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Original poster

Ongoing petechiae-very worried

59 replies

MimiDuncan · 27/07/2023 18:41

Hi All,

I am just wondering what would you do .

Long story so bear with me.

2 month ago I found a lump on my 7 years old girl neck and she was complaining of being more tired and had a leg pain mainly in the evening.

We went to our Gp who sent us for an ultrasound and blood test.

Ultrasound came back as reactive lymph node and blood test came back ok also.

A few days after her blood test I’ve realised that she has very few red spots on her body ( mainly neck and back area) but I found on her leg tummy etc .

They were not fading under the glass.

Next day we went to our Gp who said it is petechiae but as she has only a few and had a blood test not a long time ago she is not concerned as it can be from lots of things ( heat scratch etc)

She got few spots every day here and there and they were fading by next day or so but she kept getting new ones.

We asked the Gp again who said she is not concerned.

The spots stopped coming for 2 weeks and I was so relieved however this Monday when she had around 40 on her shoulders , no fever no sickness and keep getting few ones every day mainly on her back and neck .

Next day the same so we went to the Er.

The doctor looked at me with a very big open eyes saying that they are petechiae but this is not the kind of petechiae they are worried about.

However he ordered for blood which came back ok, however her haemoglobin was borderline.
( the blood test a month ago was in the morning that one was in the evening so they can cause the differences maybe )

I honestly do not know what to do at this point.

Should I push for specific blood tests? Should I go back to my Gp to refer us somewhere else?
Or should I be calm that her full blood count came back ok?

Did any of you were in similar situation? What was the outcome?

I am honestly very nervous.

Many thanks.

OP posts:
WolfFoxHare · 27/07/2023 20:09

I get them on my shoulders if I’ve been carrying something heavy in a shoulder bag. A bit of a long shot but has she been playing games where she carries things in a backpack?! Is her school bag heavy?

Original poster
MimiDuncan · 27/07/2023 20:04

Frankenpug23 · 27/07/2023 19:51

I have this on my legs and feet - it tends to come up with pressure and heat it does not always have a serious cause - they will have tested kidneys, liver, possibly cardiac enzymes as part of her blood tests. If her FBC came back ok then thats a good sign - her Haemoglobin could be a little off if she was a bit dehydrated for example.

If you are worried go back and see the GP.

thank you .

her white blood cell was a bit higher also then 6 weeks ago.

the first time it was 8.8 and at the er it was 10.4

also her red blood cell at the first blood test was 4.95 at the er it was 4.4

the first blood test was in the morning the second one around 8pm at the er.

inwas wondering since if it’s still normal …

OP posts:
Original poster
MimiDuncan · 27/07/2023 19:59

Frankenpug23 · 27/07/2023 19:51

I have this on my legs and feet - it tends to come up with pressure and heat it does not always have a serious cause - they will have tested kidneys, liver, possibly cardiac enzymes as part of her blood tests. If her FBC came back ok then thats a good sign - her Haemoglobin could be a little off if she was a bit dehydrated for example.

If you are worried go back and see the GP.

Thank you.

when you say heat do you have to stay on the sun to cause petechiae or when let’s say it’s warm in the house do you also get them?

OP posts:
Duckduckie · 27/07/2023 19:57

I have these as an adult and always had them. I have low iron and my platelets fluctuate. I bruise super easily and quite tired most of the time.
I’ve had loads of tests done and it’s just how I am unfortunately

mnlk · 27/07/2023 19:52

You seem to be very anxious.

If your daughter is otherwise well, try and accept the clinicians reassurances.

Obviously if more symptoms emerge reassess.

Frankenpug23 · 27/07/2023 19:51

I have this on my legs and feet - it tends to come up with pressure and heat it does not always have a serious cause - they will have tested kidneys, liver, possibly cardiac enzymes as part of her blood tests. If her FBC came back ok then thats a good sign - her Haemoglobin could be a little off if she was a bit dehydrated for example.

If you are worried go back and see the GP.

HaveYouHeardOfARoadAtlas · 27/07/2023 19:46

MimiDuncan · 27/07/2023 19:37

May I ask you how long was the getting these petechiae spots?

we are in a second month 😔

Show quote history

They only first appeared about 3 weeks ago. I haven’t seen her for two weeks as she’s gone abroad so not sure if she still has them.

Original poster
MimiDuncan · 27/07/2023 19:42

Luxell934 · 27/07/2023 19:41

Hopefully it’s fine and nothing to worry about. Please update us when you’ve seen the haematologist x

I will , but I will see her in September 😔😔

I am so so nervous seriously

OP posts:
Original poster
MimiDuncan · 27/07/2023 19:41

Luxell934 · 27/07/2023 19:38

As long as they were in normal range it’s fine. They might change slightly depending on time of day. Keep an eye on her. Any changes take her back to GP or A&E for another blood test.

Show quote history

The first blood test her red blood cell was 4.95 at the Er 4.4 and her white blood cell at the first time was 8.8 at the Er was 10.4.

do you think it’s a slight change ?

that’s what I was wondering since …😔😔

OP posts:
Luxell934 · 27/07/2023 19:41

Hopefully it’s fine and nothing to worry about. Please update us when you’ve seen the haematologist x

Original poster
MimiDuncan · 27/07/2023 19:39

Luxell934 · 27/07/2023 19:38

As long as they were in normal range it’s fine. They might change slightly depending on time of day. Keep an eye on her. Any changes take her back to GP or A&E for another blood test.

