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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

No one cares about my vagina

116 replies

Fauxgina · 21/11/2016 11:27

I have had a bad pelvic organ prolapse since the birth of my son nearly 4 years ago. I was relatively symptom free at the time and I was told to finish having my family and when I had stopped having babies I could get fixed up. I went on to have one more child.

My symptoms have been getting worse -

chronic pain needing daily painkillers
faecal incontinence
pain during sex and after orgasm
lack of sensation during sex
cervical irritation and spotting
needing to pee 10 times a day
difficulty walking on occasion
and more.

My youngest is 2 and he will be my last.

Women's health in the NHS is so chronically underfunded that so far I've been waiting 18 months and I am being told to wait at least 6 more before we can schedule an operation in.

I am mad as hell.

I'm cross about the lack of treatment I've received so far. I'm angry I have to wait months in between invasive and horrible tests. I'm mad I have to chase appointments. I'm mad that no one really cares that I am a young 30 year old woman whose life is in limbo and I have to continue to look after 2 very young toddlers/preschoolers on my own with all these complications.

And on days like today I can't help but think if I was a bloke suffering with pain and incontinence and erectile dysfunction there's no way I'd be left on this slow conveyor belt of shit treatment. There's no way he'd have to turn up every 3 months and get his knob out in front of a different person and suffer a painful and embarrassing examination, and then wait another 2 months for a consultant to tell him what he already knew and then book him in for another test in 3 months time.

And there's no fucking way that if men had to give birth out of their penises which became scarred, broken and damaged that natural childbirth and instrumental delivery would still be the expectation of today.

Sad
OP posts:
tempnamechange77 · 21/11/2016 12:08

I'm really sorry you're going through this.Flowers

I have three pieces of practical advice - have you looked up the 'any old prolapse' threads on here? Full of good advice.

Have you been on 'the whole woman' website - it's very anti surgery. I'm not sure which is the right attitude to take (probably a balence and case by case) but they might have helpful advice while you're waiting to be seen.

Thirdly, and I'm sorry I have no idea about your financial situation so sorry if this is totally useless but could you consider going privately? It can be a big mental adjustment to spend a lot of money on yourself like that when you know you could just put up with it and be seen by the NHS eventually. I did it with a episiotomy that wasn't healing properly and the speed with which I was seen and time the gynae was able to give me was amazing. I'd rather have done that than gone on holiday for example.

theansweris42 · 21/11/2016 12:05

oh and YADNBU

theansweris42 · 21/11/2016 12:04

support from me
I agree totally that Gynae issues are under-researched and underfunded because they are women's issues Angry
I know the point is that you shouldn't have to fight, but have you escalated this to the hospital?
You could write to the Senior Consultant and/or Manager for Women's Services and/or the Chief Exec of the Trust?

witsender · 21/11/2016 12:03

I wholeheartedly agree OP.

FizzBombBathTime · 21/11/2016 12:02

Preach my sister!

I have always said the same; if men had to give birth and ever had these sorts of problems it would be considered emergency

They would never be fobbed off with the age old 'it's part of giving birth/ having kids etc etc'

You have summed up my feelings perfectly

YADNBU op

I hope you get the surgery you need and you can be happy my dear Flowers

Gowgirl · 21/11/2016 12:01

Can you afford to pay for private? Its shit but seems to be the way to get quick treatment

shovetheholly · 21/11/2016 11:59

It is unbelievably shit. I honestly think many gynae patients are being left without dignity, trying to manage conditions that are just awful. The dismissiveness with which these issues are treated is terrible.

Cakescakescakes · 21/11/2016 11:59

GPs are struggling with the system too. There's only so much they can do but the fact is that waiting lists have nosedived over the last few years. I'm waiting for an 'urgent' referral and my GP has been superb but we are still looking at an 8 month wait minimum. It's horrendous.

And I agree with you about women's health being bottom of the list of priorities. The number of friends I have who are having ongoing untreated symptoms (some very major) from birth injuries is huge. It's a massive silent issue that isn't being dealt with because it doesn't affect the men in charge.

LittlePaintBox · 21/11/2016 11:55

This sounds absolutely terrible. I understand your anger at feeling it's up to you to sort it out, but sadly that does seem to be how the NHS works when you need treatment. It's abysmal that your condition should be regarded as 'non-urgent'.

Nothing practical to suggest other than going to the GP and letting them see exactly how bad you feel - I've found my GPs have been much more proactive about prodding the system on my behalf when I've been upfront about my distress. I know it doesn't come easily to most of us.

Optimist1 · 21/11/2016 11:51

I think you should spell out your symptoms in terms of how it affects your life. So "faecal incontinence" translates to "I can't go further than 20yds from a toilet" or "I'm changing my nappies more often than my kids'", "chronic pain" and "difficulty walking" to "I'm in so much pain I can't even take my kids to the park", the sex problems as "I can't bear the thought of having sex with my husband" and so on. Stressing the practical difficulties, especially as you're in charge of young children, may drive your point home. Don't worry about crying; that will underline your frustration and desperation. Refuse to have any further intimate examinations until you've been given a date for admission.

It sounds grim. Battle on. Flowers

AyeAmarok · 21/11/2016 11:51

YA Absolutely, Definitely, 100% NOT BU.

Sad

Women get such a shit time of it with the NHS when it comes to pregnancy and childbirth injuries.

Men wouldn't have to put up with it if the situation was somehow reversed.

I hope you get your treatment soon and get a bit of relief.

reallybadidea · 21/11/2016 11:47

That is shit Fauxgina, utterly shit. I don't understand why more people aren't furious about the state of the NHS. It's as though we should all just be terribly grateful for anything we get and so put up and shut up. Everyone says, well at least we get free treatment, be thankful you're not in the US. But what about continental Europe where afaic see they get a far better health system without crippling costs.

I wish I knew what the answer was, I just feel so angry and ashamed that you're going through this.

AliceInHinterland · 21/11/2016 11:44

I'm sorry, that sounds absolutely awful and really miserable for you.

Fauxgina · 21/11/2016 11:40

Sorry Polly, I understand that was trying to be practical and helpful but I'm also really fucking fed up of the fact that somehow I feel like I should be doing more to help myself.

Can't someone do something without being forced? Every time I have to fight for assistance for such an embarrassing personal problem, every time I have to cry in front of someone, every time I have to show someone a picture of just how bad my vagina looks to get help it just makes me feel even fucking worse.

These are my sexual organs. I'm a young Mother. I shouldn't have to keep going around consistently badgering people about my fanny.

This is the state of the NHS at the moment - I believe for people just starting out with these problems they can be waiting a year just for an initial consult!

OP posts:
SpaceDinosaur · 21/11/2016 11:36

If the symptoms are affecting your mental
wellbeing you may find yourself bumped up the queue

PollyPerky · 21/11/2016 11:34

Have you really pushed your GP to ask them to try to move you up the queue?