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Original poster

Ongoing petechiae-very worried

59 replies

MimiDuncan · 27/07/2023 18:41

Hi All,

I am just wondering what would you do .

Long story so bear with me.

2 month ago I found a lump on my 7 years old girl neck and she was complaining of being more tired and had a leg pain mainly in the evening.

We went to our Gp who sent us for an ultrasound and blood test.

Ultrasound came back as reactive lymph node and blood test came back ok also.

A few days after her blood test I’ve realised that she has very few red spots on her body ( mainly neck and back area) but I found on her leg tummy etc .

They were not fading under the glass.

Next day we went to our Gp who said it is petechiae but as she has only a few and had a blood test not a long time ago she is not concerned as it can be from lots of things ( heat scratch etc)

She got few spots every day here and there and they were fading by next day or so but she kept getting new ones.

We asked the Gp again who said she is not concerned.

The spots stopped coming for 2 weeks and I was so relieved however this Monday when she had around 40 on her shoulders , no fever no sickness and keep getting few ones every day mainly on her back and neck .

Next day the same so we went to the Er.

The doctor looked at me with a very big open eyes saying that they are petechiae but this is not the kind of petechiae they are worried about.

However he ordered for blood which came back ok, however her haemoglobin was borderline.
( the blood test a month ago was in the morning that one was in the evening so they can cause the differences maybe )

I honestly do not know what to do at this point.

Should I push for specific blood tests? Should I go back to my Gp to refer us somewhere else?
Or should I be calm that her full blood count came back ok?

Did any of you were in similar situation? What was the outcome?

I am honestly very nervous.

Many thanks.

OP posts:
New posts on this thread. Refresh page
IWishIWasABaller · 05/08/2024 20:54

StampOnTheGround · 05/08/2024 20:13

@IWishIWasABaller what happened when you asked your GP again? I also have the same, blood tests came back normal and have been ignoring them for a year but I am still covered!

Hope everything's okay with your daughter @MimiDuncan - did you get to the bottom of it?

Hey , no still nothing done about them . Have had lots of different blood tests ,scans etc and nothing untoward has shown up in anything . One doctor said it could be a side effect from my fatty liver , another said he sees it a lot in women with high estrogen levels . No one seems concerned and I continue to develop more all the time

StampOnTheGround · 05/08/2024 20:13

@IWishIWasABaller what happened when you asked your GP again? I also have the same, blood tests came back normal and have been ignoring them for a year but I am still covered!

Hope everything's okay with your daughter @MimiDuncan - did you get to the bottom of it?

LauraMay919 · 05/08/2024 14:29

Any update OP?!

Karnold1012 · 22/09/2023 02:32

Did you see the hematologist? How was it?

Original poster
MimiDuncan · 04/08/2023 18:22

IWishIWasABaller · 04/08/2023 14:08

I seem to get more all the time it seems to be concentrated on my stomach area which is strange. Blood tests done approx 6 months ago and they sent a text to say all results were normal. actually due to see my doctor again soon so I'm going to ask again as there has to be some reason for them !

Definitely ask about it.

my Daughter getting 5-10 new little spots every day in the last 2 month.

she’s got 2 blood tests so far but we are gonna go to a haematologist in September, maybe she can look for the cause more deeply and can give us some answers.

OP posts:
IWishIWasABaller · 04/08/2023 14:08

I seem to get more all the time it seems to be concentrated on my stomach area which is strange. Blood tests done approx 6 months ago and they sent a text to say all results were normal. actually due to see my doctor again soon so I'm going to ask again as there has to be some reason for them !

StampOnTheGround · 04/08/2023 09:00

@IWishIWasABaller this is pretty much the same as me (although I left it over a month to go to the GP 😂). I also didn't hear after my blood tests but checked the NHS app where they all said satisfactory - no either action!

Original poster
MimiDuncan · 04/08/2023 08:50

IWishIWasABaller · 04/08/2023 01:25

I've slowly become covered in these all over my stomach and some on my arms and legs. I googled and got all sorts of horror stories with most sites recommending I go straight to my GP. Which I did and he was extremely blase about it , said it could be high blood sugar levels or maybe hormone related . He did some basic blood tests and I've heard nothing since. I understand why you would be worried I hope you get better answers soon

Thank you for your response.

Do you still have petechiae every day?

when did you have a blood test done?

I guess if your Gp did not ring you then everything is ok.

OP posts:
IWishIWasABaller · 04/08/2023 01:25

I've slowly become covered in these all over my stomach and some on my arms and legs. I googled and got all sorts of horror stories with most sites recommending I go straight to my GP. Which I did and he was extremely blase about it , said it could be high blood sugar levels or maybe hormone related . He did some basic blood tests and I've heard nothing since. I understand why you would be worried I hope you get better answers soon

Original poster
MimiDuncan · 28/07/2023 19:23

coloursquare · 27/07/2023 22:32

What are you actually worried about? Doctors don't mess around when it comes to kids and potentially serious things. It sounds like she's had all the appropriate tests and the doctors aren't concerned. If she's well in herself, I would try and enjoy the summer!

Thank you.
I feel that doctors are missing something.

they we’re not paediatrician, it was a Gp and Er doctor and they were not investigating at all.

OP posts:
Original poster
MimiDuncan · 28/07/2023 00:45

tt9 · 27/07/2023 23:34

@MimiDuncan I will be honest OP, my knowledge of paeds is limited to anaesthetising them and treating them in emergencies... so not the best person to give advice. also Internet not the best place for medical advice.... my baseline on social media is always to recommend face to face medical advice and children are very different to adults so paediatrician would be my go to. depending on where you live, there should be a childrens hospital... and they will have an A&E. you are the mum and as such the expert on your child. if your gut is telling you your DD needs to be seen before September, go to the paediatric hospital A&E or see a paediatrician

Thank you. I’ll do that.

