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To really strongly dislike my autistic child

286 replies

Candy999 · 24/09/2021 20:42

I am so drained. My DS autistic 6 year old drains every bit of life out of me. No matter what I do for him it is never enough. I can no longer cope with the daily shrieking, screaming, constant outbursts etc. I take him on so many trips out and nice experiences and it’s never enough for him and when we do go it’s just kick off after kick off all the time because everything needs to be his way. When he’s around me all I want to do is lay down and block out the noise and when he’s not here and I have time to do things like household chores etc I just have no motivation to do it as I just want to sit and enjoy the peace.

Currently pregnant with second child and I have no idea how I’m going to cope. My biggest fear is I’m going to go through all of this again with another child. I try so hard to show him love and affection and get nothing back. Yes he’ll ask for cuddles etc but it’s very brief and only because he wants something.

If SS came up to me tomorrow and said someone else would parent him I would happily agree to it. I’m at breaking point.
I contacted my gp a few weeks ago to enquire about some kind of medication for him and we have been referred to the paediatrician but not heard anything back. I just can’t bear it anymore. I love my child more than anything but to be frank theirs times I can’t stand the sight of him.
I want to try and get him into a residential school as feel it would be best all round but I have no idea how to go about this.
I know it’s not his fault but I just feel like why did I have to be the person to be dealt such a crappy life!

OP posts:
secular39 · 24/09/2021 21:17

@Cheesepuff1

Do you have an ASD child? They are not easy! We all have moments when we dislike our children. I love my eldest child with ASD so much but the daily meltdowns are draining, they take away my energy and keep me demotivated. We are human-not a machine.

Seesawmummadaw · 24/09/2021 21:16

Op, I have an dc with asd. It’s hard, really hard. Go back to the GP and ask if they can make any referrals while you wait for ss. To anyone and everyone.
It won’t always be this hard. Good luck.

Peanutsandchilli · 24/09/2021 21:16

Some horrible and utterly clueless comments on here. Just because the op has an autistic child, is it beyond the realms of possibility that she may just want to parent a normal child? Why shouldn't she want to bring another baby into the world?

And people thinking they know how her child thinks, and what he'd like and wouldn't like. Not all autistic people are the same, there's no one size fits all.

Op, you sound overwhelmed. I get it. You need to try and find some support. I'd have a discussion with the school senco, camhs, GP, ot, social services, anyone who will listen. I know it's tough and I've no idea what the answer is, but you need to look after yourself too, and you can't do that without other people. I wonder if there's some respite care available in the short term. Perhaps a foster placement to give you a break?

I hope you can find something that works for you and your son.

Nomoreporridge · 24/09/2021 21:16

[quote Mombie2021]@pelosi it’s obvious from her post that her child isn’t coping with being carted off and days out and experiences, this needs pointing out.[/quote]
This can be done tactfully and constructively.

Your posts sound hostile and don’t sound like they’re intended to help- merely to show off you superior parenting skills. The OP clearly loves her son but is exhausted and at the end of her tether.

My kids aren’t autistic and I’ve had moments like OP describes when I’ve struggled to cope. Many of us have.

It’s tough being a parent and think we’ve all had moments when we’ve questioned why we got into this situation

TableFlowerss · 24/09/2021 21:16

their

pelosi · 24/09/2021 21:15

[quote esloquehay]@pelosi, well I'm not into posting #bekind and, yes, I did feel it necessary to post, otherwise I wouldn't have gone to the effort of posting.[/quote]
Thankfully you’ve been deleted.

plinkplinkfizzer · 24/09/2021 21:15

So sorry you have had some really unpleasant cutting remarks on here .
please do try to get some support .❤💐

soapboxqueen · 24/09/2021 21:15

@Candy999

Sorry I can’t reply individually to all replies.

I don’t know if maybe I’ve worded things wrong. When at home my son constantly wants to be out and going to these places as he is constantly demanding it. When I take him to these places and give in to what he wants the whole day will be ruined by him constantly kicking off every 5 minutes. We use ear protectors etc. He is sensory seeking not an avoider.

