All new deluxe reflux support thread

[buttonmoon78]

Welcome one and all!

[lem31]

My baby just been prescribed infant gaviscon. Di I give it to him every feed anyone know?

Thanks

[Neverending2012]

5 month Ds has severe silent reflux, on omaprazole domperidone and neocate formula. Was failure to thrive at 10 weeks and hospitalised. Tongue tie, loads of tests, MRI, echo barium swallow, cried for 75 percent of the time for months and never slept , back arching when feeding. We fed him with an NG tube for months - until 3 weeks ago. Exhausted and at the end of my tether.

[Stacks]

Can I join in too? I'm fairly sure my DS (5months) has SR. You can see it through the day when he brings stuff up to his throat/mouth before swallowing it back down while grimacing. I was lucky in that he did it in front of a nice dr, so we got a referral to peads and now an appointment on Thursday.
My biggest problem just now is the poor sleep, he's up every 1-2 hours through the night, and feeds every 2-3 hours through the day. He also gets very mucousy has a cough overnight, both of which clear up through the day.

[JiltedJohnsJulie]

Kell not read the whole thread so everyone is welcome to tell me to but out, but just wondered if you'd read this on the milk matters website and if any of it sounds familiar?

[JiltedJohnsJulie]

Just wondered if any of you lovely MNers could help summer on this thread. Think she is desperate.

[ratbagcatbag]

Weston - went in

[ratbagcatbag]

I just went to my dr, said you either sort dd or you'll end up treating both of us, I cannot cope on 2hrs sleep per day, I'd seen a paed within four days. I did cry a bit in there and I was quite demanding vocal in wht I wanted. I sort of Weston with "right, gaviscon from a and e not working, I know you can give ranitidine or losec, which will it be?" My drs can't prescribe either which is why I got paed referral in days :)

[aldeburgh]

Agree abou t pushing Dr.... Though your best trying to get a younger gp one who has children and/or an interest in them. I know nothing is guaranteed but hedgeyour bets kellestar

Ratbag ...wind def an issue. here. Lactation consultation monday to help assess feeding. Dr prescribed gaviscon first which was a real faff after a breast feed.... Putting it in her bottle sidnt seem to help so we stopped. Now trialling ranitidine but a week in and we think she may be more unsettled.
When you are trying so many things it is hard to know where you are.

How are you all?

[ratbagcatbag]

Hiya kellestar, weight gain is just one thing they should look at for reflux, my dd fed for comfort so no issue with weight gain, didnt stop her screaming after feeds and fighting the bottle. Push for help with drs.

Aldeburgh. Have you been to drs? I've also changed formula to a comfort one which has helped and dr browns bottles, I was finding trapped wind was making it far far worse, the bottles have alliviated most of that so less screaming and discomfort.

[aldeburgh]

Can i join too??? Dd2 7 weeks is suffering with silent reflux and i am exhausted and don't know which way is up!!

[KelleStar]

Ooo could do with some advice, DS is only 12 days old, but I think he has SR... Possibly. He hurps a lot but not often sick, lots of grunting and gulping noises when led down on back. BF is quick, my let down is forceful and a little overwhelming for him, but he drains the boob in about 10-20 mins, usually takes 1 boob per session, and roughly 3 hours between feeds. He is hard to burp, does lots of farting and loud explosive poos that honk. But he isn't fussing as such. Oh and he had gained 10.5oz in the first 10 days...

MW's told me no, i have first HV appointment tomorrow, scared to mention it as DD ended up over monitored for being bottom centile for weight, though she followed that line for the last 2.5y. Don't want DS to go down same route.

[bonzo77]

Hi. Can I join? I'm fairly certain that DS2 5 months has silent reflux. GP and I reached that conclusion as although he rarely vomits (maybe 3-4 times in first month and none since), he bobbed on and off the bottle, screamed and arched his back during feeds. Sometimes between feeds he does a hiccupy burp and brings a little something up, pulls a face and cries but nothing actually comes out his mouth.

Anyway, gaviscon helped, comfort formula helped a bit more, ditto adding in domperidone (I think) and definitely ranitidine. All this from the GP, though he's under a paed occasionally as he was a bit prem and they follow them up.

