Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

To really strongly dislike my autistic child

286 replies

Candy999 · 24/09/2021 20:42

I am so drained. My DS autistic 6 year old drains every bit of life out of me. No matter what I do for him it is never enough. I can no longer cope with the daily shrieking, screaming, constant outbursts etc. I take him on so many trips out and nice experiences and it’s never enough for him and when we do go it’s just kick off after kick off all the time because everything needs to be his way. When he’s around me all I want to do is lay down and block out the noise and when he’s not here and I have time to do things like household chores etc I just have no motivation to do it as I just want to sit and enjoy the peace.

Currently pregnant with second child and I have no idea how I’m going to cope. My biggest fear is I’m going to go through all of this again with another child. I try so hard to show him love and affection and get nothing back. Yes he’ll ask for cuddles etc but it’s very brief and only because he wants something.

If SS came up to me tomorrow and said someone else would parent him I would happily agree to it. I’m at breaking point.
I contacted my gp a few weeks ago to enquire about some kind of medication for him and we have been referred to the paediatrician but not heard anything back. I just can’t bear it anymore. I love my child more than anything but to be frank theirs times I can’t stand the sight of him.
I want to try and get him into a residential school as feel it would be best all round but I have no idea how to go about this.
I know it’s not his fault but I just feel like why did I have to be the person to be dealt such a crappy life!

OP posts:
Embracelife · 25/09/2021 20:36

@VestaTilley

It sounds very hard. You need support and help.

What do his current school do? Is he at a special school?

You urgently need to contact Social Services and CAMHS. They won’t take your child away, but they will help you; they’ll put you in touch with support agencies and help if you ask for respite care.

Do you have any family to help you so you can get a break?

Let his school know you’re struggling and ask if they know of any orgs who offer support. Also contact the national autism charities - they may have helplines and regional support groups for parents of autistic children.

Social services children with disabilities team. Even if you want them to take him away it s unlikely Unless he at risk from you or his dad But tell them you at breaking point and need respite care urgently But do talk to other parents and ask what can be accessed. As well as look jnto boarding schools catering to his needs. And be willing to hand him into others' care.
moveblues · 25/09/2021 20:31

Sounds really bloody hard. You could look into ABA therapies.
But hard. Good that you can be honest with yourself about how it feels...

VestaTilley · 25/09/2021 20:17

It sounds very hard. You need support and help.

What do his current school do? Is he at a special school?

You urgently need to contact Social Services and CAMHS. They won’t take your child away, but they will help you; they’ll put you in touch with support agencies and help if you ask for respite care.

Do you have any family to help you so you can get a break?

Let his school know you’re struggling and ask if they know of any orgs who offer support. Also contact the national autism charities - they may have helplines and regional support groups for parents of autistic children.

NantesElephant · 25/09/2021 20:09

Some people are awful, so sorry OP. I don’t have practical advice but sending Brew and Flowers Take care of yourself.

bozzabollix · 25/09/2021 19:57

I haven’t read all of the messages apart from the cruel first ones. Parenting is hard enough without autism in the mix, let alone with it, plus you’re pregnant, no doubt tired and anxious about coping with two. My heart goes out to you. We all have days where we feel absolutely like we can’t cope - I honestly don’t know how people aren’t admitting that and are condemning you.

So YANBU, but help is needed, both from family, friends and official sources. Really hope you get the support you need.

Cherryberrybonbon · 25/09/2021 19:44

All I can say is be thankful your child’s behaviour is down to his autism and not just down to him been a pain in the arse like many kids including mine! Don’t listen to the lovely keyboard warriors on here, YANBU autism is draining, especially if it’s all on you with not much support? Keep on at your GP, school nurse, school mentors, anyone that can get assistance in place.
Lots of my friends children are on the spectrum, all in mainstream schools and it’s very difficult!
Try and relax, have a glass of wine (large) and try and have an hour or two to get your head together, all mums have been there

santabetterwashhishands · 25/09/2021 19:37

I've been in your shoes 17 years .
My advice is go on parenting asd courses and learn how he ticks,why he does the things he does and try engage.
You need support but remember he's only a child and will sense your attitude whether you hide it or not 🤷‍♀️.

DaisyDreaming · 25/09/2021 19:27

I’m sorry i haven’t read all the thread, I read your message and then the first page of replies.

I just wanted to say you’re not a bad mum for feeling this way. Every child with asd is different or goes through different periods. I’m sure there are a lot of people who have felt exactly the same way you do and are just too scared to admit it out loud.

I would try contacting social services, don’t get your hopes up too much as respite is hard to get but try fighting for help. Another fight you don’t have the energy for but having a respite worker or PA who can give you a break from time to time could really help.

One thing reading your post made me think, you take him on lots of nice outings which is fantastic for some kids. Have you ever tried staying in or staying in except for a short walk/ride/park trip just to see if his behaviour improves as he isn’t as over whelmed? It might work, it might not but it will give a clue as to what works better for him

toolazytothinkofausername · 25/09/2021 19:14

Most Mumsnetters on this thread need to remember every person with Autism is different. I have 2 boys with Autism and they are chalk and cheese. 1 loves going out for adventures, whereas the other child prefers to stay at home.

