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Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

Infertility

Secondary infertility

297 replies

YorkshireTeaDrinker · 19/04/2013 13:46

Am in cycle 19 TTC #2. We have a beautiful DD who took a while to conceive (managed on cycle 16, got my BFP the day before our referral appointment for fertility treatment!) so I expected it to take a while to get a second. However, time is ticking by (am 37) and I really do want DD to have a sibling, so I have been to the GP. First set of investigations have been done and and DH and I have an appointment with the GP this afternoon to get test results and hopefully a referral.

I am feeling a strange combination of emotions. I feel a bit guilty for wanting another child so much when I already have a wonderful DD. I am worried about what treatment may be necessary, how we can pay for it, even if it would be appropriate to fund trying to conceive another child when we could spend those resources on giving the child we already have the best possible start in life.

I even feel a tiny bit guilty for even posting this here, as I already have a child and should be grateful for what I have (and I am, very much). But I can't help longing for another, I get so envious of friends who have / are going on to have second children (and in some cases contemplating a third). I am a mummy, I no longer have to deal with the awful feeling of wondering if I will ever know the joy of parenthood, but every month I have the same disappointment and sense of failure when AF arrives, coupled with the anxiety that every month lost makes the potential age gap bigger.

So please tell me your good news about secondary infertility. Did you get your BFP eventually? Or did you manage to come to terms with not having another and make the most of your smaller than planned family? And if you did go down the path of intervention, what did it involve? Was it successful? Do you have any regrets?

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resipsa · 27/04/2013 21:38

Oh I could be writing any of these posts myself (save - yet - the happy ending ones). Just realised something - I had friends (all with DC the same age as my DD) round yesterday and there were 2 who couldn't make it - all also have a baby under 6 months or one on the way. At least before I had DD I could simply not meet these people, now I'm surrounded!

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Lintilla · 28/04/2013 11:38

teaandchocolate Keeping this thread going would be great. I have been lurking on various infertility and miscarriage threads for a while but just haven't felt like I could post. And I really want 3 too! I keep thinking if we could just get number 2, surely we would know what the problem is and number 3 would follow.

dietcokeandwine Thank you. DD was a drunken conception - I keep trying in the hope it will work again! You are absolutely right about grieving for the feeling like you are failing the existing child in not providing a sibling. My DD has just started asking for a baby brother and I just don't have the right answer for her. I don't know what to say.

It is hard seeing pregnant people everywhere. I am fortunate in my immediate group of friends as we all only have one at the moment, but there are plenty of babies just born or on the way in my wider group of friends and family and although I don't want their babies I would like my baby now.

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Sunnydaisy · 28/04/2013 15:20

So good to read about some success stories, really pleased that it has worked out for some of you.
At a really low ebb today after confirmation of the first iui fail. Seems to have completely thrown my cycle out too so not sure it's going to be the right answer for us. Not sure whether to try once more or just try and move on. Wish I had a crystal ball!

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Lintilla · 28/04/2013 18:33

Oh Sunnydaisy, I am so sad for you. I don't have the right words, but I am thinking of you.

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resipsa · 28/04/2013 20:02

Sunny I am sorry too. You try not to get your hopes up but it's impossible (I'm mid self-funded IVF cycle). Hope you figure out where to go next before too long.

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Sunnydaisy · 28/04/2013 21:05

Thanks Lintilla, it's so nice to know that other people can empathise and not just think that I should be happy with my lot, which of course I am.

Resipsa - I really hope your IVF cycle works out for you. Make sure you keep us updated. How are you finding it so far? If love to give IVF a go but aside from the cost, I'm not sure I'm brave enough!

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fairypangolin · 28/04/2013 21:24

Hi all- just to add a success story, I conceived DS after some trying when I was 34, we started trying again when I was 37 and after 20 months and no hint of pg, had ivf in Jan- and it worked! I'm now 16 weeks and hugely relieved. I had all the feelings you describe, trying to rationalise only having one child with my longing for a second. They couldn't find any reason why I wasn't conceiving, no problems with me or DH, and we went for ivf more because the odds were better now than if we waited another year or two and I honestly couldn't bear TTCing anymore.

