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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wish I didn’t have my 3yo son?

337 replies

Thehonestbadger · 02/09/2023 17:29

I’m aware it’s horrible but if someone gave me a button to press and he simply wouldn’t exist anymore I am confident I would, without so much as a second thought.

I love him; I do but I simply cannot pretend my life isn’t incredibly hard and shit because of him. He has ASD, is non verbal, has very little understanding of what’s going on around him or concept of danger. He suffers with PICA too so is constantly eating EVERYTHING and yes I mean everything.

He’s massive for his age; the size of a 6 year old and fights me tooth and nail over things like bum changes. I can’t go anywhere or do anything unless it’s exactly what he wants and there’s very very little engagement between us despite endless trying on my part. No one wants to look after him, my mum will occasionally as she knows how much I’m struggling but it’s hard for her I know that. Ive stuck him in nursery where he had a specialist 1:1 worker 5 days a week but it’s just a few hours and honestly the sound of him screeching and the insane anxiety over his constant unpredictable behaviour just ruin my life.

Worst of all, he has a 2yo sister, whose life is being so detrimentally impacted. I often just think to myself how amazing it would be to just have her; the freedom of things we could do; places we could go. All the ties and limits and restrictions lifted. I often feel like I might as well not have had my daughter because I never get to enjoy her and she’s always shafted off to family whilst I Labour on with DS in this weird kind of isolated purgatory, because family are willing to look after her.

we have all the appropriate support functions in place; all the experts and social services…etc. We’ve been on this path a long time now as it was clear from around 10 months that DS was not developing properly.
(I was already well into DD pregnancy by then).

Other than my mum family/friends don’t even want to spend more than 30 minutes in our company and I really feel that ‘oh god wtf is your life now? This is hideous’ feeling whenever they do.

I want to be one of those social media disability mums who are like intensely positive but I just don’t feel that way. The physical and emotional care he needs is just so depressing.

OP posts:
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BrightGreenMoonBuggy · 02/09/2023 18:03

lostinmymess · 02/09/2023 17:50

Can people please please stop suggesting residential care? There is no such thing esp for 3 year old. There is next to no support for families with complex kids let alone residential placement. Please, for the love of god, stop suggesting this nonsense.

Well, I know for an absolute fact that social services in my area have foster carers who take in babies and toddlers, so I’m not sure why you think this is complete nonsense. Perhaps they don’t exist near you, or there aren’t many, but that doesn’t mean the suggestion many people are making is absolutely futile. Nobody is suggesting a special needs boarding school. What practical help / suggestions can you think of instead?

x2boys · 02/09/2023 18:01

Meadowdog · 02/09/2023 17:54

In OP's case yes I probably would, although fostering seems the most likely scenario.

You have absolutely no.idea what you would do.unless you are in that situation
Imagine it's your child ,the child you love more than anything else in the world
Gradually you realise that your child has disabilities and over a number of years it becomes apparent how complex those disabilities are most people don't put their child up.for adoption ,they struggle in as they have no choice its insulting when people act si.blase,about such a huge decision.

BrightGreenMoonBuggy · 02/09/2023 17:58

I have nothing but compassion for you as I know that I’d absolutely feel the same and really struggle.

I also don’t think the adoption comment made by one poster should be viewed as some sort of joke or nasty. I personally know someone who has put her son into foster care as she was absolutely unable to care for his additional needs. She felt guilty enough as it is - nobody in that awful situation (and there may well be someone on here like that even if it’s not OP) needs the additional guilt from strangers calling her appalling for even considering it. Not everyone is mentally, physically or emotionally able to cope in this situation so hold off with the snap judgement just because you think you wouldn’t.

OP, given how extremely difficult your circumstances are, you could ask your local council if it’s possible to any additional (residential) care / support, perhaps at weekends, to give you a break?

WantingToEducate · 02/09/2023 17:58

YANBU OP,

I can’t even imagine how tough your life is and how you see your future. I think I would be feeling exactly the same as you if I was in your position xx

WillowCraft · 02/09/2023 17:57

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x2boys · 02/09/2023 17:57

Lavender14 · 02/09/2023 17:53

My inlaws do short term respite care for all ages from newborn up as does one of my colleagues. It's not that it doesn't exist, it's just that there aren't enough people who do it so finding a placement is difficult.

Its not just that you have to be assesed for it and it has to.to.panel ,not everyone wull.get it and then even if direct payments are granted finding a PA. is another issue

coxesorangepippin · 02/09/2023 17:56

I absolutely feel for you.

We went to the park last night and there was a family there with a similar set up to yours. Very challenging.

It must be beyond tough

Goldcircle · 02/09/2023 17:55

monicagellerbing · 02/09/2023 17:40

Is adoption an option?

I actually think this is something to consider.

aloneagaingreat · 02/09/2023 17:55

I'm so sorry, OP.

If it helps at all, vent on here. No judgement.

