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No one cares about my vagina

116 replies

Fauxgina · 21/11/2016 11:27

I have had a bad pelvic organ prolapse since the birth of my son nearly 4 years ago. I was relatively symptom free at the time and I was told to finish having my family and when I had stopped having babies I could get fixed up. I went on to have one more child.

My symptoms have been getting worse -

chronic pain needing daily painkillers
faecal incontinence
pain during sex and after orgasm
lack of sensation during sex
cervical irritation and spotting
needing to pee 10 times a day
difficulty walking on occasion
and more.

My youngest is 2 and he will be my last.

Women's health in the NHS is so chronically underfunded that so far I've been waiting 18 months and I am being told to wait at least 6 more before we can schedule an operation in.

I am mad as hell.

I'm cross about the lack of treatment I've received so far. I'm angry I have to wait months in between invasive and horrible tests. I'm mad I have to chase appointments. I'm mad that no one really cares that I am a young 30 year old woman whose life is in limbo and I have to continue to look after 2 very young toddlers/preschoolers on my own with all these complications.

And on days like today I can't help but think if I was a bloke suffering with pain and incontinence and erectile dysfunction there's no way I'd be left on this slow conveyor belt of shit treatment. There's no way he'd have to turn up every 3 months and get his knob out in front of a different person and suffer a painful and embarrassing examination, and then wait another 2 months for a consultant to tell him what he already knew and then book him in for another test in 3 months time.

And there's no fucking way that if men had to give birth out of their penises which became scarred, broken and damaged that natural childbirth and instrumental delivery would still be the expectation of today.

Sad
OP posts:
TheaDecker · 26/11/2016 15:10

OP, you have the legal right to treatment within 18 weeks of referral.
www.nhs.uk/NHSEngland/appointment-booking/Pages/nhs-waiting-times.aspx#maximum

I complained to my CCG when this did not happen for my son and a date was provided quickly. Good luck.

ocelot41 · 26/11/2016 14:12

I think its outrageous the way you have been treated Fauxgina. Wish I could help somehow

eurochick · 26/11/2016 13:12

You shouldn't need to keep chasing to get the treatment you need but it is worth speaking to the consultant's secretary to make clear you would be happy to accept a short notice cancellation (if you can possibly make this work). At this time of year there will be cancellations due to winter bugs.

Cocolepew · 26/11/2016 12:05

I might see if my finances can stretch to one after Christmas.
I'm going back to my GP to check I have definitely been referred, and to see if my bladder medication can be upped or changed.
Flowers for you all.

NoraCharlesMartiniGlass · 26/11/2016 11:22

You are about as far from being unreasonable as it's possible to be and I'm so, so sorry that you're having to live with this.

I am raging for you all. Flowers

Myusernameismyusername · 26/11/2016 11:02

I really feel for all of you, I can't believe you haven't been able to get the treatment you need. It is quite shocking.
My own experience of much much milder women's issues has frustrated me no end,so I can't imagine how you feel. Despite visiting the GP more times than I am comfortable with nothing has been done to help me address my clear hormone imbalance problems, severe cystic acne, constant bleeding etc, claiming I am 'too young' and 'it's not that bad' but anything that impacts on your daily life and your self esteem should be addressed. The NHS is really finding staffing very difficult I believe so more people than ever are waiting to see much fewer people. It's not sustainable. If I had the money I too would go privately for consultations but you shouldn't have to sell everything to do that!

I hope you can get further - also agree with not hiding your emotions

Fauxgina · 26/11/2016 10:51

Ohh Ocelot, I'm so sorry he said it to you but I'm so glad he did. I bet he didn't spout that kind of crap any more after you said that!

Backingvocals, interesting point.

CoCo- can you afford another private consultation? Ridiculous waiting list Sad

OP posts:
ocelot41 · 26/11/2016 10:16

I then asked if he would ever say to a 30 yr old man that he just needed to accept that his own sexual satisfaction was at an end. He looked even more embarrassed

ocelot41 · 26/11/2016 10:14

Fauxgina, yes I was. I burst into (very angry) tears. The young ish male consultant then just looked very embarrassed

Cocolepew · 26/11/2016 09:41

Ocelot Shock
I saw my GP in August and have been referred for blader and bowel prolapse. My vaginal wall has weakened due to a full hysterectomy. I've been told the waiting list to be seen is a year.
Then there will be the wait for an op, it took 9 months for my hysterectomy and that was only sped up by the fact I had my inital consultation privately.
I can't poo and can't stop peeing.
It's just ridiculous.

Backingvocals · 26/11/2016 09:37

Also just to add DD has had recurrent UTIs and subsequent kidney damage. She's only 10 so not birth related. But she is on a prophylactic dose of antibiotics for a year plus D Mannose supplement. Recommended by her consultant. Worth looking into?