Candy999, my final piece of advice is to find a local support group for parents with children with Autism and drink many cups of coffee together. I am sure they too are going through difficulties, and you may feel less alone.

Mymapuddlington · 25/09/2021 18:46

Your ds sounds like me.

When I was a child I ‘wanted’ to go places, do things, I cried about it and my poor mother would take me only for me to scream, hide under the table or become aggressive.

Some children ‘mask’ they literally copy social norms because they know that’s what is expected. So if Jenny and Joe at school like the park, so do I. If Susan is excited about the school disco, me too!

I also have an autistic son who at that age was a fucking nightmare.

My advice as an autistic child would be to not give in to his demands to go places. What does he genuinely enjoy? What makes him calm? Could you set up a sensory tuff tray with playdoh or have some canvas and paints ready for when he gets home. Or even his favourite film and some snacks. Give him that chance to defuse, calm down and adjust. Understand that he might not know what he wants and is potentially trying to fit in.

As an autism mum, take deep breaths, plenty of breaks. It doesn’t matter if he’s in bed with the iPad while you watch Netflix with headphones in. It doesn’t matter if you shove mac and cheese in the microwave for him or if the hoovering isn’t done.

I rang social services when my son just turned 7 because I couldn’t cope, I had a complete breakdown. He’s 11 now and I’m so thankful that we got through it, it’s not easy but parenting in a way that supports him (look up pda parenting and 123 magic) has helped massively. I’m pregnant with my second and whatever happens we will get through it. I’m always happy to chat Flowers

MereDintofPandiculation · 25/09/2021 18:38

@Candy999 Have jsut read all your posts. Well done for standing your ground in the face of all those telling .you're "doing it all wrong". I'd have just crawled .into a hole

NotPersephone · 25/09/2021 18:38

This reply has been withdrawn

Message from MNHQ: This post has been withdrawn

Nomoreporridge · 25/09/2021 18:37

Well said, @Getyourownback.

Was truly shocked at the responses on this thread last night. Jaw dropping.

Embracelife · 25/09/2021 18:15

My ds started overnight respite care age 10

Sorry I meant age ten years he dud 24 hpur residential respite at an NAS school it was great built up to week long .
Now in supported living.
But you do have to ask
They won't come and take him away unless he is at risk from harm
But ask for respite
You can get residential school and or respite through the channels without having to harm him
It isn't easy but it is possible. Those schools are full of pupils.

Embracelife · 25/09/2021 18:12

Keep calling the children with disabilities services team.
Get assessment and say what you want. Ask fir full time residential... you may tgen get in home respite to start. Ask for 10o%more than what you think you need dont be shy. Asking for full time residential may be the best for your dc.
Speak to local parent partnership. They can support you in applying and building your case.

A good residential setting may be beneficial to your dc
Visit some if you can .
Don't know where you are but ask NAS
Look at priors Court and others

SaddenedByItAll · 25/09/2021 18:07

I saw a woman at Harry Potter World with an obviously SEN/MH troubled son
She looked broken, truly broken

I think that a lot of people feel the same way as you OP just that you had the strength and courage to say how it is
Nobody thought their life would end up like this and nobody dreamt with the excitement of pregnancy that their life would change forever and being honest, for the worst.

Reach out OP and take everything you can get your hands on, be that financial support, emotional support or whatever

Embracelife · 25/09/2021 18:07

Have you had assessment with ss children with disabilities team?
HVe you looked into residential schools available I e is there an options nearby?
Can you ask ss for shared care /Foster care or emergency placement ?
Does the child s father agree?

My ds started overnight respite care age 20 bug it is possible before. Have you asked SS for this? They don't just come and offer...you have to ask.
For residential school identify potential schools then ask and put things in motion . Ask NAS,for a list?
24 hour curriculum may be very suitable fir your dc.

carsonsmummy14 · 25/09/2021 18:02

@Candy999

I am so drained. My DS autistic 6 year old drains every bit of life out of me. No matter what I do for him it is never enough. I can no longer cope with the daily shrieking, screaming, constant outbursts etc. I take him on so many trips out and nice experiences and it’s never enough for him and when we do go it’s just kick off after kick off all the time because everything needs to be his way. When he’s around me all I want to do is lay down and block out the noise and when he’s not here and I have time to do things like household chores etc I just have no motivation to do it as I just want to sit and enjoy the peace.

Currently pregnant with second child and I have no idea how I’m going to cope. My biggest fear is I’m going to go through all of this again with another child. I try so hard to show him love and affection and get nothing back. Yes he’ll ask for cuddles etc but it’s very brief and only because he wants something.

If SS came up to me tomorrow and said someone else would parent him I would happily agree to it. I’m at breaking point.
I contacted my gp a few weeks ago to enquire about some kind of medication for him and we have been referred to the paediatrician but not heard anything back. I just can’t bear it anymore. I love my child more than anything but to be frank theirs times I can’t stand the sight of him.
I want to try and get him into a residential school as feel it would be best all round but I have no idea how to go about this.
I know it’s not his fault but I just feel like why did I have to be the person to be dealt such a crappy life!

