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Share your dilemmas and get honest opinions from other Mumsnetters.

To ask about gabapentin and nerve pain/sciatica success stories?

433 replies

SpamChaudFroid · 24/05/2019 07:10

After nearly 3 months of sciatic pain, (it's bad, I need a stick to be able to walk, well shuffle really) and many different drugs, (codiene, amitriptyline, diazepam) my GP has prescribed gabapentin. I am seeing a physio who has made an appointment for a second opinion as to whether it needs further invstigation, (eg. steroid injections or material removed).

Has this worked for anyone? please someone tell me it works

OP posts:
PookieDo · 24/05/2019 09:21

It didn’t help the only thing that worked was the spinal injection
My disc was ruptured and physio drugs etc did nothing to help. I was on crutches like you

Tigger365 · 24/05/2019 09:19

I’ve been on it since I was 14 for trigeminal neuralgia. I’ve just switched to pregabalin because it seems to work better for other conditions, and you can’t have both together 🙄
I’ve also taken it with tegretol and an array of other opioids but hand on heart, gabapentin allowed me to live my life (mostly) for the last 16 years.

I will reiterate PP with side effects, it can have some strange ones lol

IHateUncleJamie · 24/05/2019 09:18

Pregabalin (Lyrica) worked better for me than Gabapentin which I was on for 5 years. I just felt like a zombie on Gabapentin and it wasn’t as effective for the pain as I’d hoped.

Had to stop Lyrica because it gave me chest pains but it was very good - I took it during the day with Amitryptiline at night and that was a good combo.

If Gabapentin makes you feel too dopey then ask to try Pregabalin.

TENS and Pilates really help, as does a decent Physio.

GruciusMalfoy · 24/05/2019 09:10

I haven't had it, as I've only had short (few weeks) spells of sciatica, but I truly hope it works for you. I don't think people understand the pain until they've gone through an acute bout of it.

Diazepam and cocodamol were less than useless for me in the latest episode. Naproxen only slightly better. I'm waiting to see physio now, and praying it doesn't return soon.

JellyBabiesSaveLives · 24/05/2019 09:07

I’m on 1200g a day (herniated disc pressing on spinal cord). It deals with the pain. I still get pins and needles and my leg goes cold at random moments. Increasing the dose does stop this but also sends me loopy (mind racing, like I’ve had waaay too much caffeine!).

Not sure if I get side effects. I have brain fog and tiredness but I’m 47 so not necessarily gonna blame the gabapentin!

I was like a zombie for about 2 weeks when I started it. But I was so happy not to be in pain, and then the zombie-ness wore off.

Pringlemunchers · 24/05/2019 09:06

A word of warning it made my vision blurry. I took and about an hour later I couldn't see !!! It can be one of the side effects.

ineedtostopbeingsolazy · 24/05/2019 08:41

I was on gabapentin when I had sciatica. Nothing touched it and I could hardly walk for 6 months.
It took away the huge 'electric current' that ran down my leg from my hip but it didn't take the pain away.
I was on 1200 I think. As well as tramadol, diazepam and naproxen.

I didn't like the side effects I was totally spaced out and had terrible mood swings and rages.
Luckily the sciatica eased on its own

SpamChaudFroid · 24/05/2019 08:39

I'm noting down all the other drugs mentioned, just in case. Didn't think to ask for Naproxen. Isn't that very similar to ibuprofen though?

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SnowyAlpsandPeaks · 24/05/2019 08:37

Sorry! No I’m not on 1800mg, I’m on 2700mg daily. I apologies it’s first thing in the morning my mathematical brain hasn’t woken! (I’ll blame the Gabapentin!)

SnowyAlpsandPeaks · 24/05/2019 08:35

I should say it doesn’t take away all the pain, and the silliest smallest movement, can having me sobbing. But compared to lying on the floor crying my eyes out, with my partner and children just watching as they can’t do anything- it’s a massive difference! I’ve had my 4th round of injections this year too, plus I’m on MST, oramorph, amitrptline and zapain.

SpamChaudFroid · 24/05/2019 08:33

Is that still a fairly low dose though littlewhitething? Won't your GP increase it if you're still in agony? You shouldn't have to live in agony!

