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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To have another baby when my first is autistic?

143 replies

PalominoPony · 01/02/2015 14:00

I have one DS, who is 2, who has autism. We have been told that the chances of our next child (should we decide to have one) having autism is roughly 15-20%. (This is a general estimate, not specific to us - it is given on the basis of the number of autistic children in the UK with autistic siblings and they are not able to be more specific as doctors still don't know what causes autism.)

Do you think it would be unreasonable to have another child? Where would you draw the line? For example, for some couples, the chance of them having children with cystic fibrosis is 50%-50%, and I know I wouldn't take that chance. What is a reasonable chance to take when a child may be born with a severely disabling condition? 50%, 25%, less?

I love my DS dearly and would love another but am fully aware of the struggles he will face in life and I am wondering if it's fair to bring a child into the world when there is a significant chance of them being autistic?

Please give me your honest views!

OP posts:
autienotnaughty · 06/06/2022 22:29

We chose not to have more. Not because we wouldn't want another autistic child (my son is awesome) but because it wouldn't be fair to him. He needs lots of attention and support and I wouldn't want to take that away from him. He has a pretty solid routine a baby would massively disrupt it.

autienotnaughty · 06/06/2022 22:27

We chose not to have more. Not because we wouldn't want an autistic child (my son is awesome) but because it wouldn't be fair to him. He needs lots of attention and support and I wouldn't want to take that away from him. He has a pretty solid routine a baby would massively disrupt it.

ofwarren · 06/06/2022 22:24

This post is 7 years old!

Dajeeling · 06/06/2022 22:19

It’s 3 out of 3 for me OP… all different severities though. The first would have been classed as Aspergers back in the day, the second is very bright with extremely challenging behaviour (at times) and the youngest is non-verbal. Three very different kids though but all loved.

Quitelikeit · 06/06/2022 22:12

Bumping

mucky123 · 06/06/2022 17:44

Just realised this was an old thread. Would love to know how it all panned out for the OP.

mucky123 · 06/06/2022 17:36

I say this as a counter to all the parents who seem to say they would never have had children had they known they were autistic. I'm not saying anything against what they are saying, it's sad they feel that way but that is their experience and this is mine.

I have 3 dc with autism. I'd have happily had a fourth if time had been on my side. They are all pretty awesome. They struggle with some things obviously but so do NT children/people. They are very loving and I get more from them (all in different ways) than I think my friends get from their NT children. My son was also diagnosed at 2, my DDs much later (although they are older than him). It's more obvious for him than them but the girls struggle more with anxiety - perhaps because they mask more. We live a quieter life than lots of families, more just us but we enjoy what we do. I wouldn't have rather had NT children, that seems exhausting from where I am standing. It's possible I am also autistic but it has never been diagnosed.

I think you should wait and see how things go with your son. If its very hard and takes up all your time, maybe not. If you would have another praying that they wouldn't be autistic definitely not as you may end up disappointed and this could rub off on your child. If however you have a funny, different, loving child who develops at their own pace you might think why not. Good luck with whatever you decide and remember any difficulties that your son has now won't necessarily remain the same, he will probably change and develop.

Quitelikeit · 06/06/2022 16:59

Bumping for further personal experiences-

BattenbergdowntheHatches · 06/06/2022 16:21

This reply has been withdrawn

Message from MNHQ: This post has been withdrawn

zurala · 06/06/2022 15:42

Ugh the ablism on this thread is so depressing. Being autistic is a different neurotype, not a horrible disease.

BattenbergdowntheHatches · 06/06/2022 15:12

This reply has been withdrawn

Message from MNHQ: This post has been withdrawn

Marvellousmadness · 06/06/2022 14:52

I wouldnt
You don't know how severely your kid's asd is yet. Imagine the worst posssible outcome and then another asd baby on top of that. I wouldn't want that. Not for myself. Not for my kid. Not for my baby.

And even if you do end up with a NT baby; the chances are that your asd child will not cope very well (at all?) With the presence of a loud and disruptive baby bro or sis.

The stress that you already have will be nothing to what it will be with 2 kids. Even if both kid were NT.

Society might have told you you need 2 kids to have a proper family. And I usually agree that 2 is a food number. But considering your mental state already (and even BEFORE your baby was born..) i don't think youll be doing anyone a favor. You might change your life for the worst.

mydogisthebest · 06/06/2022 14:43

I wouldn't. I could never be that selfish

Misspacorabanne · 06/06/2022 14:41

Or dc1 for that matter!

Misspacorabanne · 06/06/2022 14:39

We have two DC first diagnosed with autism and the second going for assessment! Its not easy but I wouldn't have missed out on having dc2 for the world!! I love them both to bits!

lightunderthesea · 06/06/2022 14:32

To be honest all this talk of having another child for the benefit of the first makes me slightly uncomfortable, all the more when the first child has some kind of disability and the motivation is to improve their quality of life or to ensure a lifelong friend or literal caring relative for the first child.
Each child is in themselves an equal member of the family and in my opinion no one child's needs should be more important than the other's, in the long term.
In terms of your question, there is no right or wrong answer and no-one can answer for you.

Plaidparty · 06/06/2022 14:04

I would think about it from your potential second child’s perspective.

kids with additional needs often require more attention. Time, resources etc and Ive read many times on here about resentment or just sadness that their parents were always focused on their sibling and not them.

I have one child and I honestly think I’d struggle to devote enough resources to two NT, never mind if one has additional needs. I take pleasure in having the privilege to give my kid the most - where it be financially, emotionally, time, energy and I wouldn’t give that up for her to have sibling (NT or not)

People always talk about how close siblings are and built in support etc but that’s not always true.

