My NHS Medical Record has deleted my sex. And added a ladybrain.

[Barracker]

Yours may have too.

twitter.com/HairyLeggdHarpy/status/1062360988702466048

medium.com/@anneharperwright/sex-gender-the-nhs-bb86b0c3ebb

Our records are officially supposed to hold our sex. There is a suite of documentation explaining how the NHS systems should be structured to hold BOTH sex (compulsory, and defined as phenotypic sex observed by a registrar at birth) AND gender (for those who wish that to be captured as well, defined as 'how a patient currently describes themselves')

These data standards were written and approved in 2009. They are full of warnings about the risks of conflating sex and gender. They are very prescriptive of how systems should be designed to keep people safe, by keeping the two concepts clearly separate. They were approved.
They are supposed to have been implemented.

They haven't been.

Your own records may have a 'current gender identity' field which is populated, and a 'phenotypic sex' field...which is blank.

Mine SHOULD look like this, according to the NHS Sex and Gender Data Standards:
Current Gender: Unknown
Sex: Female.

Instead they look like this:
Current Gender: Female
Sex: Unpopulated

All the detail, and links to the documents are included in the medium article.

I bet you there's an agenda; erase official records, then introduce biometric ID cards with the blessing of people left dealing with the chaos.

I'm pretty certain that registrars observe neither sex nor gender when registering a birth. Or do you mean medical registrar doctor people?

That's shocking. It is really worrying for data collection purposes as well, of course, as for the treatment of an individual patient.

The very organisation that needs to know a person's sex has a field called "current gender"?

F.F.S.

This is the full twitter thread on thread reader

threadreaderapp.com/thread/1062360988702466048.html

The very organisation that needs to know a person's sex has a field called "current gender"?

Quite.

What happens re screening invitations?

Non binary - prostate, cervical and breast cancer screening?

Agender - none of the above?

TW with male secondary sex characteristics - cervical screenings?

TM with female secondary sex characteristics - prostate exams?

Caelgender - ... not sure exactly what screenings the stars/universe are vulnerable to...

What utter nonsense.

How do I find out what mine says?

I bet you there's an agenda

I said months ago that one of the top funders of the transgender movement was also into transhumanism, and that the only way to solve the toilets issue was to have everyone swipe in and out via an implant. ID cards are unpopular, easily lost, and falsifiable; fingerprinting is time-consuming, but we already have the technology to microchip animals. It's a short leap to chipping people - if you can encode opening doors and work passes, sex and/or gender is a doddle. And that'll tide us over til we have full DNA recognition.

Oh look, in the news today.

www.independent.co.uk/life-style/gadgets-and-tech/news/microchip-uk-workers-employees-privacy-bioteq-biohax-cbi-tuc-trade-union-a8629656.html

Judge Dredd is a dystopia, not a rule book

Just had a look at my profile on Patient Access and it only shows a gender field, sex not mentioned at all. I'm recorded as female in that field.
Appreciate this is not NHS data per se but interesting.
My GP has never asked me my gender identity, pretty sure they know I'm female sexed by my vast gynae history!!

A splendid piece of research silentcrow. I wonder whether the NHS in Wales has done the same? Must find out.

^^ that's Barracker for the research, I think - I'm just the conspiracy theory nutjob although I did start looking for possible links from Pritzker (big trans funder) to the company in the aforementioned article. Am not knowledgeable enough about digging up overseas investors, though.

How do we FOI this shit out of this?

In fairness that is a brilliant set of definitions:

“Current Gender, as assigned by the individual to themselves”
“Sex is the phenotypic sex of the person as recorded by the Registrar on the Register of Births”
“The term ‘Gender’ is now considered too ambiguous to be desirable or safe”
“Users may confuse the terms current gender and sex, or assume that they are synonymous. Therefore, it is essential that all NHS applications display and explain current gender and sex terminology and values in a clear and consistent manner.”

