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To really strongly dislike my autistic child

286 replies

Candy999 · 24/09/2021 20:42

I am so drained. My DS autistic 6 year old drains every bit of life out of me. No matter what I do for him it is never enough. I can no longer cope with the daily shrieking, screaming, constant outbursts etc. I take him on so many trips out and nice experiences and it’s never enough for him and when we do go it’s just kick off after kick off all the time because everything needs to be his way. When he’s around me all I want to do is lay down and block out the noise and when he’s not here and I have time to do things like household chores etc I just have no motivation to do it as I just want to sit and enjoy the peace.

Currently pregnant with second child and I have no idea how I’m going to cope. My biggest fear is I’m going to go through all of this again with another child. I try so hard to show him love and affection and get nothing back. Yes he’ll ask for cuddles etc but it’s very brief and only because he wants something.

If SS came up to me tomorrow and said someone else would parent him I would happily agree to it. I’m at breaking point.
I contacted my gp a few weeks ago to enquire about some kind of medication for him and we have been referred to the paediatrician but not heard anything back. I just can’t bear it anymore. I love my child more than anything but to be frank theirs times I can’t stand the sight of him.
I want to try and get him into a residential school as feel it would be best all round but I have no idea how to go about this.
I know it’s not his fault but I just feel like why did I have to be the person to be dealt such a crappy life!

OP posts:
gofg · 24/09/2021 21:36

Once again the MN bitches are out in force. If you can't give advice in a non judgmental and kind way maybe just keep your nasty comments to yourself. OP I feel for you, and YANBU - it sounds like hell. I'm so sorry you've been subjected to some of these posts - it's the last thing you need. I have no advice, just wanted to offer some support. Flowers

Pffffft · 24/09/2021 21:36

I’m sorry you feel completely helpless and that nobody is helping you. Please though, don’t have a breakdown. As much as it is hard your little boy does need you and you’ve come this far…

I still stand by my comment about learning his behaviours and triggers. I really think you need to learn about him. I really don’t think anybody can learn about autism from a book when it is so varied and complicated.

Stay strong and take a breathe. If you get 5 minutes alone then take those 5 minutes alone, who cares about the housework? If you think your mental health can do with a break then that’s fine.

Please though, don’t hate him. He is only a child who is just as confused as you are. It really isn’t his fault he perceives the world in such a different way to others. Be more open to things going wrong because then you won’t feel let down.

HSHorror · 24/09/2021 21:35

Op i tried to tell the schoolnurses my dc likely had adhd. On the school form to complete - ignored. I then tried to speak i n person when they came to measure the kids - i had asked for a chat as you are asked to do if you have issues. Anyway they were beyond useless just gave me some printouts. (Bearing in mind the dc in q had come in and crawled under the table at 5yo. )

I do find it awful there is no support really with SEN.

I have to say though if i had realised dc2 would be as difficult - in a slightly different way then i wouldnt have had 2.

ASDmum2 · 24/09/2021 21:35

[flowers]@Candy999
Can you keep on at your GPs for help? Can you pay for any additional help at home, to help with DS? You haven't mentioned the father, or a partner, are they involved with parenting at all? Do you have anyone in your life who could relieve you and give you a little break?

WTF475878237NC · 24/09/2021 21:30

Just wanted to say I really feel for you. It sounds absolutely awful and exhausting. I really hope you can get some support.

Candy999 · 24/09/2021 21:30

Thank you for posts regarding courses. I already work in an environment dealing with similar behaviour and have qualifications in everything regarding this e.g behaviour that challenges, understanding conditions such as autism etc. It’s just harder to apply it to a person where you don’t understand at all what they want xx

OP posts:
Getyourownback · 24/09/2021 21:29

@Mombie2021

I have an autistic child, I’ve spent 10 years in her shoes, thanks.
Then you should be very ashamed for your comments. My god.
Sadmum23 · 24/09/2021 21:29

You are one strong, brave woman posting a comment that many have probably felt but dare not admit.
I am mother to an autistic daughter and granddaughter more than likely grandson as well.

Love them to bits as does my daughter , but there are days when you cannot get it right no matter how hard you try and you do try.
The days seem endless and the nights so short (that is if they let you sleep )
It does get better l despaired when my daughter was a teenage but she is now a remarkable, caring mother herself with infinite patience , far more than l ever had.

Have you contact National Autistic Society, they have local groups, which have loads of support and information.

It is a long lonely path but you need to be persistent with asking for help, doctors, school, local early years service ,.
We had loads of nonsense when we first started to seek support with my granddaughter but persisted until we got referred and got some actual support.
I do wish you well and hope you find some peace.

LynetteScavo · 24/09/2021 21:29

@ClaraMumsnet

Hi all, just a reminder that someone posting in AIBU doesn't mean it's a free-for-all on the OP. We're here to make parents' lives easier - please bear that in mind when responding.
Apparently it does, and has done so for years.

I'm
Still licking my wounds from
Posting in AUBU 14years ago.

If you don't want the OP to be given a hard time, then move the thread out of AIBU.

And as the DM of an adult in the autistic spectrum, I would advise against attempting fun trips out. Especially when pregnant.

I'd also point out it's funny how if your child is overwhelmed easily, one of their parents probably is also overwhelmed more easily than others. It's taken me years to realise this myself, and I hope I'm saying it kindly.

Candy999 · 24/09/2021 21:28

Thank you to all the nice comments, I haven’t responded to all but I have read them all and I do appreciate them.