DoubleShotEspresso · 06/06/2022 13:58

LonnyVonnyWilsonFrickett · 01/02/2015 19:23

I think the conversation should be around if you feel your family is complete, rather than 'what ifs'. I have one child with ASD but I was always only going to have one child. Others I know had always planned for 2 or more DCs and they certainly weren't going to let autism take that away from them.

The other thing is, with a 2 yo and being in the eye of the storm of a recent diagnosis - you are basically in the worst place you will ever be. You will come to terms with the dx. Your child will continue to develop (albeit at a different rate from his peers). You will come to terms with the new normal - so you kind of have to decide based on what the future looks like, rather than the now.

This is a beautifully considered post 😍

RedHelenB · 06/06/2022 13:49

PalominoPony · 01/02/2015 14:00

I have one DS, who is 2, who has autism. We have been told that the chances of our next child (should we decide to have one) having autism is roughly 15-20%. (This is a general estimate, not specific to us - it is given on the basis of the number of autistic children in the UK with autistic siblings and they are not able to be more specific as doctors still don't know what causes autism.)

Do you think it would be unreasonable to have another child? Where would you draw the line? For example, for some couples, the chance of them having children with cystic fibrosis is 50%-50%, and I know I wouldn't take that chance. What is a reasonable chance to take when a child may be born with a severely disabling condition? 50%, 25%, less?

I love my DS dearly and would love another but am fully aware of the struggles he will face in life and I am wondering if it's fair to bring a child into the world when there is a significant chance of them being autistic?

Please give me your honest views!

I can only go on the experience of my friend who was NT but lived in the shadow of her brothers autism. Personally I don't think I would have another in your shoes , particularly as even if they were both autistic they could still have very different needs. Bit as long as you and your dh are on the sane page and are fully committed to your decision, whatever you decide will be for the best.

ImplementingTheDennisSystem · 06/06/2022 13:46

How autistic is your first? Would a second be left responsible for them when you die? If the answer is yes, then no, not a chance I'd have another.

IsItShining · 06/06/2022 13:30

mytartanscarf · 01/02/2015 14:45

Lego Flowers

Living with my brother was not an easy life but I am a firm believer that just sometimes the hardest things are the most special.

Here are the AWESOME things about having a brother with Aspergers!

  1. You never get lost! My brother is like a sat nav - he has a phenomenal memory!
  1. His interests become yours because they are so passionate. I know my dinosaurs! I also know about Star Wars, roman history and erm - more recently - the missing plane!
  1. They are always honest when your outfit looks crap!
  1. They don't have a mean bone in their bodies or that's true of my DB. Despite being incredibly physically strong he is very gentle.
  1. So so patient. My brother just doesn't know the meaning of the word moody.
  1. You explain the world to them and through that understand the world better yourself.
  1. You become used to an early age to the fact some people are mean and this isn't a reflection on you.

Yes, my brother is autistic but that's not going to stop him or me. All I know is I'm right behind him whatever he does and I think his life is really enhanced by me but then mine is too by him.

Thanks so much for this timely post.
It all applies to our oldest too.
He is currently finding young adulthood very hard (it's the contrast with others his age), which in turn has made things difficult for his younger sibling, and it's so good to be able to reflect on the positives.

TirisfalPumpkin · 06/06/2022 13:24

There are various presentations of autism. I'm an autistic adult. I hold down a full time job and am studying for a master's degree. It does not necessarily mean a life less full and valuable, although I would say my autism has caused significant struggles (they do not diagnose it if you are not substantially negatively affected by your traits)

You could also have a child who is more severely disabled by autism (or something else), so there's the practical considerations of what that would mean for your family.

I suppose it comes down to whether you are OK with either outcome. You sound like a good and thoughtful parent who will love all your children no matter what. I definitely valued getting to grow up with a sibling (who reckons he is also autistic but doesn't see a need to have it investigated). But we're both of the weird-but-functioning type so not representative of all.

Tt22 · 06/06/2022 13:16

Thanks , I always appreciate insight from some one in on the spectrum . My dds is 5 and I would say he has “mild” autism but I worry over how he will handle life as he gets older , as any parent does , but with the additional worry of having an SN child . He is very active and can be stressful when he bolts but he is beautiful and cheeky ! My hesitation is if another hold would have more severe autism and although I would accept what will be will be , the ultimate question is am I being selfish by exposing that unknown risk to my unborn child ( I am 6 weeks pregnant, not planned ) and take any time and energy needed by my dds as well as my eldest dd ( not on the spectrum ).

Frida9 · 06/06/2022 12:51

I myself am autistic, the condition I have is genetic and is inherited from my mother (she's never been formally diagnosed due to being older but has all the traits I do). I have two siblings who are not autistic.
Being autistic does make life more difficult/complicated especially when I was at school and other children knew I was different. I struggled for a lot of years with bullying and anxiety this caused. Now, 10 years on from leaving school my life is amazing. Got my degree, good job, nice house, wonderful husband and currently expecting my first child.
When we were TTC I told my husband that there was a chance that a child we had could end up like me and he said he didn't care because there's nothing wrong with me. This is how I look at things, I don't want my child to be autistic like me but if they are I'll be prepared and will know how to prepare them for life/fight their corner.
It does really depend on how autism affects your first child whether you could cope with the same or worse again. Either way an autistic child is still a child and you shouldn't look at it as a negative. Like I say, there's nothing wrong with me I just see the world a bit differently.

Mariposista · 06/06/2022 12:23

It really depends on the level of care your first child needs and will need in the future OP. Autism really varies. Will parenting be a pleasant experience if he is incredibly high needs and you also have another child who needs you (who may or may not have SN too)

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