Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask about gabapentin and nerve pain/sciatica success stories?

433 replies

SpamChaudFroid · 24/05/2019 07:10

After nearly 3 months of sciatic pain, (it's bad, I need a stick to be able to walk, well shuffle really) and many different drugs, (codiene, amitriptyline, diazepam) my GP has prescribed gabapentin. I am seeing a physio who has made an appointment for a second opinion as to whether it needs further invstigation, (eg. steroid injections or material removed).

Has this worked for anyone? please someone tell me it works

OP posts:
PookieDo · 31/05/2019 13:03

The discs don’t really slip, they bulge or herniate or are compressed

A bulge is usually when you start to get some symptoms as it’s irritating a nerve and your body over reacts to try to protect the area, your muscles all go into a high alert and the nerve can also behave disruptedly also causing muscles to do weird and painful things. A bulge probably wouldn’t get treated with surgery as as long as it doesn’t rupture it can heal itself over time. I had a bulge that healed although it was a good 3 months

If it has herniated then it either heals on its own a lot longer but can take a few months or you need intervention with it like an injection or surgery. Herniating can cause the fluid to leak out and it can cause extreme pain and be debilitating. The steroid injection accelerates the fluid being reabsorbed/dissipating and aids healing (we steroids do) it also has anaesthetic in it (wonderful) and they use a CT scanner to inject it directly in the affected area with a long needle

My 2nd time it had leaked out all onto my nerve area in L4/5 (I don’t have the MRI pic but it was so clearly just a white splurge with no definition) It had been bulging and giving me pain but the point where it leaked was so much more defined and obvious because it wasn’t just painful and stiff, my leg wouldn’t actually work properly. It twitched and jerked, was completely numb all my toes and calf and the burning sensation was unbearable. My whole leg would suddenly cramp up and I couldn’t move to get it out. I couldn’t lift it independently at all on examination. The pirifomis seemed to turn into a rock because it ended up over manipulated (by me and physio trying to get the spasm out) so it was just completely hard and made everything worse. It took months to get it all back to a better state but I can’t balance on that leg ever, it’s so weak and has permanent nerve damage with some numb patches and still is prone to cramps

I never had any back pain!

BogstandardBelle · 31/05/2019 09:45

As for what triggered it... I have a dodgy back anyway (scoliosis, si dysfunction), am a bit overweight and don’t do enough core strengthening exercises - but the real trigger was stepping off a pavement and thinking that the road was a lot closer than it was. I really jarred down on my left leg and think I’ve caused the disc to either herniate further, or start a new one.

BogstandardBelle · 31/05/2019 09:32

Just tagging on... been having the most awful sciatica / disc flare up since Sunday. Only on naproxen, décontractyl, and paracetamol atm. I have a rheumatology appointment in 10 days, but need to survive till then.

What are your flare-up first aid tips? I’ve been resting a lot (on back, knees up and on front over the end of the bed), ice every few hours, warm baths and the drugs.

SpamChaudFroid · 31/05/2019 09:09

Eggbert, I'm no expert, but you probably have sciatica and muscles cramping as well? Like Pookie says, they do it to protect the injury. The piriformus muscle, although tiny, is probably the little fucker responsible because the sciatic nerve passes through it. So any time the piriformus goes into spasm, the nerve gets irritated and sends out its pain signals. So kind of like a vicious cycle, before I was given the stick, my back and leg would start the crazy cramping if I just thought about walking on it. I do hope the diazepam will be helpful for breaking that cycle for you. It must be utterly awful for you to be in pain like this with a tiny baby, I hope you have a partner who's really pulling their weight. Do try a TENS machine, it feels like you're having the sore spot massaged.

Am taking puppy to get his hair and nails done today - his nails are getting a bit Freddy Kreuger-ish because he's not getting as many walks as usual, and bathing him myself would be bloody stupid, (and I suspect one of the things that contributed to the disastrous state of my back).

Just had a thought - has anyone tried kratom for their back? I saw it mentioned on a few back pain sites, that it worked when nothing else did. Well I sent off for some and I can safely say it wasn't any help for me at all. It's a relative of the coffee plant. And I am going to order some DLPA today, it's an amino acid supplement that does a similar job to gabapentin/pregablin, but in a more natural way.

OP posts:
Theghosttrain · 31/05/2019 08:58

Madness! Sometimes I think the NHS take the short view - surely it makes more sense to operate on people than spend 10's of years in doling out medication, physio, doctor's appointments.

Not really, because it isn't just about money. Many back issues will resolve given time. Any surgery involves risk, from both the surgery itself and from the anaesthetic, however small. Also the outcome isn't always what the patient is expecting/hoping for. I had surgery for a prolapsed disc which was causing severe cord compression (so no choice whether or not to go ahead). Almost 20 years later, although the risk of paralysis has long gone, I still have daily pain - which I was warned was likely - and the discs either side are degenerating due to the increased wear and tear.

There's a place for surgery, but it isn't always the answer.

SpamChaudFroid · 31/05/2019 08:41

PookieDo, the pain when I'm walking is now concentrated at the outside of my thigh and side of knee, feels just like cramp. The stick helps with the back pain (I think) so makes walking possible. I really can walk only about 20 steps without it. I still have to stop every 5 mins for a "rest". The pain's still causing me to sweat/shake when walking.

OP posts:
EggbertHeartsTina · 31/05/2019 00:49

That asterisk should say Pookie

EggbertHeartsTina · 31/05/2019 00:48

I am week 4 of agonising sciatica and sounds very similar to yours Spam. Mainly the walking 10 metres then being in agonising pain - down back of my thigh. I’m wondering if this is sciatic nerve pain or perhaps muscles spasms like * describes? They come on like a contraction and increase in tempo so perhaps it is a spasm - would this happen if the sciatica was caused by a slipped disc?