If someone turned around and said I would have to do this, this and this and it would make him the happiest child in the world then I would. But I have no knowledge on what will make him happy and make the behaviour lessen. Sometimes I just feel like with school, gp etc does it take me to have a mental breakdown for anyone to wake up and realise that I need help because at the moment none of them are listening.

OP posts:
HSHorror · 24/09/2021 21:26

Op i hope things get easier.
I do know what you mean parenting is exhausting and when they are melting down constantly.

toolazytothinkofausername · 24/09/2021 21:26

No judgement.

Please contact this charity, and seek help in your area where ever that maybe.

www.add-vance.org

01727 833963 (MON - FRI 9AM - 1PM)

I went on an Understanding Autism course, and it really helped to understand my child and some of their thought processes.

Nomoreporridge · 24/09/2021 21:25

@Candy999

I’d also like to add the days out aren’t pushed on by me. I loathe days out, I’d happily sit at home all day if I could. He asks me for these days out, he wants to go out and do things and I oblige because I hope this time it will make him happy.

I have asked for help off everyone. The school, the GP, I’ve been referred to ss twice and they haven’t even given me a phone call

It sounds really tough. I totally understand how you’re feeling.

I can’t offer any advice on getting help for your son, but it sounds to me like you need a break and some support yourself. Have you considered counselling? It may help to speak to someone who understands how you’re feeling and can help you cope with what is a really difficult situation.

Sending you Flowers

Cheesepuff1 · 24/09/2021 21:24

@secular39 yes I do, which is why I have decided to concentrate on her and my own sanity and not bring even more pressure onto myself by having additional children. if I had loved parenting her and thought I could cope with a second child then I would have had a second. but to have another when you're already not coping doesn't seem fair on either child

user7012893145776 · 24/09/2021 21:22

I think some posters are being very harsh op.

I think you're doing your best. Having a child on the spectrum is hard. Really hard.

Have you prepared your child for the new baby? So they know to expect crying? Your attention will be on the baby for a long time?

Do you allow screen time? What are his interests? If he likes the iPad/Xbox, just allow it.

Days out can be so tricky and a lot of the time, overwhelming. does he have ear defenders and something that comforts him? My ds likes soft things so we always have a soft toy and ear defenders on hand. Any behaviour that's showing he's distressed and we find a quiet corner to sit so he can calm himself down.

Lots of kids on the spectrum do not like cuddles or much affection but when they do, it's because they're secure and feel safe and feel happy. Emotions can be difficult for them to understand.

Where is your child's dad? Does he see him?

Does have access to special needs clubs? Google some in your area. They can be a godsend. Are you on any parenting forums for kids on the spectrum?

Shybutnotretiring · 24/09/2021 21:21

When my autistic children were that age I got through it by fantasising that I was only fostering them. They're better now (13 and 11). Still demanding though. The specialist placement should definitely help.

Moneysavvymam · 24/09/2021 21:20

@Mombie2021

Cuddles etc are also not something some autistic children like. He doesn’t owe you affection.

YABVU for that.

kick a mother while she is down. Its absolutely reasonable to be upset that her child doesn't cuddle her when thats the default. Especially if as she says its only when the child wants something. People need physical relationships and that includes cuddling their children. No the child doesn't owe anyone anything but she's allowed to be upset about it and vent to strangers on the Internet. Thats harmless and helpful. what isn't helpful is the 3 nasty people commenting straight away
esloquehay · 24/09/2021 21:20

^^in response to @pelosi 😇

Bookishnerd · 24/09/2021 21:20

Hey OP

Just here to say chin up, and I hope you get the support you need.

My DS is neurotypical and during my lowest points in lockdown, when everything was very difficult, I felt how you feel now.

I don't have any advice or experience of what you are describing, I just know that parenting is hard and we should all try to give each other a break.

I'm fascinated, and a little scared, at how judge-y and angry you all are.

It's really offputting

Good luck OP

esloquehay · 24/09/2021 21:19

Yes, I'm sure Mumsnetters can sleep more easily, as my profane comment has been removed. 😎✌️

Bythehairywartsonmywitchychin · 24/09/2021 21:18

@Mombie2021

I have an autistic child, I’ve spent 10 years in her shoes, thanks.
If that’s true, you’d have more fucking empathy!

OP ignore this persons shit comments. My DD has ASD/ADHD and I can relate to what you are saying Flowers

Xtraincome · 24/09/2021 21:18

It sounds very hard OP.
I think maybe you might need to talk to someone to help you support your DS. It seems like there isn't structure or a thorough understanding of his needs. This isn't your fault, but it needs to be rectified. Although it may be sad, your child clearly does not like or enjoy days out. Don't force them and find other things you can bond over.
Reach out to family for help and support.
Good luck.

milveycrohn · 24/09/2021 21:18

I know someone with a severely autistic child, and from the age of 6 she was able to get respite care. This is actually around 2 or 3 nights a month, so not a huge amount, but it gives her a chance to recharge.
The child also attends a special school, so not in mainstream at all.
I would also suggest you try to find either a local support group for parents of autistic children, or something on-line, which may be able to direct you (Better than I) how to access any support services going.

ThatsNotMyReindeer · 24/09/2021 21:18

I can really recommend the book "how to raise a happy autistic child ". Also seek out your local autism support group. Theres something wonderful about discussing such things with other ASC/SEN parents who just get it

AllTheUsernamesAreAlreadyTaken · 24/09/2021 21:18

Your situation sounds unbelievably difficult.
I hope you get some decent advice.
There are a number of really disgusting comments on here. I can barely believe people would write like that to a woman who is clearly struggling and crying out for help.
Shame on you all.

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