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AIBU?

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Original poster

Please help me, I’m struggling with this

33 replies

pleasehelpmeargh · 26/02/2023 23:50

Sorry this is cringey and I know posts like this always seem suspicious as trolls- I promise I’m not, I’ve just name changed.

I’ve had EXTREME discomfort, to be completely blunt and factual it’s at the clitoris area. But it doesn’t feel like it’s on the skin or surface tissue , it feels like it’s physically inside / much deeper. Almost like where the pubic bone is (I think?!).

the discomfort is horrendous- sort of a deep itching and sort of pain. I’ve had BV and thrush before and the itching with both felt different whereas this discomfort feels much much deeper. It’s like it’s deep inside the clitoris area itself. I haven’t changed washing powders or underwear type or material but even when I had a problem with washing powder causing irritation years ago it felt so different to this, this feels much much deeper

ive spoken to the gp several times who felt that the discomfort was too deep rooted to be be or thrush but we tried treating for both (separately obviously) and it’s not helped at all. It’s also not a uti or a STI. I’m not on any contraceptive and I’m not sexually active either.

They said they don’t know what it is but they can refer me to a gynaecologist but the waiting list is over a year and I honestly don’t think I can cope with this for that long!

sorry this is such a cringey post but does anyone have any knowledge or advice of what this could be and what might help it? Really struggling and it’s making my life miserable.

OP posts:
New posts on this thread. Refresh page
RebelliousHoping · 14/06/2025 11:36

Hi op,

Did you get any answers for this, did the problem go on its own?

Many thanks.

Mumof228 · 10/10/2023 15:32

OnlyOpenMouthToChangeFeet · 27/02/2023 07:18

I'm so sorry OP, it sounds as though it may be pudendal neuralgia, and if so you have my empathy as I know from experience how vile it is.

Have a read of this, and see if it resonates. Sadly, many GP's are not familiar with the condition, and know very little. Your best option is a referral to a consultant gynaecologist, neurologist, or specialist pelvic physiotherapist.

www.nhs.uk/conditions/pudendal-neuralgia/

Good luck. 💐

Show quote history

@OnlyOpenMouthToChangeFeet hi I noticed you commented on this did you have a diagnosis and also what you doing to help pudental pain I have a lot of burning pain in front and back passage also vulva pain

Mumof228 · 10/10/2023 15:30

@pleasehelpmeargh pleasehelpmeargh

Hi I think I'm in the same position. Have you had a proper diagnosis and also what do you do to help the pain

MangoBiscuit · 27/02/2023 08:59

OnlyOpenMouthToChangeFeet · 27/02/2023 07:29

OP already said not a UTI.

Show quote history

🤦‍♀️ so she did. I read it twice, and missed it both times. Sorry OP.

JustGotToKeepOnKeepingOn · 27/02/2023 07:31

@AnotherSpare it sounds like you could have vaginal atrophy. An oestrogen cream can help with symptoms.

OnlyOpenMouthToChangeFeet · 27/02/2023 07:29

MangoBiscuit · 27/02/2023 07:25

As @Everybodywants says, could be a UTI.

OP, your description of the pain sounds very similar to how I felt with cystitis. No burning when peeing, just an awful, uncomfortable itchy pain, in the area you describe. Could be worth checking.

OP already said not a UTI.

MangoBiscuit · 27/02/2023 07:25

As @Everybodywants says, could be a UTI.

OP, your description of the pain sounds very similar to how I felt with cystitis. No burning when peeing, just an awful, uncomfortable itchy pain, in the area you describe. Could be worth checking.

OnlyOpenMouthToChangeFeet · 27/02/2023 07:18

pleasehelpmeargh · 26/02/2023 23:50

Sorry this is cringey and I know posts like this always seem suspicious as trolls- I promise I’m not, I’ve just name changed.

I’ve had EXTREME discomfort, to be completely blunt and factual it’s at the clitoris area. But it doesn’t feel like it’s on the skin or surface tissue , it feels like it’s physically inside / much deeper. Almost like where the pubic bone is (I think?!).

the discomfort is horrendous- sort of a deep itching and sort of pain. I’ve had BV and thrush before and the itching with both felt different whereas this discomfort feels much much deeper. It’s like it’s deep inside the clitoris area itself. I haven’t changed washing powders or underwear type or material but even when I had a problem with washing powder causing irritation years ago it felt so different to this, this feels much much deeper

ive spoken to the gp several times who felt that the discomfort was too deep rooted to be be or thrush but we tried treating for both (separately obviously) and it’s not helped at all. It’s also not a uti or a STI. I’m not on any contraceptive and I’m not sexually active either.

They said they don’t know what it is but they can refer me to a gynaecologist but the waiting list is over a year and I honestly don’t think I can cope with this for that long!

sorry this is such a cringey post but does anyone have any knowledge or advice of what this could be and what might help it? Really struggling and it’s making my life miserable.

I'm so sorry OP, it sounds as though it may be pudendal neuralgia, and if so you have my empathy as I know from experience how vile it is.

Have a read of this, and see if it resonates. Sadly, many GP's are not familiar with the condition, and know very little. Your best option is a referral to a consultant gynaecologist, neurologist, or specialist pelvic physiotherapist.

www.nhs.uk/conditions/pudendal-neuralgia/

Good luck. 💐

Lilliflip · 27/02/2023 07:15

It could be nerve pain, esp if you describe it as deep rooted. There’s a condition called pudendal neuralgia which can cause genital pain.