TheStoic · 26/11/2016 09:36

Try taking your husband to your next appointment, and let him explain how your health issues are affecting his sex life, and see if that changes anything.

Backingvocals · 26/11/2016 09:32

Weird thread. Blaming people for having children and throwing obesity in there too Hmm. I blame the migrants myself.

Bolshybookworm · 26/11/2016 09:32

Recurrence utis here too, maria. Don't get me started on the lack of knowledge surrounding this, and the use of short term, wholly inadequate antibiotic regimes to treat them. They had a doctor talking about this on women's hour the other day and I broke down as it's so rare to hear a medic with understanding and sympathy for this condition. He thinks the standard of care is negligible.

Have you tried staying on a prophylactic dose of antibiotics (low dose everyday)? Only thing that works for me.

Backingvocals · 26/11/2016 09:30

Yanbu to be angry. I am angry for you. I think this is part of the reason for the focus on vaginal deliveries on the NHS. A CS goes wrong and the NHS pays the price. Vaginal deliveries go wrong and women pay the price, privately, in terms of the impact on their lives. Bloody disgraceful.

No advice as I've never been through it but I've often thought that labour related problems are brushed under the carpet. I'm sorry you are having to go through all this.

Fauxgina · 26/11/2016 09:29

ThisThingCalledLife - I took my family planning on advice from a specialist so I wont apologise for it, nor feel guilty about it.

OP posts:
Itisnoteasybeingdifferent · 26/11/2016 09:28

Meanwhils the NHS spends billions on the problems caused by obesity... Problems that are totally self inflicted.

Next time you go to hospital with something serious and are getting the run about, count the number of overweight people and ponder if they would not be in hospital if they weren't obese? And would the waiting list be so long if doctors were not dealing with the self inflicted problems of diabetes and oveweight?

Fauxgina · 26/11/2016 09:23

ocelot Were you actually told that?! Shock

OP posts:
ocelot41 · 26/11/2016 09:13

Amen sister! I had some complications after DS' difficult birth (became unable to orgasm) and it is amazing how little help there was because I was female. I was even told that I should just ' accept that this can happen after childbirth and enjoy pleasing my husband' ShockAngry

Maria1982 · 26/11/2016 09:05

This thread seems to have gone slightly off course since I saw it last night...

OP I also have prolapse issues (cystocele and rectocele)- the pain when walking, peeing very often, frequent UTIs (currently being investigated to see if any link to prolapse), pain during sex, and just pelvic pain for no reason... fortunately no continence issues for which I'm grateful after reading horror stories on here.

I've had it for years - in my case without having had children!!! I was advised that in some (infrequent) cases prolapse can occur due to collagen deficiency also associated with e.g. Hypermobility. Basically I am too stretchy, and so are my ligaments.

As others above I have been advised to
a) wait until after I finish (or in my case, start) having children, and
B) delay surgery as long as possible since it likely wouldn't last my whole lifetime and need repeating.

But on bad days when it is painful, and I have bowel issues with rectocele, I am frankly fed up. The thought of having children and this getting even worse before even attempting a fix is daunting.

Clandestino · 26/11/2016 08:08

isthatalrightthen, may I just gently suggest that a post mentioning an anecdotal story from Take a Break or Woman's Own will not really resolve OP's issues? Somehow I can't imagine her squeaking with delight and saying sod the pain, the incontinence and the bleeding, at least I can still shag around!

Bolshybookworm · 26/11/2016 07:44

YADNBU! The NHS is utterly shite when it comes to gynae services. It's appalling as so many "women's issues" can have have a huge impact on your life. It's an area that feels totally neglected Sad

I would definitely recommend forking out for a private consultation, as a pp has said they may be able to refer you via the NHS.

flamingoshoes · 26/11/2016 07:34

Isthatalrightthen awful horrible comment that has nothing to do with he OP's post and is aimed at making her feel bad. What happened to people supporting each other. I know AIBU is feisty but that is just down right nasty.

isthatalrightthen · 26/11/2016 06:58

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Clandestino · 26/11/2016 06:00

ThisThing you must be a very considerate and compassionate person.
Did you read OP's description of the situation? She was promised an intervention and help after she was finished having children. What other options did she have? This is about the responsibility of the NHS.
If you get a flu, will you blame it on going shoppingor taking public transport when you knew there will be sick people around and expect shitty treatment?
When your child breaks an arm while playing will you blame them for not being careful enough and accept that the NHS will send your child home with a twig and a rope to fix their arm because they don't deserve any better as the accident was their fault?
I assume yes, you will. At the end, it'sall about the responsibility.