I have been prescribed diazepam which I’ve not started yet; if this doesn’t work I’ll know they’re not muscle spasms I suppose. I’m also on cocodamol, pregabalin and naproxen. All seem to be doing nothing at the moment Sad

I’ve got a two week old baby and have had to stop breastfeeding to be able to take some of these drugs, it’s heartbreaking as was going so well but I’m in so much agony.

pollyshelby · 30/05/2019 20:53

I'm glad the TENS is helping OP, I'm loving mine too.

PookieDo · 30/05/2019 20:39

Where was agony?
Your muscles are contracting to try to ‘protect’ the damage hence the stiffness and muscle pain
My piriformis would Not Let Go
Have you tried acupuncture on the muscles?

I had a 4 pad TENS and it was bliss

SpamChaudFroid · 30/05/2019 19:18

It's this one from Amazon. I really didn't expect it to work, as it's only a cheapie. I've actually ordered another one so I can do calf and buttock at the same time. Grin

Bitter disappointment though, I was so pain-free I walked to the chemist and brought pup with me, but within about 10 metres it was bloody agony again Sad. It must be caused by compression, surely? I really hope the second opinion physio recommends an MRI, to see what's causing this. I'm not great at getting across to the HCPs how bad it is, (I can't fucking walk ffs) and I have a tendency slap a brave face on without even realising I'm doing it, if that makes sense? because of my past substance abuse/addiction, (although firmly in my past) I can't help worrying am I manipulating the HCPs when it comes to asking for the pain meds I need, or that they themselves think I have an agenda. Many of the drugs we've talked about on this thread would be very attractive to an addict in active addiction.

Sorry for giant ramble, I'm using this thread as a diary of sorts.

OP posts:
daisypond · 30/05/2019 15:47

Glad the TENS is helping! Which one do you have?

TurquoiseTurtles · 30/05/2019 15:44

You can get different pads too, although mine is a big unit, but I'm sure you could use bigger pads, my machine has settings between 1 & 100. We got generic pads which work perfect.

SpamChaudFroid · 30/05/2019 15:41

I'm not one to use the term OMG lightly, but OMG!! The TENS thing is amazing. Since it arrived this morning, I've tried it out on all my different muscles. It feels like a deep tissue massage, but without the awkwardness of having to be touched by a stranger!

I've ordered another one, so I can use 2 at once and slip into a drooling Nirvana like state.

I'm still getting on well with the gabapentin, no side effects and the pain feels further decreased today. Still need a stick to walk, but feel a lot more sprightly if that makes sense? Am increasing to 600mg a day over the next few days. GP has also prescribed some naproxen for me also. The depression's lifted too along with the pain. I was v. fearful about slipping into the old black hole of despair, so thank goodness for that.

OP posts:
YesQueen · 30/05/2019 13:56

To be fair you probably couldn't hear it over my breathing loud and shrieking in pain Grin

SpamChaudFroid · 30/05/2019 13:49

It looks like it should be noisy, YQ!

OP posts:
YesQueen · 30/05/2019 11:19

@SpamChaudFroid no noise but if you look at the disc below where it says L5, you can see it crushing the vertical white line Envy

SpamChaudFroid · 30/05/2019 10:21

Oo, pix of bones! Crikey, even with my medically untrained eye I can see there's practically no cushioning between the discs, YQ. Did it make any noise, like creaks, crunches and whatnot?

The gabapentin's definitely working, I noticed when showering yesterday it was much less painful. Walking's still a challenge, I have to contort my body in such an odd way in order to shuffle, that it gets really tiring as well as painful. I have to stop every 5 mins to re-group.

Even though the gabapentin's working, the GP might give me additional pain relief as well, to make walking easier? I have a 'phone consultation with her this pm.

My TENS machine arrives today, yippee!

OP posts:
YesQueen · 29/05/2019 14:03

This was about 3 days before the op

To ask about gabapentin and nerve pain/sciatica success stories?
jewel1968 · 29/05/2019 14:02

Apologies if already said but I found a tens machine good for sciatica. I just bought one from Boots. Have had various pain meds over the years when I get a flare up if sciatica. I don't like the side effects of many pain meds and they aren't that effective at pain control. I read somewhere that the sciatic nerve is sometimes called the river of pain.

YesQueen · 29/05/2019 14:01

@SpamChaudFroid nope, I got up and thought ooh sciatica, and this feels different

stupidboyman · 29/05/2019 13:54

I've got private healthcare luckily. I've had a number of ops. The surgeon told me that I wouldn't have got better without surgery and they could see that off of the mri. I still have significant pain but won't have another op unless it gets much worse. In any event there is nothing to operate on me now as practically all the stuff has come out. I damaged my nerve waiting to see if it went away On it's own. I think they want you to suffer for 6 weeks to see if t gets better on its own but a good surgeon will be able to tell off the imaging. I'm 2 years post most recent surgery and still not great but I take no drugs at all now and mostly manage with pilates and mindfulness. My pain was horrific though I was on full dose of codine, tramadol, naproxen and gaberpentin and it didn't touch the sides of the pain. The only relief I had was making myself feel completely spaced out and I was still in pain then. I feel for you it ls the worst pain ever.

PookieDo · 29/05/2019 13:41

@YesQueen

Mine was all splurged out and the disc didn’t really have any definable edges
They just said try this first if it doesn’t work we will do surgery. And it did work a treat!

SpamChaudFroid · 29/05/2019 13:37

YesQueen, do you remember the point in time that you herniated the disc? I think mine started from carrying puppy upstairs for a bath a few times, he weighs 14 kilos.

OP posts:
YesQueen · 29/05/2019 13:27

@PookieDo I refused the injections as they said the herniation was so large it was best to skip them! 15mm I think it was Sad