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I am parent with of a 9 year old who has Paranoid Schizophrenia as well as Autism, I am going to keep things a short as possible, if there is anything else you?d like to know don?t hesitate to ask me but for now I will just give you some examples of his behaviour
His Schizophrenia (A few examples)
Pacing up and down with his hands behind is back mumbling to himself
Whispering to himself
Conversations with himself (but he is always fully alert, if I call him or speak to him he will answer immediately)
Bizarre thoughts and beliefs, the belief he has at the moment is that the devil is coming for him at night (sent from my fiancé, my daughters Dad who he believes works for the devil ? due to this thought my fiancé is living somewhere else) my son is also not sleeping at night.
Voices telling him to harm himself and others, including me (which he is acted on in the past) he has also reported of them telling him that he is stupid and bad (whenever he hears these voices he hits himself in his head with the palm of his hands in order to try and get rid of them) whenever they tell him to harm his sister he will come and tell me straight away, he tells me that he does love her but is scared to go next to her because she has done nothing wrong and she is small.
In terms of medication
He has been on numerous anti-psychotic medications, which have never completely stopped what is going on in his head, he is currently on a medication caused (Quetiapine also known as Seroquel) I was sceptical of giving it to him at first after hearing his Psychiatrist tell me that he doesn?t usually prescribe it to children under the age of 13 whom are suffering from Schizophrenia but it is one of the most effective drugs he prescribed a dose of 25mg with instructions to give it twice a day, once in the morning and once before bed, his morning dose was putting him straight back to sleep and when he did wake he would be drowsy for the whole day, I called and notified the Psychiatrist about the effect it was having on him, and I was told to half the tablet in order to lower his dose to 12.5mg, which he just making him drowsy and dribble, I have to wait other 3 weeks to see the Psychiatrist. again.
CAMHS have offered a lot of support, but I feel as if they think the answer to his Mental Illness is to admit him into hospital, he has been in hospital 4 times this year and each time it has not helped him one bit, they have allocated him a care-coordinator and she is also very helpful.
His Autism (A few examples)
Showering and changing his clothes 4 times a day.
Bed covers have to be changed every day
He eats the same food every single day for breakfast lunch and dinner and none of the foods can be touching one another (Melon Slice for breakfast, two crab sticks sliced into four pieces and 2 and a half green runner beans, for dinner, none of these can be touching one another)
He will look around the house for things to clean.
I gave birth to him a 6 days after my 17th birthday, his father was my first ever partner we were together for 4 months before I got pregnant, a few days before I found out I was going to leave him but I didn?t have it inside me to tell him, I was weak and very scared of what is reaction would be, then I found out I was pregnant the thought of aborting my unborn child never crossed my mind I was going to face up to my responsibility, I told his father that I was carrying his baby, he was happy I had this dream that me and him would now be happy together, I broke up with him when my son was 3 months old, he said he wants to be in his life and he will always be there for him. To cut a long story short as soon he realised that my son was a little different from other children his age he stopped visiting as much, when he was diagnosed with Paranoid Schizophrenia 3 years ago, him and his family cut of all contact with my son, his Fathers words were ?when he is better call me?
My son has said to me ?He doesn?t want to see me because I am like this? he is a very intelligent boy with a high IQ, he is forever apologising to me, he will say things like ?I am sorry I am like this?, ?I am sorry that I am not like everyone else?, ?I am sorry I can?t do the things that everyone else does?. It hurts me the most when he says things like ?I want to die?, ?I wish I was dead?, ?can you ask them to kill me so you can be happy?
You can call me a horrible parent but I don?t take him out much due to the comments I hear from members of the public which mostly come from adults who I didn?t think could be so horrible ?Is he talking to himself??, ?he should be in hospital?, ?he is not well?. It is very unfair on my daughter that we don?t go out much and she does tend to ask questions about her brother and I just don?t know how to answer them.
There are days when things do get really hard for me, and I say to myself that I wish I aborted him but I quickly shake that thought out of my head, that thought should never ever come into my head. I love him he is very special and I do have faith that he will get better.
I am hitting rock bottom at the moment, but I am doing everything to stop myself.
My mum supports the both of us, my friends do support me over the phone, they never ever want to meet up, and one has even said to me ?I don?t think you should bring him here, I?m scared and I don?t want him scaring the kids?
Is there anyone here that can give me some help and advice?
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MNHQ have commented on this thread
Mental health
9 year old with paranoid schizophrenia and autism
HopeAndFaith86 · 21/08/2013 10:41
If anyone is doubting if this thread is real or not, please report to mnhq, do NOT post your doubts on here. It is not helping and could actually push someone over the edge 
Hope I'm so sorry things are so bad at the moment. Ignore those ignorant posters doubting you. I think people are more amazed that the system lets down children so badly, but as you can see others have been through the same (like Wet with her ds).
I'm sorry your son isn't doing any better. Do you think it could be a case of misdiagnosis? If not, I think you should still follow Wets advice as she has been through very similar.
It seems you need an advocate, someone strong to really help you. Could your fiancée step up more and be by your side? Does he know you've been suicidal?
I really think you should see your gp for help to get through this tough time. They can help.
Ill pop back on in a bit x
Hi H&F
We're not doubting you - we are just doubting that the correct diagnosis has been made.
The person who said it was scandalous meant that it was a scandalous situation that you are being forced to endure. Not anything that you have done - but what is being done to you.
You wrote: "I came on here for help and in search to find mothers that are experiencing the same with their child or similar"
Well you succeeded in your goal because I have indeed been through exactly what you have been through. The emotions I feel about it are still very raw a decade later (hence on the spelling mistakes above as I thumped the keyboard typing it 
)
Nobody has suggested you are not a good parent - quite the reverse. You have everyone's support but for some reason you are focusing on the negative.
You've read my detailed account of how I got us out of a similar mess.
You've got all the contact details you need to strat making a fuss.
You've got the opinions of many here who work in mnetal health services and are telling you first hand that they think your son should be re-assessed.
Unfortunately it also needs you to drive the reassessment by checking that a 2nd opinion is actually being sought, reminding them to do so, insisting that you are involved and checking that whoever they refer your DS to is actually a real specialist.
If he isn't sleeping they should be giving him Melatonin and not Zopliclone.
I was going to write that that is yet another example of poor care but if I did that you'll start to think I disbelieve you again. I do believe you. But we also need to be able to state where we think they are going wrong in order to point out to you how badly we think he is being treated - with you thinking it's a personal attack on you. Which it is not.
So I need to say that when I was going through all this, yes, I was in absolute despair, as you can imagine. I would be working all day and spending the evenings frantically researching and writing letters. I often didn't get to bed until 1-2am. I was totally knackered and I cried a lot. I lost a couple of stone in weight as eating made me feel sick and at one stage I had to hold onto objects to stand up as I felt very dizzy at times through lack of food.
But not once did I feel suicidal Not once. I was angry. Very, very angry indeed and I knew that I had to stay strong for DS as no other bugger seemed to care. Suicide would have been leaving him with a misdiagnosis that could have stayed with him for the rest of his life.
So get any silly ideas of suicide out of your mind right now.
I hope you will copy down the contact details and recommendations for 2nd opinions that I and the other posters gave you.
I feel that I shared far too much information than I feel comfortable with in my hope that you could see just how driven someone has to be able to overcome the 'system'.
I shall probably ask MN to delete those posts in a few day's time.
Hope I am sorry but I have no useful advice. I just want to say I think you're absolutely amazing. I can't imagine what you're going through and I hope to God that this dreadful situation gets sorted out. You said in one of you're earlier posts that you are not a 'strong' person. I disagree. Many many people would have thrown in the towel years ago. You have my respect. Best of luck, 
(and for your Mum too)
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