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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think my baby has autism?

87 replies

CanStopWillStop · 27/10/2022 22:09

I've asked DH and DM but they've shut me down pretty quickly, need a second (third,fourth etc) opinion.

DD (11mths) has been reaching milestones as far as I knew, early crawler, early walker, sitting up etc.

However I got my 1 year check survey and was surprised by a few of the questions, namely: does your child respond to your voice/when you call their name.

DD hardly does either. She also doesn't make great eye contact like other babies. I go to play groups, so I see how other babies look me in eye, DD doesn't really do that often. DH and DM don't see other babies, so they don't really get what i mean.

I'm going to the doctors check up next week but I've been doing research an apparently 'answering to name' should be an early milestone (6-8months) and now I'm worried I missed the red flags and feeling pretty shit about it tbh as I know early intervention helps with autism.

Anyones LOs similar to mine? AIBU to think it's probably autism?

OP posts:
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Chzm · 13/06/2024 18:15

@x2boys Hey, sorry I forgot to tag you seeing as you quoted my message above I thought I'd reply.

I don't know how much clearer I can be but I'm NOT 'looking' for a diagnosis.

Telling me to speak to my health visitor or peads like you genuinely think that hasn't popped into my head already when I have major concerns regarding my baby is so strange. Of course I'm in touch with my HV and seeking help and opinions where I can. Parent forums are supplementary and are here for discussions with other parents. In this case, the thread, regardless of how old it is, directly relates to my child in that he's displaying the same behaviours so I've commented to get an update. YES I KNOW that my child may or may not have autism, may or may not have the same outcome as any children displaying the same symptoms at this age but I CAN ASK for my own knowledge and information.

Regardless of the outcome of this OP's child, it WOULD be helpful to know to ME, irrespective of anyone else's opinion.

Thanks for reading

Chzm · 13/06/2024 17:52

@MariaVT65 As I'm replying to another commenter so yet again back on this thread, I thought id comment again to say, give it a rest!

Most likely you'll definitely see the comments as you're active now in 2024 and not years earlier like OP.

Chzm · 13/06/2024 17:48

@Morph22010 Thanks for your response.

I did start my own thread but got 2 replies only.

I haven't just asked one person on Mumsnet and I'm not basing my child's possible future prognosis off this. I'm in touch with my HV, have read/ commented on lots of posts on Mumsnet and the likes of these parent forums to get opinions and discuss things. I do understand what autism is, and that it's a spectrum and no two children are the same. I wanted to comment on this forum to get an update on OP's child, which sounds exactly like my child currently at 11 months, to gather more information and possibilities.

EilonwyWithRedGoldHair · 13/06/2024 17:44

DS met all his milestones - just, tended to be at the latter end of the window. Don't remember issues with him responding to his name.

What he had from birth was a dislike of being undressed/having his clothes changed and having a bath. All of which have carried on and are now clearly sensory issues, but we didn't think anything of them at the time.

Point being it's very hard to tell anything at an early age unless their are very obvious signs that something isn't right. However I don't think there is any harm in mentioning it to a HCP - it could be a hearing issue, could be autism, it could be something else, might be nothing but its worrying you and we're given lists of milestones so if they're not met questions can be asked in case there is an issue.

x2boys · 13/06/2024 17:10

Morph22010 · 13/06/2024 13:32

I’m sorry you have taken this the wrong way but I was trying to be helpful. if you make your own post you get lots of comments and you can evaluate them and take on board what is said overall. So if you post asking about something and 100% of a lot of answers are in line with what you think it gives you a clearer picture.

If you ask one person and she says her child turned out to be autistic that doesn’t mean yours is or isn’t, it is no help whatsoever to you. For info my child is autistic although he’s now a teen and I asked lots of questions on mumsnet was he was younger

I agree and its such a broad spectrum even when a child does get a diagnosis ,no two people with autism are the same.

Morph22010 · 13/06/2024 13:32

Chzm · 13/06/2024 12:31

Using your analogy no one should come on mumsnet and comment anything about their children's symptoms, concerns etc regarding ANY illness or problem as no two children are the same and if one child is displaying any kind of symptoms or behaviours doesn't mean that another child is.

Right?

Or actually, everyone can. Cause no one is looking for a diagnosis from another mother, and I'm sure everyone knows that no two children are the same but it becomes somewhat more likely, even if just a little, that if children are displaying EXACTLY the same behaviours that the outcome MAY be similar.

Again thanks for your very helpful comment though. Have a nice day!

I’m sorry you have taken this the wrong way but I was trying to be helpful. if you make your own post you get lots of comments and you can evaluate them and take on board what is said overall. So if you post asking about something and 100% of a lot of answers are in line with what you think it gives you a clearer picture.

