Is this anxiety or MS?

(20 Posts)
FirstTimeMother88 Mon 22-Jun-20 10:56:12

Hi all this will be a long message but I need to get it off my chest.
I had my DD back in October and pregnancy was amazing. I've never ever suffered with any kind of mental health issues in the past.
I had a traumatic birth and it ended in an emergency section.
Since then I've had several health problems.
1) nerve damage around the bladder. I have to be wee on a schedule and don't know when I have a full bladder.
2) unexplained high liver enzymes. Had biopsy and nothing picked up at all.
3) my last period lasted 30 days. Internal scan showed no problems though.

As I'm constantly bleeding / thinking if I need to wee etc I started to have panic attacks. Derealisation mostly but I haven't had one since around Feb.
Since Feb though I've had different symptoms.

1) terrible eye floaters and trouble looking at words. They always look blurry,
2) pins and needles in upper back daily.
3) foggy mind / saying silly things
4) fatigue!
5) feeling "zoned out". Always.

I don't have a peak anymore (an attack to have a come down) I'm just always zoned out and feeling the above.

Does anyone else have constant symptoms like this? I'm unable to try AD as I have the unexplained liver problems.
Tbh I'm terrified it's MS and I'm sure the GP will roll his eyes as I'm there so much for bloods etc.

I'm also going to put this in mental health.
Any advice would be most welcome x

OP’s posts: |
acocadochocolate Mon 22-Jun-20 14:19:38

Hi OP

Sorry to hear you've had such a difficult time. It could be MS. It sounds a bit similar to my symptoms. But be warned...... it has taken 2 years to get to a diagnosis (and even now I have not had the formal diagnosis).

I had many appointments in my local hospital, inc cardiology and ENT. I then went to a neurologist who discharged me, telling me the whole thing was caused by the menopause, and she advised me that HRT would make me feel better. She sent me to a gynae, who said it probably had nothing to do with the menopause but was worth trying HRT just in case.

My GP then did another referral to neurology at a major London teaching hospital. They said I probably have an inner ear problem. However, they did not discharge me and did another MRI scan just in case. By the time I had the next neurologist appointment, I had developed some bladder symptoms and a few other problems and the MRI showed some probable inflammation. So at that point, I was told I had MS.

I have since has an appointment with the head MS doctor at that hospital who described my MS as 'mild'. This I think is one of the reasons why the diagnosis took so long.

acocadochocolate Mon 22-Jun-20 14:48:47

I forgot to say call your GP. If mine is anything to go by, they are not busy at the moment. I changed GP over this because the first one told there was nothing more they could do. It was the second one who referred me to the Neurologist in London.

FirstTimeMother88 Tue 23-Jun-20 09:47:19

Thank you so much for replying x

OP’s posts: |
r1911 Tue 22-Jun-21 23:29:13

@FirstTimeMother88 hey i know its been a while since you posted this.

Did you get any answers for why you had the symptoms? Im having similar and more and am really scared 😞

FirstTimeMother88 Thu 24-Jun-21 07:27:41

Heya lovely, it’s still ongoing but I’ve been placed on a very mild dose (10mg) of citalopram which has definitely helped with the majority so I do believe it’s anxiety. It hasn’t gotten worse which is always reassuring.
What’s your story?

OP’s posts: |
r1911 Fri 25-Jun-21 12:30:58

@FirstTimeMother88

Hey!! Thank you so much for replying - im happy to hear the medication has helped.

I had a baby in August last year and since then ive been having some awful symptoms like buzzing in different parts of body, internal tremor on left side, altered sensations, twitiching, a floater in one eyes vision, electric sensations in spine etc to name a few and its been giving me such bad anxiety and worry. Im being seen by a neuro and have been referred for tests but im just so scared - im worried its more than anxiety as the symptoms are not related to my anxiety at all (i am an anxious person)

Im just so scared 😞

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r1911 Fri 25-Jun-21 12:32:05

@acocadochocolate hey!

I hope youre doing well! Just wanted to ask what tests you had to get it diagnosed?

Bluesheep8 Fri 25-Jun-21 15:57:11

Tests would usually be an MRI scan followed by a lumbar puncture (or it was when I was diagnosed 22 years ago)
MS is usually only explored as a possibility when a lot of other things have been ruled out and a diagnosis is not necessarily the end of the world flowers

r1911 Fri 25-Jun-21 16:24:25

@Bluesheep8 thank you so much for replying. Youve always been so helpful and commented on my previous posts too thanks

I know theres lots of positive stories of people who have been diagnosed - its the waiting and not knowing which is what im finding so difficult 😞

Bluesheep8 Sun 27-Jun-21 08:31:31

@r1911

In my experience, the thing about MS is that even when you do know, you don't ever really know. Even after diagnosis, there very often isn't a prognosis which forces you to learn to live with it and IT learn to live with you.
For me, It's important to realise that in all likelihood, MS has probably been a part of you for a long time before it showed itself (if it does turn out to be MS) so you may well have lived with it for some time without knowing. Best wishes flowers

Bluesheep8 Sun 27-Jun-21 08:32:49

You don't ever really know how it's going to behave, I mean.

HSHorror Sun 27-Jun-21 08:41:05

Symptoms after pregnancy could be thyroid. It tends to go hyperthyroid after pregnancy then hypothyroid within a year.
Ormaybe you could have had covid.

Delatron Sun 27-Jun-21 21:24:14

Sorry if this is stating the obvious but have you had iron levels checked after that much bleeding?

I felt awful after loosing lots of blood after birth. Had to have an iron transfusion.

ArseInTheCoOpWindow Sun 27-Jun-21 21:29:28

* had a baby in August last year and since then ive been having some awful symptoms like buzzing in different parts of body, internal tremor on left side, altered sensations, twitiching, a floater in one eyes vision, electric sensations in spine etc to name a few and its been giving me such bad anxiety and worry. Im being seen by a neuro and have been referred for tests but im just so scared - im worried its more than anxiety as the symptoms are not related to my anxiety at all (i am an anxious person) *

All of these symptoms can be anxiety related. Not the floater, but they’re pretty normal and you’re probably noticing it more than you would dye to your anxiety.

r1911 Thu 01-Jul-21 15:20:59

@Bluesheep8 completely understand what you are saying and it does seem like it impacts everyone so differently. I think its the phase of not knowing whats wrong which is the most scary and anxiety inducing.

@ArseInTheCoOpWindow thank you for responding. Its the electric sensations that scare me and make me think theres something more going on 😞

ArseInTheCoOpWindow Thu 01-Jul-21 15:23:32

Those electric shock feelings are bursts of adrenaline.

Bluesheep8 Fri 02-Jul-21 13:16:14

Those electric shock feelings are bursts of adrenaline.

This sensation can be caused by a number of things, not just adrenaline.

Sarahocon1 Sun 04-Jul-21 21:26:52

I have exact same things and short of breath every morning its awful

TheMawisbraw Sun 04-Jul-21 21:48:09

I got tested for ms, family history, pins and needles and loads of other symptoms struggled for ages with them turns out I just had borderline low folic acid but it really effects me so I’m on it for life but an easy fix, try to not worry to much but I know it’s much easier said than done when your living with those symptoms

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