My feed
Premium

Please
or
to access all these features

Here are some suggested organisations that offer expert advice on special needs.

SN children

lets talk about G-tubes

59 replies

needmorecoffee · 09/12/2008 17:52

dd has a PEG and the tube is at least 46 feet long. We could lassoo elephants with it. How do it keep it disceretly tugged somewhere and not dnagling loops that will catch onto everything?

OP posts:
Report
twinklingtrace2 · 12/12/2008 16:52

oh no jolyy hope she ok now

Report
Woooozle100 · 12/12/2008 23:52

Eeek jolly that sounds rough. Poor dear. Hope its sorted out now.

aw and hoping things are calming down for yr dd, nmc. Re the advice the nurse gave you - v good point - think I lost sight on fact it was a surgical procedure and new foreign body is now sticking out of open wound.

Hasn't been plain sailing here either. Community nurse coming round daily to check on the 'mushrooms' (thought it was over granulating but looked ok when they came earlier. Waiting for swab test results) And dd got the squits so dunno if she has a bug or isn't tolerating the feed so well. Have put her on polycal and water tonight

Report
Jollyjoseyjinglebells · 13/12/2008 15:52

Its probably just been trauma in her nose with a new tube going down and it has bled into her tummy....its awful and I suppose another reason to get the PEG done.

Hope everyones wounds and upsets are begining to settle down and you have good weekends x

Report
Woooozle100 · 13/12/2008 22:37

aye - does make me feel a little better about the peg. Consultant was really trying to sell us the ng tube as the no risk option (dd hasn't had ng tube for few years). Swings and roundabouts though innit? Nothing is hassle free. All the best to you and yr dd x

Report
Jollyjoseyjinglebells · 14/12/2008 12:10

DD has had hers since birth she has just turned 6months, her face is a mess, she gets blood in her tummy, the tube flies out if she is sick and it hinders her eating and she gets in a right old state when I have to put a new one in, for a quad she can really fight me.
Im sure it will be a horrible few weeks but have to keep telling myself its for the best

Hows everything going with everyone else? are things calming down any?

Report
thankyoumumnetelf1908 · 14/12/2008 21:34

My DD is 2 and has had a mickey button for just over a year. They put it straight in - no g tube (maybe 'cause she had an open nissens at the same time).

It is so so much easier than an ng tube (which she had on a constant feed for 17 hours a day and vomitied out 5 times a day!)

Report
Jollyjoseyjinglebells · 20/12/2008 20:38

PEG went in nice and safely on Thursday, they started her on dyoralight(sp)1 hour after recovery, very slowly forgot her reflux med so empty tum plus wind made them stop, when I stuck up to them they gave meds and feed, she is now feeding very well, they just want her night pump to increase tonight and she can go tomorrow. Sickness has stopped all together which is wonderful.

They also vented her straight away and then did so every hour to make her feel better. They are also venting her before each feed or med just now to make sure she is wind free. All in all very good experience.

Im having a night off tonight as the only bad thing is that place is freezing at night.

Hope all the other pegs are improving xx

Report
TotalChaos · 20/12/2008 21:41

glad it went so well with the PEG Josey, fingers crossed that it carries on to be so trouble free.

Report
glitteryb6 · 20/12/2008 22:22

great news josey! hope she gets home tomorrow!

Report
Please create an account

To comment on this thread you need to create a Mumsnet account.