidence are you basing the fact that somewhere would be found in these instances on? You seem pretty certain. What’s your experience of these situations? I’ve witnessed many many ‘I can’t cope, you have to come and take them’ situations and I’ve known it to be successful in very specific circumstances twice with much older children.

sweetdreamstenasee · 02/09/2023 22:38

That sounds so hard. I bet you’re doing a great job, I wish there was more help offered to you in this country.

x2boys · 02/09/2023 22:37

Yalta · 02/09/2023 22:32

Can people please please stop suggesting residential care? There is no such thing esp for 3 year old. There is next to no support for families with complex kids let alone residential placement. Please, for the love of god, stop suggesting this nonsense

If Thehonestbadger turned round tomorrow and said that is it. No more I need SS to come and get him then somewhere would be found.

If something happened to honestbadger and her dh and they were in hospital then somewhere would be found.

It isn’t that there isn’t anything, it is because what there is, is too little to go round

Somewhere would be found of course but the quality.of care might be questionable

x2boys · 02/09/2023 22:34

Littlemissalone · 02/09/2023 22:29

If I were in that situation, I would like to think I would give my child up for adoption. Don't think about the snobbery people have. You have to do what is right for your family, not for the on-lookers and naysayers.

Your child would likely not be adopted May be lonng term fostered maybe with a loving family or maybe be being moved between adequate foster cares who can just about cope likely the latter option .

Yalta · 02/09/2023 22:32

Can people please please stop suggesting residential care? There is no such thing esp for 3 year old. There is next to no support for families with complex kids let alone residential placement. Please, for the love of god, stop suggesting this nonsense

If Thehonestbadger turned round tomorrow and said that is it. No more I need SS to come and get him then somewhere would be found.

If something happened to honestbadger and her dh and they were in hospital then somewhere would be found.

It isn’t that there isn’t anything, it is because what there is, is too little to go round

Littlemissalone · 02/09/2023 22:29

If I were in that situation, I would like to think I would give my child up for adoption. Don't think about the snobbery people have. You have to do what is right for your family, not for the on-lookers and naysayers.

Offcom · 02/09/2023 22:28

Clefable · 02/09/2023 18:15

I am genuinely interested in what the solutions are when your child makes your life a living hell and your other child's life is also crap because of it. Because you apparently can't ever contemplate or discuss that you're unable to care for this child without massive detriment to yourself and your other child, so what? You just have to push on with everyone's life being awful and a child who is in many ways totally unaware of being part of a family anyway and may never be aware? Until you have a breakdown, your other child grows up damaged, you are physically unable to keep them safe, etc.

There's no nice solution here. So what can OP do to make life bearable for her and her daughter as well as ensuring her son's safety and well-being? He is one individual, the same as they are, the fact he is disabled doesn't mean that the needs of OP and her other child are unimportant. They are individuals too. Everyone's life matters in this.

I'm sorry, OP, it sounds horrendously difficult and your feelings are totally understandable.

This is the family I grew up in, it’s all so true and yet I’ve never seen it said. I’m glad I did

CattingAbout · 02/09/2023 22:27

The only person who thinks I’m going a good job or that I’m strong or amazing (despite me having the entire ASD, EHCP,DLA,Carer and now entry to special school processes completely on my own alongside parenting, is my mum. Who is basically a third parent to my kids and not by choice, just because she understands from her own childcare career that my situation is actually totally unmanageable

I have a 5 year old with ASD who has a younger sibling and I think it sounds like you are strong, amazing and doing a great job. It's massively hard at that age, but please do have hope that things will get more manageable.

You will get less batshit replies and more solidarity on the Special Needs MN boards.

misssunshine4040 · 02/09/2023 22:25

@Honeybu what a load of rubbish. Life isn't a fairytale and if you "believe in your heart" hard enough you'll get what you want.
You obviously have no clue about the daily struggle that is OP's life. What on earth are you on about?

Even if she choose to allow others to care for him, that's ok. She's not giving up on him.

x2boys · 02/09/2023 22:19

Dolores87 · 02/09/2023 21:48

I said I was disgusted with all the comments encouraging a mother of a THREE year old to jump straight to adoption or long term fostering. Yes I am passing judgement, on all the posters talking about this disabled child in a way that dehumanises him.

I didn't say I was disgusted with parents who end up feeling like they have no choice but to give their child up for adoption.

I.agree with you
Its one thing looking at residential.care after.everything else has failed and I have friends in that position who.have had to make the heart breaking decision to place a child in residential school.when its clear its the only option after many years of fighting the system
But to flppantly kep.suggesting a child of three should just be placed or adopted is shocking

ItsMyGuacamole · 02/09/2023 22:14

Hi OP, I work in a special school for specifically autistic children. I can imagine exactly what DS is like - most of the children I work with are very similar, we mostly have children with very severe ASD.

I can imagine how incredibly difficult your life is. I sometimes wonder how parents of severely autistic children cope. It can be hard enough for us in school.

What I will say is that every child with ASD is completely unique, and you can never really know how they'll progress. I've seen children change dramatically - in both communication, understanding, independence and behaviour.

I've worked with children who in reception are like little whirlwinds - unable to sit still for 5 seconds, climbing furniture, biting/scratching, zero communication or understanding etc... But by year 1 or 2 they're like different children, and a few years down the line they can communicate. Perhaps not by speech, but other ways such as PECS. School can be transformative. I imagine from your description of your child he will be straight into a special school, which is exactly what he needs.

I know that doesn't help for right now, as he's only 3 so you have awhile to wait, but hold out hope that school might make a world of difference.