So please don't give up hope!

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resipsa · 28/04/2013 21:30

Fairy congrats and great post, thanks!

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teaandchocolate · 28/04/2013 22:12

Sunnydaisy so sorry to read your news. Do you have a plan for next steps?

Thank you everyone for the positive stories they are lovely.

I am trying to stay calm and laid back about everything (not really going that well!) but at the same time I'm aware I can't afford to waste too much time. Although I don't even know what next steps would be as I am loathe to spend money on any treatment when I have a history of mc anyway.

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Sunnydaisy · 29/04/2013 17:05

Teaandchocolate - we've decide to give iui another go. Not overly hopeful but fingers crossed it's timed a bit better and will give us as good a chance as any.

Even though all the test results have come back ok, I can't help thinking there's something wrong. Guess I'm just clutching at straws hoping that they find something that could be easily fixed.

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fairypangolin · 29/04/2013 21:01

resipsa thanks and good luck in your cycle! If it works you are welcome to join us in the "pregnant ivf worriers" thread on the pregnancy page (or anyone else reading this who is going through ivf).

sunnydaisy I didn't find ivf very physically difficult, just emotionally very wearing because you have so much riding in one month's outcome. So if the iui doesn't work don't rule it out as an option. Good luck with your next try.

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resipsa · 29/04/2013 21:15

sunny I agree with fairy. When I knew nothing about IVF and it was just an abstract concept, I imagined it as lengthy and onerous but in fact on my short protocol, it started on CD2 and will be all over for me (save 2WW) by CD19 at the latest (possibly CD17). I hate needles but have managed to inject myself without a problem (doesn't hurt) and although I have had to go in for 3 scans in the last 5 days to check progress, I've just been before work so no real upheaval.

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YorkshireTeaDrinker · 30/04/2013 08:40

Hi all, just back on Mumsnet after a busy week. Really pleased to see so many responses. Thanks fairy and dietcoke for the success stories. Totally agree withteaandchocolate about not fitting on other conception threads. It feels very ungrateful to be discussing the problems of secondary infertility with those experiencing primary infertility. But there isn't really a hierarchy of suffering here, all infertility is distressing. Whether you are TTC #1, 2 or 3, being unable to do so leaves you feeling bereft.

We found it hard to conceive DD1, so we planned no gap and started TTCing as soon as my periods returned after breast feeding. In that time two of my little circle of (4) mum friends have had a second, and the other is currently pregnant. I envy them nothing other than their ability to plan. My friend who is pregnant had a planned bigger gap (will be 3 1/2 years) the others planned smaller gaps. Like many others, I keep revising my expectations of what an optimal gap is.

We have had a referral to the fertility clinic now, so am hoping we will start to get some answers soon. Am still undecided about treatment (but still saving up, just in case Wink) but will cross that bridge when we get to it. Best of luck to those of you who are already on the treatment pathway - resipsa really hope the IVF is successful this cycle. Sunny apparently the chances of IUI working grow with each subsequent cycle, I was told to plan for at least 3.

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MyFancyPants · 30/04/2013 19:42

We're in a similar boat, trying for a year now for dc2 but no luck. I went to the Drs a few months ago and was told that we'd need to have been trying for 3 years before we could be referred and that as we already have a dc we wouldn't be a priority. I managed to convince her to do the 21 days blood test, which showed that I did ovulate, so that's something.
I'm curious if those of you who have had tests done have had them on the NHS or done privately?
Its so frustrating as we've conceived twice before, both times within 3 months, so I just presumed we'd have no problems!

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dietcokeandwine · 30/04/2013 20:36

Three years myfancypants? That sounds excessive to me, we were told a year. I had my IVF done privately as no funding for secondary infertility in my PCT - as far as I know, all PCTs prioritise primary infertility and do not offer IVF funding to any couple who already have a child. But all our initial investigations (bloods, SA, ultrasound and HSG) were done via the NHS.

May I ask how old you are? I have heard of doctors telling people under 30 that they would have to wait longer, but other than that I've only heard of people being told to try for a year before asking for test referrals. If you are over 30, it might be worth trying a different doctor!

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TheFalconsmistress · 01/05/2013 13:31

This might help folk trying or not but I thought I would pop in to say I was ttc no2 for four years and I am currently 19 Weeks PG with a little girl dont give up. We had stopped trying so hard for about a year before bfp the in Dec we decided to start smegging again and used pre concieve for the first time and got bfp that month. Going by my boods no idea how it happened as I have high prolactin, high tsh levels anemic etc but it did so if can happen for me it can happen for anyone Grin

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omama · 01/05/2013 14:37

Oh ladies i'm absolutely heartbroken today Sad

Just found out out local NHS CCG (pct as was) dont even fund investigations for couples who already have a child. I knew we'd not qualify for treatment but am absolutely dumbfounded by this, i was sure we'd at least have more than the initial tests to find out why we are struggling to conceive. Dh's SA came back normal & my fsh/lh results were normal too, but my progesterone showed

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teaandchocolate · 01/05/2013 19:05

Omama so sorry to hear you're so upset. I take it you can't afford to start investigations privately? I saw a private consultant after my miscarriages and he ended up doing quite a lot (as much as he could) on the nhs in terms of tests and scans so I only really paid for the consultations and a private prescription for progesterone as my Gp wouldn't prescribe it. Could you try seeing a consultant privately to start off with? If you find a sympathetic one they might help. When I was diagnosed with pcos (& so had many of the tests and scans) I wasn't even ttc they just investigated my lack of periods so could you maybe give another slant to it? Or try saying you have abdominal pain?! That should also wangle a scan??!

Please don't give up hope yet.

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YorkshireTeaDrinker · 02/05/2013 10:37

omama which CCG? Policies will just be emerging, and you may have recourse to to the local Health and Wellbeing board. The NICE guidance is quite old now (2004) but it makes no attempt to define infertility in social terms, nor does it define between primary and secondary infertility. PCTs and now CCGs restrict access to treatment as rationing tool, based solely on funding concerns.

I would go back to you GP and ask for a referral for further investigations in secondary care to establish the cause of infertility, then you can make an informed decision about self funded treatment. The tests done in primary care are insufficient to get a proper diagnosis. Also ask to see a copy of the CCG policy and write to the CCG / local health and wellbeing board to challenge their decision.

Am angry on your behalf, the new NHS commissioning arrangements are massively over complicated, but they should include options to challenge. If you let me know the CCG I am happy to write to them.

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dufflefluffle · 02/05/2013 11:12

I conceived DD1 with barely a thought - maybe on cycle#2 I think. Three years later I thought I was ready to ttc #2 and .......it didn't happen. Eventually we went for fertility help and I think my progesterone levels were low. I was put on clomid. The first month it had no effect, the dose was doubled for the second and upped again for month 3, at that stage I was having blurred vision and other unpleasant side effects so I stopped taking it. I also hated the consultant I'd been to so didn't want to see him again so I decided to see if it wouldn't happen naturallyHmm I did get pregnant!!!!Shock but miscarried at 8 weeks. That was traumatic. We kept hoping to conceive and eventually the whole ordeal became to wearing on our lives, our marriage and our dd and like you, I thought it was unfair to be so desperately upset all the time when I had a healthy dd whom I adored. We already had an appointment set up with a new consultant for which we'd had a long wait so we went ahead with that, I was put on something (can't remember what) that I had to inject into my stomach and then had to have a scan and another injection. We gave it one month and it didn't work. The following month I got pregnant (but wasn't taking anything) and the pregnancy went very well. I felt under such pressure too to provide a sibling for DD and she does adore her brother but they also fight a lot (despite the big age difference) and I am not convinced that a child really needs a sibling in the way that I was when I was failing to concieve. I do see how lovely it is (sometimes) for them but DD has cousins and friends around and I feel that my insistance that she'd be better off with a sibling was somewhat warped.

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dufflefluffle · 02/05/2013 11:16

Omama, I live in Ireland where you pay for everything (the visit to the GP to ASK him to refer me to a gynie was ?50 - the consultant was ?150 each time - medication cost ?120 a month) it was extortionate and would have had a huge impact on our decision to stop trying. I try not to think about how much we did pay over the years. I feel for you in your frustartion and disappointment.

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omama · 02/05/2013 16:16

thanks so much for the support ladies,

teaandchoc - sadly private is out of the question Sad

duffle wow i cant imagine having to fund every step like that i suppose we should consider ourselves lucky here then.

yorkshiretea thanks for the detailed info - thats very helpful. Itdoesnt surprise me in the least its all about the money.

I dont really want to give away location in case i out myself, anyway since i posted yest, the lady i spoke to at the CCG emailed me to say after checking out the trust's policy in more detail, turns out she was wrong. i def dont qualify for ivf treatment but it does look like i should be eligible for secondary care ie further investigations & possible hormone treatment. Just what you said above & a huge huge relief.

I rang gp to contest, & turns out they have also mucked up & were referring me for infertility treatment not investigations (how on earth they think i can be referred for ivf when i havent even had any tests to find out if anything is wrong or if ivf is even needed is beyond me). Needless to say, the eligibility criteria which gp said i didnt meet dont even apply. If i hadnt checked first with CCG they'd have sent the forms in & of course i'd have been immediately rejected.

As of this morning i now have an appointment at gynae dept of local hospital next month (i assume this is what secondary care constitutes?)

And after one cockup too many i will be changing doctors. Smile

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teaandchocolate · 03/05/2013 20:56

Duffle your post is really interesting, thanks. I often think that I am much more obsessed with providing DD with a sibling than she is (well she is nearly 3 so happy with a doll for now) and that I spend too much time being sad for her rather than just enjoying the time when its just us 3. DD is so happy with me and DH and really seems to thrive on time together that I do wonder whether sharing our attention with another sibling wouldn't be as fantastic as I think it would. My mum told me that when my sister arrived when I was 3 I changed practically overnight into a very demanding child and used to constantly tell her I wanted to be an only child! She was surprised when I told her that I wanted DD to have the relationship I had with my sister as she thought I hated her until she was 18!! So many people keep telling me that the age gap doesn't matter as you are adults for so much longer than you are children and by then the age gap means nothing. I am slowly starting to believe them (well today I am, by tomorrow I may be a hormonal wreck again...!).

omama really glad things are starting to look up!! Its such an emotional rollercoaster isn't it. Hope you have a nice relaxing weekend after all that stress.

I just wondered what everyone's views were on when you should go and see a specialist. We have been properly trying again (after the 2 mc last year) since January and so far nothing's happened. I know I have pcos and a history of recurrent mc so probably shouldn't wait a year but I'm not sure when I should go and see my consultant again (would be a private appointment) or whether I should see a GP, and what they could do? I have been trying 16 months in total but have been pregnant twice in that time so not sure how it all works. I feel like I am old as even if I got pregnant this cycle I'd be 34 when I had a baby...is that old?!?!

Hope everyone else is ok and has a nice bank holiday weekend!

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resipsa · 04/05/2013 11:03

tea I had DD at 40. You are not old! Problem-free pregnancy for me too.

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resipsa · 04/05/2013 11:05

And if I were you, I'd get an opinion now. If it's on your mind enough to be here, you need to be investigated to stop you going mad.

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