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General health

Pt 7 (Feb13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

994 replies

WhoKnowsWhereTheTimeGoes · 20/02/2013 19:05

This is thread 7 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - the previous thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

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WhoKnowsWhereTheTimeGoes · 01/03/2013 09:07

Loves you are very unlikely to be offered surgery you don't need, I can't remember what your issues were but if you think the pessary would help and aren't ready fir surgery you probably need a referral to the women's health physio in the first instance.

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NurseryNetty · 01/03/2013 10:01

LovesBeingWoken - Whatever happens, don't let them fob you off. I first presented at the docs in 2008 with a feeling of 'not being right' and having a significant amount of vaginal wind. I was examined lying down (why, oh why, oh why aren't doctors aware that this can make prolapse symptoms disappear?!) by a young female doctor who told me I was a bit slack, do a few PFEs and basically go away. If I had been referred for physio then, I might have been OK. 2 years later my symptoms were worsening and I was referred for physio. Too little, too late I fear because unless I did hours of PFEs then as soon as I'd done a week at work I was back to square one. Was ok in the school hols when I could rest up. It was only when I was at occupational health last year that the nurse said I should go back to the docs. I was referred to a consultant who asked if I was still sexually active (hahah, with advanced prolapse Wink). She said I was too young to put up with this, and needed surgery.
NHS managed to mess up my waiting times, and 34 weeks after seeing my GP, I had my op. In the intervening months the prolapse got significantly worse, with a bulge constantly there.
I think you have to be firm because a lot of these doctors don't rate the seriousness (physical and emotional) of the condition.

On the upside, ladies - I feel a little less squishy and like everything is falling out again now after almost 6 weeks cystocele repair.

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NurseryNetty · 01/03/2013 10:05

multi - Good luck with seeing work. I told my line manager I didn't think I was recovering as well as I'd hoped last week, to prepare her. She was quite concerned for my welfare. My doc was very good, wrote an extended line without question and told me she would extend it again if I still didn't feel ready to return to work.

We have a big holiday coming up at Easter to NY so I need to be fighting fit!!!

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NurseryNetty · 01/03/2013 10:08

multi (again!) Just reading back on your post I missed. I was at uni for a day on Saturday and had to do lots of sitting - it was not good and my tutor said she could see the colour drain from my face on several occasions.
If you work in a school, think about what will happen if you react suddenly and instinctively to something (child falling/needing first aid/an altercation) and do yourself a damage....

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LovesBeingWokenEveryNight · 01/03/2013 10:22

Thanks ladies. Well basically he said he is happy to operate however if I feel my symptoms don't outweigh the risks then he is happy to refer me to the specialist physio to see if it can be improved. The ring wouldn't be suitable.

I'm happy with that for now.

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LovesBeingWokenEveryNight · 01/03/2013 10:23

Oh and it was a relief to not only have it confirmed but to see a doc who seemed to really understand and I feel comfortable that if I change my mind in the future the option is there.

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Footle · 01/03/2013 10:32

This reply has been deleted

Message withdrawn at poster's request.

cardamomginger · 01/03/2013 11:16

A few thoughts about the value of physio, even if it's not enough to solve the problem. My prolapses and other injuries were never going to be solved by physio alone, and I've now had 3 operations. However, throughout I still saw a physio and worked to improve my pelvic floor strength. I made considerable progress in terms of muscle strength, although it was never enough to cure the prolapse or the symptoms I was experiencing. My surgeon, the physio and I felt that it was still worth persisting with physio (in my case this was a combination of gentle deep abdominal pilates-type exercises, PFEs, and an electronic stimulator) because we felt getting the muscles as strong as possible in the run up to surgery was no bad thing, both from the point of view of the actual surgery itself, and post surgery recovery and rehabilitation. As much as anything improving the blood flow to the area, by getting the muscles exercised and working, might help with healing.
From my point of view and in my experience, it is still worth doing, even if you are headed for surgery.

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WhoKnowsWhereTheTimeGoes · 01/03/2013 11:37

Slinkychick - are you around? I saw your post last week and meant to reply but forgot, sorry. How are you feeling now? Any improvement in your symptoms?

I've just got back from the physio. She says there doesn't seem to be any alteration in the cystocele and that I have fairly good strength in the PF muscles, she has given me some more tailored exercises to do and general lifestyle advice plus another appointment in a couple of months. She thinks the discomfort I am feeling at the moment is probably due to a bit of scar tissue from the rectocele reapir but there isn't much that can be done about that, I will have to see how it goes. It is something I could ask to have tweaked a bit if I did have another surgical repair at some point I suppose. As for having the cystocele repaired, she felt that a good exercise and lifestyle regime could hold that off for the time being, especially if I lose some weight, which I am trying to do and that it is a good idea not to have two lots of surgery too close together in time anyway.

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LovesBeingWokenEveryNight · 01/03/2013 12:06

Goods news then whoknows. It was the potential issues from scar tissues (and potiental bowel issues) he was concerned about.

I certainly hope it is true that the option will be there.

Btw is it normal to feel some discomfort now following an exam?

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consideringalloptions · 01/03/2013 13:30

Just want to say thank you for those of you who have shared your thoughts for me. I really appreciate it and after reading them, I am probably leaning towards having another baby before any major surgery, but this is before I've seen another gynae to see what they suggest.

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Bladderific · 01/03/2013 18:32

Whoknows that sounds like a really positive appointment for you, thank you for updating it has inspired me to book an appointment with the physio to make sure that I look after these repairs

NurseNetty glad that you are on the mend and signed off to give yourself time to heal.

Cardamon this really is quite a journey that you are on x

Loves internal exams leave me both uncomfortable and seen to upset my cycle. I hope that your physio appointment comes through soon and helps you.

considering a second opinion is always good and good luck with ttc

Footle the NHS do seem to be continually moving the bar for this type of treatment which is awful given how much it affects our lives.

Feeling much relieved having seen my consultant, all healing well and he has signed me off work for another two weeks as well as re-assuring me that it is normal for it to take up to 6 weeks to recover from this type of surgery, I thought that I was just being crap Blush

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LovesBeingWokenEveryNight · 01/03/2013 19:51

Thanks Bladderific it's like symptoms have been trigger Sad fingers crossed they wear off soon

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Tr0ubled · 02/03/2013 05:19

Can't believe I'm writing here instead of sleeping. I'm now around 8hrs post op and since about 2am have only been able to doze but no good sleep. Did anyone else experience this?
Not doing too badly pain wise at this stage although have just asked for more as there's a dull ache coming on and I want to keep on top of it.

Welcome to all those that are new, sorry you've found yourselves here but hopefully you will get lots of help and support by being here.

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surewoman · 02/03/2013 09:08

Troubled - sending big hugs and healing vibes your way xxx

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WhoKnowsWhereTheTimeGoes · 02/03/2013 10:00

Troubled - yes, I didn't sleep well in hospital, I had to lie on my back which I never normally do, every time I felt as though I had just snoozed off the nurses appeared to make observations, also there was an emergency admission in my ward at about 3am which I might have slept through if I had been properly asleep in the first place but as I was only dozing it didn't help.

I seem to remember finally having a sound bit of sleep between the 6am round and breakfast though, hope you managed a bit too.

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Yellowhorse · 02/03/2013 12:55

Just a update for anyone who is interested. 6 weeks post bladder,bowel and vagina all being sorted. Had review with consultant who is happy with things, said the stitches won't dissolve for another 6-10 weeks, so although i Can start to do more, must still be careful and no heavy lifting.
Signed off work four more weeks. Have hectic job, where you rarely sit still,and can be lifting. Do not feel ready to return yet,mostly Cos the problem with sitting,but tiredness too.
In myself am ok, but as i said, i still can't sit down too long, am best on sofa with legs up. Am walking for about an hour in total most days along with pottering about. Have horses so been taking the fresh air in, while gently brushing them. Pottering on yard, just started to lift feed buckets into them, but nothing too heavy. Not doing water or beds.Get tired quickly, and the dragging comes back if I am not careful and do too much.
Can't wait to ride again, but surgeon said to wait till stitches come away, although there is no way I could sit on a saddle yet anyway, so no danger of wanting to get on board yet!
Good to hear most people are having god recovery,but thinking of those who are struggling,especially to get appropriate help in first place.

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Tr0ubled · 02/03/2013 16:23

Yellow horse, overall sounds like a positive appointment although it amazes me that the literature tends to be we'll be fully healed by 6 weeks yet as this board only goes to show, it's much longer than that.

I still haven't managed much sleep so the nurse has said she'll give me some diazepam tonight. Overall I feel so much better than I thought I would however that may be cos all I'm doing is lying in a hospital bed. The physio made me get up and sit in a chair this morning and after about 5 minutes I was in proper pain so asked to go back to the bed. My pack is out now too so that has made things more comfortable.

Sorry for all the information but no one else would really understand!

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cardamomginger · 02/03/2013 19:06

Hi Tr0ubled! Nope - I never sleep the night I've had a general. I end up watching crap TV into the wee small hours. I'm really pleased the nurse suggested a sleeping pill - I was about to suggest the same! It's great. It should give you 6-7 hours sleep.
Hope the pain eases for you. This bit sucks majorly. How's your back doing?
XX

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Tr0ubled · 02/03/2013 19:51

Hi Cardamom
Back is good thanks, I was really nervous the spasms would come back but so far so good. I saw the osteopath for a session a few hours before my op and he has suggested going back in a few weeks and having cranial work.
I'm so surprised about the sleeping as had thought the GA would just knock me out, it's comforting to know I'm not alone!
I've just had my little kiddies visit and they were fascinated at mummy's wee in a bag next to the bed! Ah the glamour! x

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LovesBeingWokenEveryNight · 02/03/2013 22:40

Fingers crossed for a good night.

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Yellowhorse · 02/03/2013 22:52

Hi troubled.
I also didn't sleep after the GA,and my op was 6.30pm! I hada nurse come in and chat much of the night. However,i was in a private hospital,and she thought it was to do with pain,even though I didn't have any! I felt I only needed paracetamol,and so hadnt pressed my morphine pump.in the end,she whacked Aload of Iv morphine in me and I did sleep. She also said not to suffer even a twinge,as pain produces adrenalin,and that slows the healing.
I also had a cushion to take in with me,and 6weeks on it still is my best friend and goes everywhere with me,it really helps the buttock pain! I got a piles one,with the hole in middle,like a Polo! But,any cushion may help with sitting,lying or generally being more comfy.
Hope you get the catheter out,mine was out within 16 hours. Even after such a relatively short time,my badder had gone on strike,and peeing was very un natural! Possibly cos bladder had been hitched up too,was in a position it wasnt used to!
Wishing you a speedy recovery.

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LovesBeingWokenEveryNight · 03/03/2013 07:52

Yellowhorse. That's interested about the cushion I thought it would have put pressure on the the area by not being supported.

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multimum4 · 03/03/2013 14:31

nettyWent into work and it was lovely to see everyone especially my class who were very excited to see me but now assume I must be back permanently (bless!) Talked to my line manager and have now organised to work part time till Easter starting back in just less than 2 weeks but only 2 hours a day to start. Have put off the parents evenings till after Easter. Feel so much better in my mind for having sorted it.

In hospital I didn't sleep the first night at all and by the second night was desperate and had to ask for a sedative. Got my DH to bring in a pillow from home which was so much comfier than the hospital ones and smelt homey too. Had a good night's sleep after that even with the catheter in and ankle cuffs on!

Weighed myself today OMG! Don't normally put on weight but I have from sitting around eating comfort food and doing no proper excercise. Should have eaten smaller portions whilst recouperating. Oops!

Have a spa session booked for next week as I was given some vouchers for my birthday and thought it might cheer me up. It involves a massage though... Has anyone had one post op? ( I will be 6 weeks next week)

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Tr0ubled · 03/03/2013 19:28

Apologies in advance for the gross question but how long did it take those that are post op to open their bowels? My stomach is getting bigger and bigger and despite movicol and prune juice nothing is shifting and I'm getting so scared of the pain to come when it eventually happens.

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