Oh, epic post... Anyway, 6 days into the ranitidine he's the best he's been, though still a bit fussy when fed when tired, though who wouldn't be?

So I guess weaning is on the horizon. I've been putting it off despite the paed suggesting starting at 17 weeks. Any tips? He's so different to DS1 who though not very interested in feeding just did normal possetting and was happy when he did feed.

[ratbagcatbag]

Hi cupcake - seems not many are around. Ill start anew thread tomorrow (or tonight at 2am ;) ) as I know there are definitely people around.

Sounds like you're having a tough time, were already on formula but still difficult to manage :(

[Cupcakemummy85]

Can I join this thread if its still going. My dd has reflux and cmpi and I'm ebf her. I have the formula ready to give her if she would take it but she won't :( everyone keeps saying carry on breastfeeding but I'm basically on water at the moment. Not sure what to do. It's been a tough 3 months.

[ratbagcatbag]

Is anyone still around from this thread or has it gone to zombie land? Just onas dealing with reflux and its bloody hard :(

[TruthSweet]

A a good few years ago it was so difficult to get anywhere with finding any information on reflux, let alone a reflux diagnosis! I ended up on US websites trying to track down what the heck was wrong with my DD and why was no one would help me apart to suggest there was something wrong with my milk and to switch to ffing.

[Passmethecrisps]

I had wondered about that actually. I cried when I googled the symptoms and stares reading about people's experiences. Some people were waiting months for any treatment and LOs were developing long-term food aversions. I was so set for a battle - they must have wondered what was wrong with me!

[YellowWellies]

Docs up here seem much more au fait with reflux than those south - I wonder why?

[Passmethecrisps]

Lol at 'Herbert's tadger'

We are YW

[YellowWellies]

:D haha I bet they love seeing P compared to some spotty little herbert's infected tadger - think of it as doing the GP a favour!

Are you in Scotland pass?

[Passmethecrisps]

For sure. Our GP is based on a uni campus - must make a change from STIs and glandular fever

[YellowWellies]

Fingers crossed for a nicer year truth and m'eh at least us and our babies make a nice change for the GPs from hoards of pensioners!

[TruthSweet]

Thanks Pass - 1st appt of the New Year is tomorrow though, then one on Tuesday & one on Thursday Start as you mean to go on eh?

I got terribly patronised when DD1 had reflux (nearly 7y ago when reflux was a bit unknown) - DD1 could vomit like you were pouring milk out a jug & fed for 1h 45m every 2h at her worst point. I kept being told 'But babies do posset, Mrs Sweet' It wasn't until she started losing weight anyone took me seriously. Prior to that I was considered neurotic.

By that point though DD1 looked like a famine victim - you could see her ribs, she had a bloated belly, little spindly legs/arms, and a bobble head - she still fitted in NB clothes by width if not length (she was approaching 4m at the time & had been 7lb 12oz at birth) and had dropped from 75th%ile to 2nd%ile yet she was between 75th-91st%ile for height!

I am very glad this time round I had a different GP & they took me at my word that she had reflux at 2w & didn't even insist on infant gaviscon before trying domperidone.

[Passmethecrisps]

Crickey truth! Fingers crossed you and your children get as healthy a year as possible.

I did hear about a couple whose baby had silent reflux. They were both GPs and took there LO to the hospital due to breathing problems caused by the reflux. They took him so often and were not taken seriously to the point where they were branded 'problem parents'

I thank our lucky stars that our GP is on the ball and doesn't mind my googling

[TruthSweet]

I always seem to get the same GP each time I call up 'Hello Dr XX, it's Mrs Sweet again, I'm calling about my daughter', 'Which one?'.....

All 4 of them (and me) have health problems (nothing serious like a heart condition or liver failure!) that seem to mean 40,000 medical appts - last year we saw physiotherapists, SALT, Paeds. ENT cons., Paeds. cons. for 2 DDs, Paeds. Audiologists for 2 DDs, Paeds. phlebotomist, eczema/asthma nurse, dermatology nurse, dietician, neurologist (me), A&E/ambulances for asthma attacks/bronchiolitis/seizures, admittances for asthma attacks. I'm not even going to go into how many appts I had for DD4's pg.

This year I am wishing for a hospital free year (but as that isn't going to happen as few appts as possible!)