Show quote history

I am taking her to a haematologist but very nervous 😔

OP posts:
Luxell934 · 27/07/2023 19:38

MimiDuncan · 27/07/2023 19:35

Yes they checked her full blood count and they said it’s ok.

however the second time when she got a blood test at the Er in the evening her haemoglobin was borderline, and her white blood cell was a slightly bigger then the morning one and red a slightly smaller but still in a range .

Show quote history

As long as they were in normal range it’s fine. They might change slightly depending on time of day. Keep an eye on her. Any changes take her back to GP or A&E for another blood test.

Original poster
MimiDuncan · 27/07/2023 19:37

HaveYouHeardOfARoadAtlas · 27/07/2023 19:34

I do understand you being worried, when I saw DD’s legs I thought she had leukaemia. But was reassured by the blood tests which showed her white cells, etc were normal.

May I ask you how long was the getting these petechiae spots?

we are in a second month 😔

OP posts:
Original poster
MimiDuncan · 27/07/2023 19:35

Luxell934 · 27/07/2023 19:32

It could be low platelets. Did they mention if they tested these? If they did full blood count then they would most likely have.

If red and white blood count was normal then I wouldn’t panic at the moment. That’s a good sign.

Yes they checked her full blood count and they said it’s ok.

however the second time when she got a blood test at the Er in the evening her haemoglobin was borderline, and her white blood cell was a slightly bigger then the morning one and red a slightly smaller but still in a range .

OP posts:
HaveYouHeardOfARoadAtlas · 27/07/2023 19:34

I do understand you being worried, when I saw DD’s legs I thought she had leukaemia. But was reassured by the blood tests which showed her white cells, etc were normal.

HaveYouHeardOfARoadAtlas · 27/07/2023 19:33

They just diagnosed her on symptoms as the blood test is expensive I think. They did more routine bloods to rule out diabetes and leukaemia.

coeliac disease wouldnt cause it as such but if you have coeliac disease you don’t absorb vitamins/nutrients until you stop eating gluten.

with Dd all her symptoms plus the fact she doesn’t eat hardly anything, certainly no fruit or veg led them to the diagnosis. She’s an adult so her eating habits are way past my control.

Luxell934 · 27/07/2023 19:32

It could be low platelets. Did they mention if they tested these? If they did full blood count then they would most likely have.

If red and white blood count was normal then I wouldn’t panic at the moment. That’s a good sign.

Original poster
MimiDuncan · 27/07/2023 19:32

HaveYouHeardOfARoadAtlas · 27/07/2023 19:30

But fatigue, leg pain and swollen lymph nodes are all symptoms of scurvy so possibly ……does she eat any fruit and veg or is the gummie her only source of vitamin c?

She is eating few fruits but she would need to eat more.

she is a picky eater.

may I ask you how did you found out that your daughter has scurvy?

did she get a blood test?

OP posts:
HaveYouHeardOfARoadAtlas · 27/07/2023 19:30

But fatigue, leg pain and swollen lymph nodes are all symptoms of scurvy so possibly ……does she eat any fruit and veg or is the gummie her only source of vitamin c?

Original poster
MimiDuncan · 27/07/2023 19:29

HaveYouHeardOfARoadAtlas · 27/07/2023 19:26

She had a lot over both legs, they came up quite suddenly and we’re certainly there a few days. She is chronically malnourished though due to other issues so if your Dd eats fruit and veg I’d hope it wouldn’t be the case…..unless she has an undiagnosed malabsorption issue such as coeliac disease.

Thank you . Did she get a blood test?

my daughter gets them mainly on her back and neck every day few new ones 😔

not eating that much fruit but trying to give her as much as I can .

she is taking multivitamins.

can celiac also cause this?

OP posts:
HaveYouHeardOfARoadAtlas · 27/07/2023 19:26

She had a lot over both legs, they came up quite suddenly and we’re certainly there a few days. She is chronically malnourished though due to other issues so if your Dd eats fruit and veg I’d hope it wouldn’t be the case…..unless she has an undiagnosed malabsorption issue such as coeliac disease.

Original poster
MimiDuncan · 27/07/2023 19:25

She is a picky eater but gets multivitamin gummy every day

OP posts:
WolfFoxHare · 27/07/2023 19:24

If it’s scurvy, she needs vitamin C. Does she eat a balanced diet with plenty of fruit and veg? Does she have a daily vitamin supplement? Give her orange juice (not squash, real fresh juice) for a week or so, see if it improves.

Original poster
MimiDuncan · 27/07/2023 19:24

HaveYouHeardOfARoadAtlas · 27/07/2023 19:14

Dd had this, it was scurvy.

Thank you

ive read it.

may I ask you did she get these every day?

did she get a lot or just a few?

how did they found out it was scurvy?

OP posts:
Original poster
MimiDuncan · 27/07/2023 19:24

Bookish88 · 27/07/2023 19:21

www.nhs.uk/conditions/scurvy/

Thank you

ive read it.

may I ask you did she get these every day?

did she get a lot or just a few?

how did they found out it was scurvy?

OP posts:
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