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To explain to you how OCD feels

93 replies

Juno999 · 30/07/2023 14:25

Obviously each sufferer experiences it differently. However mine manifests in the form of repeated, obsessive thoughts, that run through my mind all day long, and appear out of nowhere.
I have a partner I've been with for a few years, and one day my brain decided to repeat the phrase 'I don't love you anymore'. Over and over again. No basis for it whatsoever, no relationship is perfect but this just came out of nowhere. I knew I loved him and still do but it's like my brain was forcing me to think this and say it in my mind, almost like a ritual .
I'd be trying to have a conversation with him and the words would be running through my mind over and over. It was so upsetting and made me question everything. It was completely debilitating and because of the nature of it I didn't feel like I could tell him.
I found some very helpful support online and luckily managed to 'snap out' of that. It comes back very occasionally but I'm able to control it now. However it lasted non stop for 4 months.
This has happened to me with other things, and it's totally at random. Just imagine any word whatsoever, anything bad, like murderer, child molester,racist etc.
The OCD will make you worry over and over that you're one of these things, even though there's no proof you are and you know you're not. Then, you'll start to feel awkward around all people, children, elderly, whichever group it is. You'll hear the words over and over again and it will run through your mind all day.
I still suffer this and I do access online support, but it makes me suicidal sometimes.
I've been incredibly stressed over finances, and have had a lot of self esteem issues and these things have triggered it. I get ways to control it but it comes back every now and again, and the only option I feel sometimes is suicide. I don't want to, I want to live but I can't cope with the obsessive thoughts and voices sometimes.
I'd be interested to hear from any other sufferers, or just any support as it's incredibly lonely and I'm also incredibly ashamed of it. It's another form of OCD that less people are aware of, many people associate just OCD with obsessive cleaning for instance.

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Zerodarkforty · 23/03/2026 19:17

Hormones definitely make it worse.

I’ve had periods of time where it wasn’t a huge problem and I dare say I had a relatively normal life, albeit short lived 😂

OCDmama · 23/03/2026 18:55

She might not be able to say the things out loud. My OCD was very very clever. It told me if I told anyone what I was thinking it would make that thing happen - my husband's arms would get cut off with a machete, my sister would break her neck.

OCD is absolutely fucking devious. I think of it like a chronic illness. I will periodically need counselling and medication, and there are 'triggers' that can set me off in a very bad way (stress, the birth of my first child had me approaching psychosis), but you can learn to live with it.

Zerodarkforty · 23/03/2026 18:17

Helplessandheartbroke · 22/03/2026 20:53

@Zerodarkforty it is exhausting! My friends and family know now as I struggle to hide it. One of my friends is a nurse so im constantly ringing her for advice around ds and his health! I wonder if soon she will get fed up with me

Oh I do the exact same thing with a family member 🤦‍♀️ Thanks to ChatGPT I do that a lot less now as I use that as an alternative! Probably even worse!

Helplessandheartbroke · 22/03/2026 20:53

@Zerodarkforty it is exhausting! My friends and family know now as I struggle to hide it. One of my friends is a nurse so im constantly ringing her for advice around ds and his health! I wonder if soon she will get fed up with me

Zerodarkforty · 22/03/2026 20:42

Helplessandheartbroke · 22/03/2026 20:16

@Zerodarkforty i definitely have health anxiety but around my ds. I completely understand the worry with food too. I can relate a lot. Most of my thoughts these days are worrying about ds and that something has happened when it hasnt

It’s so exhausting isn’t it! I think because I look “normal” on the outside, no one would have a clue what is really going on inside my head every day. Thank god for work as it’s a huge distraction.

Helplessandheartbroke · 22/03/2026 20:16

@Zerodarkforty i definitely have health anxiety but around my ds. I completely understand the worry with food too. I can relate a lot. Most of my thoughts these days are worrying about ds and that something has happened when it hasnt

Zerodarkforty · 22/03/2026 20:04

I’ve not heard of that 🤔

Netcurtainnelly · 22/03/2026 19:52

Limerence is often linked to OCD thoughts too.

Zerodarkforty · 22/03/2026 19:51

How does yours manifest?

Zerodarkforty · 22/03/2026 19:49

Helplessandheartbroke · 22/03/2026 18:12

@Zerodarkforty im om fluoxitine and propranolol I've had no side effects. I think I need a higher dose though! What kind of thoughts are you having if you can share?

That therapist sounds useless. Id try and self refer again and ask about cbt

I have a deep seated fear about getting a serious mental illness/ going mad. I’m frightened of lots of food if I haven’t cooked it or seen it be prepared etc incase it’s been spiked. General health anxiety too.

Helplessandheartbroke · 22/03/2026 18:12

@Zerodarkforty im om fluoxitine and propranolol I've had no side effects. I think I need a higher dose though! What kind of thoughts are you having if you can share?