If you ask one person and she says her child turned out to be autistic that doesn’t mean yours is or isn’t, it is no help whatsoever to you. For info my child is autistic although he’s now a teen and I asked lots of questions on mumsnet was he was younger

UsefulZombie · 13/06/2024 12:53

Nursenicole911 · 13/06/2024 01:52

My sister's son had hearing problems so they put in tubes in his ears . she dropped a pan and he didn't even startle or cry so she had his hearing checked . Turns out he did have ASD but she said it was after his MMR vaccine. he walked early , sat crawled said mama tracked a toy ect... but here in the states they automatically do these assessments at 18 months and its basically a questinare

Yeah that's not how autism works.
My children also met most milestones early, they are verbal, made social gestures etc, then around 18 months their development shifted and sensory needs, gestalt language processing etc became more apparent, and their social communication skills/interest changed a lot. This is very typical in autistic development and has nothing to do with vaccines.

toadinthebucket · 13/06/2024 12:49

Nursenicole911 · 13/06/2024 01:52

My sister's son had hearing problems so they put in tubes in his ears . she dropped a pan and he didn't even startle or cry so she had his hearing checked . Turns out he did have ASD but she said it was after his MMR vaccine. he walked early , sat crawled said mama tracked a toy ect... but here in the states they automatically do these assessments at 18 months and its basically a questinare

What does his MMR vaccine have to do with anything? You can't seriously still believe that one discredited paper from decades ago over all thw research that's been done since?

UsefulZombie · 13/06/2024 12:41

Hi OP,
I have two autistic kids.
Both met most milestones early but by 18 months both made limited eye contact/stopped answering to their names consistently. Around this time their sensory needs and differences in language development became apparent.
I think you'll know a bit more by this stage.
No one believed me with DD either - she's just turned 2 and I'm still fighting to get her on the appropriate pathway, although my partner and my dad do now recognise that she's autistic.

Chzm · 13/06/2024 12:31

Morph22010 · 13/06/2024 06:19

And I don’t think you’ll gain anything from the op reply thst you wouldnt get from starting your own thread if you have concerns. Whether the op child turned out to be autistic won’t mean that yours is or not even if the early behaviours are similar

Using your analogy no one should come on mumsnet and comment anything about their children's symptoms, concerns etc regarding ANY illness or problem as no two children are the same and if one child is displaying any kind of symptoms or behaviours doesn't mean that another child is.

Right?

Or actually, everyone can. Cause no one is looking for a diagnosis from another mother, and I'm sure everyone knows that no two children are the same but it becomes somewhat more likely, even if just a little, that if children are displaying EXACTLY the same behaviours that the outcome MAY be similar.

Again thanks for your very helpful comment though. Have a nice day!

Chzm · 13/06/2024 12:21

@Morph22010 No one comes on here looking for a diagnosis and neither am I. I purely want a follow up from a mother who has a child displaying pretty much exactly the same behaviours as mine.

I'm not looking for a diagnosis from her nor am I silly enough to think that anyone could give a diagnosis.

These forums are for mothers to share their concerns, get opinions, read other threads and have the right to comment for follow up.

Thanks for your helpful comment though.

Chzm · 13/06/2024 12:17

@MariaVT65 How about you 'give it a rest'? Why are my messages bothering you that much? Whether I've messaged once, twice or thrice, why has that affected you to the degree that you've actively put in the effort to message 'give it a rest'? It's a platform for anyone to comment on for whatever reason they like, however many times they like.

I don't see any rules on Mumsnet or restrictions from preventing me from commenting on older threads? If she MAY not be active then she won't reply, why do you feel the need to come and be an unpaid moderator have you not got anything better to do?

However from one mother to another, I sincerely hope and pray that if you're ever going through such a worrying time in your life that you do find yourself on forums during sleepless nights messaging the same thread three times, that you'll find messages of support rather than pathetic ones like 'give it a rest'.

In conclusion, I will not 'give it a rest' for you, Maria.

x2boys · 13/06/2024 07:37

Chzm · 09/06/2024 23:51

Hey @U2HasTheEdge how is your grandson now? I have similar concerns x

Speak to the health visitor nobody on here can tell you if your baby is autistic and no reputable paediatrician would diagnose at such a young age and tbh there is no point in comparing your child to any other child even if they are diagnosed with autism ,as its such a broad spectrum.

Morph22010 · 13/06/2024 06:19

And I don’t think you’ll gain anything from the op reply thst you wouldnt get from starting your own thread if you have concerns. Whether the op child turned out to be autistic won’t mean that yours is or not even if the early behaviours are similar

MariaVT65 · 13/06/2024 06:14

Chzm · 13/06/2024 01:39

@CanStopWillStop just tagging you incase you didn't see the above message please!! X

Give it a rest! This thread is from 2022 and you’ve messaged op 3 times over 3 days. She may not even be active at this point or log on all the time.