He is currently in mainstream but on a reduced timetable and has been ever since March last year. I spent 12 months applying for an EHCP to be refused to then have to take them to tribunal and win to then be told mainstream is absolutely fine for him. Clearly it wasn’t and I then had to fight for a specialist placement which has only just been finalised and he won’t be able to start until January as that is when the school opens.

My GP has referred me to social services because he felt I needed some help and also had another agency refer me. So far I have not heard anything from ss.
This behaviour has got worse since the first lockdown, I don’t know wether it’s the expierienxe of this which made his behaviour worse or wether it is just him getting older.

In regards to the second child it was a contraception fail. I’m sure if I posted a AIBU about aborting my child due to autism risk I would have been lynched then as well so I guess it’s a no win situation with half of you people.

I am sorry I’m not as perfect as many as you seem

As pp suggested look up PDA. There may be strategies to help. Particularly with the confusing nature of wanting to be somewhere but also not. It basically creates a stress around being given orders or instructions. So even the implication that you must queue for something could be too much.

Also think about what is attracting him to the places he wants to go to. There may be things he wants but also things he can't stand in the same place. He's only little so he can't work this out for himself.

For instance my ds loves restaurants and cinemas but doesn't like being around other people. Just them moving about bakes his noodle.

What are some of the places he wants to go to?

Candy999 · 24/09/2021 21:15

I’d also like to add the days out aren’t pushed on by me. I loathe days out, I’d happily sit at home all day if I could. He asks me for these days out, he wants to go out and do things and I oblige because I hope this time it will make him happy.

I have asked for help off everyone. The school, the GP, I’ve been referred to ss twice and they haven’t even given me a phone call

OP posts:
TableFlowerss · 24/09/2021 21:15

Take no heed of the first few responses. Clearly the posters lack any kind of empathy. It’s ok for them and they’re NT children, so who are they to judge. The ones that have children with disabilities, good for them if they find it straightforward.

You take care and you’re not wrong to feel overwhelmed. Flowers

esloquehay · 24/09/2021 21:15

@pelosi, well I'm not into posting #bekind and, yes, I did feel it necessary to post, otherwise I wouldn't have gone to the effort of posting.

ThePotatoCroquette · 24/09/2021 21:14

If he wants to go to outings make them as short and structured as possible. Make sure that he's not hungry, or tired. And accept that even though he might want to go he might not cope with actually being there once he's there. Try to balance days which are difficult like that (although they might be fine they are difficult as well for him obviously) with days or lower stimulation. School can be very stimulating, so maybe plan a trip for a Sunday morning so he has Saturday to decompress from school, and Sunday afternoon to decompress from the outing. Or Saturday afternoon so Saturday morning to decompress and Sunday to IYSWIM.

pelosi · 24/09/2021 21:14

@EmeraldRaine

Was that necessary

Yep.

Clearly not as it’s been deleted,
poppymaewrite · 24/09/2021 21:13

Could you look at contacting the council for reapite care? He could go into care permanently as a last resort

RahRahRa · 24/09/2021 21:13

My friend has an autistic child who was very challenging at that age. It does get better OP. He’s now such a lovey young man.

Get as much support for him and yourself as you can.

Also, you are pregnant and must be exhausted! Just try to rest and take it easy whenever you can. Maybe look into whether you can get some extra help (holiday club etc) for when the baby comes. Flowers

boymum88 · 24/09/2021 21:12

I'm so sorry for the horrible responses you have had, having a child with sen is fucking hard work, doesn't mean you don't love your child, it sounds like you have been left high and dry by healthcare professionals that should have signposted you to the help that you and your son need. Keep pushing your gp for an urgent referral, or even ring the clinic your self, also speak to the gp to see if you can get support for your self / mental health / carers support. Look at local groups with other parents that can help you learn and navigate a way forward.
Respite care a day/ week could be just what is need so you can recharge and start a fresh and move forward and learn with your son on how to manage day to day life xx

I really hope you find the help and support you need

Pffffft · 24/09/2021 21:12

I don’t want to be another one to say how unreasonable you are but to me it sounds like you are trying to push a ‘normal’ childhood onto your son and sorry but it just won’t happen.