The fact that these are the accepted NHS terms gives a fab base to build a consensus around. No other part of the government consistently uses these terms properly, but the NHS can be held up as a gold standard.

What we need is for it to be implemented.

donquixotedelamancha

That reads very well, you make a very good point.

I am going to use that n my email address whenever I email the D&I people at work, instead of the pronoun malarkey......

donquixotedelamancha

You're spot on. This is why I began the journey, because i was hunting for evidence from a reputable source that sex and gender are so fundamentally different that NO organisation should ever conflate them, and they should always be treated differently.

I was thrilled to find the evidence. It's all a matter of public record too.
From that foundation of clarity we can start to push back the deliberate confuscation that is happening everywhere else.

But then my own medical record came back without my sex in it.
Can open, worms....everywhere.

I asked at my GP surgery about changing my gender to 'none' on the assumption that there was a sex field saying 'female' and that the gender field wasn't important. The person I spoke to couldn't see a field for sex on their system. And thought that changing gender to 'none' might leave me at risk of not being called in for smear tests and breast screening.

She was sympathetic when I ranted that such things should be driven by sex.

In the end, rather than risk my health, I chose to leave things as they were for now. But it really needs to be sorted out. Because if the NHS can't get it right, what hope is there for anyone else?

I think we all need to raise Subject Access Requests, to see what details are held about us

www.england.nhs.uk/contact-us/privacy-notice/how-to-access-your-personal-information-or-make-a-request-in-relation-to-other-rights/

You're spot on. No, I think you are. Kudos on digging this up.

The question is where to go with it?

I would not wish to see this used just for point scoring in debates- I think it's potentially too important.

I agree that individuals amending their records to make sure the correct info is important. I don't think that subject access requests are needed- in principle the point of the new system is supposed to be that we can easily correct errors. A guide on how to do this would be useful- I don't have the first clue. (Any NHS bods on here know how?)

Once enough people have used the new system the NHS will be very reluctant to amend the system, no matter what pressure is put on it. I worry that before critical mass is achieved political pressure could change those definitions.

I also think these definitions could be a potential point of conciliation and truce between GC feminists and those who unthinkingly support self ID. I think many moderate folk who have difficulty with a perception of radicalism would buy in.

You're correct, HawkeyeInConfusion on both counts. It should be your sex, and the default option for 'current gender' which is probably the field your surgery can see, should be 'Not Known'.

And yes, screening programmes are, I think, run off the 'current gender' data, despite the Hazard Log Document specifying that they must be run using sex data.
It lists this scenario EXACTLY as being a risk that should be mitigated by screening by sex, and by making sure that systems are developed in accordance with the Sex & Gender Design guidance.

I didn't make this clear in the thread, only in the articles, but this guidance was produced and approved in 2009.

There has been nearly a decade to get it right.

I think there needs to be pressure brought to bear on companies like EMIS Access to follow the guidelines as they are laid out, and on the NHS for exposing us to the risks they have already documented.

I also think the time is ripe for people to start campaigning using GDPR laws to #DeleteMyGender. No organisation, having acknowledged that sex and gender are different, should be holding gender data that is neither accurate, nor provided with consent or knowledge, nor used for the correct purposes.

If sex and gender are so different to be dangerous to mix up, then we have a right to challenge ALL gender data held on us without consent, and used in place of sex data without our knowledge.

I downloaded the SAR from from this link:

digital.nhs.uk/about-nhs-digital/corporate-information-and-documents/publication-scheme/how-to-make-a-subject-access-request

It asks for gender, not sex..........I despair

sex seems to be such a 'dirty' word to many people.
why are we so squeemish?

I wonder, with all the talk about massive population growth being unsustainable, if the idea that people want to voluntarily sterilise themselves is looked at handily?

sex seems to be such a 'dirty' word to many people.
why are we so squeemish?

I'm doing a big equal pay project at an allegedly "woke" uni (it's not really, we just humour the D&I peeps), and say sex all the time in meetings and I use it in the spreadsheets, it's fun.