There desperately needs to be more help / respite available for families like yours.

lostinmymess · 02/09/2023 17:55

Op, DD (ASD and severe LDs) was very difficult at three. non verbal etc. challenging on many fronts. She is now a teen and verbal and has surprised us in so many ways. she still has complex needs, is in a special school, will never be independent but things are a lot easier than at three. I know it doesn't happen for all but at 3, I was absolute broken. Things are much better now.

Meadowdog · 02/09/2023 17:54

x2boys · 02/09/2023 17:44

Would you put your three year old up.for adoption?

In OP's case yes I probably would, although fostering seems the most likely scenario.

x2boys · 02/09/2023 17:54

WillowCraft · 02/09/2023 17:53

There must be something. There must be parents who just can't cope with a disabled child. Perhaps the child would go into foster care?

There isn't 🙄

Lavender14 · 02/09/2023 17:53

lostinmymess · 02/09/2023 17:50

Can people please please stop suggesting residential care? There is no such thing esp for 3 year old. There is next to no support for families with complex kids let alone residential placement. Please, for the love of god, stop suggesting this nonsense.

My inlaws do short term respite care for all ages from newborn up as does one of my colleagues. It's not that it doesn't exist, it's just that there aren't enough people who do it so finding a placement is difficult.

WillowCraft · 02/09/2023 17:53

x2boys · 02/09/2023 17:36

What kind of residential care do.you think might be available?

There must be something. There must be parents who just can't cope with a disabled child. Perhaps the child would go into foster care?

x2boys · 02/09/2023 17:52

lostinmymess · 02/09/2023 17:50

Can people please please stop suggesting residential care? There is no such thing esp for 3 year old. There is next to no support for families with complex kids let alone residential placement. Please, for the love of god, stop suggesting this nonsense.

Totally agree every single thread like this ,people suggest it ,its frustrating,.

lostinmymess · 02/09/2023 17:51

@monicagellerbing It's a small human we are talking about, not a cat you hand over to the rescue when it's too much bother.

uncomfortablydumb53 · 02/09/2023 17:51

Gosh I'm so sorry, you're not horrible
It's gruelling when your life and hopes for your child are not how you imagined
and I'm sorry you are not supported more
It's hard to get I know, but could the SW try to get respite care so that you can focus on DD for even a day?
Could you contact the NAS for ideas?
You can apply to Family Fund for anything which may help

Lavender14 · 02/09/2023 17:50

Op you sound like a fabulous mum, but that doesn't mean that it's easy. Your feelings are perfectly normal, caring for a child with so many needs is tough. Anyone can go on social media and make life look glossy, it doesn't mean its their full picture and even if it's the reality for them, it doesn't represent the other families with kids with additional needs who are finding it much harder. And that's because every child is different. I would approach your social worker and ask about whether there is any option for short term respite foster care or whether any charities would do something like take ds out for the day to give you a break and some quality time with your dd. I'm aware these resources are woefully under funded and can be hard to find. Alternatively you could ask your social worker for a family conference where they bring in your family and try to pin people down to ways they can support you. Could be agreeing to babysit ds once a month or every 2 months, could be doing the nursery run, could be cooking or hosting you for dinner or taking over laundry. Is ds dad around to offer support and if so is he sharing the load with you as fairly as he could be? I'm sorry op, I know there's no easy solution. Perhaps joining a support group for parents of kids with asd might help you feel less alone and give you a better support network?

Mischance · 02/09/2023 17:50

Some LAs have respite foster parents for exactly this scenario ... has this been offered?
I do not think badly of you for how you feel ... we are all only human.

lostinmymess · 02/09/2023 17:50

Can people please please stop suggesting residential care? There is no such thing esp for 3 year old. There is next to no support for families with complex kids let alone residential placement. Please, for the love of god, stop suggesting this nonsense.

MissHavershamReturns · 02/09/2023 17:49

Op I have no suggestions but just wanted to offer solidarity as a fellow mum of SN dc.

boboshmobo · 02/09/2023 17:48

Have you got a PA ? With direct payments ?
This makes life tolerable tbh .. I feel your pain though . Watch your dd and make sure she has support . It massively impacted my dd life .

hylian · 02/09/2023 17:47

If he has ASD, are you claiming any disability support/ benefits for him? You may be entitled to some respite care and support.

ThickSkinnedSoWhat · 02/09/2023 17:45

This was me last year. After a year in nursery my nonverbal child with ASD and SLD has now starting picking up words, a bit more sociable amongst other things. I'm a lone parent too, no contact from their other parent and very little support from my family, nobody ever minds her for so much as an hour and never has overnight. What I will say is that there has been progress in the last year that has made life more bearable, whilst still very hard at times. I am a very lonely person now, no friends, no time or way to make them, a shadow of my former self and I genuinely feel the only reason I am still here is for my DC. That's my sole role in my existence. So believe me, I really do sympathise so much with you. Having children with additional needs is far more difficult than those who never experience it seem to appreciate. But my point is it is possible as time goes on maybe things may change, slowly but surely?

x2boys · 02/09/2023 17:44

monicagellerbing · 02/09/2023 17:40

Is adoption an option?

Would you put your three year old up.for adoption?