What does your endometriosis pain feel like?

You describe it perfectly OP , I am 54 and still having periods every month. I was diagnosed with endometriosis at 28. It's exactly like the early stages of labour for me , actually not that early tbh.

I got my period today and I am in absolute agony tonight. I am longing for the menopause. Thank you for starting this thread @Periodschmeriod , it's very can be very lonely sometimes. Nobody really understands what we go through.xx

@cloudsintheceiling , yes, thank you, better than I was then. Had them removed, although that caused adhesions, which has other knock-on effects☹️ Sadly menopause hasn't 100% resolved endo related pain but I'm thankful I'm not going through what I used to, and extremely sympathetic to anyone who is.

@Lamplightatdusk how did you know you had endo on that side pelaee, was it key hole?

Hope you are OK now? I thought I might have cysts too but have been scanned twice a few years apart and they couldn't see anything, so said it was potentially endo causing it.

@cloudsintheceiling I had bad cramps at ovulation when I had ovarian cysts, so you might want to see if anyone will refer you to be checked. Given how seriously people take women's health issues I'm guessing that might not be easy unless you have a good GP.

Does anyone here get bad cramps at ovulation?

Also, I have a strange thing where I have a heavy period for a couple of days, then a day or two almost off, then it restarts, though not as heavy or painful, for another couple of days.

It’s horrible. I remember reading about it in girlie mags visitors would buy.

I was in for spinal surgery but stretching my legs after is odd. My Fibroid grew from. numb stomach. Fortunately 1 Doctor out of 10 that crowd round your bed when first admitted, was like you want to get that looked into, must have had a gynae background as I have been diagnosed with this woman’s period condition that can cause infertility but didn’t have it in 2019 so you have every sympathy from me.

Varied, but generally felt like someone had hold of my innards with a hook and was trying to drag them out of me. The other feeling I've compared it to is a hard "Chinese burn" (sorry if that's an old fashioned term). Also the whole feeling of needing to poo. Generally feeling nauseated.

I'm on the waiting list for a diagnostic lap for suspected endo but I suffer with:
Painful cramps
Back pain (starts lower, but radiates up and down)
Pain down legs (tingling, sluggish and achy, shooting, burning)
Pelvic pain (stabbing, burning, crampy)
Brain fog
Chronic fatigue
Severe bloating
Constant feeling to wee
Pain in cervix and ovaries in varying degrees

Sex can cause discomfort with mild shooting pains in pelvis afterwards. And I can absolutely guarantee my symptoms will flare for a few days afterwards.
Even cleaning or walking can aggravate my symptoms and leave me needed heat therapy and painkillers.

Oh and chronic fatigue every freaking day.

@Periodschmeriod yep, that is a good way to describe it, in waves that peak. I actually use a TENs machine because it does feel like labour every month. In fact labour felt easier because I knew there was going to be a baby at the end of it. Numb but somehow painful thighs, pike up the arse, hips in a vice, plus stabbing ovary pain on one side which I know has the most scar tissue from endo deposits. Cramping of uterus and generally around 36 hours of this horrific pain. And 24 days later I have another period. Hope your meds kick in soon.