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School denying diagnosed SEN. Where to turn?

109 replies

CanYouSeeWhatISee · 28/05/2023 19:14

DS10 (11 in August and moving to high school in September) has recently been diagnosed with Autism. His 3 year old sibling also has an autism diagnosis but his is much more pronounced.

DS10’s school have repeatedly told me they don’t believe he is autistic and they would never support the diagnosis because he is sociable; their responses throughout the assessment support their view that he is not autistic.

DS is a lovely boy and he is very well behaved but his sensory needs are impacting our whole family and this was the reason for the referral for assessment.

He is constantly on the move whether it’s running , jumping, spinning , shrieking, hitting, crashing in to things etc . It makes doing any very small task exhausting. The whole experience every day is exhausting. He can sometimes be calm if he has a sensory toy in hand but he still shrieks and is unpredictable. He also does dangerous things in order to get some sensory feedback.

The constant movement and noise also upsets his little brother who can not stand it so it adds to the battles.

DS10 was assessed by an educational psychologist who could see how anxious he is in school and explained to his teachers that he is trying hard to mask his need to seek feedback.

DS10 was then referred for a sensory assessment and both myself and his school were sent forms. I’ve received a copy of the forms in the post yesterday and unsurprisingly the school’s responses are opposite to mine and DH’s. DS10 has now been discharged with no further action needed.

We are frustrated to say the least. I understand school can only write what they see in the classroom but I feel they think I’m lying or exaggerating.

WIBU to ask for DS10 to be seen again?

OP posts:
Ilovealido · 28/05/2023 19:31

This is awful OP but sadly not surprising. I’m not hugely knowledgeable in this area as we’re currently at the start of seeking a diagnosis for DD but isn’t this where an EHCP comes in? Forgive me if this is wrong.

gogohmm · 28/05/2023 19:30

Who diagnosed him? The nhs or someone you paid? Schools generally discount anything other than nhs because if you pay there's a conflict of interest

HeidiWhole · 28/05/2023 19:28

If the assessment was carried out according to NICE guidelines with a MDT the school have to accept the diagnosis. How can they know better?

Blort · 28/05/2023 19:27

Who diagnosed him as autistic?

Is it possible he had adhd as well as autism? I have a sensory seeking son with both adhd and autism and he's a model student - meds for adhd really help the bouncing around. (And if he is masking - he longer needs to mask the hyperactivity when at school, and can concentrate on learning)

I'm actually so cross reading your post. Can you contact thr service that sent the ed psych??

Mydusa · 28/05/2023 19:25

New school or old school? Talk directly to SENCo at the new school. That's the person you need on board.

Itsanotherhreatday · 28/05/2023 19:23

Who diagnosed him? If it was a private psychologist the school won’t accept the report - it have to be NHS or school psychologist.

Starlightstarbright1 · 28/05/2023 19:22

Well firstly I would complain about been told he doesn’t have autism.
Schools don’t diagnose for a reason .

Did the Educational psychologist give any recommendations ? Ask them to implement them if so .

Lougle · 28/05/2023 19:22

You can. It might be best to give specific examples of situations where you observe the behaviours outside of school.

CanYouSeeWhatISee · 28/05/2023 19:22

DS10 school do mention to me frequently that DS is often easily distracted and messing around . They have made some adjustments for him so they are not completely oblivious but insist he’s fine.

OP posts: