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'Mass' showing on dMass showing on MRI brain scan - please help

179 replies

diege · 13/10/2018 07:47

After fruitless visits to the GP with my daughter (age 17) about her crippling headaches, we were sent to the hospital after a regular eyesight test when an optician saw swelling behind her optic lenses (Thursday). She had an MRI scan yesterday morning which showed a 6cm mass to the front right hand of the brain. DD currently in hospital having steroid treatment to reduce some of the swelling around the mass so that they can properly assess the type of mass before discussing options. Devastated and so anxious as to what might happen next. Has anyone experienced anything similar and can help me make sense of this all? I'm really struggling and feel so alone (I have 5 other children and was widowed 2 years ago). Thank you.

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APMom · 13/10/2018 15:38

Sorry I’ve no experience but couldn’t not reply. That must be so stressful for you and your dd, have you anyone you can talk to and can support you.

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Ratbagcatbag · 13/10/2018 15:41

I didn’t want to read and run, hopefully someone will be along soon who can give you more positive stories. I’m so so sorry this has happened.

Do you have rl support for you and your children?

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Ohyesiam · 13/10/2018 15:46

Hi, so sorryFlowers
I used to nurse at the National Neurological hospital at Queen’sSquare in London. There are some really god outcomes for brain masses, even though this initial stage must have shocked you to the core.
I’ve seen lots of people treated either surgically or medically make good recoveries.
Hope you are getting all the information you herd, and that things turn out well for you and your family x

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swingofthings · 14/10/2018 07:37

What a shock and blow your family has been handed. No direct personal experience but just wanted to share a hug Flowers

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TwitterQueen1 · 14/10/2018 15:30

My friend had a large brain tumour - it was repeated, awful headaches that drove her to the doctor. It was benign. She had an operation to remove it and she is absolutely fine now. Keeping everything crossed for you Flowers.

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diege · 15/10/2018 16:34

Thank you 😊 The operation to remove it is scheduled for Friday; they can't tell by looking at the MRI images if it's malignant or benign, so we won't know until after the biopsy. Just taking one day at a time at the moment x

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Peridot1 · 15/10/2018 16:43

How scary for you. And dd obviously.

I too know of people who have had very good outcomes after a mass in the brain.

Will be thinking of you and dd and hope all goes well.

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Urbanbeetler · 15/10/2018 16:45

I hope it goes well, and have also heard of great outcomes from ops like these. How is you daughter coping?

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diege · 15/10/2018 23:06

Dd is coping as well as a 17 year old copes! Very bored, but also very anxious and asking the difficult questions - 'So I won't die then'? I think that what we're going through now is nothing compared to the wait for the biopsy results next week!

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TwitterQueen1 · 15/10/2018 23:12

It must be awful for all of you. Waiting is definitely the worst part. Will be thinking of you.

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Urbanbeetler · 16/10/2018 10:57

She sounds strong! Sending very best wishes for as positive and outcome as possible .

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rosieposey · 16/10/2018 11:05

My best friend had similar, her outcome was very good, keeping everything crossed for you all and hope you get the support you all need.

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LoniceraJaponica · 18/10/2018 20:12

Good luck for Friday Flowers

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hennipenni · 19/10/2018 17:40

Hope everything went well today, I have a 17 year old daughter with a rare condition in her brain that has caused her lots of problems so I know a little of what your going through.

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diege · 19/10/2018 22:51

Unfortunately the surgery was postponed as the mobile MRI scanner used straight after the procedure is broken So all very stressful and looking at next week, or at the latest the following one. The consultant did say from what he has seen on the latest scan that he thinks it's a glioma (slow growing one) which can mean all sorts, but won't know until after they've looked at a biopsy once removed.

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LoniceraJaponica · 19/10/2018 22:55

Oh no. Fingers crossed the surgery happens soon Flowers

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mummyeme · 19/10/2018 23:01

Fingers crossed for you

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7Days · 19/10/2018 23:03

Hope it works out well for you and your daughter.

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MrBirlingsAwfulWife · 19/10/2018 23:06

Oh that's really tough diege as if things weren't difficult enough! I hope they can do the op as soon as possible next week. The wait must be so difficult.
Flowers to you and your DD. I hope things go smoothly and you get a good outcome

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Peridot1 · 20/10/2018 09:29

Gosh that is so unfortunate and stressful diege.

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MerryInthechelseahotel · 20/10/2018 23:22

How awful for her and you of course. Has she to stay in hospital meantime? I hope they can operate soon and successfully 

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diege · 22/10/2018 11:10

I've just taken her back in today and waiting to hear what the plan is. Just want it done now really!

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MrBirlingsAwfulWife · 22/10/2018 13:09

Sending very positive vibes your way.
I really hope you feel that things are being done. Flowers

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MerryInthechelseahotel · 22/10/2018 18:35

How is she in herself? I hope for a swift surgery and recovery  for her. I hope you have some good support for yourself.

Let us know how she is.

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ILovePierceBrosnan · 22/10/2018 18:42

Diege I hope you get the operation done asap

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