What I think you need to do is spend some time indoors with him and really learn from him what he likes and dislikes, any cues he may give to behaving a certain way and learn to incorporate yourself into his life not him into yours.

Being autistic does mean that they have to have things how they like it, I’m afraid, and if you continue trying to push things onto him you can continue to expect his behaviour to escalate. Just let him guide you and be more relaxed about how you parent him because he is not a ‘normal’ child, he is different and that is ok.

EmeraldRaine · 24/09/2021 21:12

Was that necessary

Yep.

olidora63 · 24/09/2021 21:11

@Marchingredsoldiers

ermm YABU to have another child if you don't don't like the one you do have..

Do you no empathy at all? What a horrible nasty comment to say to a struggling pregnant woman.

To the OP: i have no advice or experience, but I am sure you are doing your best. I hope you get the support you need Flowers

This …cannot imagine what people get out of being so nasty! You sound at the end of your tether .Ask GP or HV about residential schools even if just for respite 💐
Totallydefeated · 24/09/2021 21:11

Mombie2021 perhaps you could extend some of the empathy you feel for OP's child to OP herself? She's clearly really struggling. If you genuinely feel for her child, why not try to help her - and so help him too - instead of kicking her while she's very obviously at rock bottom?

lannistunut · 24/09/2021 21:10

I really understand that this is incredibly hard work and you must be exhausted.

However I did read this I take him on so many trips out and nice experiences and it’s never enough for him and wondered maybe if it is too much for him and life might be easier and less tiring for you all if you just did less?

IWantT0BreakFree · 24/09/2021 21:10

This reply has been deleted

Message deleted by MNHQ as it quotes a deleted post. Here's a link to our Talk guidelines.

pelosi · 24/09/2021 21:09

This reply has been deleted

Message deleted by MNHQ as it quotes a deleted post. Here's a link to our Talk guidelines.

Candy999 · 24/09/2021 21:09

Sorry I can’t reply individually to all replies.

I don’t know if maybe I’ve worded things wrong. When at home my son constantly wants to be out and going to these places as he is constantly demanding it. When I take him to these places and give in to what he wants the whole day will be ruined by him constantly kicking off every 5 minutes. We use ear protectors etc. He is sensory seeking not an avoider.

He is currently in mainstream but on a reduced timetable and has been ever since March last year. I spent 12 months applying for an EHCP to be refused to then have to take them to tribunal and win to then be told mainstream is absolutely fine for him. Clearly it wasn’t and I then had to fight for a specialist placement which has only just been finalised and he won’t be able to start until January as that is when the school opens.

My GP has referred me to social services because he felt I needed some help and also had another agency refer me. So far I have not heard anything from ss.
This behaviour has got worse since the first lockdown, I don’t know wether it’s the expierienxe of this which made his behaviour worse or wether it is just him getting older.

In regards to the second child it was a contraception fail. I’m sure if I posted a AIBU about aborting my child due to autism risk I would have been lynched then as well so I guess it’s a no win situation with half of you people.

I am sorry I’m not as perfect as many as you seem

OP posts:
BooksChocolateAndSleep · 24/09/2021 21:09

Christ some of the replies on here are shocking, the op is clearly massively struggling and dealing with pregnancy hormones do give her a break and some understanding.

Op I'm sorry some people are being so nasty, I can't pretend to understand from a parenting point of view but my friends son has autism and it's hell for her 6 days out of 7. She broke down a few weeks ago after a couple of drinks and said that if she could turn back time she would remain childless 🙁

Sending hugs Thanks

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