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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to ask if you've had a DC with an overactive bladder

31 replies

JonSnowKnowsNowt · 12/11/2015 00:10

How did you get it diagnosed/treated and how did it go?

I think this is what is causing DD's (4.5) persistent daytime wetting, and am trying to get a doctor to pay attention, and not dismiss it 'because she's still young'. She is, but no-one else in her reception class has this problem and it's horrible for her.

OP posts:
LittleCandle · 12/11/2015 08:32

It could be that your DD has no nerve endings in her bladder, or that they don't work correctly. I fought for years to get DD1 seen for her constant bed wetting and sometimes day time wetting. She could go for hours and hours and hours without peeing and could sit on the toilet and not do anything, as she had no clue what it should feel like. She had constant urine infections, too. Finally, at about age 11, she was referred to a urologist, and they said if they had had her when she was young, she would not have had all the infections and the subsequent thickening of the bladder wall and increased bladder size. I was fobbed off as 'just the mother' - and i was right all along!

JonSnowKnowsNowt · 12/11/2015 08:15

thank you for info. Are there side effects to oxybutinin?

OP posts:
Galinda · 12/11/2015 07:14

I have a ds who had overactive bladder - didn't wet as frequently as your dd during the day, but was still in pull ups at night. For him, it was more of a dashing to the toilet suddenly, and needing to go frequently, luckily school were very understanding, and he was allowed to go when needed. He still wet sometimes in the day, up to Year 2. He wasn't referred to enuresis clinic until he was 8, and then it was due to the night time wetting. He did have oxybutinin - we found lyrinel (which is a modified release oxybutinin more helpful). He did outgrow the problem eventually, and now in Year 7 has been off the medication for a year and no issues during the day. He still wets at night about 5-6 times a year, but usually only when he's particularly tired/ill, and as his nightime wetting needed lyrinel, desmomelts and a night time alarm to sort out, it may not be due to the overactive bladder any more anyway!

JonSnowKnowsNowt · 12/11/2015 00:46

Disappointed, that sounds frustrating but I should think it will be a problem your DD will grow out of once she cares about being wet.

My DD is a bit different, the wetting happens at home at school, everywhere. It is quite random and can happen as little as ten minutes after she's been to the loo. It happens at least once a day and usually more. She's still in pull-ups during the night, but if she wasn't, she'd be wetting the bed several times a night. She doesn't seem to know it's coming, or even while it's happening, she only notices later that her clothes are wet.

Luckily school are being very sympathetic, but I want to get her help as soon as possible. GP was unwilling to refer because of her age, I have ended up getting a private referral but I don't know if it's to the best place.

OP posts:
DisappointedOne · 12/11/2015 00:23

I have a 5 year old who wets almost daily at school and extremely rarely at home. She's happy, not bothered about wet pants etc. she just doesn't want to use the school toilets because they're usually in a state by mid-morning. School have been pretty useless. It's extremely common for children not to want to use school toilets apparently.

I'm hoping she will grow out of it, to be honest. It's not something I can easily fix at home. I just have to remind her to drink at school and to go to the toilet (the staff did remind her for a week or 2 but aren't bothered at all now). It's very frustrating.

Bimblywibble · 12/11/2015 00:22

Yup, spoke to school nurse in easter of YR, followed her phone advice then when that didn't help in a few weeks she referred straight to enuresis clinic. Diagnosed based on history, oxybutynin prescribed there and then. It's been a bumpy slow road since tbh but infinitely better than getting no help. Enuresis clinic is a something of a refuge where no one blames or judges DD or us.

Some on here might say enuresis clinic don't take them til 7. Daytime wetting is a much more urgent problem than night wetting and I don't think DD was exceptionally young there at 5.5. When DD was wet a lot she lost the ability to feel if she was wet or dry. Once you get to that point, it is difficult for her and us to manage and we need help.

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