My 7 year old is exactly the same. Hes been diagnosed since 2yo and is still under paediatrician so you should be too. Bypass the gp they dont actually give a sh*t because they don't understand. Call your Paed's secretary direct.

Secondly, refer yourself to SS. We did and it was the best thing we ever did. We now have a social worker and get respite for 2 hours every week. Not only do we get some breathing space but we get to spend time with our 13yo who is so often overlooked due to the sheer efforts involved.

Thirdly, I made the decision to have an abortion almost 2 years ago because I knew full well I couldn't cope if I had another child as challenging as my 7yo. My DH also got the snip. We both agreed it wouldn't be fair on us, our eldest, our 7yo or indeed a new addition. As devastating a decision it was, we just had to do it.

I admire you for plowing through with another pregnancy, something we were simply too afraid/weak/scared to do. Give yourself some credit. You're doing so well. From one autistim parent to another, you know that means something!

Finally, access camhs and continence clinic if required (self harm, sensory issues leading to potential harm, any smearing, incontinence etc). Does your DC speak?mine has very limited understanding and is non verbal but the best course we did was More Than Words through SALT. See if you can get onto that and you will find some fantastic tips in realising trigger points etc.

Good luck. You've got this!! I know it's hard really fucking hard, but you don't dislike your DC - you dislike what autism does to him sometimes. And that's OK. Xx

evilharpy · 25/09/2021 17:41

Flowers I'm not in your situation OP but I have close family and friends who are, I've seen how relentless it is. Just wanted to send some support and I really hope you are able to get some help that makes a difference for you all.

Trying2310 · 25/09/2021 17:18

You have had some vile and sanctimonious comments on here but some very empathetic and supportive ones. Focus on these only. Parenting a child with additional needs is tough and stressful. I feel the same as you on many days but that does not mean I do not love my son and I will fight every step of the way to get his needs met. However, this was not the life I envisioned and I have to process that daily. You need support and not judgement. Try to access all support available and call on family and friends so you can practise some self care in order that you are in prime position to meet your sons needs. You are not alone.

MagratGarlikInDisguise · 25/09/2021 17:01

Hugs, op. It can be hard but your DS is still your DS. When mine is kicking off, I try to remember that his behaviour is communication, and that he is a child and I am an adult. It helps me remember to be compassionate. We do the same things every weekend and it helps. He sets up our routines. It all helps him feel in control of a world that he experiences so differently to other people. Day trips our, when we do them, are planned and we manage him very closely to avoid over stimulation and meltdown etc. Its a different sort of lifestyle but he is the funniest, cleverest guy when it's on his terms. What are your DS' special interests? What dies he enjoy? What sensory release does he need? Kinetic sand and the trampoline go down well here!

Griselda1 · 25/09/2021 16:24

Grab all the help you can from wherever you can get it. Hopefully medication will help.
I think you're so brave to acknowledge your feelings towards him, regardless of how negatively you feel towards him.

Phineyj · 25/09/2021 16:00

Hi OP, Flowers it is really tough. We have an 8 year old with ADHD, ASD/PDA. We were at rock bottom in lockdown and particularly from ages 5-7. She was regularly violent to us and couldn't go to sleep.

Things that helped:

Accepting our lives will be different to others;
Avoiding or discounting advice from well meaning relatives and friends who haven't been there;
Visiting the same places a lot, doing the same activities;
Avoiding activities that come in a course or where you lose money if you can't go -- so English Heritage yes, extra curricular clubs, no;
Finding a school that was genuinely inclusive (that was more luck than anything -- we picked it 4 years before she was diagnosed, and because it had wraparound...which she mostly hated!)
Reading as much as possible - The Explosive Child is good;
Finding other similar parents through a Facebook page for PDA;
Private diagnosis from a paediatrician and SALT;
Play therapy (tried psychologist but was disaster as she masks);
Sport coach type role models - she relates really well to 20 something men one to one -- we hired my friend's grown up son as after school babysitter and my own personal trainer did PE for her...well she trained him mostly Grin;
Lots and lots of physical exercise;
Melatonin for sleep problems;
Not sweating it on restricted eating;
Encouraging play with younger DC (similar maturity);
Lockable spaces in house to put tech etc or us when she had it in for one of us;
NVR training for us -- this was the most useful thing and she is hardly violent at all now.

I am sorry to say that this has cost thousands and the school is private. State help is woeful in the UK (although to be fair, when we were referred to SS at one point, they were kind, prompt and helpful).
She doesn't have an ECHP because we have chosen essentially to pay for help as needed instead.

Maybe we'll get one though as worrying about secondary now.

I hope there is an idea or two in there for you.

MakingM · 25/09/2021 15:56

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk guidelines.

CheeseCakeSunflowers · 25/09/2021 15:49

I too had times I felt as you do with my DS, now an adult. This charity helped me www.actionforaspergers.org/ I recommend contacting them, they are there for anyone affected by autism, the person themselves, families and partners. Consultations can be done virtually as well as face to face.

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is closed and is no longer accepting replies. Click here to start a new thread.