Lemons1571 · 27/02/2023 07:08

@pleasehelpmeargh

I have similar. Had it for years now. Also don’t know what it is, as the area looks normal to the medics. Gynae had a look once and dismissed me.

Benadryl Once helps - has to the the one with pseudoephrine in. I think mine is some kind of vulvodynia / clitoral enlargement, possibly caused by trauma to the area during childbirth.

Weird question, but does orgasm temporarily relieve the symptoms?

Everybodywants · 27/02/2023 01:36

Has your urine been tested? Could it be a UTI further up that's causing this wider discomfort

Original poster
pleasehelpmeargh · 27/02/2023 01:04

Goodread1 · 27/02/2023 00:49

www.drarunghosh.co.uk/gmg-blog/how-much-does-it-cost-to-see-a-private-consultant/

I know your doctor said it could take a year Op@pleasehelpmeargh
Even though a year seems such a ridiculous long time to wait to sort something out like this for blessed relief,
It's Surprising how quick of sorts the time does go
I thought I would link up to website for you, not sure your funds would be able to stretch to going private,
But it's worth having a check and see ect

Thank you so much for the link! I’m going to speak to my mum tomorrow and explain and ask if I can borrow the money from her to go private as a year seems so long x

thank you so much for all the other tips and suggestions, I’ll add tea tree to the list of things to try and I’ll Google lichen sclerusos to see if it has the same symptoms as what I’ve got. Thanks again x

OP posts:
Original poster
pleasehelpmeargh · 27/02/2023 01:03

Missingthegore · 27/02/2023 00:59

The definition of sexually active can be that you are not a virgin

All about how you interpret it

Sorry I’m not sure what youre meaning?

OP posts:
MrsClatterbuck · 27/02/2023 00:59

Having a bath with tea tree oil has helped me in the past with thrush symptoms. Worth a try.

Missingthegore · 27/02/2023 00:59

The definition of sexually active can be that you are not a virgin

All about how you interpret it

MadHattter · 27/02/2023 00:53

*Sclerosus

MadHattter · 27/02/2023 00:51

OP, this is a wild guess but might be worth a Google - Lichen Sclerosis. It can be extremely uncomfortable. It sometimes presents with white patches. Hope you get sorted whatever it is.

Goodread1 · 27/02/2023 00:49

www.drarunghosh.co.uk/gmg-blog/how-much-does-it-cost-to-see-a-private-consultant/

I know your doctor said it could take a year Op@pleasehelpmeargh
Even though a year seems such a ridiculous long time to wait to sort something out like this for blessed relief,
It's Surprising how quick of sorts the time does go
I thought I would link up to website for you, not sure your funds would be able to stretch to going private,
But it's worth having a check and see ect

AnotherSpare · 27/02/2023 00:49

How is your pelvic floor? Since I went into perimenopause my pelvic floor muscles have weakened, everything has sunk down a bit and I've struggled with possibly a similar sensation - not itchy, not really painful, more like very sensitive but inside. I believe the organs pushing/squashing everything down is causing a pressure sensation.

Original poster
pleasehelpmeargh · 27/02/2023 00:43

wonkymonkey · 27/02/2023 00:41

Not sure how helpful this will be but my daughter (pre-teen) sometimes has pain. Difficult to tell exactly what’s going on as she’s so young and I think it might be more the vagina area (hence why not sure this is helpful but anything is worth a go). A bath for 10 mins with bicarbonate of soda works for her. Something to do with re-balancing the acidity/alkaline balance.

Thank you very much I’ll honestly give anything a go at this point! Sounds like I’ll have plenty of time to try things before being seen by a gynocologist anyway so may as well x

OP posts:
Original poster
pleasehelpmeargh · 27/02/2023 00:42

Yeah the GP said I might not even be able to be seen at a sexual clinic because I’ve never had sex before

they did an examination of the area but said everything looks ok externally but the problem is inside the clitoris which obviously they can’t see. It’s itchy but not a skin itch, it honestly feels so deep as if if my pubic bone (or whatever bone is around the clitoris area) is itchy and burning x

OP posts:
wonkymonkey · 27/02/2023 00:41

Not sure how helpful this will be but my daughter (pre-teen) sometimes has pain. Difficult to tell exactly what’s going on as she’s so young and I think it might be more the vagina area (hence why not sure this is helpful but anything is worth a go). A bath for 10 mins with bicarbonate of soda works for her. Something to do with re-balancing the acidity/alkaline balance.

Summerfun54321 · 27/02/2023 00:38

Your GP sounds very unhelpful. Can you see a different GP as well as trying family planning. Or pay for a private gynea exam?

WetBandits · 27/02/2023 00:34

Hi OP, I’m a sexual health nurse and would absolutely invite you in for an appointment to see how we could help if you contacted my service with this problem 😊 we deal with genital dermatology issues also and can refer to gynae/derm if necessary.

StellaGibson2022 · 27/02/2023 00:29

in the interim you could also try the soothing version of Vagisil.

I’ve had similar, usually around the end of my period and put it down to the pad irritating me.

Word of warning on the sexual health clinic - they will ask if you are sexually active and if you say no they might not see you.