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Guest post: ''Contraception is in chaos – and we need action and answers''

58 replies

NicolaDMumsnet · 09/06/2023 11:12

Kate Muir

Kate Muir is the producer of Davina McCall’s Pill Revolution, and the maker of two menopause documentaries for Channel 4. She is a campaigner on women’s health, and is researching a book, Everything You Need to Know About the Pill (but were too afraid to ask), out next January.

Contraception is in chaos in the UK. Women are coming off the pill in droves, and turning to high-risk cycle-tracking apps for birth control – with mixed results. Meanwhile, waiting lists for the coil are a crazed postcode lottery, as women queue for appointments for over a year in parts of Northern Ireland and Devon, and six months in some rural areas. Pills are free from doctors, plus the progesterone-only pill is available over the counter in pharmacies, but that is clearly not providing women with the contraception they really want. Unplanned pregnancies are rocketing, and the abortion rate is at its highest ever in England since the 1967 act came in. What’s going wrong?

I started investigating contraception after my student daughter became depressed for months on the combined progestin and estrogen pill, Microgynon. That and Rigevidon are the bog-standard, older, cheaper pills often used by the NHS. We all thought lockdown was making my daughter depressed – and then she came off the pill and her mood improved within weeks. A month later, her world had gone from black and white into colour again.

I was annoyed with myself for not linking mood to hormones – after all, I’d researched two films and a book on menopause. It took me a while to remember I, too, had been on Microgynon as a student for a few years, and it made me feel a bit flat. I also realised after I stopped Microgynon that it had lowered my libido. Yet here we were, over thirty years later, still using the same old pills made from synthetic hormones. Why hadn’t they improved? Why weren’t women being given contraceptive pills with better body-identical hormones like the ones for HRT in menopause? Why was no-one taking the side-effects seriously? 

We commissioned a UK survey of 4,000 diverse women for the Davina McCall The Pill Revolution documentary, and discovered that women felt they had been gaslighted for years about the pill – 77% said they had suffered side effects, and a third had come off the pill because of anxiety or depression. And 21% had lowered libido. Overall, 57% said they were worried about the possible effects of hormonal contraception on their mental health. And half of those who had considered the coil were scared to get it because they feared pain on fitting.

There was one more problem: younger women were getting fed stories on TikTok that sometimes exaggerated the risks of hormonal contraception. Meanwhile, the Natural Cycles app – which gives ‘green’ and ‘red’ days for having sex, depending on dates and temperature - was endorsed by Love Islanders and influencers, but has a 7% failure rate in typical use.

It’s clear we all need to take action. Years of cuts to local authority sexual health and reproduction clinics have meant longer waiting lists, and we know doctor’s appointments can be as rare as hen’s teeth. GPs no longer seem to have time or incentives to do coil fittings, which take longer than a ten-minute appointment, and the training to fit coils needs to be regularly updated at their own expense. The government says the new plans for Women’s Health Hubs will help – but the £25 million works out at less than a pound per fertile woman.


So what needs to be done?

Access: cut waiting lists for coils. Hormonal coils are 99% effective, last for over five years, lessen periods and the new smaller ones like the Kyleena and Jaydess can more easily be fitted in women who haven’t had children. The copper coil is also a good choice for women who want to avoid hormones. GPs have to pay for training in coil fitting

Choice: allow better choices of contraceptive pills. Women should be encouraged to change their pill and not soldier on for months with side effects. Each progestin has different effects, and some are more expensive, so NHS regulations make it hard to prescribe the new, better-tolerated combined pills with body-identical estrogen like Zoely, Qlaira and Drovelis, because they cost up to £8 a month compared to £1 for the bog-standard synthetic pills. Women should also be taught which pills are estrogenic or androgenic in their effect. It’s not one pill fits all.

Education: schools need to deepen contraceptive knowledge. Schools need to teach contraception in depth, and make sure every teenager knows to double fact-check anything they read on Tiktok.

Safety: read the small print on cycle-tracking apps. Women are keen to avoid putting synthetic hormones into their bodies, and the Natural Cycles app is 98% effective with ‘perfect’ use, but has a 7% failure rate with ‘typical’ use.

Fast-track research: there’s a male testosterone-progestin contraceptive gel being trialled in the UK now, with good initial results. There’s a melt-away gel vasectomy being tested in Australia, and a new non-hormonal sperm-barrier cervical gel is going to human trials in the USA next year. Governments and pharmaceutical companies need to fast-track this research – after all, women have had the pill for 60 years, and men have had nothing but condoms and vasectomies. It’s time they shared the birth control burden.


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Watch Davina McCall's Pill Revolution here.

Twitter: @muirkate

Guest post: ''Contraception is in chaos – and we need action and answers''
OP posts:
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Plankingplanks · 09/06/2023 11:22

I'd love for there to be better education around the pill. I was on a different progesterone only one for a few months and it turned me into a jibbering wreck. My neighbour pointed out the link between the pill and how I was feeling. When I went back to the GP to ask to go back to my old one the male GP acted as if I was crazy.

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Rumplestiltz · 09/06/2023 14:46

I would have loved this programme to explore the real issues holding back research. There is no reason why we could not develop a once monthly pill or a pill a woman only used if she missed her period but the active substance would have to be mifepristone and as an abortifacient, abortion laws and regulation stand in its way. We need to ask ourselves why - when even a woman having regular sex wouldn’t conceive every month, women are compelled to be on permanent contraception when we could create methods only used if she is actually at risk of pregnancy. Look up contragestives and mifepristone and you will see the work that is being done on this - far more promising than the male options.

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NancyJoan · 09/06/2023 17:28

It’s utterly ridiculous. My 17 yr old daughter wanted to have the implant last month. Both the GP and the teen sexual health clinic had wait lists of 14 weeks plus. This is in a major city.

Blows my mind that she has done her research, is trying to do the right thing, be medically responsible, and only option locally is for a private appointment for £350.

In fact, we went out of area, lied about our address and were in and out of the rural drop-in teen clinic in 30 minutes.

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WakeMeUpWhenGoodOmensIsBack · 09/06/2023 17:45

I had no idea about the coil waiting lists. That is madness.

One very simple change I'd suggest is to move from talking about effectiveness rates to talking about failure rates. A lot of people have pretty poor numeracy rates, and might look at two methods with 98% and 99.5% effectiveness rates as being both "really high, pretty much perfect". Changing that to one in fifty getting pregnant vs one in two hundred is probably a better way to clarify the risks.

Mind you I've seen posters on MN assuming that the failure rates are expressed per shag before now. So more education definitely needed.

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Mrsmozza123 · 09/06/2023 17:54

The wait list to have the coil removed was maddening for me. I was 36 and wanted to get pregnant yet I had to get a doctor to agree I could have it removed and refer me before I could join the waiting list.
The whole reason I had it was that my fertility would be quicker to bounce back.

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ScrollingLeaves · 12/06/2023 11:31

plus the progesterone-only pill

OP, isn’t this progestin (the synthetic hormone) rather than progesterone?

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P3N · 13/06/2023 06:54

It took me a month to request and have my coil fitted. My friend (same area, different doctors) is still waiting for hers and she's on month 3.
I have tried almost every hormonal based contraceptive and this is my last attempt before ablation.

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Richvanilla · 13/06/2023 19:59

How about actual pain relief for coil insertion? Not a medical professional but why not a local anesthetic, or those breathy masks you used to get at the dentist at least. It's barbaric that you aren't given anything for such an invasive procedure. More women would be inclined to get the non hormonal coil if this were the case I would bet.

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Greenfinch7 · 14/06/2023 05:20

The cervical cap,, if used correctly, is very effective. Young people don't even know about the option of barrier methods other than condoms, which I think is criminal.

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Yerroblemom1923 · 14/06/2023 17:01

I wasn't aware of any crisis. I have an implant. It lasts 3 years, it's great. Prior to that I took a pill every day. That was great too.
I didn't know women were struggling to access contraception. Assumed it was just like it always had been and you went to the doctor, requested it and prescription given.

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StopMindlesslyScrolling · 14/06/2023 17:36

I think there's still too much reliance on women to carry the contraceptive burden.

Should we not be teaching our daughters that cycle tracking COMBINED with condom-wearing EVERY time is much more effective than a single form of contraception?

Equally, men should be brought up to expect to wear a condom every time they have sex unless they are attempting to conceive, as well as given a better understanding of how women's monthly cycles work so they too can learn to avoid the fertile period (whilst in a relationship, obviously this would be tricky for a ONS or similar).

Why is the default option women messing with their hormones?

Men who have decided not to have any (more) children should be encouraged to get a vasectomy and heavier burdens should be placed on men who impregnate women to be responsible for the resulting child.

We all know CMS is a joke and that a "single dad" practically gets a fanfare every time he does the school run, but a single mum is still seen as a burden on society by many ignorants.

A change in societal attitudes might encourage men to look at their own contraceptive responsibility. A pipe dream, I know.

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WakeMeUpWhenGoodOmensIsBack · 14/06/2023 19:53

Greenfinch7 · 14/06/2023 05:20

The cervical cap,, if used correctly, is very effective. Young people don't even know about the option of barrier methods other than condoms, which I think is criminal.

You see that "very effective" is exactly what I'm complaining about upthread.

If a GP sees one hundred intelligent, sober, competent women in good relationships, who never make any mistakes, and arranges for them to all use a diaphragm for contraception then about five of them will probably come back at some point during the year in search of an abortion - or reluctantly seeking care for a pregnancy they didn't want.

If she prescribes those same women a hormonal IUD then most likely none of them will need abortions.

If she arranges a diaphragm for one hundred random women patients, who might have memory problems, or ADHD, or mild learning disabilities, or have an alcohol problem, or god forbid be in abusive relationships, or just get something wrong sometimes like we all do, then ten or fifteen of them will probably come back in search of abortions that year.

If she arranges an IUD for those one hundred random women with the normal range of flaws and issues, then probably none of them will require abortions.

I wouldn't want to downplay the experience of women who have had genuine problems with Mirena, but don't underestimate the impact of unwanted pregnancies.

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AnneWhittle · 14/06/2023 20:19

Greenfinch7 · 14/06/2023 05:20

The cervical cap,, if used correctly, is very effective. Young people don't even know about the option of barrier methods other than condoms, which I think is criminal.

exactly
for some women this is an ideal method- non invasive and only used when necessary- but as far as I can gather its not available these days- what about some choice???

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JamSandle · 14/06/2023 20:36

Unless you have a latex allergy, I really think Condoms are the best option.

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Catsanfan · 19/06/2023 15:55

I know this isn't an option financially for everyone, but I buy the Hana pill

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TheShellBeach · 19/06/2023 16:02

Greenfinch7 · 14/06/2023 05:20

The cervical cap,, if used correctly, is very effective. Young people don't even know about the option of barrier methods other than condoms, which I think is criminal.

This is so true.
I used the cap throughout my childbearing years and never got pregnant accidentally.
I used spermicide gel with it.
Barrier methods never seem to be discussed nowadays.

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Daftmum47 · 19/06/2023 22:14

Interesting debate.

Microgynon was fine for me - in fact my PMT was so bad that I used the contraceptive pill more as an anti-depressant than for contraception.

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SirSamVimesCityWatch · 19/06/2023 22:21

Condoms are really effective. They don't fuck up women's health. We should be putting a much greater emphasis on men's responsibility to wear a condom.

Pregnancy isn't the only issue. STD rates are climbing. Syphilis is making a comeback, for fuck's sake!

The "it's ok, I'm on the pill / have a coil / have an implant" (or, "she's on the pill..." etc) mentality is a huge, huge problem.

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ScrollingLeaves · 19/06/2023 22:35

“Are you on the pill?” said by men is such a loaded assumption.

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Pleasemrstweedie · 20/06/2023 16:17

I spent seven years on Microgynon, seven long years where I was mostly too depressed to have a life, and sometimes to work. Not one single doctor, at GP or consultant level, including a gyno and a psychiatrist, made the connection between the way I felt and the fact that I was on the combined Pill.

I was so distanced from reality that I married someone I should never have married and, after that fell apart, I married someone else who, it turns out, I did not even like. I only realised that when I came off the Pill voluntarily and my entire outlook on life changed within two weeks.

I had a cap then until I was ready to get pregnant and then went back to it again after the birth, very successfully. A bit of a faff, but otherwise ideal. Then I had another baby and at my six week check the GP put me on the mini Pill. This was because my periods came back at 4 weeks PP and he said I wouldn't want to be bothered by periods while I was EBF. I tried the mini Pill, but unfortunately it had the same effect on my mood (it seems progesterone is the culprit) and also l
bled solidly for three months, so I stopped it.

We used condoms for a while, until one split, so I went and got a copper coil and stuck with that as a method of contraception until the end of my fertile years.

I think contraception should be readily available and that it is not equitable for women to take this heavy hormonal load for thirty years of their lives, give or take.

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JenniferBooth · 20/06/2023 21:57

JenniferBooth · Yesterday 13:49
Im 50 and really want to stop taking the Mini Pill. I had a few breakthrough bleeds last year. Cant remember when my last period was but the thing is i have no idea if they have naturally stopped or the Mini Pill has stopped them. A dilemma i wouldnt now have if i had been sterilised when i asked for it 25 years ago 20 years ago 15 years ago etc etc. So i cant risk coming off it in case im still producing ovum but i could be taking it needlessly. Its ridiculous. I also buy the Hana pill. Im child free by choice but was constantly refused sterilisation. Ive been on the combined pills Femodene and Logynon Then Norplant the first implant then Depo Provera injection. These are between the ages of 16 and 35 Am now on Mini Pill.

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ScrollingLeaves · 20/06/2023 22:00

(it seems progesterone is the culprit)
It isn’t real progesterone, is it? So that may be why.

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Middlelanehogger · 20/06/2023 22:13

So happy this is being discussed, thank you Kate for your work on the doc.

I had a hormonal implant for years and felt flat, low libido etc but assumed it was just life. Before that was the pill. 80% of my 20s thrown away on feeling blah.

Not on anything at the moment and perfectly happy, in touch with my body, chose a man I felt genuinely sexually drawn to, never going on hormones ever again.

I use cycle tracking now with partner as a pregnancy wouldn't be the end of the world. I think people discount it, contraception has to be either all or nothing, but there are several contexts where you might just want to space out kids a bit for example but wouldn't mind a pregnancy if it happened by accident, where it helps to be aware of cycles. I think the all or nothing language means women don't bother to learn about cycles and retain vague memories from GCSE biology lessons about how you get pregnant if a boy breathes on you...

Used condoms before this relationship when I was dating and not being on the pill was honestly a good filter in itself.

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