Nursenicole911 · 13/06/2024 01:52

My sister's son had hearing problems so they put in tubes in his ears . she dropped a pan and he didn't even startle or cry so she had his hearing checked . Turns out he did have ASD but she said it was after his MMR vaccine. he walked early , sat crawled said mama tracked a toy ect... but here in the states they automatically do these assessments at 18 months and its basically a questinare

Chzm · 13/06/2024 01:39

@CanStopWillStop just tagging you incase you didn't see the above message please!! X

Chzm · 10/06/2024 00:22

CanStopWillStop · 27/10/2022 22:09

I've asked DH and DM but they've shut me down pretty quickly, need a second (third,fourth etc) opinion.

DD (11mths) has been reaching milestones as far as I knew, early crawler, early walker, sitting up etc.

However I got my 1 year check survey and was surprised by a few of the questions, namely: does your child respond to your voice/when you call their name.

DD hardly does either. She also doesn't make great eye contact like other babies. I go to play groups, so I see how other babies look me in eye, DD doesn't really do that often. DH and DM don't see other babies, so they don't really get what i mean.

I'm going to the doctors check up next week but I've been doing research an apparently 'answering to name' should be an early milestone (6-8months) and now I'm worried I missed the red flags and feeling pretty shit about it tbh as I know early intervention helps with autism.

Anyones LOs similar to mine? AIBU to think it's probably autism?

Hey OP @CanStopWillStop how is your baby now? Would love to hear from you x

Chzm · 09/06/2024 23:51

U2HasTheEdge · 27/10/2022 22:59

It's so hard to know at this age, but I knew with my son that there were big differences between him and other babies.

My Grandson is 1 and he doesn't respond that well to his name, avoids very close eye contact, and can spend a long time just throwing one toy on the floor and has no interest in playing with any other toys. He also rotates his wrists a lot, flaps his hands and was diagnosed with stereotypies. We were told he is way too young to tell one way or another.

They all develop differently, but I would definitely get their hearing checked again.

Hey @U2HasTheEdge how is your grandson now? I have similar concerns x

perenniallymessy · 13/11/2022 11:14

Definitely not unreasonable to question it and keep an eye out for signs.

But definitely get another hearing test- my DS could hear whispers but he also had quite severe hearing loss from glue ear. The consultant was shocked how bad it was.

I also had suspicions that DS1 was autistic when he was a toddler- struggled with eye contact, took no comfort from cuddles (used to go and sit in the corner to cry when he hurt himself and scream if we tried to hug him), very repetitive play and not good interaction with peers. But everyone assured me he was fine, just a bit quirky.

At 8 he was diagnosed with adhd and the doctor said he probably does have autism but the adhd is more dominant.

ghostsandpumpkinsalready · 13/11/2022 10:18

My daughter failed all newborn hearing tests and suffered multiple ear infections in her younger years so every professional put her problems down to that! She's now being assessed for autism but she does have a severely autistic sibling so I can see her issues clearer than others

HurtAndConfused2022 · 13/11/2022 10:11

My older daughter didn’t answer to her name or give much eye contact as a baby. I don’t really remember much pointing until she was a toddler either. I am 95% certain she’s autistic and always found it strange she wouldn’t answer her name as a baby before I even suspected autism. I am autistic too and so is my brother.

I have a son now also and is very different. Lots of eye contact, pointing since about 12m (possibly earlier), follows my point and has always responded to his name. He also plays with toys properly which my daughter never really did.

Itisbetter · 29/10/2022 13:52

Lifting both feet up for a few seconds like a startle can be spasm which it doesn’t sound like she’s doing. It sounds more like enjoying the stretchy feeling. I would imagine at 11 months it will be hard to tell as teenies are so flexible anyway.

Mamai90 · 29/10/2022 13:43

Itisbetter · 29/10/2022 01:21

Is she hyper mobile? Several of my children have orthotics to support their feet (it’s just a made to measure insole) and eases the tired need to stretch feeling a bit for them.

She rolled at 3.5 months and sat up without support at around 6.5 months but she was a late crawler (11 months) and does seem to be later with the motor skills, she's only attempting to pull up now at 11.5 months but hasn't quite got there yet, no crusing furniture yet and definitely nowhere near walking.

Is there anything else I should be looking out for re hyper mobility?

Itisbetter · 29/10/2022 01:21

Is she hyper mobile? Several of my children have orthotics to support their feet (it’s just a made to measure insole) and eases the tired need to stretch feeling a bit for them.

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