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General health

Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 7

1000 replies

gottagetthroughthis · 19/10/2012 00:38

This is thread 7 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2
Thread 3
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

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surewoman · 30/10/2012 17:40

Misty - thanks so much for sharing that info! It has really cheered me up and convinced me that I need to 'get out there' and look for a new man!!!! Lol! No need to be ashamed and embarrassed anymore as no more bulges where there shouldn't be - maybe in time for Christmas!!! Grin xxx

Stepaway - I had a really bad pain inside my right hip/buttock that was really crippling at times, so much so that I couldn't get in and out of the car (I'm also quite sporty) but after having the enterocele repair it went away completely. A friend suggested that maybe it had been down to driving the kids around, but I still do that and it hasn't reappeared so I am sure it was related. It was particularly bad at night and I was having to take iboprofen just to dull the pain enough to get to sleep. With the enterocele, I had a very tender spot in my abdomen as well, which I assume was where the hole was down which the guts were falling. Don't know if any of this helps put your mind at ease in any way. XXXXX

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mistyviolet · 30/10/2012 18:40

Sure I'm happy to share. I was really worried myself that things would be different and not in a good way. I'm glad all is well and that I have cheered you up. You definitely need to get out there and put your 'designer vagina' to good use Grin xx

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surewoman · 30/10/2012 23:56

Misty - can you imagine the scenario.... New man, new vagina and me saying, "Ooooh, sorry, I'm a sort of virgin, although I have had three kids!!!" LOL BlushGrin xxxx A bit scary!!!

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bubbles1231 · 31/10/2012 00:17

I had cystocele rpair, rectocele repair, manchester (fothergill) repair and perineal reconstruction all done together 7 years ago (no mesh). I'm 43 and had 2 very quick vaginal deliveries (failure to suture me after first delivery followed by a heavy second baby compounded the problems)
The manchester repair which is considered old fashioned has been the biggest success. The cysocele and recocele have come back. I have no symptoms and a good sex life. I'm not planning futher sugery at present as I feel the risks (incontinence,painful sex ) outweigh the benefit.
My original consultant stressed the it was important for me NOT to have a hysterectomy as I could end up with vault prolapse in the future. He was one of the few people who made sense. (I was reduced to tears by another who told me that women who didn't consent to a hysterectomy for prolapse had an emotional attachment to their uterus.)
To those who just have the bulge please, please do your research. Choose your consultant carefully. Ask for referral to a pelvic floor physio first (this wasn't available in our area til recently) I have an appt for it in a fortnight.
The HAB-IT DVD is great, as is the kegel 8 machine, but I've asked for pelvic floor phisio as I want to be sure I'm doing the exercises correctly.

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bubbles1231 · 31/10/2012 00:18

Oh, and for those having surgery, double the advised recovery time for a realistiic idea of hoe long it will take for you to be truly on the mend

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WhodveThought · 31/10/2012 00:24

Bubbles, when you say 'to those who have only got the bulge' do you mean a bulge from a uterine prolapse or any sort of prolapse? I am a bit confused.

Physio is not a viable option for some sorts of prolapses or similar injuries and I just wondered what you mean?

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bubbles1231 · 31/10/2012 00:33

I have an anterior bulge within my vagina (cystocele) but it doesn't hang out or anything. It's classed as a grade2. The rectocele is a grade 1, and a high fibre diet keeps that pretty much symptom free. The manchester repair fixed my uterine problems. I know that physio won't make it go away but hopefully it will slow the progression.
I understand now that it is rare for these repairs to be truly permanent. I think given the severity of my problems 7 years is pretty good . The research tends to follow up cases for a couple of years and call it a success. I think that with each subsequent surgery there is less chance of a favourable outcome due to the scar tissue. I'm very lucky to never have had incontinence issues.
I also don't want to jeopardise the sex life!

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WhodveThought · 31/10/2012 00:38

Gotcha. Yeah, the incontinence effing sucks. I can understand not wanting more surgery because it inevitably means more scar tissue. I am VERY nervous about what this next surgery will do to my sex life. I have a lot of scar tissue already. But...leaving it alone is not an option for me. I am just really hoping that the surgery is successful and lasts a long time so I don't need to suffer more people staring at me and into me!

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bubbles1231 · 31/10/2012 00:42

All the dignity goes out of the window doesn't it? At least we can talk about it openly. In the past woment just suffered in silence.

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mistyviolet · 31/10/2012 08:12

Sure Any new man that you meet should feel proud and priviledged if you let him 'pop your cherry' Wink xx

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surewoman · 31/10/2012 12:36

Now there's a thought!!!! Actually just joined a dating site!! Help, here goes!!! (gulp) X

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mistyviolet · 31/10/2012 15:55

Excellent. I hope all goes well for you xx

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gussiegrips · 31/10/2012 21:32

You guys seen the featured blogger on mumsnet front page today?

Very Fahabulas account of urodynamic testing. Brilliant and worth a read and then a small round of applause for her honesty.

x

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jan310 · 01/11/2012 13:36

I have had my ring pessary in for three weeks exactly now. I have a cystocele, rectocele enterocele and uterine prolapse - yay!! The pessary offered instant relief and stopped me feeling that at any moment my insides might come tumbling out. The first week was a bit sore, but probably due to the examination, Vagifem and constipation. As time goes on it is getting better and better. I am swimming now and going on the gym bike and cross trainer. I have given up jogging Sad and playing the trumpet Sad. Of course I now worry that the pessary is going to fall out. But having said that I now have times when I even forget about this whole horrible prolapse business.
Hope that helps anyone who is considering a pessary. By the way, mine does not come out (officially) for six months!!

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gottagetthroughthis · 01/11/2012 23:08

jan - hate to ask this again but could you have sex with the ring pessary you have - i can't obviously ask this to my physio but that's why I love this thread.
Do you think I could cycle with this pessary?Blush

Sure - Go for it girl fingers crossed for you Grin

Fen - where are you hope you are ok x

it's just when your following this thread for so long it feels odd when someones not here for a while -

Bubbles - than you for being so honest - as we get older too there is a tendency to try all other options (not your age cos you sre young but at 52 and 5 years of no periods things start to change (unfortunately))
However as Footle mentioned some time ago "Sylk" or my physio says there is an even better one called "yes, Yes, Yes" (if only) and it makes things much much better Wink

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Mandz07 · 02/11/2012 01:01

I am so glad i found mnet only joined last month and already so many people have helped me. I have not spoken to anyone who has suffered this before. i attended hospital in dec 11 after a year of going to my gp in constant agony, none of the gps could tell me what was wrong. i asked to be refered to a specialist. after 3 months was sent to hospital and before even being examined he told me i had a Rectocele was examined and this was confirmed, was then told I would have to have further test to investigate the extent of the damage and that they would then need to operate. my last test was done in feb of this year and since then I have had no other appointment. I received a letter through giving me a date in jan for an appointment with the specialist. I am hoping that then I will get the op as I don't know how much longer I can put up with the pain. So I was wondering how long anyone else suffering from this had to wait & if the op worked? Sorry for going on I have just never been able to get advice on it before xxx

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surewoman · 02/11/2012 10:25

Mandz - sorry to hear you are having problems. While you are waiting for an op/to get seen again, I would suggest getting some lactulose from the chemist and taking that every morning (about 10 ml). It is harmless and softens your stools (as long as you drink lots of water during the day), making them easier to come out and that might ease your pain a bit. I had a rectocele repaired and it has alleviated all my symptoms with regard to pooing! Hang around on this site and you will find everyone really kind, helpful and above all, in the same predicament as you Smile
Take care x

Fen - hope you have gone away for a half-term holiday??

Roseanna - how are you?

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Mandz07 · 02/11/2012 11:49

Hi sure,

Thanks for getting back to me, I do take lactulose already, (yuck) that doesn't help very much Sad. I also take laxative tablets prescribed by the doc, laxido drinks ( dbl yuck) every day and still only go once or twice a month Sad

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jan310 · 02/11/2012 11:49

gotta - I am sorry I just don't know about sex and the pessary, because I haven't tried. I am sure this is a question that health professionals get asked all the time so I wouldn't worry about asking someone. As the ring pessary holds everything in place you can more or less carry on a normal life, as I said I am not going to jog anymore, but I do go cycling and swimming.

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Footle · 02/11/2012 13:36

This reply has been deleted

Message withdrawn at poster's request.

surewoman · 02/11/2012 15:17

Mandz - If you are already taking all of that, and are still suffering so much, I would get a bit more confrontational and insist on seeing the specialist asap. January is still a long way off and I don't see why, if you ring his/her secretary you can't get seen sooner, preferably this month. Maybe you are at the bottom of the pile so to speak in case your symptoms disappear??
Good luck x

Gotta - I had heard that with pessaries you could have sex - maybe try it and see what happens??? It surely wouldn't do you/him any harm as they are not scratchy and I guess would be similar to having a diaphram (sp?) in, which are designed for sex! xxx

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tinkxx65 · 02/11/2012 16:55

Mandz - as far as I can make out regarding waiting times for an operation it should be 18 weeks. The information on the website states that the clocks starts ticking when the hospital receive the letter from the doctor and ends with the operation and that all investigations should be inbetween. It is all bollocks though, I will be having my operation 42 weeks after first being referred. But I do think you can complain to PALS, and I think if I read it right they have a few weeks to get things sorted and if not then you have the right to be seen where ever you want and they have to pay. But like Sure said, get mad (easier said than done I know) and/or upset and demand to be seen and demand some answers.

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tinkxx65 · 02/11/2012 20:38

Ignore the bit where I said they will pay, that only applies if your operation is cancelled on the day and if they fail to get you back in within 28 days.

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fengirl1 · 02/11/2012 20:55

Hello ladies, I am still here! The dds have been home for two weeks and I?ve been feeling a bit under the weather and rather fed up ? last week I had two days of feeling faint and sick for no reason that I can fathom, I?ve had a crampy upset stomach and my stitches are pulling like mad (and a varicose vein on my vulva has decided to get in on the action by bleeding and hurting too) so I didn?t have anything cheery to say ? sorry.
Mandz, please do phone the consultant?s secretary and tell them how this is all affecting you. You can also go back to see your gp and tell them too ? they can send a letter asking for things to be expedited (speeded up) for you. The 18 week rule sadly only comes into play once you have seen the consultant and they have decided you need treatment (!). This could potentially take you to May of next year which from what you?ve said is far too long to get some help. I?m sorry to hear of your constipation issues ? several of us on here have experienced the ?u-bend? problem which means you can only ?go? when something?s come round the bend. Keep going with what you?re doing and maybe try to get some extra fibre into the mix ? I could only have a BM if there was enough pressure to move things through iyswim. I?m pleased to report that since my rectocele repair I?ve gone every day except three Smile. Worth it all in the end.
Sure, I?m shaking the pompoms on the sideline for you! Grin
Gotta, I have a leaflet about ring pessaries (never had a pessary, but it had the nurse?s phone number on it)?. It says helpfully ?sexual intercourse is possible? so I can only suggest you give it a go. Smile

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surewoman · 03/11/2012 00:18

Fen - hurry up and join me!!!! xxxx Grin

(ps sorry to hear you've been feeling under the weather and Sad) There have been a couple of bugs going round schools - upset stomach etc. and another with a sore throat and nasty cough. Could have had a mild dose of those?? Hope you feel better soon x

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