eruptive lingual papillitis (bumps on tongue)

Came on to say that this has hit our household. Ds2 had it first then me and my OH and then Ds1 had it. It’ll be 3 weeks on Thursday and it’s still coming and going. We’ve also been hit with another cold which isn’t helping matters but it’s driving me crazy. Started with a burnt feeling on my tongue. Followed by a loss of taste. Then various swollen taste buds that come and go but they’re definitely not ulcers.

Hi @Jessiepuff my doctor didn’t know what it was but gave me a steroid spray. I’m not sure it did much. I think it started as a virus caught from my daughter, but it seemed to just make my tongue really sensitive so I got the lumps for about 4 months on and off. Eventually it went completely when I avoided everything salty or spicey for a couple of weeks

Hi mums. I had this first and it was so painful! It lasted way longer than google said for Transient Lingual Papillitis (3 days), the pain was worse at night it was agony. Then my husband got it, he lost his taste. Altogether it was about 5-6 days of lots of pain and gone in 2 weeks. My daughter got it too and we thought she got tonsillitis as her tonsils were enlarged so the doctors put her on penicillin. It calmed it down but the moment she stopped it the bumps flared right up and is extremely sore for her. We went back to the doctor and he said it's viral and to wait. I feel so sorry for her because it's so so painful. Does anyone know what this is?? I didn't know it's contagious!!

I have this currently it’s so painful. I’ve had them on and off most of my life but never more than a day. I’ve had it for a few days now. Never realised they could be contagious, my sim definitely had them last week!

Touch wood, mine cleared after a week and hasn't returned.

Mouthwash definitely helped me.

Still have this on and off :-(

@LittleG77 thank you so much. A month!!! Mine is a little better today but my toddler is absolutely miserable with it and another four weeks and then recurrent bouts sounds hellish.

Hi @Justputitdown mine seems to have gone now but it's taken 4 weeks. Saw the dentist (doctor won't see you for tongue problems) but unfortunately my appointment was on a day when it wasn't too bad so dentist just said there's nothing wrong and you just had ulcers.
Mouthwash and brushing teeth did seem to help, salt water definitely didn't help and salty food also made it worse. Hope that helps x

Oh Lord, I've got this and it's driving me totally frantic. The idea that it reoccurs is not a happy one.

I think I have this :-(
DD first complained of sore tongue then I got it the next day. She seemed better quickly but I still have it 10 days later. Seeing the dentist next week.
I never thought it was contagious I thought it might have been something we both ate but maybe I did catch it from her

What a horrid condition this is. I had never heard of transient or eruptive lingual papillitis until I googled the symptoms but it’s definitely what I have (and I’m a doctor!) 😹
Have had it a week and now DH has just started with it. LO has been off food and not himself of late. I’m relying on benzocaine anaesthetic throat spray and codeine as that is all that helps. No cure, just got to battle through it.

Seems this thread pops up periodically. We seem to have this in our house now. Mine's so so bad today! Even talking hurts because of where the bumps are. And eating... not pleasant. Really hope it doesn't keep returning. Anybody able to offer any light at the end of the tunnel? @Ham2eggs maybe? :(

I have this going on right now and it’s been almost 2 weeks! I can barely sleep at night :( Has anyone found a real diagnosis and best treatment? Thank you in advance!

My wife and I have had this now for about a week, it's driving us nuts! We had assumed our son was just teething again but then we both noticed these exact symptoms within hours of each other. I hope it goes away soon!

Hi, just came across this post and am starting to think this is what I have. Had it 5 days now with sore and inflamed tip of my tongue along with inflamed looking taste buds. Very uncomfortable to eat and just generally making me feel.miserable. how long can I expect it to last and when does it start to feel better? Scared it's not going to go away! 😔

@Jenniferforjac thanks! Will try the mouthwash and hope it goes away soon for all of us

@GrandmistressGlitch only to avoid really vinegary crisps and other foods that seem to set it off! Sharp fresh tomatoes do as well! That seems to have helped and I use the mouthwash as soon as a flare up starts! Good luck xx

@Jenniferforjac gaah it's so annoying, I hope it has gone for you?! I have had it since the end of September, the lesions pop up for a few days, disappear then reappear somewhere else! Any tips? For something so small it's bafflingly painful and seemingly endless.

I’m so pleased I found this thread! I’ve suffered with this on and off for the last six months and both my kids have had it a few times too. I’ve been trying to work out what it is for ages!! I seem to get it at least once a month and the only thing I’ve found to help is Peroxyl by Colgate. Salt water made it 10 times worse!! Anyone found out what causes it to reoccur so much? Or any other treatments? It drives me mad because I keep getting it, but have no idea why! Definitely seems contagious as the first time the boys had it, they passed it to me and DH.

I have had it for 4 weeks now , my brother lives with me and he also has the same symptoms , but also had chills , never a real fever , the burning sensation at the tip of the tongue drives me crazy . I also read that it is a very relative new disease discovered in 1996 , I hope this go away

Well I know this is a zombie thread but I am glad someone bumped it! I've had this coming and going for the last 6 weeks or so and thought my oral health had just gone to pot. There is light at the end of the tunnel.

Aaaghhhh we have this too, apparently it is doing the rounds among the children at nursery, but it has taken me until now to figure out what it is! DD2 had a sore mouth, I just thought she was teething. Then I burnt my tongue. And after five days of us both being in misery I realised it must be something different, but what the heck was it? It's hard to google as I just keep getting hand, foot and mouth, which it isn't.

If ditsydoll's third post above is correct, then hopefully it is not contagious among adults, just the we'ans. On day eight now. The worst is over but it doesn't seem to be shifting entirely. Pharmacist gave me betadine to wash/gargle with diluted three times a day. DD2 seems better, which is good as I can't get any get or anything in her mouth. DD1 says she has a sore mouth but it doesn't seem as bad. Yet. Fingers crossed it stays that way.

On the plus side, I have lost a kilo. Silver linings.

so glad to come across others with this.. i have had this since may... it goes away for a couple of days then comes back. raised red bumps end of tongue making mouth burn... drs and dentist no idea.. tried fungal treatment but not helped... anyone any breakthrough with getting this to go away... it started after i burnt my tongue badly..but i also had shingles at the start of the year so not sure what started it?? my 5 yr old has complained of small sore bits on her tongue so I'm worried its infectious....

Did the condition go away? I had a week of it and so did my partner. I think that my 1 year old son did too. Mine got better for a couple of weeks but the eruptive/familial lingual papillitis returned. I'm into day 5 of the second bout. I hate it.