OP posts:
tt9 · 27/07/2023 23:34

@MimiDuncan I will be honest OP, my knowledge of paeds is limited to anaesthetising them and treating them in emergencies... so not the best person to give advice. also Internet not the best place for medical advice.... my baseline on social media is always to recommend face to face medical advice and children are very different to adults so paediatrician would be my go to. depending on where you live, there should be a childrens hospital... and they will have an A&E. you are the mum and as such the expert on your child. if your gut is telling you your DD needs to be seen before September, go to the paediatric hospital A&E or see a paediatrician

Original poster
MimiDuncan · 27/07/2023 23:02

tt9 · 27/07/2023 22:33

tbh she needs to be seen by a paediatric doctor. May I ask if you went to a specialist paediatric A&E? because if not... that would be the next step I would recommend. or see a private paediatric haematologist/rheumatologist... or even a general paediatric doctor

We went to the Er but I don’t think the doctor was a paediatric doctor to be honest 😔

we are going to see a paediatric haematologist in September.

do you think paediatric doctors might see things differently?

OP posts:
tt9 · 27/07/2023 22:33

tbh she needs to be seen by a paediatric doctor. May I ask if you went to a specialist paediatric A&E? because if not... that would be the next step I would recommend. or see a private paediatric haematologist/rheumatologist... or even a general paediatric doctor

coloursquare · 27/07/2023 22:32

What are you actually worried about? Doctors don't mess around when it comes to kids and potentially serious things. It sounds like she's had all the appropriate tests and the doctors aren't concerned. If she's well in herself, I would try and enjoy the summer!

Original poster
MimiDuncan · 27/07/2023 22:18

StampOnTheGround · 27/07/2023 22:07

I've suddenly come out with loads of these in the last couple of months - had a blood test that all came back normal, so I'm just planning on altering my diet. They're not interested in investigating further, as I'm otherwise well. 😊

Thabk you. Do you get them everywhere ?

OP posts:
StampOnTheGround · 27/07/2023 22:07

I've suddenly come out with loads of these in the last couple of months - had a blood test that all came back normal, so I'm just planning on altering my diet. They're not interested in investigating further, as I'm otherwise well. 😊

Frankenpug23 · 27/07/2023 22:02

stomach I do yes - I have a c section belly and I get small clusters on it 😔

Bodybop · 27/07/2023 22:01

MimiDuncan · 27/07/2023 19:39

I am taking her to a haematologist but very nervous 😔

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For yet more blood tests? She’s only 7 and nothing awry so far.

Frankenpug23 · 27/07/2023 22:01

MimiDuncan · 27/07/2023 20:04

thank you .

her white blood cell was a bit higher also then 6 weeks ago.

the first time it was 8.8 and at the er it was 10.4

also her red blood cell at the first blood test was 4.95 at the er it was 4.4

the first blood test was in the morning the second one around 8pm at the er.

inwas wondering since if it’s still normal …

Show quote history

Hiya I just checked on the North Bristol NHS Hospital Blood ranges (I am presuming you are in the UK 😀) for children RBC normal is 4-5.2 and WBC is between 4.5 - 14.5 thats for 6-12 year olds. There will be some slight difference as some hospitals use slightly different reference ranges - but it won’t be much. Your daughters results are way within the normal ranges. Blood results can change based on time of day, hydration levels etc - but if you are worried talk to the GP again.

Original poster
MimiDuncan · 27/07/2023 22:01

Frankenpug23 · 27/07/2023 21:51

Yes so it tends to be heat and pressure off my shoes - or if my bra has rubbed a bit. I have them on the bottom of my feet too. I had them last summer and this year I had them early June (still here). Lots of blood tests done - all ok.

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Thank you . Do you get any on your back stomach etc. ?

OP posts:
Namechangedagain20 · 27/07/2023 22:00

Had she been wearing a backpack those days? I get these if I’ve been carrying a bag or shopping bag on my arms, where the handles dig in to my skin. DD also gets petechia around her eyes when she’s cried a lot the day before. They can be quite common.

Being tired and aching legs could be growing pains. DD was complaining of pains in her legs and was tired, the doctor said as it was of an evening they weren’t concerned as that’s more a sign of growing pains, if it was happening all day they’d be more worried. After a month or so we noticed it was more on days when she had done a lot of pe and after school sport. I was probably too quick to go to the gp about it but DHs cousin had childhood leukaemia so I was a bit worried.

Frankenpug23 · 27/07/2023 21:51

MimiDuncan · 27/07/2023 19:59

Thank you.

when you say heat do you have to stay on the sun to cause petechiae or when let’s say it’s warm in the house do you also get them?

Show quote history

Yes so it tends to be heat and pressure off my shoes - or if my bra has rubbed a bit. I have them on the bottom of my feet too. I had them last summer and this year I had them early June (still here). Lots of blood tests done - all ok.

rosewatergin · 27/07/2023 21:29

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Original poster
MimiDuncan · 27/07/2023 20:25

WolfFoxHare · 27/07/2023 20:09

I get them on my shoulders if I’ve been carrying something heavy in a shoulder bag. A bit of a long shot but has she been playing games where she carries things in a backpack?! Is her school bag heavy?

No she gets on random places every day 2-5 new ones mainly on her back and shoulder

OP posts: