Hi, I am a father of a 16-year-old teenage daughter. She is officially supposed to be in year 11, but she has barely been attending school for the last 3 years. She is an only child, and she has had, in relative terms, a fairly comfortable life. Before the age of 12/13, she did not show any autistic symptoms that we, as parents, teachers, her cousins or anyone else, noticed. She always struggled with friends.
She is the quiet type of autistic child, but at home, she is not quiet. She is not violent, and she does not swear, so most adults, and even professionals, struggle to pinpoint her issues as he comes across as a very polite, well-mannered teenager. And this is part of the problem; her issues are very deceptive, and as she wants people to like her, she presents as someone very together.
During the lockdown time, she started having issues concentrating. From there on, it has been a 0 to 100mph in less than 3 years. She has been in hospital at least 5 times, on two occasions for 2 weeks at a time. She was officially diagnosed as autistic about 6 months ago - so very late, which I believe is more common with girls. However, they suspected she was autistic for at least 1-2 years now. She has been seeing CAMHS on an almost weekly basis for about a year or more. She has been in a mental health facility, initially as a day patient, since October 2023. For the last 2-weeks, she has been a residential patient there because she cut her wrist, and she is adamant about ending her life. In short, since engaging with mental health services, her issues have been escalating.
She is our only child. She was at the top of her class, very academic and had high ambitions - which was all her, not us. She has now completely given up on life. Before you ask, no major trauma has happened in our family or her life that we can think of. We have thought of every possibility, from boys to sexual abuse and anything in between. Unless she tells us something or we see some evidence of something, we are lost. I have installed cameras inside my home in the communal areas for safety reasons. It is just the 3 of us at home, mum, daughter and me.
We live in London, and we are considering moving somewhere rural - for her as she likes the countryside. We have even considered moving abroad, somewhere like Portugal. However, we know that living with her is draining. Plus, there are limited mental health facilities in rural areas. You have to consider everything in situations like this. We also have to hide everything when she is home, from handwashing liquid to floss, because she can use almost anything to do self-harm. For me, the mental health services have been shockingly bad. At the same time, I accept that it's not easy to solve these things.
However, I will have a decision to make in the next 6-12 months, which makes me feel like a terrible parent. If she is not stable enough and her attempts don't stop, it will drain me and my wife - further. If we are not well and stable, then we cannot be there for her. We are already severely depressed. It is highly unlikely the NHS will consider a residential home for her - that is the feeling I get because she has supportive parents. So, what are we to do next? Because she is being released home next week. We took her out to a restaurant last night, and she made it fairly clear that she wants to end her life whenever she gets an opportunity. I am going to relay this message, but I am sure it won't change the plans set by the mental health team.
I would welcome any advice from parents with any knowledge or experience with mental health issues. Thank you.
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Child mental health
Autistic teenager multiple suicide attempts, what to do
RyanLondon · 28/01/2024 15:52
divingworldchampion · 28/01/2024 16:18
I am so sorry you are all going through this it is horrendous. I have a very similar story to you so I have every sympathy in the world. Our daughter is now almost 18 and things are so much better. I want you to have hope.
Our daughter too was very suicidal and did overdose and run off from school, we found her on the railway line. These things never leave you they are so traumatic.
We were desperate and so took her to see a private clinical psychiatric who prescribed her anti depressants (sertraline). Camhs were totally reluctant to do this but we felt at that point we had zero other options left.
The combination of this and leaving school had had a massively positive effect on her. I would definitely consider antidepressants if I were you. I wish you nothing but good luck.
lavenderlou · 28/01/2024 16:21
Sorry to hear this. Severe anxiety and mental health struggles are sadly common in autistic girls. If you join the Autistic Girls network Facebook group there are people on there who may have had similar experience and can offer advice.
BeethovenNinth · 28/01/2024 16:26
We have been through hell with our daughter since lockdown. We have had self harm and anorexia. No help as we are in Scotland and cahms is broken.
christ, I feel for you. I know how you feel. It’s utterly horrific
can I suggest some left field stuff at this stage? In utter desperation, I used the ketogenic diet with my daughter to get her over a non eating depression hump. She agreed to it. It worked amazingly. (She did it two weeks and her mood picked up). Have a look at some of the studies on keto for brain health and MH issues and discuss with her psychiatrist - you have nothing to lose.
I would also see a really decent nutritionist who can help with some basic like in depth blood tests, check some micronutrients, help with DHA levels etc. even checking her vitamin D level and supplementing.
my daughter is doing well just now. It’s been incredibly tough but there is light - I promise
Pugdays · 28/01/2024 16:27
I was diagnosed autistic age 50 ,as a teenager I had 2 fairy significant suicide attempts, resulting in a hospital stay both times .
Mine was down to bullying at school ,and my parents being selfish nasty people.
Once I got to college and studying the course of my choice ,I didn't have to try to kill myself,I was busy ,I got a part time job ,I made friends..so my life was full.
My advice,is get her doing her education on line ..
School is horrendous when your autistic,every fucker bullies you .
If you haven't got a core group your fair game all round .
I'd not attempt to get her back in school ,if she's under 16 ,home educate her or look at on line learning, apply for EHCP for on line learning to be paid for .
Look at alternative provisions,horse therapy ,or animal therapy
Go to your local LEA web site and look up alternative provisions,then try to get funding
She needs to be busy ,she needs friends,she needs hobbies ,
She needs a life away from being a residential patient,she needs to be busy
She needs something to want to get up for each day ..untill she has a normal life again.
A puppy ,or rabbit or kitten, something she could look forward to choosing when she gets home , something that needs her to care for it ,and look after it ,walk it for exercise... something that is hers to love and be loved by .
And that pet becomes the focus of the family to talk about ,not her mental health...that's your first step back to normal ...then education,home ed or on line ,look at college courses ..look to her future,talk about ,when you get to uni ,when you get to college,what course could she do ..
Keep focusing on the future,
Good luck
Hellenbach · 28/01/2024 16:28
Is here any kind of pattern to the behaviour? I ask because I work with teenage girls, some with ASD, who do experience worse symptoms when in the middle of their menstrual cycle.
It's worth thinking about PMDD.
www.mind.org.uk/information-support/types-of-mental-health-problems/premenstrual-dysphoric-disorder-pmdd/about-pmdd/
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