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TwoBlueFish · 24/05/2019 08:33

My cocktail when I had sciatica (herniated disc) was gabapentin, naprixen and cymbalta. I had to take the maximum dose of gabapentin but it did help. I eventually had surgery to repair my disc after I stopped being able to wee and couldn’t even sit. I have permanent nerve damage in my leg but the pain went away as soon as I had surgery.

SnowyAlpsandPeaks · 24/05/2019 08:31

I take 900mg 3x a day, 1800mg In total and have been for 8 years. Does wonders for me and can’t rate it enough. Good luck X

littlewhitething · 24/05/2019 08:27

I take 600mg pregabalin for sciatica. Leaves me still in agony but not sobbing out loud on the bus

SpamChaudFroid · 24/05/2019 08:27

Tegretol - I'll make a note of that just in case the gabapentin doesn't work.

It's funny - It doesn't hurt if I keep still, ie. sitting or lying down. It starts hurting after about 10 paces, then it feels like I've been stabbed in the buttock and kicked by a horse on the outside of my knee. Then everything starts to spasm and cramp.

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Stopyourhavering64 · 24/05/2019 08:26

I've been on it nearly 2 years...I have peripheral neuropathy caused by an autoimmune disease called vasculitis, which has attacked the blood supply of my nerves
I was in agony before now the pain is tolerable, but still have some days when tingling is worse...especially when I've been standing or walking too long
I now only take 300mg at night but was on 3600mg day at my worst
It did make me feel a bit spaced out and drowsy when I first started it, so make sure you follow the guidelines for increasing dose slowly

ChicCroissant · 24/05/2019 08:21

As a PP mentioned, I was also on it for Trigeminal Neuralgia along with amitriptyline and tegretol (all at the same time!). It worked well for me.

SpamChaudFroid · 24/05/2019 08:17

This is most cheering to read!

I'm on a tiny starting dose of 100mg at night for 3 days, increasing from there.

User, I already use CBD. Been great for my meno symptoms but doesn't do a lot for pain for me.

I do intend to strengthen my core muscles once I'm able to move to try to prevent this from happening again.

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mebeforeyou · 24/05/2019 08:12

I’ve had sciatica for about 14 years due to prolapsed disc (now healed but left with some residue pain at times) and these days it’s easily under control as long as I don’t do high-impact exercise or lots of bending in the garden etc.

I’ve had 3 steroid injections, an operation (IDET), years of physio, Pilates, stretching exercises, but no drugs other than ibuprofen or co-codamol. Reason for this is no GP or consultant would give me anything, preferring to recommend the other strategies listed - I guess it’s different these days.

I have been prescribed gapabentin for nerve pain in my arm but I have refused to take it as it can interfere with tinnitus, however my late MIL had it for nerve pain and it worked wonders for her.

If you are walking with a stick then it’s definitely time for further investigations such as an MRI and not just rely on drugs to relieve pain.

SinisterBumFacedCat · 24/05/2019 08:10

So far it’s working for me 2 years in, although i’ve Had to increase the dose slightly, am now on 1200mg a day. It’s for facial pain (constant nerve toothache). I still get flare ups but it has made a significant difference, if I miss a dose I notice it. And no side effects.

Proseccoinamug · 24/05/2019 08:06

She was dopey at first but that eased. She can drive on it now.

Proseccoinamug · 24/05/2019 08:05

My friend had had all the drugs you mention before gabapentin was prescribed.
She’d had tramadol too.
She felt a difference within a few days and steady improvement as she increased it. She still has pain but it is manageable. Before she was prescribed gabapentin, she was crying tears of pain when she tried to move and crying out as she shuffled around holding onto the walls for support. She’s been able to walk around town now.

ImperfectTents · 24/05/2019 08:03

Pregabelin was a life saver for me. I still had pain but it wasn't was horrific and I could move and start doing Pilates. I currently have no nerve pain

Birdie6 · 24/05/2019 08:02

It's wonderful for my sciatic pain ! I was almost immobile when I first got the pain, had to buy a walking frame to get around the house, it was terrible. Gabapentin cured it in a couple of days, I couldn't beleive how good it was. I'd highly recommend it.

Fairylea · 24/05/2019 08:02

I used it for shoulder pain and pain after shingles and it was amazing. The only thing that’s worked for me.