That therapist sounds useless. Id try and self refer again and ask about cbt

Zerodarkforty · 22/03/2026 18:09

Im scared of medication and have a huge fear of side effects.

The talking therapy I had last time recommended stroking soft fabrics and sniffing essential oils. Ffs 🤦‍♀️ Think I’m way too far gone for that love!

I eat clean and exercise every day. I work full time and I’m a single parent. My bf doesn’t understand OCD and anxiety. He try’s to support me in his own way.

I feel like perimenopause is really making things worse at the moment. I’ve been on HRT for 8 months but don’t feel it’s helping.

Helplessandheartbroke · 22/03/2026 18:04

Certainly! Are you taking any medication? Can you also self refer to talking therapies?

@AndresyFiorella I hope you have some irl support, it sounds tough!

Zerodarkforty · 22/03/2026 18:00

I wouldn’t know how! I’m useless, sorry 😔

Could we just chat on here?

Helplessandheartbroke · 22/03/2026 17:59

Zerodarkforty · 22/03/2026 17:51

I can’t go on the mental health boards as I find it such a trigger! The irony 😩

@Zerodarkforty do you want to set one up and ill join?

AndresyFiorella · 22/03/2026 17:51

I have OCD and mine manifests as an inability to make decisions. Like you OP this massively impacts relationships as I am always considering leaving. I also absolutely hate the stereotype that people with OCD are obsessively tidy, as I live in total chaos as to throw something away involves a decision, which (in my head) might have ruinous consequences. When colleagues joke about 'being a bit OCD' because they have a beautifully organised desk, it makes me want to scream into my mile high mounds of clutter.

Zerodarkforty · 22/03/2026 17:51

Helplessandheartbroke · 22/03/2026 17:30

Im on the waiting list but have had it before.

@Zerodarkforty ill add it on the MH board now please join me

I can’t go on the mental health boards as I find it such a trigger! The irony 😩

Helplessandheartbroke · 22/03/2026 17:47

@hazelnutvanillalatte ditto! Its deliberating and consuming. Waking in the middle of the night worrying about them! I've set up a support thread on the MH board if you and @Zerodarkforty and anyone else would like to join

Zerodarkforty · 22/03/2026 17:40

I have had cbt and lots of therapy throughout the years. It just comes back in different way and different worries/fears

hazelnutvanillalatte · 22/03/2026 17:35

Severe OCD runs in my family and it's a really horrible, debilitating illness.
I have a few themes and when it's bad, they can make your blood run cold, and your brain just keeps revisiting these horrible thoughts nonstop. Every morning you wake up hoping your first thought isn't going to be the same OCD intrusive thought. Every night you go to sleep hoping you won't dream about it and that tomorrow might be better.

Helplessandheartbroke · 22/03/2026 17:30

GertrudePerkinsPaperyThing · 22/03/2026 17:25

I have OCD and having some brilliant CBT through NHS self referral. Would really recommend it!

Im on the waiting list but have had it before.

@Zerodarkforty ill add it on the MH board now please join me

GertrudePerkinsPaperyThing · 22/03/2026 17:25

I have OCD and having some brilliant CBT through NHS self referral. Would really recommend it!

Zerodarkforty · 22/03/2026 17:02

Helplessandheartbroke · 22/03/2026 16:37

Hey, I've been in a similar boat. Dh does not understand my irrational and illogical thoughts and we almost broke up recently. Would you be interested in an ocd support thread?

absolutely 👍

Helplessandheartbroke · 22/03/2026 16:37

Zerodarkforty · 21/03/2026 08:46

Thank you!

Having an episode of feeling so mentally fatigued with ocd and it is casing so many problems in my relationship etc.

I have a fear of going mad/ getting a severe mental illness. It affects me being able to take medication or eat certain things in case they are spiked/ contaminated. I grew up with a mentally ill, alcoholic mother who was often sectioned so I’m aware of why I have it.

I don’t know anyone else in real life that has ocd. I’ve had it for as long as I can remember and I always describe it as like the game whack-a-mole. You get a handle on one type/worry and then it comes back as a new fear!

Hey, I've been in a similar boat. Dh does not understand my irrational and illogical thoughts and we almost broke up recently. Would you be interested in an ocd support thread?

Zerodarkforty · 21/03/2026 08:46

Thank you!

Having an episode of feeling so mentally fatigued with ocd and it is casing so many problems in my relationship etc.

I have a fear of going mad/ getting a severe mental illness. It affects me being able to take medication or eat certain things in case they are spiked/ contaminated. I grew up with a mentally ill, alcoholic mother who was often sectioned so I’m aware of why I have it.

I don’t know anyone else in real life that has ocd. I’ve had it for as long as I can remember and I always describe it as like the game whack-a-mole. You get a handle on one type/worry and then it comes back as a new fear!

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